,,iv  #aai? ,,congress  #b;d ,session   
,h4 ,,res4 #acah  ,,9 ,,! ,,h\se ,,(    
,,repres5tatives  ,may #ba1 #bjbf,mr4   
,subramanyam 7= himself1 ,ms4 ,scanlon1 
,ms4 ,bonamici1 ,mr4 ,walk9%aw1 ,mr4    
,quigley1 ,mr4 ,ryan1 ,mrs4 ,f\%ee1 ,ms4
 ,del,bene1 ,ms4 ,b>ragn1 ,mr4 ,bacon1  
,ms4 ,s*olt51 ,mr4 ,lawl]1 ,ms4 ,g>cia (
 ,texas1 ,ms4 ,mc,clellan1 ,mr4 ,/anton1
 ,mrs4 ,d+ell1 ,ms4 ,ca/or ( ,florida1  
,mr4 ,v9dman1 ,mr4 ,bey]1 ,mr4 ,cleav]1 
,mrs4 ,flet*]1 ,mr4 ,pappas1 ,mr4 ,scott
 ( ,virg9ia1 ,ms4 ,norton1 ,ms4 ,leg]   
,f]n&ez1 & ,ms4 ,sal9as7 submitt$ !     
foll[+ resolution2 :i* 0 ref]r$ to !    
,committee on ,en]gy & ,comm]ce         
,,resolution  ,express+ support = !     
designation ( ! mon? ( ,may #bjbf z     
,progressive ,supranucle> ,palsy &      
,corticobasal ,deg5]ation ,aw>5ess      
,mon?4  ,:]eas progressive supranucle>  
palsy1 (t5 ref]r$ to z ,,psp1 &         
corticobasal deg5]ation1 (t5 ref]r$ to z
 ,,cbd1 are r>e1 adult onset1 rapidly   
progress+ neurodeg5]ative disord]s t    

affect multiple areas ( ! bra9 & cause  
complex symptoms & c>e ne$s2 ,:]eas     
al?\gh "s symptoms may appe> simil> to t
 ( o!r neurological diagnoses l         
,p>k9son's disease & frontotemporal     
dem5tia1 progressive supranucle> palsy &
 corticobasal deg5]ation are di/9ct     
diseases ) _! own unique trajectories & 
c>e ne$s2 ,:]eas :ile e/imates v>y & !  
conditions are frequ5tly misdiagnos$1   
approximately #cj1jjj ,am]icans are liv+
 ) progressive supranucle> palsy &      
#b1jjj ,am]icans are liv+ ) corticobasal
 deg5]ation2 ,:]eas delays to bo?       
accurate diagnosis ( progressive        
supranucle> palsy & corticobasal        
deg5]ation & access to neurology        
pr(essionals specializ$ 9 ^! diseases   
are common1 caus+ confusion1 anxiety1 & 
fru/ration2 ,:]eas progressive          
supranucle> palsy & corticobasal        
deg5]ation c cause significant          
difficulty ) movem5t1 balance1 spee*1   
swall[+1 cognition1 vision1 mood1 & a   
v>iety ( o!r complex symptoms2 ,:]eas   

progressive supranucle> palsy &         
corticobasal deg5]ation are aggressive 9
 _! progression1 ) mo/ individuals      
becom+ dep5d5t on c>e 9 #c to #d ye>s & 
hav+ an ov]all life expectancy ( #g to  
#h ye>s f symptom onset2 ,:]eas !re are 
curr5tly no disease-modify+ treatm5ts = 
progressive supranucle> palsy or        
corticobasal deg5]ation2 ,:]eas m rese>*
 is ne$$ to und]/& ! roles (            
environm5tal factors & g5etics 9 :y p   
develop progressive supranucle> palsy & 
corticobasal deg5]ation2 ,:]eas !re are 
c\ntless family c>egiv]s1 fri5ds1 & lov$
 ones ^: lives are greatly affect$ by   
progressive supranucle> palsy &         
corticobasal deg5]ation2 ,:]eas         
additional rese>*1 support s]vices1 &   
education are ne$$ to ma9ta9 quality (  
life = ^? affect$ by ! disease1 lead to 
bett] treatm5ts & prev5tion (           
complications1 & f9d cures = progressive
 supranucle> palsy & corticobasal       
deg5]ation2 & ,:]eas ! e/abli%m5t ( !   
mon? ( ,may #bjbf z ,progressive        

,supranucle> ,palsy & ,corticobasal     
,deg5]ation ,aw>5ess ,mon? w b5efit     
individuals diagnos$1 families1 heal?c>e
 pr(essionals1 & communities across !   
c\ntry & fur!r bol/] aw>5ess ( !        
diseases3 ,n[1 !re=e1 be x ,t ! ,h\se ( 
,repres5tatives--  7#a7 supports !      
designation ( ,progressive ,supranucle> 
,palsy & ,corticobasal ,deg5]ation      
,aw>5ess ,mon?2  7#b7 supports ! goals &
 ideals ( ,progressive ,supranucle>     
,palsy & ,corticobasal ,deg5]ation      
,aw>5ess ,mon?2  7#c7 supports rese>* on
 diagnosis1 prev5tion1 treatm5ts1 &     
cures = progressive supranucle> palsy & 
corticobasal deg5]ation2  7#d7          
recognizes ! /r5g? & resili5ce ( !      
progressive supranucle> palsy &         
corticobasal deg5]ation community2 &    
7#e7 comm5ds ! individuals1 families1   
volunte]s1 heal?c>e pr(essionals1       
rese>*]s1 & organizations across !      
c\ntry :o are work+ to improve ! lives (
 p liv+ ) progressive supranucle> palsy 
& corticobasal deg5]ation4