#aaith ,,congress  #b;d ,session  ,s4   
#did  ,,an ,,act  ,to establish a       
national plan to coordinate research on 
epilepsy1 and for other purposes4  #a4  
,short title ,this ,act may be cited as 
the ,national ,plan for ,epilepsy ,act4 
#b4 ,review to improve epilepsy         
programs1 research1 prevention1 and care
  7a7 ,in general ,the ,secretary of    
,health and ,human ,services 7referred  
to in this section as the ,secretary7   
shall review and1 as necessary and      
appropriate1 provide recommendations to 
,congress regarding1 and update existing
 ,federal programs1 activities1 and     
strategic plans related to1 epilepsy    
research1 prevention1 early             
identification1 diagnosis1 and treatment
 for purposes of identifying and        
addressing knowledge gaps and improving 
health outcomes related to epilepsy4    
7b7 ,content ,the review under          
subsection 7a7 shall include-- 7#a7 a   
review of findings from evidence-based  
research on epilepsy1 the status of     

ongoing1 federally-funded research on   
epilepsy1 knowledge gaps related to     
epilepsy1 and disparities in populations
 with epilepsy2  7#b7 a review of       
,federal programs related to epilepsy   
research1 prevention1 early             
identification1 diagnosis1 and          
treatment1 which shall include          
consideration of-- 7,a7 gaps in1 and    
opportunities for1 coordination among   
such programs2  7,b7 opportunities to   
inform global efforts to prevent1       
diagnose1 treat1 and cure epilepsy1 as  
appropriate2  7,c7 near- and long-term  
goals of such programs to improve       
research1 prevention1 early             
identification1 diagnosis1 and treatment
 of epilepsy2 and  7,d7 the level of    
,federal investment in preventing1      
diagnosing1 treating1 and curing        
epilepsy2  7#c7 consideration of        
opportunities to-- 7,a7 improve         
collaboration between ,federal agencies 
and relevant stakeholders to address    
gaps in programs1 research1 and         

services2  7,b7 eliminate knowledge gaps
 in research on epilepsy1 including a   
review of the impact of epilepsy on the 
health and well-being of individuals    
with epilepsy and their caregivers2     
7,c7 improve early diagnosis and        
coordination of the care and treatment  
of individuals with epilepsy2  7,d7     
better prevent sudden unexpected death  
in epilepsy and other epilepsy-related  
mortalities2  7,e7 improve surveillance 
of epilepsy2 and  7,f7 support the      
development of new treatments1          
strategies1 and other approaches to     
prevent1 diagnose1 treat1 and cure      
epilepsy or to enhance functioning and  
improve quality of life for individuals 
with epilepsy and their caregivers2 and 
7#d7 a review of current public health  
strategies1 and consideration of        
additional evidence-based strategies1   
related to epilepsy4  7c7 ,external     
input ,to inform the review under       
subsection 7a71 the ,secretary shall    
regularly convene and solicit input from

 other ,federal agencies1 as            
appropriate1 and relevant stakeholders1 
including patient advocates and         
non-,federal subject matter experts4    
7d7 ,report ,not later than #b years    
after the date of the enactment of this 
,act1 the ,secretary shall submit to the
 ,committee on ,health1 ,education1     
,labor1 and ,pensions of the ,senate and
 the ,committee on ,energy and ,commerce
 of the ,house of ,representatives a    
report on the findings of the review    
conducted under subsection 7a71         
including-- 7#a7 a description of steps 
the ,secretary took to solicit          
stakeholder input pursuant to subsection
 7c7 and a summary of feedback received 
from1 and needs identified by1 such     
stakeholders2  7#b7 recommendations to  
improve coordination and support of     
,federal programs in order to better    
support people with epilepsy1 epilepsy  
research1 and data collection1 and      
proposals for implementation of such    
recommendations1 as appropriate2 and    

7#c7 any changes to ,federal programs1  
activities1 or strategic plans          
recommended by the ,secretary based on  
the review1 and any statutory or other  
barriers that impede implementation of  
such changes4  ,passed the ,senate      
,august #d1 #bjbf4,secretary