,,iv  #aaith ,,congress  #b;d ,session  
,h4 ,,res4 #afac  ,,in ,,the ,,house    
,,of ,,representatives  ,october #e1    
#bjbf,mrs4 ,kim submitted the following 
resolution2 which was referred to the   
,committee on ,energy and ,commerce     
,,resolution  ,expressing support for   
the recognition of ,october #eth as     
,national ,peroxisomal ,disorder        
,awareness ,day4  ,whereas ,national    
,peroxisomal ,disorder ,awareness ,day  
will help to foster understanding of the
 impact that peroxisomal disorders1     
including peroxisome biogenesis         
disorder-,zellweger spectrum disorder   
and the related single enzyme           
deficiencies1 like ,d-bifunctional      
protein deficiency1 have on patients and
 their families2 ,whereas peroxisomal   
disorders are progressive genetic       
disorders that affect peroxisome        
function and can impact multiple organ  
systems1 often resulting in             
neurological1 liver1 kidney1 vision1    
hearing1 gastrointestinal1 endocrine1   

and other serious health complications2 
,whereas there are very few treatments  
and still no cure for peroxisomal       
disorders2 ,whereas all patients with   
peroxisomal disorders suffer from a     
variety of health issues1 causing a     
strain on resources and on the delivery 
of healthcare in the ,united ,states2   
,whereas peroxisomal disorders can have 
a devastating impact on the health and  
finances of people of all ages1 and     
equally affect people of all races1     
genders1 nationalities1 geographic      
locations1 and income levels2 ,whereas  
peroxisomal disorders instill in        
patients and their caregivers a fear of 
an unknown future with a                
life-threatening genetic disease and    
apprehension over possible              
discrimination1 including the risk of   
losing their health and life insurance1 
their jobs1 and their chances for       
promotion2 ,whereas countless friends1  
loved ones1 spouses1 and caregivers of  
patients with peroxisomal disorders must

 shoulder1 the physical1 emotional1 and 
financial burdens2 ,whereas people who  
have chronic1 life-threatening diseases 
like peroxisomal disorders and their    
caregivers have a predisposition to     
depression because of their anxiety over
 pain1 suffering1 and premature death2  
and ,whereas spreading awareness on     
,october #eth is crucial to reducing    
barriers to health care access1         
including complicated and burdensome    
systems1 limited supply of health care  
providers with an understanding of      
peroxisomal disorders1 an arduous       
process for diagnosis1 and limited      
resources to invest in new therapies and
 treatments3 ,now1 therefore1 be it     
,that the ,house of ,representatives--  
7#a7 expresses support for the          
recognition of ,national ,peroxisomal   
,disorder ,awareness ,day2 and  7#b7    
expresses concern for the severe strain 
on ,american families impacted by       
peroxisome disorders4