,,iv  #aai? ,,congress  #a/ ,session    
,h4 ,,res4 #def  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,may #bi1 #bjbe,mr4   
,subramanyam 7= himself1 ,mr4           
,au*9closs1 ,mr4 ,bacon1 ,mr4 ,bey]1    
,mr4 ,bilirakis1 ,ms4 ,br[nley1 ,mr4    
,cleav]1 ,mr4 ,coh51 ,ms4 ,del,bene1    
,mrs4 ,f\%ee1 ,ms4 ,matsui1 ,ms4        
,mc,clellan1 ,mr4 ,mc,govern1 ,mr4      
,quigley1 ,mr4 ,pocan1 ,mr4 ,ryan1 ,ms4 
,sal9as1 ,ms4 ,scanlon1 ,ms4 ,s*olt51   
,mr4 ,scott ( ,virg9ia1 ,mr4 ,au/9      
,scott ( ,georgia1 ,ms4 ,%]rill1 ,ms4   
,/ansbury1 ,mr4 ,/anton1 ,ms4 ,g>cia (  
,texas1 ,mr4 ,?an$>1 ,mr4 ,tonko1 ,mrs4 
,watson ,coleman1 ,ms4 ,kelly (         
,ill9ois1 & ,mr4 ,v9dman7 submitt$ !    
foll[+ resolution2 :i* 0 ref]r$ to !    
,committee on ,en]gy & ,comm]ce         
,,resolution  ,express+ support = !     
designation ( ! mon? ( ,may #bjbe z     
,progressive ,supranucle> ,palsy        
,aw>5ess ,mon?4  ,:]eas progressive     
supranucle> palsy1 (t5 ref]r$ to z      
,,psp1 is an adult onset neurodeg5]ative

 disord] t affects multiple areas ( !   
bra9 & causes complex symptoms & c>e    
ne$s2 ,:]eas1 al?\gh "s symptoms may    
appe> simil> to t ( ,p>k9son's disease1 
progressive supranucle> palsy is a      
di/9ct disease t is "p ( a family (     
conditions cl9ically def9$ z atypical   
,p>k9sonism2 ,:]eas1 :ile e/imates v>y &
 ! disord] is (t5 misdiagnos$1          
approximately #cj1jjj ,am]icans are liv+
 ) progressive supranucle> palsy2 ,:]eas
 ! symptoms ( progressive supranucle>   
palsy c include cognitive impairm5t1    
gait & balance difficulties1 spee* &    
swall[+ difficulties1 /iffness1 *anges 9
 p]sonality1 *anges 9 vision1           
depression1 & a v>iety ( o!r symptoms t 
c h a sev]e impact on an individual's   
quality ( life & life expectancy2 ,:]eas
 progressive supranucle> palsy is       
aggressive 9 its progression1 ) mo/     
pati5ts becom+ dep5d5t on c>e 9 #c to #d
 ye>s2 ,:]eas !re is curr5tly no        
disease-modify+ treatm5ts & no kn[n cure
 = progressive supranucle> palsy2 ,:]eas

 progressive supranucle> palsy is       
believ$ to be caus$ by a comb9ation (   
environm5tal factors & g5etics1 b !     
exact cause is /ill unkn[n2 ,:]eas !re  
are ?\s&s ( family c>egiv]s1 fri5ds1 &  
lov$ ones ^: lives are greatly affect$  
by progressive supranucle> palsy2 ,:]eas
 additional rese>*1 support s]vices1 &  
education are ne$$ to ma9ta9 quality (  
life = ^? affect$ by ! disease1 r$uce   
delays to diagnosis & access to prop]   
c>e1 lead to bett] treatm5ts1 & f9d a   
cure = progressive supranucle> palsy2 & 
,:]eas ! e/abli%m5t ( ! mon? ( ,may     
#bjbe z ,progressive ,supranucle> ,palsy
 ,aw>5ess ,mon? w b5efit pati5ts1       
families1 heal? c>e pr(essionals1 &     
communities across ! c\ntry & fur!r     
bol/] aw>5ess ( ! disord]3 ,n[1 !re=e1  
be x  ,t ! ,h\se ( ,repres5tatives--    
7#a7 supports ! designation (           
,progressive ,supranucle> ,palsy        
,aw>5ess ,mon?2  7#b7 supports ! goals &
 ideals ( ,progressive ,supranucle>     
,palsy ,aw>5ess ,mon?2  7#c7 supports   

rese>* to f9d bett] treatm5ts & a cure =
 progressive supranucle> palsy2 &  7#d7 
comm5ds ! rese>*]s1 volunte]s1          
organizations1 families1 & individuals  
across ! c\ntry :o are work+ to improve 
! lives ( p liv+ ) progressive          
supranucle> palsy4