,,ii #aaith ,,congress #ast ,session ,s4 #aci ,,in ,,the ,,senate ,,of ,,the ,,united ,,states ,january #af1 #bjbe,ms4 ,murkowski 7for herself1 ,ms4 ,klobuchar1 ,mr4 ,king1 ,ms4 ,hirono1 ,mr4 ,moran1 ,ms4 ,baldwin1 ,ms4 ,cantwell1 and ,mr4 ,cramer7 introduced the following bill2 which was read twice and referred to the ,committee on ,health1 ,education1 ,labor1 and ,pensions ,a ,,bill ,to amend the ,public ,health ,service ,act to reauthorize and extend the ,fetal ,alcohol ,spectrum ,disorders ,prevention and ,services program1 and for other purposes4 #a4 ,short title ,this ,act may be cited as the ,advancing ,,fasd ,research1 ,services and ,prevention ,act or the ,,fasd ,respect ,act4 #b4 ,support for individuals and families impacted by fetal alcohol spectrum disorder 7a7 ,in general ,part ,o of title ,,iii of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;f et seq47 is amended-- 7#a7 by amending the part heading to read as follows3 ,fetal ,alcohol ,spectrum ,disorders ,prevention and ,services ,program2 7#b7 in section #cii;,h 7#db ,u4,s4,c4 #bhj;f7-- 7,a7 in the section heading1 by striking ,establishment of fetal alcohol syndrome prevention and inserting ,fetal alcohol spectrum disorders prevention1 intervention12 7,b7 by striking ,fetal ,alcohol ,syndrome and ,fetal ,alcohol ,effect each place it appears and inserting ,,fasd2 7,c7 in subsection 7a7-- 7i7 by amending the heading to read as follows3 ,in general2 7ii7 in the matter preceding paragraph 7#a7-- 7,i7 by inserting or continue activities to support after shall establish2 7,,ii7 by striking ,,fasd 7as amended by subparagraph 7,b77 and inserting fetal alcohol spectrum disorders 7referred to in this section as ,,fasd72 7,,iii7 by striking prevention1 intervention and inserting awareness1 prevention1 identification1 intervention12 and 7,,iv7 by striking that shall and inserting 1 which may2 7iii7 in paragraph 7#a7-- 7,i7 in subparagraph 7,a7-- 7aa7 by striking medical schools and inserting health professions schools2 and 7bb7 by inserting infants1 after provision of services for2 and 7,,ii7 in subparagraph 7,d71 by striking medical and mental and inserting agencies providing2 7iv7 in paragraph 7#b7-- 7,i7 in the matter preceding subparagraph 7,a71 by striking a prevention and diagnosis program to support clinical studies1 demonstrations and other research as appropriate and inserting supporting and conducting research on ,,fasd1 as appropriate1 including2 7,,ii7 in subparagraph 7,b7-- 7aa7 by striking prevention services and interventions for pregnant1 alcohol-dependent women and inserting culturally and linguistically appropriate evidence-based or evidence-informed interventions and appropriate societal supports for preventing prenatal alcohol exposure1 which may co-occur with exposure to other substances2 and 7bb7 by striking 2 and and inserting a semicolon2 7v7 by striking paragraph 7#c7 and inserting the following3 7#c7 integrating into surveillance a case definition for ,,fasd and1 in collaboration with other ,federal and outside partners1 supporting organizations of appropriate medical and mental health professionals in their development and refinement of evidence-based clinical diagnostic guidelines and criteria for all ,,fasd2 and 7#d7 building ,state and ,tribal capacity for the identification1 treatment1 and support of individuals with ,,fasd and their families1 which may include-- 7,a7 utilizing and adapting existing ,federal1 ,state1 or ,tribal programs to include ,,fasd identification and ,,fasd-informed support2 7,b7 developing and expanding screening and diagnostic capacity for ,,fasd2 7,c7 developing1 implementing1 and evaluating targeted ,,fasd-informed intervention programs for ,,fasd2 7,d7 increasing awareness of ,,fasd2 7,e7 providing training with respect to ,,fasd for professionals across relevant sectors2 and 7,f7 disseminating information about ,,fasd and support services to affected individuals and their families4 2 7,d7 in subsection 7b7-- 7i7 by striking described in section #cii;,i2 7ii7 by striking ,the ,secretary and inserting the following3 7#a7 ,in general ,the ,secretary 2 and 7iii7 by adding at the end the following3 7#b7 ,eligible entities ,to be eligible to receive a grant1 or enter into a cooperative agreement or contract1 under this section1 an entity shall-- 7,a7 be a ,state1 ,indian ,tribe or ,tribal organization1 local government1 scientific or academic institution1 or nonprofit organization2 and 7,b7 prepare and submit to the ,secretary an application at such time1 in such manner1 and containing such information as the ,secretary may require1 including a description of the activities that the entity intends to carry out using amounts received under this section4 7#c7 ,additional application contents ,the ,secretary may require that an eligible entity include in the application submitted under paragraph 7#b77;,b7-- 7,a7 a designation of an individual to serve as a ,,fasd ,state or ,tribal coordinator of activities such eligible entity proposes to carry out through a grant1 cooperative agreement1 or contract under this section2 and 7,b7 a description of an advisory committee the entity will establish to provide guidance for the entity on developing and implementing a statewide or ,tribal strategic plan to prevent ,,fasd and provide for the identification1 treatment1 and support of individuals with ,,fasd and their families4 2 and 7,e7 by striking subsections 7c7 and 7d72 and 7,f7 by adding at the end the following3 7c7 ,definition of ,,fasd-,informed ,for purposes of this section1 the term ,,fasd-informed1 with respect to support or an intervention program1 means that such support or intervention program uses culturally and linguistically informed evidence-based or practice-based interventions and appropriate societal supports to support an improved quality of life for an individual with ,,fasd and the family of such individual4 2 and 7#c7 by striking sections #cii;,i1 #cii;,j1 and #cii,k 7#db ,u4,s4,c4 #bhj;f-#a1 #bhj;f-#b1 #bhj;f-#c7 and inserting the following3 #cii;,i4 ,fetal alcohol spectrum disorders ,centers for ,excellence 7a7 ,in general ,the ,secretary shall1 as appropriate1 award grants1 cooperative agreements1 or contracts to public or nonprofit private entities with demonstrated expertise in the prevention of1 identification of1 and intervention services with respect to1 fetal alcohol spectrum disorders 7referred to in this section as ,,fasd7 and other related adverse conditions4 ,such awards shall be for the purposes of establishing ,fetal ,alcohol ,spectrum ,disorders ,centers for ,excellence to build local1 ,tribal1 ,state1 and nationwide capacities to prevent the occurrence of ,,fasd and other related adverse conditions1 and to respond to the needs of individuals with ,,fasd and their families by carrying out the programs described in subsection 7b74 7b7 ,programs ,an entity receiving an award under subsection 7a7 may use such award for the following purposes3 7#a7 ,initiating or expanding diagnostic capacity for ,,fasd by increasing screening1 assessment1 identification1 and diagnosis4 7#b7 ,developing and supporting public awareness and outreach activities1 including the use of a range of media and public outreach1 to raise public awareness of the risks associated with alcohol consumption during pregnancy1 with the goals of reducing the prevalence of ,,fasd and improving the developmental1 health 7including mental health71 and educational outcomes of individuals with ,,fasd and supporting families caring for individuals with ,,fasd4 7#c7 ,acting as a clearinghouse for evidence-based resources on ,,fasd prevention1 identification1 and culturally and linguistically appropriate best practices1 including the maintenance of a national data-based directory on ,,fasd-specific services in ,states1 ,indian ,tribes1 and local communities1 and disseminating ongoing research and developing resources on ,,fasd to help inform systems of care for individuals with ,,fasd across their lifespan4 7#d7 ,increasing awareness and understanding of efficacious1 evidence-based screening tools and culturally and linguistically appropriate evidence-based intervention services and best practices1 which may include by conducting nationwide1 regional1 ,state1 ,tribal1 or peer cross-,state webinars1 workshops1 or conferences for training community leaders1 medical and mental health and substance use disorder professionals1 education and disability professionals1 families1 law enforcement personnel1 judges1 individuals working in financial assistance programs1 social service personnel1 child welfare professionals1 and other service providers4 7#e7 ,improving capacity for ,state1 ,tribal1 and local affiliates dedicated to ,,fasd awareness1 prevention1 and identification and family and individual support programs and services4 7#f7 ,providing technical assistance to recipients of grants1 cooperative agreements1 or contracts under section #cii;,h1 as appropriate4 7#g7 ,carrying out other functions1 as appropriate4 7c7 ,application ,to be eligible for a grant1 contract1 or cooperative agreement under this section1 an entity shall submit to the ,secretary an application at such time1 in such manner1 and containing such information as the ,secretary may require4 7d7 ,subcontracting ,a public or private nonprofit entity may carry out the following activities required under this section through contracts or cooperative agreements with other public and private nonprofit entities with demonstrated expertise in ,,fasd3 7#a7 ,prevention activities4 7#b7 ,screening and identification4 7#c7 ,resource development and dissemination1 training and technical assistance1 administration1 and support of ,,fasd partner networks4 7#d7 ,intervention and treatment services4 #cii;,j4 ,authorization of appropriations ,there are authorized to be appropriated to carry out this part such sums as may be necessary for each of fiscal years #bjbe through #bjbi4 4 7b7 ,report ,not later than #d years after the date of enactment of this ,act1 the ,secretary of ,health and ,human ,services shall submit to the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate and the ,committee on ,energy and ,commerce of the ,house of ,representatives a report on the efforts of the ,department of ,health and ,human ,services to advance public awareness of1 and facilitate the identification of best practices related to1 fetal alcohol spectrum disorders identification1 prevention1 treatment1 and support4 7c7 ,technical amendment ,section #eai;,d of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bij;bb-#be;d7 is repealed4