,,ii ,cal5d> ,no4 #ebf #aai? ,,congress 
#b;d ,session  ,s4 #did  ,,9 ,,! ,,s5ate
 ,,( ,,! ,,unit$ ,,/ates  ,febru>y #aj1 
#bjbe,mr4 ,s*mitt 7= himself1 ,ms4      
,klobu*>1 ,mr4 ,boozman1 ,ms4 ,hassan1  
,mr4 ,hu/$1 ,mr4 ,m>key1 ,mr4 ,book]1   
,ms4 ,ern/1 ,mr4 ,padilla1 ,mrs4        
,capito1 ,mrs4 ,%ahe51 ,mr4 ,coons1 ,mr4
 ,w>nock1 ,mr4 ,ka9e1 ,mr4 ,w>n]1 ,ms4  
,alsobrooks1 ,mr4 ,he9ri*1 ,mr4 ,s*iff1 
,mrs4 ,gillibr&1 ,ms4 ,coll9s1 ,mr4     
,ju/ice1 ,ms4 ,blunt ,ro*e/]1 ,ms4      
,duckwor?1 ,mr4 ,k5n$y1 ,mr4 ,m>%all1   
,mr4 ,durb91 ,ms4 ,ros51 & ,mr4 ,b5net7 
introduc$ ! foll[+ bill2 :i* 0 read     
twice & ref]r$ to ! ,committee on       
,heal?1 ,education1 ,labor1 & ,p5sions  
,july #bh1 #bjbf,report$ by ,mr4        
,cassidy1 ) an amendment,strike out all 
aft] ! enact+ clause & ins]t ! "p pr9t$ 
9 italic  ,a ,,bill  ,to e/abli% a      
national plan to coord9ate rese>* on    
epilepsy1 & = o!r purposes4  #a4 ,%ort  
title ,?is ,act may be cit$ z !         
,national ,plan = ,epilepsy ,act4  #b4  

,f9d+s ,congress f9ds z foll[s3 7#a7    
,epilepsy is a bra9 disord] t causes    
recurr+ & unprovok$ seizures & affects p
 ( all ages1 affect+ ne>ly #c1jjj1jjj   
adults & #def1jjj *ildr5 9 ! ,unit$     
,/ates4  7#b7 ,epilepsy & seizures c    
develop 9 any p]son at any age4 ,"o 9   
#bf p w develop a =m ( epilepsy 9 _!    
lifetime1 ) p f all demographic gr\ps & 
walks ( life be+ impact$4  7#c7 ,9      
approximately half ( all cases (        
epilepsy1 ! und]ly+ cause ( ! disease is
 unkn[n4  7#d7 ,epilepsy is a spectrum  
disease compris$ ( _m diagnoses & an    
ev]-gr[+ numb] ( r>e epilepsies4 ,!re   
are _m diff]5t types ( seizures & v>y+  
levels ( seizure control4  7#e7 ,ov] #cj
 p]c5t ( p ) epilepsy live ) uncontroll$
 seizures4  7#f7 ,individuals ) epilepsy
 h a #c-times high] risk ( e>ly dea? ?an
 ! g5]al population & t risk is ev5     
high] = individuals ) uncontroll$       
seizures4  7#g7 ,?irty-two p]c5t (      
adults ) epilepsy are unable to "w4     
7#h7 ,fifty-?ree p]c5t ( individuals )  

uncontroll$ seizures live 9 h\seholds   
e>n+ less ?an #be1jjj p] ye>4  7#i7     
,heal? c>e co/s associat$ ) epilepsy &  
seizures exce$ #ed1jjj1jjj1jjj p] ye> 9 
! ,unit$ ,/ates4  #c4 ,e/abli%+ a       
,national ,plan = ,epilepsy ,"p ,b (    
title ,,iii ( ! ,public ,heal? ,s]vice  
,act 7#db ,u4,s4,c4 #bdc et seq47 is    
am5d$ by add+ at ! end ! foll[+3        
#cbj;,c4 ,programs relat+ to epilepsy   
7a7 ,national ,plan = ,epilepsy  7#a7 ,9
 g5]al ,! ,secret>y %all c>ry out a     
national project1 to be kn[n z !        
,national ,plan = ,epilepsy 7ref]r$ to 9
 ?is section z ! ,national ,plan71 to   
prev5t1 diagnose1 treat1 & cure         
epilepsy4  7#b7 ,activities ,9 c>ry+ out
 ! ,national ,plan1 ! ,secret>y %all--  
7,a7 e/abli%1 ma9ta91 & p]iodically     
update an integrat$ national plan to    
prev5t1 diagnose1 treat1 & cure         
epilepsy2  7,b7 provide in=mation1      
includ+ an e/imate ( ! level ( ,f$]al   
inve/m5t 9 prev5t+1 diagnos+1 treat+1 & 
cur+ epilepsy2  7,c7 coord9ate rese>* & 

s]vices relat$ to epilepsy1 across all  
,f$]al ag5cies2  7,d7 enc\rage !        
developm5t ( safe & effective treatm5ts1
 /rategies1 & o!r approa*es to prev5t1  
diagnose1 treat1 & cure epilepsy or to  
enhance function+ & improve quality (   
life = individuals ) epilepsy & _!      
c>egiv]s2  7,e7 improve !-- 7i7 e>ly    
diagnosis ( epilepsy2 &  7ii7           
coord9ation ( ! c>e & treatm5t (        
individuals liv+ ) epilepsy2  7,f7      
review ! impact ( epilepsy on !         
physical1 m5tal1 & social heal? (       
individuals liv+ ) epilepsy & _!        
c>egiv]s2  7,g7 solicit public comm5ts &
 consid] cons5sus recomm5dations f      
collaborations 9 ! epilepsy community2  
7,h7 c>ry out an annual assessm5t on    
progress ( ! activities describ$ 9 ?is  
subsection2  7,i7 coord9ate )           
int]national bodies1 to ! degree        
possible1 to integrate & in=m ! global  
mission to prev5t1 diagnose1 treat1 &   
cure epilepsy2 &  7,j7 c>ry out o!r su* 
activities z ! ,secret>y det]m9es       

appropriate4  7b7 ,annual assessm5t ,n  
lat] ?an #b ye>s aft] ! date ( enactm5t 
( ! ,national ,plan = ,epilepsy ,act1 & 
annually !reaft]1 ! ,secret>y %all c>ry 
out an assessm5t ( ! ,nation's progress 
9 prep>+ = & respond+ to ! escalat+     
burd5 ( epilepsy4 ,su* assessm5t %all   
include-- 7#a7 recomm5dations = priority
 actions2  7#b7 a description ( ! /eps t
 h be51 or %\ld be1 tak5 to implem5t su*
 recomm5dations2 &  7#c7 su* o!r items z
 ! ,secret>y det]m9es appropriate4  7c7 
,advisory ,c\ncil  7#a7 ,9 g5]al ,!     
,secret>y %all e/abli% & ma9ta9 an      
,advisory ,c\ncil on ,epilepsy ,rese>*1 
,c>e1 & ,s]vices 7ref]r$ to 9 ?is       
section z ! ,advisory ,c\ncil7 to advise
 ! ,secret>y on epilepsy-relat$ issues4 
7#b7 ,memb]%ip ,! ,advisory ,c\ncil %all
 be compris$ (-- 7,a7 repres5tatives    
appo9t$ by ! ,secret>y f relevant ,f$]al
 dep>tm5ts & ag5cies1 includ+-- 7i7 !   
,national ,in/itutes ( ,heal?2  7ii7 !  
,c5t]s = ,m$ic>e  ,m$icaid ,s]vices2    
7iii7 ! ,c5t]s = ,disease ,control &    

,prev5tion2  7iv7 ! ,food & ,drug       
,adm9i/ration2  7v7 ! ,heal? ,res\rces &
 ,s]vices ,adm9i/ration2  7vi7 !        
,dep>tm5t ( ,def5se2 &  7vii7 !         
,dep>tm5t ( ,vet]ans ,affairs2 &  7,b7  
exp]t non-,f$]al memb]s appo9t$ by !    
,secret>y t reflect ! div]sity (        
epilepsy1 includ+-- 7i7 #d individuals1 
ea* ( :om is liv+ ) a diff]5t type (    
epilepsy2  7ii7 #b family c>egiv]s =    
individuals ) epilepsy2  7iii7 #b lic5s$
 or accr$it$ heal? c>e provid]s support$
 by a relevant pr(essional m$ical       
society1 includ+ at lea/ #a             
epileptologi/ or neurologi/2  7iv7 #b   
biom$ical rese>*]s ) epilepsy-relat$    
exp]tise 9 basic1 translational1 or     
cl9ical population sci5ce or drug       
developm5t sci5ce2 &  7v7 #c            
repres5tatives f #c sep>ate nonpr(it    
organizations directly connect$ )       
epilepsy t h demon/rat$ exp]i5ce 9      
epilepsy rese>* or epilepsy pati5t c>e &
 o!r s]vices4  7#c7 ,meet+s  7,a7 ,9    
g5]al ,! ,advisory ,c\ncil %all meet at 

lea/ once ea* qu>t]4  7,b7 ,meet+s ) o!r
 exp]ts ,n lat] ?an #b ye>s aft] ! date 
( enactm5t ( ! ,national ,plan =        
,epilepsy ,act1 & e #b ye>s !reaft]1 !  
,advisory ,c\ncil %all conv5e a meet+ ( 
,f$]al & non-,f$]al organizations to    
discuss epilepsy rese>*4  7,c7 ,public  
meet+s ,all meet+s ( ! ,advisory ,c\ncil
 %all be op5 to ! public4  7#d7 ,report+
 ,n lat] ?an #ah mon?s aft] ! date (    
enactm5t ( ! ,national ,plan = ,epilepsy
 ,act1 & e #b ye>s !reaft]1 ! ,advisory 
,c\ncil %all provide to ! ,secret>y &   
,congress a report conta9+-- 7,a7 an    
evaluation ( all f$]ally fund$ ef=ts 9  
prev5t+1 diagnos+1 treat+1 & cur+       
epilepsy1 & ! outcomes ( su* ef=ts2     
7,b7 recomm5dations = priority actions  
to bett] coord9ate1 exp&1 & bett]       
support ,f$]al programs 9 ord] to bett] 
support p ) epilepsy1 epilepsy rese>*1 &
 data collection2  7,c7 recomm5dations  
to-- 7i7 provide effective1 timely1 &   
responsive diagnosis treatm5t & c>e to  
improve heal? outcomes & quality ( life2

  7ii7 fo/] rese>* & innovation lead+ to
 m effective treatm5ts & pot5tial cures 
= epilepsy2  7iii7 /r5g!n data &        
in=mation sy/ems includ+ bett]          
surveillance ( epilepsy2  7iv7 increase 
public aw>5ess ab\t epilepsy & r$uce    
/igma & discrim9ation2  7v7 increase    
access to exp]t & specializ$ c>e = p )  
epilepsy2  7vi7 elim9ate access to c>e  
disp>ities exp]i5c$ by individuals )    
epilepsy2  7vii7 prev5t sudd5 unexpect$ 
dea? 9 epilepsy & o!r epilepsy-relat$   
mortalities2  7viii7 r$uce ! f9ancial   
impact ( epilepsy on families liv+ )    
epilepsy2  7ix7 prev5t epilepsy &       
promote heal?y behaviors2 &  7x7 an     
evaluation ( ! implem5tation ( !        
,national ,plan1 & its outcomes4  7d7   
,annual reports ,! ,secret>y %all       
annually submit to ,congress a report t 
includes-- 7#a7 an evaluation ( all     
f$]ally fund$ ef=ts 9 epilepsy rese>*1  
prev5tion1 diagnosis1 treatm5t1 cl9ical 
c>e1 & in/itutional-1 home-1 &          
community-bas$ programs1 & ! outcomes ( 

su* ef=ts2  7#b7 recomm5dations =-- 7,a7
 priority actions bas$ on ! mo/ rec5t   
assessm5t submitt$ by ! ,secret>y "u    
subsection 7b7 & ! recomm5dations       
conta9$ 9 ! mo/ rec5t report ( !        
,advisory ,c\ncil "u subsection 7c77#d72
  7,b7 priority actions to improve all  
f$]ally fund$ ef=ts 9 epilepsy rese>*1  
prev5tion1 diagnosis1 treatm5t1 cl9ical 
c>e1 & in/itutional-1 home-1 &          
community-bas$ programs2 &  7,c7        
implem5tation /eps to address priority  
actions describ$ 9 subp>agraphs 7,a7 &  
7,b72 &  7#c7 a description ( ! progress
 made 9 c>ry+ out ! ,national ,plan4    
7e7 ,data %>+ ,ag5cies bo? )9 !         
,dep>tm5t ( ,heal? & ,human ,s]vices &  
outside ( su* ,dep>tm5t t h data relat+ 
to epilepsy %all %>e su* data ) !       
,secret>y z necess>y to enable !        
,secret>y to complete ! reports describ$
 9 subsection 7d74  7f7 ,sunset ,?is    
section %all cease to be effective on   
,decemb] #ca1 #bjce4  4  #a4 ,%ort title
 ,?is ,act may be cit$ z ! ,national    

,plan = ,epilepsy ,act4  #b4 ,review to 
improve epilepsy programs1 rese>*1      
prev5tion1 & c>e  7a7 ,9 g5]al ,!       
,secret>y ( ,heal? & ,human ,s]vices    
7ref]r$ to 9 ?is section z ! ,secret>y7 
%all review &1 z necess>y & appropriate1
 provide recomm5dations to ,congress    
reg>d+1 & update exi/+ ,f$]al programs1 
activities1 & /rategic plans relat$ to1 
epilepsy rese>*1 prev5tion1 e>ly        
id5tification1 diagnosis1 & treatm5t =  
purposes ( id5tify+ & address+ k gaps & 
improv+ heal? outcomes relat$ to        
epilepsy4  7b7 ,cont5t ,! review "u     
subsection 7a7 %all include-- 7#a7 a    
review ( f9d+s f evid5ce-bas$ rese>* on 
epilepsy1 ! /atus ( ongo+1 f$]ally-fund$
 rese>* on epilepsy1 k gaps relat$ to   
epilepsy1 & disp>ities 9 populations )  
epilepsy2  7#b7 a review ( ,f$]al       
programs relat$ to epilepsy rese>*1     
prev5tion1 e>ly id5tification1          
diagnosis1 & treatm5t1 :i* %all include 
consid]ation (-- 7,a7 gaps 91 &         
opportunities =1 coord9ation among su*  

programs2  7,b7 opportunities to in=m   
global ef=ts to prev5t1 diagnose1 treat1
 & cure epilepsy1 z appropriate2  7,c7  
ne>- & long-t]m goals ( su* programs to 
improve rese>*1 prev5tion1 e>ly         
id5tification1 diagnosis1 & treatm5t (  
epilepsy2 &  7,d7 ! level ( ,f$]al      
inve/m5t 9 prev5t+1 diagnos+1 treat+1 & 
cur+ epilepsy2  7#c7 consid]ation (     
opportunities to-- 7,a7 improve         
collaboration betwe5 ,f$]al ag5cies &   
relevant /akehold]s to address gaps 9   
programs1 rese>*1 & s]vices2  7,b7      
elim9ate k gaps 9 rese>* on epilepsy1   
includ+ a review ( ! impact ( epilepsy  
on ! heal? & well-be+ ( individuals )   
epilepsy & _! c>egiv]s2  7,c7 improve   
e>ly diagnosis & coord9ation ( ! c>e &  
treatm5t ( individuals ) epilepsy2  7,d7
 bett] prev5t sudd5 unexpect$ dea? 9    
epilepsy & o!r epilepsy-relat$          
mortalities2  7,e7 improve surveillance 
( epilepsy2 &  7,f7 support ! developm5t
 ( new treatm5ts1 /rategies1 & o!r      
approa*es to prev5t1 diagnose1 treat1 & 

cure epilepsy or to enhance function+ & 
improve quality ( life = individuals )  
epilepsy & _! c>egiv]s2 &  7#d7 a review
 ( curr5t public heal? /rategies1 &     
consid]ation ( additional evid5ce-bas$  
/rategies1 relat$ to epilepsy4  7c7     
,ext]nal input ,to in=m ! review "u     
subsection 7a71 ! ,secret>y %all        
regul>ly conv5e & solicit input f o!r   
,f$]al ag5cies1 z appropriate1 &        
relevant /akehold]s1 includ+ pati5t     
advocates & non-,f$]al subject matt]    
exp]ts4  7d7 ,report ,n lat] ?an #b ye>s
 aft] ! date ( ! enactm5t ( ?is ,act1 ! 
,secret>y %all submit to ! ,committee on
 ,heal?1 ,education1 ,labor1 & ,p5sions 
( ! ,s5ate & ! ,committee on ,en]gy &   
,comm]ce ( ! ,h\se ( ,repres5tatives a  
report on ! f9d+s ( ! review conduct$ "u
 subsection 7a71 includ+-- 7#a7 a       
description ( /eps ! ,secret>y took to  
solicit /akehold] input pursuant to     
subsection 7c7 & a summ>y ( fe$back     
receiv$ f1 & ne$s id5tifi$ by1 su*      
/akehold]s2  7#b7 recomm5dations to     

improve coord9ation & support ( ,f$]al  
programs 9 ord] to bett] support p )    
epilepsy1 epilepsy rese>*1 & data       
collection1 & proposals = implem5tation 
( su* recomm5dations1 z appropriate2 &  
7#c7 any *anges to ,f$]al programs1     
activities1 or /rategic plans recomm5d$ 
by ! ,secret>y bas$ on ! review1 & any  
/atutory or o!r b>ri]s t imp$e          
implem5tation ( su* *anges4  ,july #bh1 
#bjbf,report$ ) an am5dm5t