,,iv  #aai? ,,congress  #a/ ,session    
,h4 ,,res4 #agb  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,febru>y #bg1         
#bjbe,mr4 ,johnson ( ,georgia 7=        
himself1 ,mrs4 ,mc,bath1 ,ms4 ,wilson ( 
,florida1 ,ms4 ,velzquez1 & ,ms4        
,norton7 submitt$ ! foll[+ resolution2  
:i* 0 ref]r$ to ! ,committee on ,en]gy &
 ,comm]ce  ,,resolution  ,rais+ aw>5ess 
= ! s>coma canc] *ordoma4  ,:]eas       
*ordoma is a sl[ gr[+1 yet aggressive   
bone canc] ( ! skull & sp9e2 ,:]eas x   
/rikes p ( all ages & affects m ?an     
#be1jjj individuals worldwide2 ,:]eas1  
ea* ye>1 ?\s&s ( p are diagnos$ )       
*ordoma includ+ ab\t #cjj p annually 9 !
 ,unit$ ,/ates2 ,:]eas *ordomas are     
among ! mo/ complicat$ tumors to treat  
due to involvem5t ( critical /ructures  
su* z ! bra9 /em1 sp9al cord1 &         
important n]ves & art]ies2 ,:]eas surg]y
 or radiation p]=m$ by a skill$ treatm5t
 team c be curative = "s pati5ts1 b ev5 
) ! be/ c>e possible1 ! recurr5ce rate  
rema9s high2 & ,:]eas no drugs are kn[n 

to cure or effectively control !        
disease1 mean+ t pati5ts ^: disease     
progresses aft] exhau/+ surgical &      
radiation options h little hope = a full
 recov]y3 ,n[1 !re=e1 be x ,t x is !    
s5se ( ! ,h\se ( ,repres5tatives t      
*ordoma pati5ts & families ne$ increas$ 
fund+ & support =-- 7#a7 accurate & e>ly
 diagnosis2  7#b7 ! developm5t ( new    
treatm5ts1 diagno/ics1 & cures2  7#c7   
few] hurdles betwe5 rese>* & new        
treatm5ts2 &  7#d7 pati5t-c5tric        
approa*es to drug discov]y & developm5t4