,,iv  #aai? ,,congress  #b;d ,session   
,h4 ,,res4 #aacc  ,,9 ,,! ,,h\se ,,(    
,,repres5tatives  ,m>* #bd1 #bjbf,mr4   
,kean 7= himself & ,mr4 ,got!im]7       
submitt$ ! foll[+ resolution2 :i* 0     
ref]r$ to ! ,committee on ,en]gy &      
,comm]ce  ,,resolution  ,designat+      
,novemb] #g ( ea* ye> z ,%wa*man        
,diamond ,syndrome ,aw>5ess ,day4       
,:]eas ,%wa*man-,diamond syndrome       
7,,sds7 is a r>e g5etic disord] t       
prim>ily affects a diagnos$ individual's
 bone m>r[1 pancreas1 & skeleton2 ,:]eas
 ,,sds is inh]it$ 9 an autosomal        
recessive mann]1 mean+ a p]son mu/      
inh]it two faulty copies ( ! g5e1 "o f  
ea* p>5t1 = ! disord] to develop2       
,:]eas1 typically1 ! p>5ts ( ! affect$  
individual d n %[ signs & symptoms (    
,,sds2 ,:]eas an e/imat$ #b1jjj         
,am]icans are liv+ ) ,,sds2 ,:]eas ?is  
r>e condition occurs 9 approximately #a 
9 #hj1jjj newborns2 ,:]eas infants )    
,,sds are born ) ! condition & develop  
symptoms usually by #d to #f mon?s (    

age2 ,:]eas individuals diagnos$ ) ,,sds
 (t5 develop liv] dysfunction1 d5tal    
problems1 developm5tal delays1 & delay$ 
pub]ty2 ,:]eas "o ( ! ma9 *>act]i/ics ( 
,,sds is bone m>r[ dysfunction2 ,:]eas  
bone m>r[ dysfunction leads to !        
production ( too few :ite blood cells1  
:i* are ess5tial = fight+ infections1   
mak+ individuals m prone to frequ5t or  
sev]e illnesses2 ,:]eas1 9 addition to  
hav+ too few :ite blood cells1          
individuals ) ,,sds may also h l[ levels
 ( r$ blood cells1 :i* increases _! risk
 ( develop+ blood disord]s su* z acute  
myeloid leukemia2 ,:]eas ano!r hallm>k (
 ,,sds is pancreatic insuffici5cy1 9 :i*
 ! pancreas does n produce en\gh        
dige/ive enzymes4 ,?is (t5 causes       
problems absorb+ fats & nutri5ts1 lead+ 
to *ronic di>rhea1 poor weight ga91 &   
failure to ?rive1 especially dur+       
infancy & e>ly *ildhood2 ,:]eas skeletal
 abnormalities affect+ ! gr[? plates (  
bones are also common 9 individuals     
diagnos$ ) ,,sds1 (t5 lead+ to %ort     

/ature & or?op$ic problems ) _! hips &  
knees2 ,:]eas1 ) mod]n treatm5t options 
& ongo+ managem5t1 mo/ *ildr5 diagnos$ )
 ,,sds lead normal lives1 al?\gh cont9u$
 m$ications & regul> monitor+ are       
usually requir$2 ,:]eas1 because ! signs
 & symptoms ( ,,sds are v>iable & c be  
mild 9 "s affect$ individuals1 !        
condition is und]diagnos$2 ,:]eas       
diagnosis is bas$ on a comb9ation (     
cl9ical symptoms1 blood te/s1 /ool te/s 
= dige/ive enzyme levels1 & confirmation
 ?r\gh g5etic te/+2 ,:]eas treatm5t     
typically involves manag+ symptoms1 su* 
z us+ pancreatic enzyme replacem5t      
!rapy1 nutritional support1 & m$ications
 t /imulate :ite blood cell production2 
,:]eas !re is no cure = ,,sds4 ,curr5t  
treatm5t options only less5 symptoms &  
treat complications2 ,:]eas ,,sds r$uces
 life expectancy by m ?an #cj ye>s & _m 
pati5ts die z infants1 kids1 or te5s due
 to ,,sds-relat$ complications2 ,:]eas  
regul> monitor+ is ess5tial to id5tify  
any progression to m s]i\s bone m>r[    

conditions2 ,:]eas1 :ile !re is no cure 
= ,,sds1 e>ly diagnosis &               
multidiscipl9>y c>e c significantly     
improve ! quality ( life = diagnos$     
individuals2 ,:]eas1 z a result ( its   
r>e nature1 ,,sds is n widely kn[n4 ,?is
 has l$ to limit$ rese>* & und]/&+ ( !  
disease2 ,:]eas x is appropriate to     
improve public aw>5ess & und]/&+ ( ?is  
r>e g5etic condition1 enc\rage support =
 ^? individuals :o h be5 afflict$ by    
,,sds1 & promote m initiatives at !     
national1 /ate1 & local levels to       
enhance rese>* into treat+ ?is disease2 
& ,:]eas ,novemb] #g?1 #bjbf1 w\ld be an
 appropriate date to designate          
,%wa*man-,diamond ,syndrome ,aw>5ess    
,day3 ,n[1 !re=e1 be x ,t ! ,h\se (     
,repres5tatives-- 7#a7 ,supports !      
designation ( ,%wa*man ,diamond ,syndrom
 ,aw>5ess ,day to increase aw>5ess ( ?is
 h]itable r>e g5etic disord] & its      
impace on ! resid5ts ( ?is nation1 & to 
promote fur!r rese>* into effective     
treatm5ts = ?is disease4  7#b7 ,?is act 

%all take effect imm$iately4