,,iv  #aai? ,,congress  #a/ ,session    
,h4 ,,res4 #bde  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,m>* #bd1 #bjbe,mr4   
,morelle submitt$ ! foll[+ resolution2  
:i* 0 ref]r$ to ! ,committee on ,en]gy &
 ,comm]ce  ,,resolution  ,recogniz+ !   
significance ( ,sjgr5's disease z a     
s]i\s & sy/emic autoimmune disease &    
express+ support = ! designation (      
,april #bjbe z ,sjgr5's ,aw>5ess ,mon?4 
,:]eas up to #d1jjj1jjj adults 9 !      
,unit$ ,/ates are liv+ ) ,sjgr5's       
disease 7,sjgr5's72 ,:]eas ,sjgr5's is a
 sy/emic autoimmune disease t affects ! 
entire body2 ,:]eas ! *>act]i/ic        
symptoms ( ,sjgr5's include pr(\nd      
fatigue1 ext5sive dryness ?r\gh\t ! body
 7includ+ ! eyes1 m\?1 esophagus1       
s9uses1 sk91 & g5itals71 & pa92 ,:]eas  
complications f ,sjgr5's include *ronic 
pa91 major organ involvem5t1            
neuropa?ies1 cognitive dysfunction1     
ga/ro9te/9al dysfunction1 int]/itial    
cy/itis1 lymphomas1 &1 9 babies ^: mo!rs
 h ,sjgr5's1 fetal he>tblock 2 ,:]eas ! 

av]age age = a diagnosis ( ,sjgr5's is  
curr5tly betwe5 ! ages ( #de & #ee1     
al?\gh ,sjgr5's c affect individuals (  
all ages2 ,:]eas ! ratio ( wom5 to m5   
liv+ ) a ,sjgr5's diagnosis is          
approximately #i to #a2 ,:]eas ! cause (
 ,sjgr5's is n kn[n1 & !re is no s+le   
te/ to diagnose ! autoimmune disease2   
,:]eas individuals liv+ ) ,sjgr5's mu/  
be> high out-(-pocket co/s 9 ord] to    
af=d m$ications to control inflammation 
& dryness1 relieve jo9t1 muscle1 & n]ve 
pa91 r$uce acid reflux due to limit$    
saliva production1 & treat ! deva/at+   
complications ( oral1 ocul>1 & o!r      
dryness2 ,:]eas rheumatologi/s prim>ily 
treat individuals ) ,sjgr5's1 b a wide  
v>iety ( o!r speciali/s are also involv$
 ) ! treatm5t ( ,sjgr5's1 includ+       
d5ti/s1 neurologi/s1 ocul> speciali/s1  
otol>yngologi/s1 ga/ro5t]ologi/s1       
nephrologi/s1 & pulmonologi/s2 ,:]eas   
,sjgr5's is (t5 difficult to diagnose &1
 s9ce _m heal? c>e provid]s are         
unfamili> ) ! disease1 additional tra9+ 

is ess5tial to ensure pati5ts receive   
accurate & timely diagnoses2 ,:]eas !   
physical & psy*ological impact (        
,sjgr5's c sev]ely affect an            
individual's duties at home & 9 !       
workplace2 ,:]eas !re is a ne$ to update
 ! nom5clature to classify ,sjgr5's z a 
disease1 includ+ by ! ,f$]al ,gov]nm5t2 
,:]eas !re is a ne$ = m rese>* to und]/&
 ! pa?ology t leads to ! autoimmune     
attack 9 ,sjgr5's1 includ+ ! role ( !   
int]play ( ! immune & n]v\s sy/ems2     
,:]eas cl9ical trials are und]way to te/
 ! efficacy ( t>get$ !rapies t w address
 ! cause ( ,sjgr5's1 & rese>* is und]way
 to id5tify g5es & environm5tal         
influ5ces t may contribute to und]/&+ :o
 is susceptible to ,sjgr5's2 & ,:]eas m 
rese>* is ne$$ to id5tify new !rapies & 
cle> biom>k]s to help individuals )     
,sjgr5's manage ! symptoms &            
complications z !y age3 ,n[1 !re=e1 be x
 ,t ! ,h\se ( ,repres5tatives--  7#a7   
recognizes ,sjgr5's disease z a s]i\s   
heal? issue t causes a significant heal?

 burd52  7#b7 enc\rages ! ,secret>y (   
,heal? & ,human ,s]vices & ! heads ( o!r
 relevant ag5cies--  7,a7 to exp&1      
enhance1 & increase rese>* ( ,sjgr5's   
disease & id5tify new areas ( rese>*    
?r\gh ! ,(fice ( ,autoimmune ,disease   
,rese>*2  7,b7 to improve ! und]/&+ ( ! 
causes ( ,sjgr5's disease & id5tify     
biom>k]s t w help ) pati5t /ratification
 & diagnosis1 disease managem5t1 &      
developm5t ( t>get$ !rapies = ,sjgr5's  
pati5ts2  7,c7 to bett] quantify &      
regul>ly track ! numb] ( ,sjgr5's       
pati5ts1 z _m individuals are believ$ to
 be undiagnos$ or are misdiagnos$1 su* z
 ^? t h ,sjgr5's disease & ano!r        
autoimmune disease2  7,d7 to update     
lit]ature on ,sjgr5's disease &         
dissem9ate su* lit]ature to heal?       
provid]s to increase aw>5ess & accurate 
k ab\t ! disease2 &  7,e7 to build      
aw>5ess ( ,sjgr5's disease among        
physicians & communities 9 und]s]v$     
areas s t pati5ts ) ,sjgr5's disease are
 diagnos$ correctly & obta9 ! c>e !y    

ne$2 &  7#c7 expresses support = !      
designation ( ,sjgr5's ,aw>5ess ,mon?4