,,iii  #aai? ,,congress  #a/ ,session   
,s4 ,,res4 #daf  ,,9 ,,! ,,s5ate ,,( ,,!
 ,,unit$ ,,/ates  ,septemb] #ai         
7legislative day1 ,septemb] #af71       
#bjbe,mr4 ,?une 7= ,mr4 ,scott ( ,s\?   
,c>ol9a 7= himself1 ,mr4 ,book]1 ,mr4   
,lank=d1 ,mr4 ,padilla1 ,mrs4           
,hyde-,smi?1 ,ms4 ,w>r51 ,ms4 ,klobu*>1 
& ,mr4 ,w>nock77 submitt$ ! foll[+      
resolution2 :i* 0 consid]$ & agre$ to   
,,resolution  ,express+ support = !     
designation ( ,septemb] #bjbe z ,sickle 
,cell ,disease ,aw>5ess ,mon? 9 ord] to 
educate communities across ! ,unit$     
,/ates ab\t sickle cell disease & ! ne$ 
= rese>*1 e>ly detection me?ods1        
effective treatm5ts1 & prev5tative c>e  
programs ) respect to complications f   
sickle cell disease & conditions relat$ 
to sickle cell disease4  ,:]eas sickle  
cell disease 7ref]r$ to 9 ?is preamble z
 ,,scd7 is an inh]it$ blood disord] t is
 a major heal? problem 9 ! ,unit$ ,/ates
 & worldwide2 ,:]eas ,,scd c result 9   
multiple m$ical complications1 includ+  

anemia1 jaundice1 gall/ones1 /rokes1    
re/rict$ blood fl[1 damag$ tissue 9 !   
liv]1 sple51 & kidneys1 & dea?2 ,:]eas  
,,scd causes acute & *ronic episodes (  
sev]e pa92 ,:]eas ,,scd affects an      
e/imat$ #ajj1jjj individuals 9 ! ,unit$ 
,/ates2 ,:]eas approximately #b1jjj     
babies are born ) ,,scd ea* ye> 9 !     
,unit$ ,/ates1 ) ! disease occurr+ 9    
approximately #a 9 #cfe newborn ,black  
or ,african ,am]ican infants & #a 9     
#af1cjj newborn ,hispanic-,am]ican      
infants1 & c be f\nd 9 individuals (    
,m$it]ranean1 ,middle ,ea/]n1 ,asian1 & 
,indian orig92 ,:]eas m ?an #b1jjj1jjj  
individuals 9 ! ,unit$ ,/ates h ! sickle
 cell trait & #a 9 #ac ,black or        
,african ,am]icans c>ries ! trait2      
,:]eas !re is a #a 9 #d *ance t a *ild  
born to p>5ts :o bo? h ! sickle cell    
trait w h ! disease2 ,:]eas ! life      
expectancy ( an individual ) ,,scd 9 !  
,unit$ ,/ates is (t5 sev]ely limit$1 )  
"s e/imates %[+ a %ort5$ life expectancy
 by #bj ye>s2 ,:]eas sickle cell anemia 

is a common cause ( *ildhood /roke1 & 9 
#bjai1 few] ?an half ( *ildr5 ) sickle  
cell anemia :o 7 #b to #af ye>s old     
receiv$ ! recomm5d$ scre5+ = /roke2     
,:]eas1 9 #bjai1 only #b 9 #e *ildr5 )  
sickle cell anemia :o 7 #b to #i ye>s   
old us$ recomm5d$ m$ication t c prev5t  
sickle cell anemia complications2       
,:]eas1 9 #bjbj1 ! ,national ,academies 
( ,sci5ce1 ,eng9e]+1 & ,m$ic9e develop$ 
a compreh5sive /rategic plan & bluepr9t 
= action to address sickle cell disease1
 :i*1 among o!r ?+s1 cit$ ! ne$ = new   
innovative !rapies & promot+ widespread 
pati5t access to approv$ treatm5ts2     
,:]eas1 9 #bjbc1 hematopoietic /em cell 
transplantation 7commonly kn[n z ,,hsct7
 0 ! only cure = ,,scd1 & ! ,food &     
,drug ,adm9i/ration has s9ce approv$ #b 
g5e !rapies t h be5 demon/rat$ to cure  
,,scd2 ,:]eas m rese>* is ne$$ to f9d m 
treatm5ts & cures to help individuals ) 
,,scd2 ,:]eas ! ,c5t]s = ,m$ic>e        
,m$icaid ,s]vices has introduc$ an      
innovative cell & g5e !rapy access model

 = int]e/$ ,/ates & ,unit$ ,/ates       
t]ritories1 :]e x w support adm9i/ration
 & outcomes-bas$ contracts ) drug       
manufactur]s = ,m$icaid b5efici>ies to  
receive ^! life-sav+ break?r\ghs2 &     
,:]eas ,septemb] #bjbe has be5 designat$
 z ,sickle ,cell ,disease ,aw>5ess ,mon?
 9 ord] to educate communities across ! 
,unit$ ,/ates ab\t ,,scd1 includ+ e>ly  
detection me?ods1 effective treatm5ts1 &
 prev5tative c>e programs ) respect to  
complications f ,,scd & conditions      
relat$ to ,,scd3 ,n[1 !re=e1 be x ,t !  
,s5ate-- 7#a7 supports ! goals & ideals 
( ,sickle ,cell ,disease ,aw>5ess ,mon?2
 &  7#b7 enc\rages ! p ( ! ,unit$ ,/ates
 to hold appropriate programs1 ev5ts1 & 
activities dur+ ,sickle ,cell ,disease  
,aw>5ess ,mon? to raise public aw>5ess (
 ! sickle cell trait1 prev5tative c>e   
programs1 treatm5ts1 & o!r pati5t       
s]vices = ^? suff]+ f sickle cell       
disease1 complications f sickle cell    
disease1 & conditions relat$ to sickle  
cell disease4