,,iv  #aai? ,,congress  #a/ ,session    
,h4 ,,res4 #ddi  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,may #bi1 #bjbe,mr4   
,cr[ 7= himself1 ,mr4 ,calv]t1 ,ms4     
,sewell1 & ,mr4 ,fitzpatrick7 submitt$ !
 foll[+ resolution2 :i* 0 ref]r$ to !   
,committee on ,en]gy & ,comm]ce         
,,resolution  ,supports ! designation ( 
,,als ,aw>5ess ,mon?4  ,:]eas           
amyotrophic lat]al scl]osis 7ref]r$ to 9
 ?is preamble z ,,als7 is a progressive 
neurodeg5]ative disease t affects n]ve  
cells 9 ! bra9 & ! sp9al cord2 ,:]eas ! 
life expectancy = an individual ) ,,als 
is betwe5 #b & #e ye>s aft] ! date on   
:i* ! individual receives an ,,als      
diagnosis2 ,:]eas ,,als occurs ?r\gh\t !
 _w ) no racial1 e?nic1 g5d]1 or        
socioeconomic b\nd>ies2 ,:]eas ,,als may
 affect any individual 9 any location2  
,:]eas ! cause ( ,,als is unkn[n 9 up to
 #ij p]c5t ( cases2 ,:]eas approximately
 #aj p]c5t ( cases h a /rong kn[n g5etic
 driv]2 ,:]eas1 on av]age1 ! p]iod      
betwe5 ! date on :i* an individual fir/ 

exp]i5ces symptoms ( ,,als & ! date on  
:i* ! individual is diagnos$ ) ,,als is 
m ?an #a ye>2 ,:]eas ! onset ( ,,als (t5
 involves muscle weakness or /iffness1 &
 ! progression ( ,,als results 9 ! fur!r
 weak5+1 wa/+1 & p>alysis (-- 7#a7 !    
muscles ( ! limbs & trunk2 &  7#b7 !    
muscles t control vital functions1 su* z
 spee*1 swall[+1 & brea?+2 ,:]eas ,,als 
c /rike individuals ( any age b         
pr$om9antly /rikes adults2 ,:]eas x is  
e/imat$ t t5s ( ?\s&s ( individuals 9 ! 
,unit$ ,/ates h ,,als at any giv5 "t2   
,:]eas1 bas$ on /udies ( ! population ( 
! ,unit$ ,/ates1 m ?an #e1jjj           
individuals 9 ! ,unit$ ,/ates are       
diagnos$ ) ,,als ea* ye>1 & #ae         
individuals 9 ! ,unit$ ,/ates are       
diagnos$ ) ,,als ea* day2 ,:]eas e #ij  
m9utes an individual is diagnos$ )      
,,als1 & an individual dies f ,,als2    
,:]eas ! majority ( individuals ) ,,als 
die ( respiratory failure2 ,:]eas       
milit>y vet]ans are m likely to be      
diagnos$ ) ,,als ?an ^? ) no hi/ory (   

milit>y s]vice2 ,:]eas1 z ( ! date (    
introduction ( ?is resolution1 !re is no
 cure = ,,als2 ,:]eas ! sp\ses1 *ildr51 
& family memb]s ( individuals liv+ )    
,,als provide support to ^? individuals 
) love1 day-to-day c>e1 & m2 & ,:]eas an
 individual ) ,,als1 & ! c>egiv]s ( su* 
an individual1 c be requir$ to be>      
significant co/s = m$ical c>e1 equipm5t1
 & home c>e s]vices = ! individual z !  
disease progresses3 ,n[1 !re=e1 be x ,t 
! ,h\se ( ,repres5tatives-- 7#a7        
supports ! designation ( ,,als ,aw>5ess 
,mon?2  7#b7 affirms ! d$ication ( !    
,h\se ( ,repres5tatives to ensur+ p )   
,,als h access to effective treatm5ts z 
soon z possible & id5tify+ risk factors 
& causes ( ,,als to prev5t new cases2   
7#c7 affirms ! d$ication ( ! ,h\se (    
,repres5tatives to emp[]+ p ) ,,als to  
engage ) ! _w 9 ! way !y want2  7#d7    
affirms ! d$ication ( ! ,h\se (         
,repres5tatives to r$uc+ physical1      
emotional1 & f9ancial burd5s ( liv+ )   
,,als2  7#e7 affirms ! d$ication ( !    

,h\se ( ,repres5tatives to ensur+ all p 
) ,,als & _! c>egiv]s receive           
high-quality s]vices & supports t b5efit
 !m2 &  7#f7 comm5ds ! d$ication ( !    
family memb]s1 fri5ds1 organizations1   
volunte]s1 rese>*]s1 & c>egiv]s across !
 ,unit$ ,/ates t are work+ to improve ! 
quality & l5g? ( life ( ,,als pati5ts & 
! developm5t ( treatm5ts & cures t rea* 
pati5ts z soon z possible4