,,iv  #aai? ,,congress  #b;d ,session   
,h4 ,,res4 #afac  ,,9 ,,! ,,h\se ,,(    
,,repres5tatives  ,octob] #e1 #bjbf,mrs4
 ,kim submitt$ ! foll[+ resolution2 :i* 
0 ref]r$ to ! ,committee on ,en]gy &    
,comm]ce  ,,resolution  ,express+       
support = ! recognition ( ,octob] #e? z 
,national ,p]oxisomal ,disord] ,aw>5ess 
,day4  ,:]eas ,national ,p]oxisomal     
,disord] ,aw>5ess ,day w help to fo/]   
und]/&+ ( ! impact t p]oxisomal         
disord]s1 includ+ p]oxisome biog5esis   
disord]-,zellweg] spectrum disord] & !  
relat$ s+le enzyme defici5cies1 l       
,d-bifunctional prote9 defici5cy1 h on  
pati5ts & _! families2 ,:]eas p]oxisomal
 disord]s are progressive g5etic        
disord]s t affect p]oxisome function & c
 impact multiple organ sy/ems1 (t5      
result+ 9 neurological1 liv]1 kidney1   
vision1 he>+1 ga/ro9te/9al1 endocr9e1 & 
o!r s]i\s heal? complications2 ,:]eas   
!re are v few treatm5ts & /ill no cure =
 p]oxisomal disord]s2 ,:]eas all pati5ts
 ) p]oxisomal disord]s suff] f a v>iety 

( heal? issues1 caus+ a /ra9 on res\rces
 & on ! deliv]y ( heal?c>e 9 ! ,unit$   
,/ates2 ,:]eas p]oxisomal disord]s c h a
 deva/at+ impact on ! heal? & f9ances ( 
p ( all ages1 & equally affect p ( all  
races1 g5d]s1 nationalities1 geographic 
locations1 & income levels2 ,:]eas      
p]oxisomal disord]s in/ill 9 pati5ts &  
_! c>egiv]s a fe> ( an unkn[n future ) a
 life-?reat5+ g5etic disease &          
appreh5sion ov] possible discrim9ation1 
includ+ ! risk ( los+ _! heal? & life   
insurance1 _! jobs1 & _! *ances =       
promotion2 ,:]eas c\ntless fri5ds1 lov$ 
ones1 sp\ses1 & c>egiv]s ( pati5ts )    
p]oxisomal disord]s mu/ %\ld]1 !        
physical1 emotional1 & f9ancial burd5s2 
,:]eas p :o h *ronic1 life-?reat5+      
diseases l p]oxisomal disord]s & _!     
c>egiv]s h a pr$isposition to depression
 because ( _! anxiety ov] pa91 suff]+1 &
 premature dea?2 & ,:]eas spread+       
aw>5ess on ,octob] #e? is crucial to    
r$uc+ b>ri]s to heal? c>e access1       
includ+ complicat$ & burd5some sy/ems1  

limit$ supply ( heal? c>e provid]s ) an 
und]/&+ ( p]oxisomal disord]s1 an ardu\s
 process = diagnosis1 & limit$ res\rces 
to inve/ 9 new !rapies & treatm5ts3 ,n[1
 !re=e1 be x ,t ! ,h\se (               
,repres5tatives--  7#a7 expresses       
support = ! recognition ( ,national     
,p]oxisomal ,disord] ,aw>5ess ,day2 &   
7#b7 expresses conc]n = ! sev]e /ra9 on 
,am]ican families impact$ by p]oxisome  
disord]s4