,,iv  #aai? ,,congress  #a/ ,session    
,h4 ,,res4 #che  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,may #e1 #bjbe,mr4    
,v9dman 7= himself & ,mr4 ,cl9e7        
submitt$ ! foll[+ resolution2 :i* 0     
ref]r$ to ! ,committee on ,en]gy &      
,comm]ce  ,,resolution  ,express+       
support = ! designation ( ,may #b1      
#bjbe1 z ,,nkh ,aw>5ess ,day4  ,:]eas a 
r>e disease is def9$ z a disease t      
affects few] ?an #bjj1jjj p 9 ! ,unit$  
,/ates at any giv5 "t2 ,:]eas *ildr5    
make up m ?an half ( ! e/imat$          
#be1jjj1jjj to #ce1jjj1jjj p 9 ! ,unit$ 
,/ates liv+ ) a r>e disease2 ,:]eas     
nonketotic hyp]glyc9emia 7,,nkh7 is a   
r>e g5etic metabolic disord] 9 :i*      
abnormally high levels ( glyc9e build up
 9 a pati5t's body2 ,:]eas ,,nkh is also
 kn[n z glyc9e encephalopa?y2 ,:]eas    
,,nkh affects approximately #a 9 #gf1jjj
 p worldwide2 ,:]eas ,,nkh is caus$ by a
 mutation 9 ! glyc9e cleavage enzyme    
sy/em1 mean+ t pati5ts _c break d[n     
glyc9e1 result+ 9 its accumulation      

?r\gh\t ! body & especially 9 ! sp9al   
cord & bra92 ,:]eas ,,nkh has #b =ms1   
sev]e & att5uat$ ,,nkh2 ,:]eas mo/      
*ildr5 born ) ,,nkh d n a*ieve typical  
developm5tal mile/ones1 & ^? t d may    
lose ^! abilities ov] "t2 ,:]eas ,,nkh  
may be diagnos$ by a comb9ation ( a     
physical exam1 bio*emical te/+1 & g5etic
 analysis2 ,:]eas !re are only          
approximately #ejj cases ( ,,nkh        
diagnos$ worldwide2 ,:]eas #d kn[n      
pati5ts liv+ ) ,,nkh are 9 ,virg9ia2    
,:]eas ,congress c raise aw>5ess ( ,,nkh
 9 ! public & 9 ! m$ical community ( !  
,unit$ ,/ates2 & ,:]eas increas$ aw>5ess
 ( ,,nkh may result 9 increas$ rese>*1  
p>ticipation 9 ,,nkh pati5t regi/ries1 &
 diagnoses ( ,,nkh cases3 ,n[1 !re=e1 be
 x ,t ! ,h\se ( ,repres5tatives-- 7#a7  
supports ! designation ( ,,nkh ,aw>5ess 
,day2 &  7#b7 recognizes ! importance ( 
rais+ aw>5ess & improv+ education ar\nd 
nonketotic hyp]glyc9emia 7,,nkh74