,,iii #aaith ,,congress #b;d ,session ,s4 ,,res4 #gea ,,in ,,the ,,senate ,,of ,,the ,,united ,,states ,may #ba1 #bjbf,mr4 ,coons 7for himself1 ,ms4 ,murkowski1 ,mr4 ,whitehouse1 and ,mr4 ,cotton7 submitted the following resolution2 which was referred to the ,committee on the ,judiciary ,,resolution ,designating ,may #bjbf as ,,als ,awareness ,month4 ,whereas amyotrophic lateral sclerosis 7referred to in this preamble as ,,als7 is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord2 ,whereas the life expectancy for an individual with ,,als is between #b and #e years after the date on which the individual receives an ,,als diagnosis2 ,whereas ,,als occurs throughout the world with no racial1 ethnic1 gender1 or socioeconomic boundaries2 ,whereas ,,als may affect any individual in any location2 ,whereas the cause of ,,als is unknown in up to #ij percent of cases2 ,whereas approximately #aj percent of ,,als cases have a strong known genetic driver2 ,whereas1 on average1 the period between the date on which an individual first experiences symptoms of ,,als and the date on which the individual is diagnosed with ,,als is more than #a year2 ,whereas the onset of ,,als often involves muscle weakness or stiffness1 and the progression of ,,als results in the further weakening1 wasting1 and paralysis of-- 7#a7 the muscles of the limbs and trunk2 and 7#b7 the muscles that control vital functions1 such as speech1 swallowing1 and breathing2 ,whereas ,,als can strike individuals of any age1 but it predominantly strikes adults2 ,whereas it is estimated that tens of thousands of individuals in the ,united ,states have ,,als at any given time2 ,whereas1 based on studies of the population of the ,united ,states1 more than #e1jjj individuals in the ,united ,states are diagnosed with ,,als each year1 and #ae individuals in the ,united ,states are diagnosed with ,,als each day2 ,whereas1 every #ij minutes1 someone dies from ,,als or is diagnosed with ,,als in the ,united ,states2 ,whereas the majority of individuals with ,,als die of respiratory failure2 ,whereas1 in the ,united ,states1 military veterans are more likely to be diagnosed with ,,als than individuals with no history of military service2 ,whereas1 as of the date of introduction of this resolution1 there is no cure for ,,als2 ,whereas the spouses1 children1 and family members of individuals living with ,,als provide support to those individuals with love1 day-to-day care1 and more2 and ,whereas an individual with ,,als1 and the caregivers of such an individual1 can be required to bear significant costs for medical care1 equipment1 and home care services for the individual as the disease progresses3 ,now1 therefore1 be it ,that the ,senate-- 7#a7 designates ,may #bjbf as ,,als ,awareness ,month2 7#b7 affirms the dedication of the ,senate to-- 7,a7 ensuring individuals with amyotrophic lateral sclerosis 7referred to in this resolution as ,,als7 have access to effective treatments and high-quality services and supports as early as possible after diagnosis2 7,b7 identifying risk factors and causes of ,,als to prevent new cases2 7,c7 empowering individuals with ,,als to maintain their personal independence to the maximum extent possible2 and 7,d7 reducing the physical and emotional burdens of living with ,,als2 and 7#c7 commends the dedication of the family members1 friends1 organizations1 volunteers1 researchers1 and caregivers across the ,united ,states who are working to improve the quality and length of life of ,,als patients and develop treatments and cures that reach patients as soon as possible4