Library / Laws / 113th / hr / H.R. 1429 / Introduced in House
I
113th CONGRESS
1st Session
H. R. 1429
IN THE HOUSE OF REPRESENTATIVES
April 9, 2013
Mrs. Capps (for
herself and Mr. King of New York)
introduced the following bill; which was referred to the
Committee on Energy and
Commerce
A BILL
To expand the research and awareness activities of the
National Institute of Arthritis and Musculoskeletal and Skin Diseases and the
Centers for Disease Control and Prevention with respect to scleroderma, and for
other purposes.
1.
Short title
This Act may be cited as the
Scleroderma Research and Awareness Act
of 2013.
2.
National
institute of arthritis and musculoskeletal and skin diseases; scleroderma
research expansion
Part B of
title IV of the Public Health Service Act (42 U.S.C. 284 et seq.) is amended by
adding at the end the following:
409K.
Scleroderma
research
The Director of NIH
may expand, intensify, and coordinate the activities of the National Institutes
of Health with respect to scleroderma, with particular emphasis on the
following:
(1) Research focused
on the etiology of scleroderma and the development of new treatment
options.
(2) Clinical research
to evaluate new treatments options.
(3) Basic research on
the relationship between scleroderma and secondary conditions such as pulmonary
hypertension, gastroparesis, Raynaud's phenomenon, Sjögren's Syndrome, and
other diseases as determined by the
Director.
.
3.
Promoting public
awareness of scleroderma
Part
P of title III of the Public Health Service Act (42 U.S.C. 280g et seq.) is
amended by adding at the end the following:
399V–6.
Promoting
public awareness of scleroderma
The Secretary may carry out an educational
campaign to increase public awareness of scleroderma. Print, video, and
Web-based materials distributed through this campaign may include—
(1) basic information
on scleroderma and its symptoms; and
(2) information
on—
(A) the incidence and
prevalence of scleroderma;
(B) diseases and
conditions affiliated with scleroderma; or
(C) the importance of
early diagnosis and treatment of
scleroderma.
.