,,iii #aai? ,,congress #b;d ,session ,s4 ,,res4 #geb ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,may #ba1 #bjbf,mr4 ,blum5?al submitt$ ! foll[+ resolution2 :i* 0 ref]r$ to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ,,resolution ,express+ support = ! designation ( ! mon? ( ,may #bjbf z ,progressive ,supranucle> ,palsy & ,corticobasal ,deg5]ation ,aw>5ess ,mon?4 ,:]eas progressive supranucle> palsy1 (t5 ref]r$ to z ,,psp1 & corticobasal deg5]ation1 (t5 ref]r$ to z ,,cbd1 are r>e1 adult onset1 rapidly progress+ neurodeg5]ative disord]s t affect multiple areas ( ! bra9 & cause complex symptoms & c>e ne$s2 ,:]eas1 al?\gh "s symptoms may appe> simil> to ^? ( o!r neurological diagnoses l ,p>k9son's disease & frontotemporal dem5tia1 progressive supranucle> palsy & corticobasal deg5]ation are di/9ct diseases ) _! own unique trajectories & c>e ne$s2 ,:]eas1 :ile e/imates v>y & ! conditions are frequ5tly misdiagnos$1 approximately #cj1jjj ,am]icans are liv+ ) progressive supranucle> palsy & #b1jjj ,am]icans are liv+ ) corticobasal deg5]ation2 ,:]eas delays 9 ! accurate diagnosis ( progressive supranucle> palsy & corticobasal deg5]ation & access to neurology pr(essionals specializ$ 9 ^! diseases are common & cause confusion1 anxiety1 & fru/ration among pati5ts2 ,:]eas progressive supranucle> palsy & corticobasal deg5]ation c cause significant difficulty ) movem5t1 balance1 spee*1 swall[+1 cognition1 vision1 mood1 & a v>iety ( o!r complex symptoms2 ,:]eas progressive supranucle> palsy & corticobasal deg5]ation are aggressive 9 _! progression1 ) mo/ individuals becom+ dep5d5t on c>e 9 #c to #d ye>s & hav+ an ov]all life expectancy ( #g to #h ye>s f symptom onset2 ,:]eas !re are curr5tly no disease-modify+ treatm5ts = progressive supranucle> palsy or corticobasal deg5]ation2 ,:]eas m rese>* is ne$$ to und]/& ! roles ( environm5tal factors & g5etics 9 :y p develop progressive supranucle> palsy & corticobasal deg5]ation2 ,:]eas !re are c\ntless family c>egiv]s1 fri5ds1 & lov$ ones ^: lives are greatly affect$ by progressive supranucle> palsy & corticobasal deg5]ation2 ,:]eas additional rese>*1 support s]vices1 & education are ne$$ to ma9ta9 quality ( life = ^? affect$ by ! disease1 to develop bett] treatm5ts & prev5tion ( complications1 & to f9d cures = progressive supranucle> palsy & corticobasal deg5]ation2 & ,:]eas ! designation ( ! mon? ( ,may #bjbf z ,progressive ,supranucle> ,palsy & ,corticobasal ,deg5]ation ,aw>5ess ,mon? w b5efit individuals diagnos$ ) ! diseases1 families1 heal?c>e pr(essionals1 & communities across ! c\ntry & w fur!r bol/] aw>5ess ( ! diseases3 ,n[1 !re=e1 be x ,t ! ,s5ate-- 7#a7 supports ! designation ( ,may #bjbf z ,progressive ,supranucle> ,palsy & ,corticobasal ,deg5]ation ,aw>5ess ,mon?2 7#b7 supports ! goals & ideals ( ,progressive ,supranucle> ,palsy & ,corticobasal ,deg5]ation ,aw>5ess ,mon?2 7#c7 supports rese>* on diagnosis1 prev5tion1 treatm5ts1 & cures = progressive supranucle> palsy & corticobasal deg5]ation2 7#d7 recognizes ! /r5g? & resili5ce ( ! communities affect$ by progressive supranucle> palsy & corticobasal deg5]ation2 & 7#e7 comm5ds ! individuals1 families1 volunte]s1 heal?c>e pr(essionals1 rese>*]s1 & organizations across ! c\ntry :o are work+ to improve ! lives ( p liv+ ) progressive supranucle> palsy & corticobasal deg5]ation4