,,iv  #aai? ,,congress  #a/ ,session    
,h4 ,,res4 #ejg  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,june #ab1 #bjbe,mr4  
,bilirakis submitt$ ! foll[+ resolution2
 :i* 0 ref]r$ to ! ,committee on ,en]gy 
& ,comm]ce  ,,resolution  ,express+     
support = ! designation ( ,june #aj z   
,,fsgs ,aw>5ess ,day4  ,:]eas           
approximately #a 9 #g ,am]ican adults h 
*ronic kidney disease1 & ! ?ird lead+   
cause ( *ronic kidney disease is        
glom]ulonephritis1 (t5 caus$ by r>e     
kidney diseases su* z focal segm5tal    
glom]uloscl]osis 7,,fsgs72 ,:]eas focal 
segm5tal glom]uloscl]osis is a condition
 ref]r+ to ! sc>r+ 9 ! kidneys1 (t5     
lead+ to a difficult j\rney t c 9 _m    
cases result 9 kidney failure1 requir+  
dialysis1 transplant1 & (t5 cycles (    
remissions & relapse2 ,:]eas #ej p]c5t (
 pati5ts ) ,,fsgs require dialysis or a 
kidney transplant )9 #e-aj ye>s ( _!    
diagnosis2 ,:]eas ,,fsgs is a sev]e     
disease because x (t5 progresses rapidly
 to kidney failure & ev5 = pati5ts )    

prim>y ,,fsgs :o receive a kidney       
transplant2 ,:]eas ,,fsgs c recur 9 _!  
transplant$ kidney up to #ej p]c5t ( !  
"t2 ,:]eas ,,fsgs recurr5ce c happ5     
quickly po/transplant1 sometimes h\rs to
 days1 & increases ! recurr5ce risk 9 a 
future graft to #hj to #ajj p]c5t2      
,:]eas ,,fsgs is a burd5 on our heal?   
c>e sy/em1 ) a #bjai /udy e/imat+ t     
,,fsgs co/s ,m$icaid1 ,m$ic>e1 & private
 heal? insurance ab\t #b1jjj1jjj1jjj    
annually 9 direct m$ical co/s1 n includ+
 indirect & quality ( life co/s2 ,:]eas1
 accord+ to ! ,ra,da,r ,database1 r>e   
kidney diseases l ,,fsgs make up j #e to
 #aj p]c5t ( *ronic kidney disease      
pati5ts b acc\nt = approximately #cj    
p]c5t ( kidney failure2 ,:]eas _m       
pati5ts face delays 9 be+ diagnos$ )    
,,fsgs1 due bo? to ! difficulty ( ! r>e 
disease diagno/ic odyssey1 :i* av]ages  
#e to #g ye>s1 & *all5ges 9 access+     
nephrology c>e t specializes 9 r>e      
kidney diseases1 ( :i* !re is curr5tly a
 %ortage 9 ! ,unit$ ,/ates2 ,:]eas      

,,fsgs disproportionately impacts       
m9ority populations1 includ+ ,african   
,am]icans1 (t5 occurr+ at a rate #d to  
#e times high] ?an ,:ite ,am]icans2     
,:]eas1 because ( c]ta9 v>iants ( !     
,,apol#a g5e t significantly increase ! 
risk ( develop+ ,,fsgs & o!r kidney     
diseases1 & because ^! high-risk v>iants
 are f\nd almo/ exclusively 9           
individuals ( ,african ance/ry1 ,,fsgs  
contributes to ! disproportionate burd5 
( kidney disease 9 ,black communities2  
,:]eas !re is new hope = pati5ts )      
,,fsgs1 ) cl9ical trials und]way =      
products t may delay progression (      
,,fsgs & ! onset ( kidney disease1      
includ+ ! pot5tial = ,,fda approv$      
!rapies 9 ! ne> future1 & significant   
progress be+ made by sci5ti/s1          
regulators1 pati5t gr\ps1 & indu/ry to  
validate prote9uria z an indicator (    
improvem5t 9 pati5ts2 ,:]eas pati5ts1   
families1 advocacy organizations l      
,neph,cure1 heal? c>e provid]s1 indu/ry1
 & rese>*]s are work+ tirelessly to     

raise aw>5ess1 promote e>ly detection1 &
 develop new innovative !rapies =       
,,fsgs2 ,:]eas millions ( doll>s h be5  
rais$ = rese>* on ! sev]e r>e kidney    
disease ,,fsgs at ! ,tampa ,pig ,jig1 an
 ev5t />t$ 9 #bjaa :5 #c fri5ds want$ to
 raise money = a fri5d diagnos$ ) ! r>e 
kidney disease ,,fsgs & is n[ att5d$ by 
ab\t #aj1jjj p annually 9 pursuit ( a   
cure = ?is deva/at+ disease2 & ,:]eas   
,,fsgs ,aw>5ess ,day is designat$ to    
raise aw>5ess ( ,,fsgs1 provide support 
& inspiration to pati5ts & families     
/ruggl+ ) ! disease1 & to promote !     
ef=ts ne$$ = bett] diagnosis & access to
 future treatm5ts t c trans=m ! c\rse ( 
! disease3 ,n[1 !re=e1 be x ,t ! ,h\se (
 ,repres5tatives-- 7#a7 expresses       
support = ! designation ( ,,fsgs        
,aw>5ess ,day2  7#b7 applauds ! ef=ts ( 
advocates & organizations t enc\rage    
aw>5ess1 promote rese>*1 & provide      
education1 support1 & hope to ^? impact$
 by ,,fsgs1 includ+ ^? suff]+ f recurr5t
 ,,fsgs2 &  7#c7 recognizes ! commitm5t 

( p>5ts1 families1 rese>*]s1 heal?      
pr(essionals1 indu/ry1 & o!rs d$icat$ to
 f9d+ an effective treatm5t & ev5tual   
cure = ,,fsgs4