,,iii  #aai? ,,congress  #b;d ,session  
,s4 ,,res4 #ghj  ,,9 ,,! ,,s5ate ,,( ,,!
 ,,unit$ ,,/ates  ,june #ah1 #bjbf,mr4  
,book] 7= himself & ,mr4 ,van ,holl57   
submitt$ ! foll[+ resolution2 :i* 0     
ref]r$ to ! ,committee on ,=eign        
,relations  ,,resolution  ,express+     
support = ! designation ( ,june #ai1    
#bjbf1 z ,_w ,sickle ,cell ,aw>5ess ,day
 9 ord] to increase public aw>5ess      
across ! ,unit$ ,/ates & global         
community ab\t sickle cell disease & !  
cont9u$ ne$ = empirical rese>*1 e>ly    
detection scre5+s1 novel effective      
treatm5ts lead+ to a cure1 & prev5tative
 c>e programs ) respect to complications
 f sickle cell anemia & conditions      
relat+ to sickle cell disease4  ,:]eas  
sickle cell disease 7ref]r$ to 9 ?is    
preamble z ,,scd7 is a gr\p ( inh]it$ r$
 blood cell disord]s1 a g5etic condition
 pres5t at bir?1 & a major heal? problem
 9 ! ,unit$ ,/ates & worldwide2 ,:]eas !
 #bjbf !me ( ,_w ,sickle ,cell ,aw>5ess 
,day1 ,clos+ ! ,survival ,gap3 ,equity 9

 ,sickle ,cell ,disease1 is an imm$iate 
call to close ! survival gap & pu% t[>ds
 a univ]sal cure2 ,:]eas1 9 #aigb1 ,dr4 
,*>les ,:itt5 c(\nd$ ! ,sickle ,cell    
,disease ,association ( ,am]ica to      
improve rese>*1 education1 & heal? c>e =
 ,,scd pati5ts & :i* is n[ headqu>t]$ 9 
,hanov]1 ,m>yl&2 ,:]eas1 9 #aigb1       
,congress pass$ ! ,national ,sickle     
,cell ,anemia ,control ,act 7,public    
,law #ib-bid2 #hf ,/at4 #acf71 :i*1 = ! 
fir/ "t1 provid$ au?ority to e/abli%    
education1 in=mation1 scre5+1 te/+1     
c\nsel+1 rese>*1 & treatm5t programs =  
,,scd2 ,:]eas sickle cell trait 7ref]r$ 
to 9 ?is preamble z ,,sct7 is a g5e     
mutation t causes a s+le misspell+ 9 !  
,,dna in/ructions = hemoglob91 a prote9 
t aids 9 c>ry+ oxyg5 9 ! blood1 & c     
result 9 *ronic complications =         
individuals liv+ ) ,,scd1 includ+       
anemia1 /roke1 infections1 organ        
failure1 tissue damage1 int5se p]iods ( 
pa9 ref]r$ to z vaso-occulsive crises1 &
 ev5 premature dea?2 ,:]eas ,,sct occurs

 :5 an individual inh]its #a copy ( !   
sickle cell g5e f #a p>5t1 &1 al?\gh mo/
 individuals :o h ,,sct live normal     
lives1 :5 bo? p>5ts h ,,sct1 !re is a   
#be p]c5t *ance t any ( _! *ildr5 w h   
,,scd2 ,:]eas !re are an e/imat$        
#a1jjj1jjj to #c1jjj1jjj individuals )  
,,sct 9 ! ,unit$ ,/ates1 ) _m unaw>e (  
_! /atus2 ,:]eas approximately #ajj1jjj 
individuals h ,,scd 9 ! ,unit$ ,/ates1 )
 #a out ( e #cfe ,african-,am]ican bir?s
 & #a out ( e #af1cjj ,hispanic-,am]ican
 bir?s result+ 9 ,,scd1 & ne>ly #a out (
 #ac ,african-,am]ican babies are born )
 ,,sct2 ,:]eas ,,scd affects millions ( 
individuals ?r\gh\t ! _w1 especially    
individuals ( g5etic desc5t f c]ta9     
c\ntries 9 sub-,sah>an ,africa1 ,s\? &  
,c5tral ,am]ica1 ,saudi ,arabia1 ,india1
 & ! ,m$it]ranean bas92 ,:]eas ! v>iance
 relat+ to ! preval5ce ( ,,sct ranges   
greatly by region & demography1 ) ov]all
 rates z high z #dj p]c5t 9 p>ts (      
,africa2 ,:]eas approximately #a1jjj    
*ildr5 9 ,africa are born ) ,,scd ea*   

day1 #ej to #hj p]c5t ( :om w die be=e  
_! fif? bir?day2 ,:]eas1 9 #bjjf1 ! ,_w 
,heal? ,assembly pass$ a resolution1    
adopt$ by ! ,unit$ ,nations 9 #bjji1    
recogniz+ ,,scd z a public heal?        
priority ) a call to action = ea* c\ntry
 to implem5t measures to tackle !       
disease1 & 9 #bjaj1 ! ,_w ,heal?        
,assembly pass$ a resolution relat+ to  
prev5t+ & manag+ bir? defects1 includ+  
,,scd2 ,:]eas scre5+ newborns = ,,scd is
 a crucial fir/ /ep = families to obta9 
a timely diagnosis1 to obta9            
compreh5sive c>e1 & to decrease !       
mortality rate = *ildr5 ) respect to    
,,scd2 ,:]eas1 9 #bjbc1 hematopoietic   
/em cell transplantation 7commonly kn[n 
z ,,hsct or bone m>r[ transplant7 0 !   
only cure = ,,scd1 & ! ,food & ,drug    
,adm9i/ration has s9ce approv$ #b g5e   
!rapies t h be5 demon/rat$ to cure      
,,scd2 ,:]eas !re is an imm$iate ne$ =  
lifesav+ !rapeutics t c improve !       
duration & quality ( life = individuals 
) ,,scd2 ,:]eas1 9 #bjbj1 ! ,national   

,academies ( ,sci5ces1 ,eng9e]+1 &      
,m$ic9e develop$ a compreh5sive /rategic
 plan & bluepr9t = action to address    
,,scd1 :i* highlights ! ne$ to develop  
new innovative !rapies & to address     
b>ri]s to ! equitable access ( approv$  
treatm5ts2 ,:]eas1 9 #bjbj1 ! ,dep>tm5t 
( ,heal? & ,human ,s]vices1 9 p>tn]%ip )
 ! ,am]ican ,society ( ,hematology & !  
,sickle,in,africa ,consortium1 & 9      
collaboration ) ! ,_w ,heal?            
,organization1 ho/$ a web9> = a jo9t    
ef=t to /r5g!n ef=ts to combat ,,scd    
dur+ ! ,,covid-#ai p&emic & beyond2     
,:]eas ! late ,kwaku ,oh5e-,frempong1   
,m4,d41 ,pr(essor ,em]itus ( ,p$iatrics 
at ! ,p]elman ,s*ool ( ,m$ic9e at !     
,univ]sity ( ,p5nsylvania & ,am]ican    
,society ( ,hematology memb] :o f\nd$ & 
s]v$ z a memb] ( ! ,global ,sickle ,cell
 ,disease ,network1 0 a lead] 9 advanc+ 
! body ( k 9 ,,scd rese>*1 public heal?1
 & m$ic9e & is recogniz$ z immeasurably 
b5efitt+ ?\s&s ( *ildr5 worldwide2 &    
,:]eas1 al?\gh ,june #ai1 #bjbf1 has be5

 designat$ z ,_w ,sickle ,cell ,aw>5ess 
,day to increase public aw>5ess across !
 ,unit$ ,/ates & global community ab\t  
,,scd1 !re rema9s a cont9u$ ne$ =       
empirical rese>*1 e>ly detection        
scre5+s1 novel effective treatm5ts lead+
 to a cure1 & prev5tative c>e programs )
 respect to complications f sickle cell 
anemia & conditions relat+ to ,,scd3    
,n[1 !re=e1 be x ,t ! ,s5ate-- 7#a7     
supports ! goals & ideals ( ,_w ,sickle 
,cell ,aw>5ess ,day2  7#b7 commits to   
ensur+ equitable access to new sickle   
cell disease 7ref]r$ to 9 ?is resolution
 z ,,scd7 treatm5ts by %9+ ! light among
 all economic1 racial1 & e?nic gr\ps to 
improve heal? outcomes = individuals    
liv+ ) ,,scd2  7#c7 calls on ! ,dep>tm5t
 ( ,heal? & ,human ,s]vices to create   
global policy solutions aim$ at provid+ 
support = ! global community ) respect  
to ,,scd &1 9 p>tn]%ip ) local          
gov]nm5ts1 ! dome/ic res\rces ne$$ to   
provide access to newborn scre5+        
programs1 !rapeutic int]v5tions1 &      

support s]vices ) respect to ,,scd2     
7#d7 supports elim9at+ b>ri]s to        
equitable access to innovative ,,scd    
!rapies1 includ+ cell1 g5e1 & g5e-edit+ 
!rapies 9 ! ,m$ic>e & ,m$icaid sy/ems = 
! mo/ vuln]able pati5ts2  7#e7 enc\rages
 ! p ( ! ,unit$ ,/ates & ! _w to hold   
appropriate programs1 ev5ts1 &          
activities on ,_w ,sickle ,cell ,aw>5ess
 ,day to raise public aw>5ess ( ,,scd   
traits1 prev5tative-c>e programs1       
treatm5ts1 & o!r pati5t s]vices = ^?    
suff]+ f ,,scd1 complications f ,,scd1 &
 conditions relat+ to ,,scd2  7#f7      
enc\rages ! ,presid5t to =m a ,sickle   
,cell ,disease ,int]ag5cy ,gr\p1 :i*    
%\ld include ! ,dep>tm5t ( ,heal? &     
,human ,s]vices1 ! ,dep>tm5t ( ,vet]ans 
,affairs1 ! ,national ,in/itute (       
,heal?1 ! ,food & ,drug ,adm9i/ration1 &
 ! ,c5t]s = ,m$ic>e  ,m$icaid ,s]vices1 
to "w t[>d policies t w support         
equitable & appropriate access to       
innovative ,,scd !rapies2 &  7#g7 )     
respect to ! policies describ$ 9        

p>agraph 7#f71 urges ! int]ag5cy gr\p   
describ$ 9 t p>agraph to consid] options
 t n only address access to pot5tial    
future curative treatm5ts = ,,scd1 b    
also address ! biases t ! populations   
mo/ affect$ by ,,scd cont9ue to face )9 
! ,unit$ ,/ates & global heal?c>e       
sy/ems4