,,ii  #aai? ,,congress  #a/ ,session    
,s4 #aghb  ,,9 ,,! ,,s5ate ,,( ,,!      
,,unit$ ,,/ates  ,may #ae1 #bjbe ,mrs4  
,moody 7= h]self1 ,ms4 ,hassan1 ,mr4    
,scott ( ,florida1 ,ms4 ,smi?1 ,mr4     
,da9es1 ,mr4 ,ka9e1 ,mrs4 ,hyde-,smi?1 &
 ,mr4 ,:iteh\se7 introduc$ ! foll[+     
bill2 :i* 0 read twice & ref]r$ to !    
,committee on ,heal?1 ,education1       
,labor1 & ,p5sions  ,a ,,bill  ,to      
prohibit discrim9ation on ! basis (     
m5tal or physical disability 9 cases (  
organ transplants4  #a4  ,%ort title    
,?is ,act may be cit$ z ! ,*>lotte      
,woodw>d ,organ ,transplant             
,discrim9ation ,prev5tion ,act4  #b4    
,def9itions  ,9 ?is ,act3 7#a7 ,auxili>y
 aids & s]vices ,! t]m auxili>y aids &  
s]vices has ! mean+ giv5 ! t]m 9 section
 #d ( ! ,am]icans ) ,disabilities ,act (
 #aiij 7#db ,u4,s4,c4 #abajc74  7#b7    
,cov]$ entity  ,! t]m cov]$ entity means
 any lic5s$ provid] ( heal? c>e s]vices 
7includ+ lic5s$ heal? c>e practition]s1 
hospitals1 nurs+ facilities1            

laboratories1 int]m$iate c>e facilities1
 psy*iatric resid5tial treatm5t         
facilities1 in/itutions = individuals ) 
intellectual or developm5tal            
disabilities1 & prison heal? c5t]s71 &  
any transplant hospital 7z def9$ 9      
section #aba4b ( title #db1 ,code (     
,f$]al ,regulations or a successor      
regulation71 t--  7,a7 is 9 int]/ate    
comm]ce2 or  7,b7 provides heal? c>e    
s]vices 9 a mann] t--  7i7 sub/antially 
affects or has a sub/antial relation to 
int]/ate comm]ce2 or  7ii7 includes use 
( an in/rum5t 7includ+ an in/rum5t (    
transportation or communication7 (      
int]/ate comm]ce4  7#c7  ,disability  ,!
 t]m disability has ! mean+ giv5 ! t]m 9
 section #c ( ! ,am]icans )             
,disabilities ,act ( #aiij 7#db         
,u4,s4,c4 #abajb74  7#d7  ,human organ  
,! t]m human organ has ! mean+ giv5 !   
t]m 9 section #cja7;c7 ( ! ,national    
,organ ,transplant ,act 7#db ,u4,s4,c4  
#bgd;e7c774  7#e7  ,organ transplant  ,!
 t]m organ transplant means !           

transplantation or transfusion ( a      
donat$ human organ into ! body ( ano!r  
human = ! purpose ( treat+ a m$ical     
condition4  7#f7  ,qualifi$ individual  
,! t]m qualifi$ individual means an     
individual :o1 ) or )\t a support       
network1 provision ( auxili>y aids &    
s]vices1 or reasonable modifications to 
policies or practices1 meets eligibility
 requirem5ts = ! receipt ( a human      
organ4  7#g7  ,reasonable modifications 
to policies or practices  ,! t]m        
reasonable modifications to policies or 
practices includes--  7,a7 communication
 ) p]sons responsible = support+ a      
qualifi$ individual ) po/surgical or o!r
 c>e foll[+ an organ transplant or      
relat$ s]vices1 includ+ support )       
m$ication2  7,b7 consid]ation1 9 det]m9+
 :e!r a qualifi$ individual w be able to
 comply ) heal? requirem5ts foll[+ an   
organ transplant or receipt ( relat$    
s]vices1 ( support networks available to
 ! qualifi$ individual1 includ+ family1 
fri5ds1 & provid]s ( home &             

community-bas$ s]vices1 includ+ home &  
community-bas$ s]vices fund$ ?r\gh !    
,m$ic>e or ,m$icaid program "u title    
,,xviii or ,,xix1 respectively1 ( !     
,social ,security ,act 7#db ,u4,s4,c4   
#acie et seq41 #acif et seq471 ano!r    
heal? plan 9 :i* ! qualifi$ individual  
is enroll$1 or any program or s\rce (   
fund+ available to ! qualifi$           
individual2 &  7,c7 ! use ( support$    
decision-mak+1 :5 ne$$1 by a qualifi$   
individual4  7#h7  ,relat$ s]vices  ,!  
t]m relat$ s]vices means s]vices relat$ 
to an organ transplant t consi/ (--     
7,a7 evaluation2  7,b7 c\nsel+2  7,c7   
treatm5t1 includ+ po/op]ative treatm5t1 
& c>e2  7,d7 provision ( in=mation2 &   
7,e7 any o!r s]vice recomm5d$ or requir$
 by a physician4  7#i7 ,support$        
decision-mak+ ,! t]m support$           
decision-mak+ means ! use ( a support   
p]son to assi/ a qualifi$ individual 9  
mak+ heal? c>e decisions1 communicate   
in=mation to ! qualifi$ individual1 or  
asc]ta9 a qualifi$ individual's wi%es4  

,su* t]m includes--  7,a7 ! inclusion ( 
! individual's attorney-9-fact or heal? 
c>e proxy1 or any p]son ( ! individual's
 *oice1 9 communications ab\t !         
individual's heal? c>e2  7,b7 p]mitt+ ! 
individual to designate a p]son ( !     
individual's *oice = ! purposes (       
support+ t individual 9 communicat+1    
process+ in=mation1 or mak+ heal? c>e   
decisions2  7,c7 provid+ auxili>y aids &
 s]vices to facilitate ! individual's   
ability to communicate & process        
heal?-relat$ in=mation1 includ+ provid+ 
use ( assi/ive communication te*nology2 
7,d7 provid+ heal? in=mation to p]sons  
designat$ by ! individual1 consi/5t ) ! 
regulations promulgat$ "u section       
#bfd7;c7 ( ! ,heal? ,insurance          
,portability & ,acc\ntability ,act (    
#aiif 7#db ,u4,s4,c4 #acbj;d-#b note7 & 
o!r applicable laws & regulations gov]n+
 disclosure ( heal? in=mation2  7,e7    
provid+ heal? in=mation 9 a =mat t is   
readily und]/&able by ! individual2 &   
7,f7 work+ ) a c\rt-appo9t$ gu>dian or  

o!r p]son responsible = mak+ heal? c>e  
decisions on behalf ( ! individual1 to  
ensure t ! individual is includ$ 9      
decisions involv+ ! heal? c>e ( !       
individual & t heal? c>e decisions are 9
 accordance ) ! individual's own        
express$ int]e/s4  7#aj7  ,support      
network  ,! t]m support network means1 )
 respect to a qualifi$ individual1 #a or
 m p :o are--  7,a7 select$ by !        
qualifi$ individual or by ! qualifi$    
individual & ! gu>dian ( ! qualifi$     
individual1 to provide assi/ance to !   
qualifi$ individual or guidance to t    
qualifi$ individual 9 und]/&+ issues1   
mak+ plans = ! future1 or mak+ complex  
decisions2 &  7,b7 :o may include !     
family memb]s1 fri5ds1 unpaid support]s1
 memb]s ( ! religi\s congregation1 &    
appropriate p]sonnel at a community     
c5t]1 ( or s]v+ ! qualifi$ individual4  
#c4  ,prohibition ( discrim9atory policy
  ,! bo>d ( directors describ$ 9 section
 #cgb7;b77#a77;,b7 ( ! ,public ,heal?   
,s]vice ,act 7#db ,u4,s4,c4             

#bgd7;b77#a77;,b77 %all n issue         
policies1 recomm5dations1 or o!r memor&a
 t w\ld prohibit1 or o!rwise h9d]1 a    
qualifi$ individual's access to an organ
 transplant solely on ! basis ( t       
individual's disability4  #d4           
,prohibition ( discrim9ation  7a7  ,9   
g5]al  ,subject to subsection 7b71 a    
cov]$ entity may n1 solely on ! basis ( 
a qualifi$ individual's disability--    
7#a7 det]m9e t ! individual is          
ineligible to receive an organ          
transplant or relat$ s]vices2  7#b7 d5y 
! individual an organ transplant or     
relat$ s]vices2  7#c7 refuse to ref] !  
individual to an organ transplant c5t]  
or o!r relat$ speciali/ = ! purpose (   
receipt ( an organ transplant or o!r    
relat$ s]vices2 or  7#d7 refuse to place
 ! individual on an organ transplant    
wait+ li/4  7b7 ,exception  7#a7 ,9     
g5]al  7,a7 ,m$ically significant       
disabilities ,not)/&+ subsection 7a71 a 
cov]$ entity may take a qualifi$        
individual's disability into acc\nt :5  

mak+ a heal? c>e treatm5t or cov]age    
recomm5dation or decision1 solely to !  
ext5t t ! disability has be5 f\nd by a  
physician1 foll[+ an individualiz$      
evaluation ( ! pot5tial recipi5t1 to be 
m$ically significant to ! receipt ( !   
organ transplant or relat$ s]vices1 z ! 
case may be4  7,b7  ,con/ruction        
,subp>agraph 7,a7 %all n be con/ru$ to  
require a ref]ral or recomm5dation =1 or
 ! p]=mance (1 a m$ically inappropriate 
organ transplant or m$ically            
inappropriate relat$ s]vices4  7#b7     
,cl>ification  ,if a qualifi$ individual
 has ! necess>y support network to      
provide a reasonable assurance t !      
qualifi$ individual w be able to comply 
) heal? requirem5ts foll[+ an organ     
transplant or receipt ( relat$ s]vices1 
z ! case may be1 ! qualifi$ individual's
 inability to indep5d5tly comply ) ^?   
requirem5ts may n be con/ru$ to be      
m$ically significant = purposes (       
p>agraph 7#a74  7c7  ,reasonable        
modifications  ,a cov]$ entity %all make

 reasonable modifications to policies or
 practices 7includ+ proc$ures7 ( su*    
entity if su* modifications are necess>y
 to make an organ transplant or relat$  
s]vices available to qualifi$           
individuals ) disabilities1 unless !    
entity c demon/rate t mak+ su*          
modifications w\ld fundam5tally alt] !  
nature ( su* policies or practices4  7d7
  ,cl>ifications  7#a7  ,no d5ial (     
s]vices because ( abs5ce ( auxili>y aids
 & s]vices  ,= purposes ( ?is section1 a
 cov]$ entity %all take su* /eps z may  
be necess>y to ensure t a qualifi$      
individual ) a disability is n d5i$ a   
proc$ure associat$ ) ! receipt ( an     
organ transplant or relat$ s]vices1     
because ( ! abs5ce ( auxili>y aids &    
s]vices1 unless ! cov]$ entity c        
demon/rate t tak+ su* /eps w\ld         
fundam5tally alt] ! nature ( ! proc$ure 
be+ (f]$ or w\ld result 9 an undue burd5
 on ! entity4  7#b7  ,compliance ) o!r  
law  ,no?+ 9 ?is section %all be        
con/ru$-- 7,a7 to prev5t a cov]$ entity 

f provid+ organ transplants or relat$   
s]vices at a level t is great] ?an !    
level t is requir$ by ?is section2 or   
7,b7 to limit ! rights ( an individual )
 a disability "u1 or to replace or limit
 ! scope ( obligations impos$ by1 !     
,am]icans ) ,disabilities ,act ( #aiij  
7#db ,u4,s4,c4 #abaja et seq47 includ+ !
 provisions add$ to su* ,act by ! ,,ada 
,am5dm5ts ,act ( #bjjh 7,public ,law    
#aaj-cbe71 section #ejd ( !             
,rehabilitation ,act ( #aigc 7#bi       
,u4,s4,c4 #gid71 section #aeeg ( !      
,pati5t ,protection & ,af=dable ,c>e    
,act 7#db ,u4,s4,c4 #ahaaf71 or any o!r 
applicable law4  7e7  ,en=cem5t  7#a7   
,9 g5]al  ,any individual :o alleges t a
 qualifi$ individual 0 subject to a     
violation ( ?is section by a cov]$      
entity may br+ a claim reg>d+ !         
allegation to ! ,(fice = ,civil ,rights 
( ! ,dep>tm5t ( ,heal? & ,human         
,s]vices1 = exp$it$ resolution1 z       
appropriate4  7#b7  ,rule ( con/ruction 
,no?+ 9 ?is subsection is int5d$ to     

limit or replace available rem$ies "u ! 
,am]icans ) ,disabilities ,act ( #aiij  
7#db ,u4,s4,c4 #abaja et seq47 or any   
o!r applicable law4  #e4  ,application  
to ea* "p ( process  ,! provisions ( ?is
 ,act-- 7#a7 t apply to an organ        
transplant1 also apply to ! evaluation &
 li/+ ( a qualifi$ individual1 & to !   
organ transplant & po/-organ-transplant 
treatm5t ( su* an individual2 &  7#b7 t 
apply to relat$ s]vices1 also apply to !
 process = receipt ( relat$ s]vices by  
su* an individual4  #f4  ,effect on o!r 
laws  ,no?+ 9 ?is ,act %all be con/ru$  
to sup]s$e any provision ( any ,/ate or 
local law t provides great] rights to   
qualifi$ individuals ) respect to organ 
transplants ?an ! rights e/abli%$ "u ?is
 ,act4