,i  #aai? ,,congress  #b;d ,session  ,h4
 ,r4 #iafi  ,,9 ,,! ,,h\se ,,(          
,,repres5tatives  ,june #d1 #bjbf,ms4   
,wass]man ,s*ultz 7= h]self1 ,mrs4      
,mill] ( ,we/ ,virg9ia1 ,mr4 ,cleav]1 & 
,mr4 ,bacon7 introduc$ ! foll[+ bill2   
:i* 0 ref]r$ to ! ,committee on ,en]gy &
 ,comm]ce  ,a ,,bill  ,to support       
polycy/ic kidney disease rese>*1 & = o!r
 purposes4  #a4 ,%ort title ,?is ,act   
may be cit$ z ! ,,pkd ,cures ,act4  #b4 
,f9d+s ,congress f9ds ! foll[+3 7#a7    
,polycy/ic kidney disease 79 ?is section
 ref]r$ to z ,,pkd7 is "o ( ! mo/ common
 life-?reat5+ g5etic diseases1 affect+  
approximately #ejj1jjj ,am]icans &      
millions worldwide4  7#b7 ,,pkd leads to
 end-/age r5al disease1 or kidney       
failure1 9 ! majority ( affect$         
individuals1 necessitat+ dialysis &     
transplantation4  7#c7 ,m ?an #e p]c5t (
 pati5ts enroll$ 9 ! ,m$ic>e ,end-,/age 
,r5al ,disease program h kidney failure 
caus$ by cy/ic kidney disease1 prim>ily 
,,pkd4  7#d7 ,end-/age r5al disease &   

kidney failure attributable to cy/ic    
kidney diseases1 l ,,pkd1 co/ ,m$ic>e an
 e/imat$ #c1jjj1jjj1jjj annually4  #c4  
,expansion ( ,,nih rese>* on polycy/ic  
kidney disease ,subp>t #c ( "p ,c (     
title ,,iv ( ! ,public ,heal? ,s]vice   
,act 7#db ,u4,s4,c4 #bhe;c et seq47 is  
am5d$ by add+ at ! end ! foll[+3        
#dcd;,b4 ,expansion ( ,,nih rese>* on   
polycy/ic kidney disease  7a7 ,rese>*   
focus ,! ,director ( ! ,in/itute %all   
exp& & int5sify rese>* activities reg>d+
 polycy/ic kidney disease 79 ?is section
 ref]r$ to z ,,pkd71 includ+-- 7#a7     
basic rese>* to und]/& ! g5etic &       
molecul> me*anisms ( ,,pkd2  7#b7       
translational rese>* to id5tify biom>k]s
 & pot5tial !rapeutic t>gets2 &  7#c7   
cl9ical rese>* to evaluate ! safety &   
efficacy ( new & exi/+ treatm5ts4  7b7  
,collaboration ,9 implem5t+ !           
requirem5ts ( subsection 7a71 !         
,director ( ! ,in/itute %all-- 7#a7     
collaborate ) o!r ,f$]al ag5cies1       
academic in/itutions1 & private sector  

/akehold]s to accel]ate ! developm5t (  
treatm5ts & cures2 &  7#b7 support tra9+
 programs to cultivate a work=ce (      
rese>*]s & cl9icians specializ+ 9 ,,pkd4
  7c7 ,priority ,9 implem5t+ !          
requirem5ts ( subsection 7a71 !         
,director ( ! ,in/itute %all prioritize 
rese>* proposals t demon/rate a cle>    
pot5tial to advance und]/&+ & treatm5t (
 ,,pkd4  #dcd;,c4 ,developm5t (         
compreh5sive ,,pkd roadmap  7a7 ,9 g5]al
 ,! ,director ( ,,nih %all e/abli% a    
work+ gr\p to develop a compreh5sive    
roadmap = polycy/ic kidney disease 79   
?is section ref]r$ to z ,,pkd7 rese>* & 
innovation4  7b7 ,memb]%ip ,! ,director 
( ,,nih %all appo9t ! memb]s ( ! work+  
gr\p1 :o %all be-- 7#a7 exp]ts 9        
nephrology1 human g5etics1 or molecul> &
 cellul> biology ) exp]tise 9 !         
me*ani/ic pa?ways ( ,,pkd2  7#b7        
repres5tatives ( ,,pkd pati5t advocacy  
organizations2 or  7#c7 su* o!r         
/akehold]s z ! ,director det]m9es       
appropriate4  7c7 ,responsibilities ,9  

develop+ ! compreh5sive roadmap ref]r$  
to 9 subsection 7a71 ! work+ gr\p %all--
 7#a7 id5tify rese>* gaps & priorities2 
7#b7 recomm5d /rategies to enhance      
collaboration betwe5 ! public & private 
sectors2  7#c7 propose timel9es &       
b5*m>ks = a*iev+ key mile/ones 9 ,,pkd  
innovation2 &  7#d7 develop a plan =    
integrat+ new te*nologies1 su* z        
artificial intellig5ce & precision      
m$ic9e1 into ,,pkd rese>* & c>e4  7d7   
,report ,n lat] ?an #bd mon?s aft] !    
date ( enactm5t ( ?is section1 ! work+  
gr\p %all submit to ,congress a report  
detail+ ! f9d+s & recomm5dations ( !    
work+ gr\p1 includ+ ! compreh5sive      
roadmap ref]r$ to 9 subsection 7a74  4