Library / Laws / 113th / s / S. 237 / Introduced in Senate
II
113th CONGRESS
1st Session
S. 237
IN THE SENATE OF THE UNITED STATES
February 7, 2013
Ms. Murkowski (for
herself, Mr. Johnson of South Dakota, and
Mr. Begich) introduced the following
bill; which was read twice and referred to the
Committee on Health, Education, Labor,
and Pensions
A BILL
To amend the Public Health Service Act to reauthorize and
extend the Fetal Alcohol Syndrome prevention and services program, and for
other purposes.
1.
Short
title
This Act may be cited as
the Advancing FASD Research,
Prevention, and Services Act.
2.
Findings
Congress makes the following
findings:
(1) Fetal Alcohol
Spectrum Disorders (FASD) are the spectrum of serious, life-long disorders
caused by prenatal exposure to alcohol, which include Fetal Alcohol Syndrome,
Alcohol-Related Neurodevelopmental Disorder, and Alcohol-Related Birth
Defects.
(2) In the decades
that have passed since Fetal Alcohol Syndrome was first recognized in the
United States, this fully preventable condition has continued to affect
American children and families.
(3) Prenatal alcohol
exposure can cause brain damage that produces cognitive and behavioral
impairments. Prenatal alcohol exposure can cause intellectual disabilities or
low IQ and difficulties with learning, memory, attention, and problem solving.
It can also create problems with executive functioning and adaptive behavior
that impairs mental health and social interaction. Prenatal alcohol exposure
does not always result in below average IQ or visible birth defects, which
makes Fetal Alcohol Spectrum Disorders difficult to identify, leading to
improper treatment or denial of support services.
(4) Prenatal alcohol
exposure also can cause growth retardation, birth defects involving the heart,
kidney, vision and hearing, and a characteristic pattern of facial
abnormalities. Prenatal alcohol exposure can also result in secondary
behavioral characteristics that may include mental health disorders and
learning and behavioral problems resulting in disrupted school experience,
trouble with the law, incarceration, inappropriate sexual behavior, alcohol or
drug problems, dependent living, and problems with employment.
(5) According to the
Substance Abuse and Mental Health Services Administration, more than 1 in 5
women report drinking alcohol in the first trimester of pregnancy, 1 in 14 in
the second trimester, and 1 in 20 in the third trimester, even though there is
no known safe level of alcohol consumption during pregnancy.
(6) The incidence
rate for all Fetal Alcohol Spectrum Disorders is estimated in a publication of
the National Institute on Alcohol Abuse and Alcoholism to be about 10 out of
1,000 births (1 percent of births) or 40,000 newborns each year. It is
estimated that as many as 2 per 1,000, or 20 percent of alcohol exposed
newborns, have Fetal Alcohol Syndrome, the most serious and identifiable of the
Fetal Alcohol Spectrum Disorders.
(7) As measured by
the Fetal Alcohol Syndrome Surveillance Network, a partnership between the
Centers for Disease Control and Prevention and 5 different States, prevalence
of Fetal Alcohol Spectrum Disorders can be even higher in certain populations,
such as American Indians and Alaska Natives, foster care children, adoptive
children from the United States and from countries where alcohol consumption is
more prevalent, and in certain areas, such as those characterized by low
socioeconomic status.
(8) Fetal Alcohol
Spectrum Disorders pose extraordinary financial costs to the Nation, including
the cost of specialized health care, education, foster care, incarceration, job
training, and general support services for individuals affected by Fetal
Alcohol Spectrum Disorders.
(9) Lifetime health
costs for an individual with Fetal Alcohol Syndrome ranges from $860,000 to
$4,000,000. The cost of Fetal Alcohol Syndrome in the United States is
estimated to be at least $6,000,000,000 in 2007. Total economic costs would be
even higher for all Fetal Alcohol Spectrum Disorders.
(10) There is a great
need for research, surveillance, prevention, treatment, and support services
for individuals with Fetal Alcohol Spectrum Disorders and their
families.
(11) The National
Institutes of Health, in coordination with other Federal agencies, the
Interagency Coordinating Committee on Fetal Alcohol Syndrome, and the National
Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect, has an
opportunity to advance research on Fetal Alcohol Spectrum Disorders in many
areas, including the following:
(A) The
identification of the mechanisms that produce the cognitive and behavioral
problems associated with fetal alcohol exposure.
(B) The
identification of a neurocognitive and neurobehavioral phenotype for prenatal
alcohol-related conditions other than Fetal Alcohol Syndrome.
(C) The
identification of biological markers that can be used to indicate fetal alcohol
exposure.
(D) The
identification of fetal and maternal risk factors that increase susceptibility
to Fetal Alcohol Spectrum Disorders.
(E) The investigation
of behavioral and pharmacotherapies for alcohol-dependent women to determine
new approaches for sustaining recovery.
(F) The development
of scientific-based pharmacologic and nutrient augmentation-based pre- and
post-natal interventions to antagonize or mitigate the effects of prenatal
alcohol exposure.
(G) The development
of neurocognitive interventions to address deficits in neurocognitive function
for individuals with Fetal Alcohol Spectrum Disorders.
(H) The development
of standards for measuring, reporting, and analyzing alcohol consumption
patterns in pregnant women.
(I) The development
of enhanced technological approaches for the diagnosis of Fetal Alcohol
Spectrum Disorders including investigation of prenatal ultrasound, non-invasive
imaging, three-dimensional facial feature imaging and their application in
telemedicine to aid in remote diagnosis.
(J) The evaluation of
the role of alcohol in Sudden Infant Death Syndrome (SIDS), unexplained
stillbirth, and premature birth.
(K) The collection
and banking of biomaterials for future analyses to aid in the identification of
genetic and other biological and environmental risk factors contributing in the
development of Fetal Alcohol Spectrum Disorders.
(L) The
identification of barriers to implementing alcohol screening in primary care
and obstetric practice, and explore the acceptability of new screening
technologies, such as computer assisted interviewing.
(M) The development
of approaches for selected and indicated prevention, to decrease the potential
for FASD births among the women at greatest risk for these disorders.
3.
Programs for
fetal alcohol spectrum disorders
Section 399H of the Public Health Service
Act (42 U.S.C. 280f) is amended—
(1) by striking the
section heading and inserting the following: SEC. 399H. PROGRAMS FOR FETAL ALCOHOL SPECTRUM
DISORDERS.;
(2) by redesignating
subsections (a) through (d) as subsections (h) through (k),
respectively;
(3) by inserting
after the section heading, the following:
(a)
Research on FAS
and related disorders
(1)
In
general
The Secretary, acting through the Director of the
National Institutes of Health and in coordination with the Interagency
Coordinating Committee on Fetal Alcohol Syndrome, shall—
(A) establish a
research agenda for Fetal Alcohol Spectrum Disorders; and
(B) award grants,
contracts, or cooperative agreements to public or private nonprofit entities to
pay all or part of carrying out research under such agenda.
(2)
Types of
research
In carrying out paragraph (1), the Secretary, acting
through the Director of the National Institute of Alcohol Abuse and Alcoholism,
shall continue to conduct and expand national and international research in
coordination with other Federal agencies that includes—
(A) the most
promising avenues of research in Fetal Alcohol Spectrum Disorder diagnosis,
intervention, and prevention;
(B) factors that may
mitigate the effects of fetal alcohol exposure; and
(C) other research
that the Director determines to be appropriate.
(3)
Authorization
of appropriations
There are authorized to be appropriated to
carry out this subsection, such sums as may be necessary for each of fiscal
years 2014 through 2018.
(b)
Surveillance,
public health research, and prevention activities
(1)
In
general
The Secretary, acting through the Director of the
National Center on Birth Defects and Developmental Disabilities, shall
facilitate surveillance, public health research, and prevention of Fetal
Alcohol Spectrum Disorders as provided for in this subsection.
(2)
Surveillance,
public health research, and prevention
In carrying out this
subsection, the Secretary shall—
(A) integrate into
clinical practice the standard case definition for diagnosis of Fetal Alcohol
Syndrome and, in collaboration with the National Institute on Alcohol Abuse and
Alcoholism, the Centers for Disease Control and Prevention, researchers, and
experts in the field, develop a standard clinical case definition for
diagnostic guidelines and criteria for prenatal alcohol-related conditions
other than Fetal Alcohol Syndrome;
(B) conduct applied
public health prevention research to identify evidence-based strategies for
reducing alcohol-exposed pregnancies in women at high risk for alcohol-exposed
pregnancies;
(C) disseminate and
provide the necessary training and support to implement evidence-based
strategies developed under subparagraph (A) to—
(i) hospitals,
federally qualified health centers, outpatient programs, and other appropriate
health care providers;
(ii) incarceration,
detainment facilities, and other judicial systems for juveniles and
adults;
(iii) educational
settings;
(iv) social work and
child welfare offices;
(v) foster care
providers and adoption agencies;
(vi) State offices
and others providing services to individuals with disabilities;
(vii) alcoholism
treatment facilities; and
(viii) other entities
that the Secretary determines to be appropriate;
(D) conduct
activities related to risk factor surveillance including the biannual
monitoring and reporting of alcohol consumption among pregnant women and women
of child bearing age; and
(E) disseminate and
evaluate brief behavioral intervention strategies aimed at preventing
alcohol-exposed pregnancies among women of childbearing age in special
settings, including clinical primary health centers, outpatient clinics, and
jail and recovery campuses.
(3)
Authorization
of appropriations
There are authorized to be appropriated to
carry out this subsection, such sums as may be necessary for each of fiscal
years 2014 through 2018.
(c)
Building State
FASD systems
(1)
In
general
The Secretary, acting through the Administrator of the
Substance Abuse and Mental Health Services Administration, shall award grants,
contracts, or cooperative agreements to States for the purpose of establishing
or expanding statewide programs of surveillance, prevention, and clinical
intervention for individuals with Fetal Alcohol Spectrum Disorders.
(2)
Eligibility
To
be eligible to receive a grant, contract, or cooperative agreement under
paragraph (1) a State shall—
(A) prepare and
submit to the Secretary an application at such time, in such manner, and
containing such information as the Secretary may reasonably require;
(B) develop and
implement a statewide strategic plan for preventing Fetal Alcohol Spectrum
Disorders and clinical intervention for individuals with Fetal Alcohol Spectrum
Disorders;
(C) consult with
public and private non-profit entities with relevant expertise on Fetal Alcohol
Spectrum Disorders within the State, including—
(i) parent-led groups
and other organizations that support and advocate for individuals with Fetal
Alcohol Spectrum Disorders; and
(ii) Indian tribes
and tribal organizations; and
(D) designate an
individual to serve as the coordinator of the State's Fetal Alcohol Spectrum
Disorders program.
(3)
Strategic
plan
The statewide strategic plan prepared under paragraph (2)(B)
shall include—
(A) the
identification of existing State programs and systems that could be used to
identify and assist individuals with Fetal Alcohol Spectrum Disorders and
prevent alcohol consumption during pregnancy, such as—
(i) programs for the
developmentally disabled, the mentally ill, and individuals with alcohol
dependency;
(ii) educational
settings;
(iii) incarceration,
detention centers, and judicial systems for juveniles and adults;
(iv) child welfare
programs and social service programs; and
(v) other programs or
systems the State determines to be appropriate;
(B) the
identification of any barriers for individuals with Fetal Alcohol Spectrum
Disorders or women at risk for alcohol consumption during pregnancy to access
the programs identified under subparagraph (A); and
(C) proposals to
eliminate barriers to prevention and treatment programs and coordinate the
activities of such programs.
(4)
Use of
funds
Amounts received under a grant, contract, or cooperative
agreement under paragraph (1) shall be used for 1 or more of the following
activities:
(A) Establishing a
statewide surveillance system.
(B) Collecting,
analyzing, and interpreting data.
(C) Establishing a
diagnostic center.
(D) Developing,
implementing, and evaluating population-based and targeted prevention programs
for Fetal Alcohol Spectrum Disorders, including public awareness
campaigns.
(E) Referring
individuals with Fetal Alcohol Spectrum Disorders to appropriate support
services.
(F) Implementing
recommendations from relevant agencies and organizations on the identification
and prevention of Fetal Alcohol Spectrum Disorders, and clinical intervention
for individuals with Fetal Alcohol Spectrum Disorders.
(G) Providing
training to health care providers on the prevention, identification, and
treatment of Fetal Alcohol Spectrum Disorders.
(H) Disseminating
information about Fetal Alcohol Spectrum Disorders and the availability of
support services to families of individuals with Fetal Alcohol Spectrum
Disorders.
(I) Other activities
determined appropriate by the Secretary.
(5)
Multi-State
programs
The Secretary shall permit the formation of multi-State
Fetal Alcohol Spectrum Disorders programs under this subsection.
(6)
Other contracts
and agreements
A State may carry out activities under paragraph
(4) through contracts or cooperative agreements with public and private
non-profit entities with a demonstrated expertise in Fetal Alcohol Spectrum
Disorders.
(7)
Authorization
of appropriations
There are authorized to be appropriated to
carry out this subsection, such sums as may be necessary for fiscal years 2014
through 2018.
(d)
Promoting
community partnerships
(1)
In
general
The Secretary shall award grants, contracts, or
cooperative agreements to eligible entities to enable such entities to
establish, enhance, or improve community partnerships for the purpose of
collaborating on common objectives and integrating the services available to
individuals with Fetal Alcohol Spectrum Disorders, such as surveillance,
prevention, treatment, and provision of support services.
(2)
Eligible
entities
To be eligible to receive a grant, contract, or
cooperative agreement under paragraph (1), an entity shall—
(A) be a public or
private nonprofit entity, including—
(i) a
health care provider or health professional;
(ii) a primary or
secondary school;
(iii) a social work
or child welfare office;
(iv) an
incarceration, detainment facility, or judicial systems for juveniles and
adults;
(v) a
parent-led group or other organization that supports and advocates for
individuals with Fetal Alcohol Spectrum Disorders;
(vi) an Indian tribe
or tribal organization;
(vii) any other
entity the Secretary determines to be appropriate; or
(viii) a consortium
of any of the entities described in clauses (i) through (vii); and
(B) prepare and
submit to the Secretary an application at such time, in such manner, and
containing such information as the Secretary may reasonably require, including
assurances that the entity submitting the application does, at the time of
application, or will, within a reasonable amount of time from the date of
application, include substantive participation of a broad range of entities
that work with or provide services for individuals with Fetal Alcohol Spectrum
Disorders.
(3)
Activities
An
eligible entity shall use amounts received under a grant, contract, or
cooperative agreement under this subsection shall carry out 1 or more of the
following activities:
(A) Integrating Fetal
Alcohol Spectrum Disorders services into existing programs and services
available in the community.
(B) Conducting a
needs assessment to identify services that are not available in a
community.
(C) Developing and
implementing community-based initiatives to prevent, diagnose, treat, and
provide support services to individuals with Fetal Alcohol Spectrum
Disorders.
(D) Disseminating
information about Fetal Alcohol Spectrum Disorders and the availability of
support services.
(E) Developing and
implementing a community-wide public awareness and outreach campaign focusing
on the dangers of drinking alcohol while pregnant.
(F) Providing
mentoring or other support to families of individuals with Fetal Alcohol
Spectrum Disorders.
(G) Other activities
determined appropriate by the Secretary.
(4)
Authorization
of appropriations
There are authorized to be appropriated to
carry out this subsection, such sums as may be necessary for each of fiscal
years 2014 through 2018.
(e)
Development of
best practices
(1)
In
general
The Secretary, in coordination with the Administrator of
the Substance Abuse and Mental Health Services Administration, shall award
grants to States, Indian tribes and tribal organizations, and nongovernmental
organizations for the establishment of pilot projects to identify and implement
best practices for—
(A) educating
children with fetal alcohol spectrum disorders, including—
(i) activities and
programs designed specifically for the identification, treatment, and education
of such children; and
(ii) curricula
development and credentialing of teachers, administrators, and social workers
who implement such programs;
(B) educating judges,
attorneys, probation officers, child advocates, law enforcement officers,
prison wardens, alternative incarceration administrators, and incarceration
officials on how to treat and support individuals suffering from Fetal Alcohol
Spectrum Disorders within the criminal justice system, including—
(i) programs designed
specifically for the identification, treatment, and education of those with
Fetal Alcohol Spectrum Disorders; and
(ii) curricula
development and credentialing within the justice system for individuals who
implement such programs; and
(C) educating
adoption or foster care agency officials about available and necessary services
for children with Fetal Alcohol Spectrum Disorders, including—
(i) programs designed
specifically for the identification, treatment, and education of those with
Fetal Alcohol Spectrum Disorders; and
(ii) education and
training for potential parents of an adopted child with Fetal Alcohol Spectrum
Disorders.
(2)
Application
To
be eligible for a grant under paragraph (1), an entity shall prepare and submit
to the Secretary an application at such time, in such manner, and containing
such information as the Secretary may reasonably require.
(3)
Authorization
of appropriations
There are authorized to be appropriated to
carry out this subsection, such sums as may be necessary for each of fiscal
years 2014 through 2018.
(f)
Transitional
services
(1)
In
general
The Secretary shall award demonstration grants,
contracts, and cooperative agreements to States, Indian tribes and tribal
organizations, and nongovernmental organizations for the purpose of
establishing integrated systems for providing transitional services for those
affected by prenatal alcohol exposure and evaluating their
effectiveness.
(2)
Application
To
be eligible for a grant, contract, or cooperative agreement under paragraph
(1), an entity shall prepare and submit to the Secretary an application at such
time, in such manner, and containing such information as the Secretary may
reasonably require, including specific credentials relating to education,
skills, training, and continuing educational requirements relating to Fetal
Alcohol Spectrum Disorders.
(3)
Allowable
uses
An entity shall use amounts received under a grant,
contract, or cooperative agreement under paragraph (1) to—
(A) provide housing
assistance to, or specialized housing for, adults with Fetal Alcohol Spectrum
Disorders;
(B) provide
vocational training and placement services for adults with Fetal Alcohol
Spectrum Disorders;
(C) provide
medication monitoring services for adults with Fetal Alcohol Spectrum
Disorders;
(D) provide training
and support to organizations providing family services or mental health
programs and other organizations that work with adults with Fetal Alcohol
Spectrum Disorders; and
(E) establish and
evaluate housing models specially designed for adults with Fetal Alcohol
Spectrum Disorders.
(4)
Authorization
of appropriations
There are authorized to be appropriated to
carry out this subsection, such sums as may be necessary for each of fiscal
years 2014 through 2018.
(g)
Federally
qualified health center initiative
(1)
In
general
The Secretary, acting through the Administrator of the
Health Resources and Services Administration, shall award grants to federally
qualified health centers acting in collaboration with States, Indian tribes,
tribal organizations, and nongovernmental organizations, for the establishment
of a 5-year demonstration program to implement and evaluate a program to
increase the awareness and identification of Fetal Alcohol Spectrum Disorders
in federally qualified health centers and to refer affected individuals to
appropriate support services.
(2)
Application
To
be eligible to receive a grant under paragraph (1), a federally qualified
health center, or a State, Indian tribe, tribal organization, or nongovernment
organization with a demonstrated record of implementing Fetal Alcohol Spectrum
Disorders programming in federally qualified health centers, shall prepare and
submit to the Administrator an application at such time, in such manner, and
containing such information as the Administrator may reasonably require.
(3)
Activities
A
federally qualified health center, or other eligible entity, shall use amounts
received under a grant under paragraph (1) to—
(A) provide training
for health care providers on identifying and educating women who are at risk
for alcohol consumption during pregnancy;
(B) provide training
for health care providers on screening children for Fetal Alcohol Spectrum
Disorders;
(C) educate health
care providers and other relevant federally qualified health center workers on
the support services available for those with Fetal Alcohol Spectrum Disorders
and treatment services available for women at risk for alcohol consumption
during pregnancy; and
(D) implement a
tracking system that can identify the rates of Fetal Alcohol Spectrum Disorders
by racial, ethnic, and economic backgrounds.
(4)
Selection of
participants
The Administrator shall determine the number of
federally qualified health centers that will participate in the demonstration
program under this subsection and shall select participants, to the extent
practicable, that are located in different regions of the United States and
that serve a racially and ethnically diverse population.
(5)
Authorization
of appropriations
There are authorized to be appropriated to
carry out this subsection, such sums as may be necessary for each of fiscal
years 2014 through 2018.
(6)
Report to
congress
Not later than 1 year after completion of the
demonstration program under this subsection, the Administrator shall prepare
and submit to Congress a report on the results of the demonstration program,
including—
(A) changes in the
number of women screened for and identified as at risk for alcohol consumption
during pregnancy;
(B) changes in the
number of individuals identified as having a Fetal Alcohol Spectrum Disorder;
and
(C) changes in the
number of alcohol-consuming pregnant women and individuals with Fetal Alcohol
Spectrum Disorders who were referred to appropriate
services.
;
(4) in subsection
(h)(1) (as so redesignated)—
(A) in subparagraph
(C), by striking and after the semicolon;
(B) in subparagraph
(D), by adding and after the semicolon; and
(C) by adding at the
end the following:
(E) national public
service announcements to raise public awareness of the risks associated with
alcohol consumption during pregnancy with the purpose of reducing the
prevalence of Fetal Alcohol Spectrum Disorders, that shall—
(i) be developed,
conducted, and evaluated prior to broadcast by relevant Federal agencies with
the advice of the Interagency Coordinating Committee on Fetal Alcohol Syndrome
taking into consideration the expertise and experience of other relevant
Federal agencies;
(ii) be broadcast
through appropriate media outlets, including the Internet, television or radio,
in a manner intended to reach women at risk of alcohol consumption during
pregnancy; and
(iii) be measured
prior to broadcast of the national public service announcements to provide
baseline data that will be used to evaluate the effectiveness of the
announcements.
;
and
(5) in subsection (k)
(as so redesignated)—
(A) in paragraph (1),
by striking National Task Force on Fetal Alcohol Syndrome and Fetal
Alcohol Effect and inserting National Task Force on Fetal
Alcohol Spectrum Disorders;
(B) in paragraph
(3)—
(i) in
subparagraph (B), by striking and after the semicolon;
(ii) in
subparagraph (C), by striking the period and inserting a semicolon; and
(iii) by adding at
the end the following:
(D) explore the
feasibility of whether Fetal Alcohol Syndrome and other prenatal alcohol
disorders, or a subset of these disorders, should be included in the Diagnostic
and Statistic Manual of Mental Disorders; and
(E) in collaboration
with the National Institute on Alcohol Abuse and Alcoholism, the Centers for
Disease Control and Prevention, researchers, and experts in the field, develop
a standard clinical case definition for diagnostic guideline and criteria for
prenatal alcohol-related conditions other than Fetal Alcohol
Syndrome.
;
and
(C) by striking
Fetal Alcohol Syndrome and Fetal Alcohol Effect each place that
such appears and inserting Fetal Alcohol Spectrum
Disorders.
4.
Coordination
among Federal entities
Part O
of title III of the Public Health Service Act (42 U.S.C. 280f et seq.) is
amended by adding at the end the following:
399K–1.
Coordination
among Federal entities
(a)
Interagency
Coordinating Committee on Fetal Alcohol Syndrome
The Secretary,
acting through the Director of the National Institute on Alcohol Abuse and
Alcoholism, shall provide for the continuation of the Interagency Coordinating
Committee on Fetal Alcohol Syndrome so that such Committee may—
(1) coordinate
activities conducted by the Federal Government on Fetal Alcohol Spectrum
Disorders, including convening meetings, establishing work groups, sharing
information, and facilitating and promoting collaborative projects among
Federal agencies; and
(2) develop, in
consultation with the National Task Force on Fetal Alcohol Spectrum Disorders,
priority areas for years 2013 through 2017 to guide Federal programs and
activities related to Fetal Alcohol Spectrum Disorders.
(b)
Coordination
among Federal entities
(1)
In
general
The Comptroller General of the United States shall
evaluate and make recommendations regarding the appropriate roles and
responsibilities of Federal entities with respect to programs and activities
related to Fetal Alcohol Spectrum Disorders.
(2)
Covered
entities
The Federal entities under paragraph (1) shall include
entities within the National Institutes of Health, the Centers for Disease
Control and Prevention, the Substance Abuse and Mental Health Services
Administration, the Health Resources and Services Administration, the Indian
Health Service, the Agency for Healthcare Research and Quality, the Interagency
Coordinating Committee on Fetal Alcohol Syndrome, the National Task Force on
Fetal Alcohol Spectrum Disorders, as well as the Office of Special Education
and Rehabilitative Services in the Department of Education and the Office of
Juvenile Justice and Delinquency Prevention in the Department of
Justice.
(3)
Evaluation
The
evaluation conducted by the Comptroller General under paragraph (1) shall
include—
(A) an assessment of
the current roles and responsibilities of Federal entities with programs and
activities related to Fetal Alcohol Spectrum Disorders; and
(B) an assessment of
whether there is duplication in programs and activities, conflicting roles and
responsibilities, or lack of coordination among Federal entities.
(4)
Recommendation
The
Comptroller General shall provide recommendations on the appropriate roles and
responsibilities of the Federal entities described in paragraph (2) in order to
maximize the effectiveness of Federal programs and activities related to Fetal
Alcohol Spectrum Disorders.
(5)
Completion
Not
later than 1 year after the date of enactment of the
Advancing FASD Research, Prevention, and
Services Act, the Comptroller General shall complete the
evaluation and submit to Congress a report on the findings and recommendations
made as a result of the
evaluation.
.
5.
Services for
individuals with Fetal Alcohol Spectrum Disorders
Section 519C(b) of the Public Health Service
Act (42 U.S.C. 290bb–25c(b)) is amended—
(1) in paragraph
(11), by striking and after the semicolon;
(2) by redesignating
paragraph (12) as paragraph (15); and
(3) by inserting
after paragraph (11), the following:
(12) provide respite
care for caretakers of individuals with Fetal Alcohol Syndrome and other
prenatal alcohol-related disorders;
(13) recruit and
train mentors for individuals with Fetal Alcohol Syndrome and other prenatal
alcohol-related disorders;
(14) provide
educational and supportive services to families of individuals with Fetal
Alcohol Spectrum Disorders;
and
.
6.
Prevention,
intervention, and services in the education system
(a)
General
Rule
The Secretary of
Education shall be the lead Federal official with responsibility over
education-related issues with respect to children with Fetal Alcohol Spectrum
Disorders.
(b)
Specific
responsibilities
The
Secretary of Education shall direct the Office of Special Education and
Rehabilitative Services to—
(1) conduct and
disseminate training on a nationwide Fetal Alcohol Spectrum Disorders
surveillance campaign to local education agencies and early childhood education
providers in collaboration with the National Center on Birth Defects and
Developmental Disabilities under section 399H(b) of the Public Health Service
Act (as added by this Act);
(2) collect, collate,
and disseminate (through the Internet Web site of the Department of Education,
at teacher-to-teacher workshops, and through other means) evidence-based
practices that are effective in the education and support of children with
Fetal Alcohol Syndrome Disorders, including any special techniques on how to
assist children with Fetal Alcohol Spectrum Disorders, in both special and
traditional educational settings, such practices to incorporate information
concerning the identification, behavioral supports, teaching, and learning
associated with Fetal Alcohol Spectrum Disorders, to—
(A) education groups
such as the National Association of School Boards, the National Education
Association, the American Federation of Teachers, the National Association of
Elementary School Principals, and the National Association of Secondary School
Principals;
(B) 21st Century
Community Learning Center program grantees and other after school program
personnel; and
(C) Parent Teacher
Associations, Parent Information and Training Centers, family aid programs, and
other appropriate education organizations;
(3) ensure that, in
administering the Individuals with Disabilities Education Act, parents,
educators, and advocates for children with disabilities are aware that children
with Fetal Alcohol Spectrum Disorders have the right to access general
curriculum under the least restrictive environment;
(4) collaborate with
other Federal agencies to include Fetal Alcohol Spectrum Disorders-related
information or activities in programs related to maternal health, health
education, and sex education;
(5) collaborate with
the Secretary of Health and Human Services to ensure that Fetal Alcohol
Spectrum Disorders prevention grants under section 399H of the Public Health
Service Act include education concerning Fetal Alcohol Spectrum Disorders in
the sexual and health education curricula of schools; and
(6) support efforts
by peer advisory networks of adolescents in schools organized to discourage the
use of alcohol while pregnant or considering getting pregnant.
7.
Prevention,
intervention, and services in the justice system
The Attorney General shall direct the Office
of Juvenile Justice and Delinquency Prevention to—
(1) implement
screening procedures and conduct training on a nationwide Fetal Alcohol
Spectrum Disorders surveillance campaign for the Department of Justice in
collaboration with the efforts of the National Center on Birth Defects and
Developmental Disabilities under section 399H(b) of the Public Health Service
Act (as added by this Act);
(2) introduce
training curricula on how to most effectively identify and interact with
individuals with Fetal Alcohol Spectrum Disorders in both the juvenile and
adult justice systems, and investigate incorporating information about the
identification, prevention, and treatment of the disorders into justice
professionals' credentialing requirements;
(3) promote the
tracking of individuals entering the juvenile justice system with at-risk
backgrounds that indicates them as high probability for having a Fetal Alcohol
Spectrum Disorder, especially those individuals whose mothers have a record of
heavy or binge drinking during pregnancy as reported by the appropriate child
protection agency;
(4) educate judges,
attorneys, probation officers, child advocates, law enforcement officers,
prison wardens, alternative incarceration administrators, and incarceration
officials on how to treat and support individuals suffering from Fetal Alcohol
Spectrum Disorders within the juvenile and adult justice systems,
including—
(A) programs designed
specifically for the identification, treatment, and education of such children;
and
(B) curricula
development and credentialing of teachers, administrators, and social workers
who implement such programs;
(5) conduct a study
on the inadequacies of how the current system processes children with certain
developmental delays and subsequently implement alternative methods of
incarceration and treatment that are more effective for youth offenders
identified to have a Fetal Alcohol Spectrum Disorder; and
(6) collaborate with
Fetal Alcohol Spectrum Disorders professionals and implement transition
programs for juveniles and adults with Fetal Alcohol Spectrum Disorders who are
released from incarceration.
8.
Miscellaneous
provisions
(a)
Authorization
of appropriations
Section 399J of the Public Health Service Act
(42 U.S.C. 280f–2) is amended by striking the part and all that
follows through the period and inserting subsections (h) through (k) of
section 399H, $27,000,000 for each of fiscal years 2014 through
2018.
(b)
Repeal of
sunset
Section 399K of the Public Health Service Act (42 U.S.C.
280f–3) is repealed.