,i #aai? ,,congress #b;d ,session ,h4 ,r4 #hhci ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,may #ad1 #bjbf ,ms4 ,wass]man ,s*ultz 7= h]self1 ,mr4 ,fitzpatrick1 ,mr4 ,de,saulnier1 ,mr4 ,wilson ( ,s\? ,c>ol9a1 & ,mr4 ,k5n$y ( ,new ,york7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce1 & 9 addition to ! ,committees on ,ways & ,means1 & ,education & ,work=ce1 = a p]iod to be subsequ5tly det]m9$ by ! ,speak]1 9 ea* case = consid]ation ( su* provisions z fall )9 ! jurisdiction ( ! committee conc]n$ ,a ,,bill ,to address ! heal? ( canc] survivors & unmet ne$s t survivors face ?r\gh ! entire cont9uum ( c>e f diagnosis ?r\gh active treatm5t & po/treatm5t1 9 ord] to improve survivor%ip1 treatm5t1 transition to recov]y & beyond1 quality ( life & palliative c>e1 & long-t]m heal? outcomes1 includ+ by develop+ a m9imum /&>d ( c>e = canc] survivor%ip1 irrespective ( ! type ( canc]1 a survivor's backgr\nd1 or =?com+ survivor%ip ne$s1 & = o!r purposes4 #a4 ,%ort title2 table ( cont5ts 7a7 ,%ort title ,?is ,act may be cit$ z ! ,la9ie ,jones ,compreh5sive ,canc] ,survivor%ip ,act ( #bjbf4 7b7 ,table ( cont5ts ,! table ( cont5ts ( ?is ,act is z foll[s3 ,sec4 #a4 ,%ort title2 table ( cont5ts4 ,sec4 #b4 ,f9d+s4 ,sec4 #c4 ,def9itions4 ,sec4 #d4 ,cov]age ( canc] c>e plann+ & coord9ation s]vices4 ,sec4 #e4 ,/akehold] meet+ on survivor%ip transition tools2 publication ( in=mation res\rces4 ,sec4 #f4 ,alt]native paym5t model = quality canc] survivor%ip c>e4 ,sec4 #g4 ,canc] survivor employm5t assi/ance program4 ,sec4 #h4 ,compreh5sive canc] survivor%ip program4 ,sec4 #i4 ,survivor%ip progress report4 ,sec4 #aj4 ,m$icaid cov]age ( heal?c>e transitions = survivors ( *ildhood & adolesc5t canc]4 ,sec4 #aa4 ,m$icaid cov]age ( canc] f]tility s]vices = canc] survivors4 ,sec4 #ab4 ,(fice ( ,canc] ,survivor%ip4 #b4 ,f9d+s ,congress f9ds ! foll[+3 7#a7 ,a canc] survivor is any individual ) a hi/ory ( canc]1 f ! "t ( diagnosis ?r\gh ! re/ ( _! life1 across ! cont9uum ( c>e4 7#b7 ,today1 !re are approximately #ah1jjj1jjj ,am]icans :o are canc] survivors1 & ! numb] ( survivors is project$ to rea* #bf1jjj1jjj by #bjdj4 ,!re=e1 !re is a great ne$ to be able to provide ways to su/a9 ! c>e ne$$ & to (f] ^? liv+ )1 ?r\gh1 & beyond canc] a safe1 supportive1 & accommodat+ environm5t :]e su* individuals c engage 9 physical & social support activities to su/a9 optimal quality ( life4 7#c7 ,canc] survivors face difficult emotional1 psy*ological1 neurological1 f9ancial1 legal1 & o!r physical *all5ges t p]si/ beyond diagnosis & treatm5t1 (t5 aris+ mon?s & ye>s aft] active canc] treatm5t ends4 7#d7 ,canc] survivors h unique ne$s & mu/ manage %ort- & long-t]m effects ( _! treatm5t1 z well z regul> scre5+s = canc] recurr5ce or new canc]s4 7#e7 ,canc] survivors ( racial & e?nic div]sity1 z well z l[] socioeconomic /atus1 h disproportionately l[] heal?-relat$1 quality-(-life scores comp>$ to non-,hispanic ,:ite canc] survivors4 7#f7 ,canc] survivors liv+ 9 rural areas h less access to s]vices & h poor] outcomes ?an survivors 9 metropolitan areas4 7#g7 ,*ildr51 adolesc5t1 & "y adult canc] survivors are p>ticul>ly susceptible to long-t]m consequ5ces f treatm5t1 & up to #hj p]c5t h a sev]e1 disabl+1 life-?reat5+1 or fatal heal? condition by ! age ( #ej4 ,be/ practices 9 ?is area w\ld improve treatm5t1 quality ( life1 & long-t]m heal? outcomes4 7#h7 ,cl9ical trials h %[n t canc] survivor%ip programs help canc] survivors meet or exce$ ! recomm5d$ am\nt ( physical activity1 significantly increas+ _! c>diovascul> heal? & ov]all quality ( life & decreas+ _! canc]-relat$ fatigue4 7#i7 ,despite ! ,national ,canc] ,in/itute & o!r pr(essional organizations' def9ition ( a canc] survivor beg9n+ on ! day ( a canc] diagnosis1 !re is little agreem5t among cl9icians1 rese>*]s1 & insurance companies on :at s]vices are includ$ 9 survivor%ip c>e & ! po9t at :i* survivor%ip c>e beg9s4 7#aj7 ,canc] survivors1 _! families1 _! c>egiv]s1 & _! provid]s face _m difficulties und]/&+ & coord9at+ ! transition f specialty to prim>y c>e1 & = ?is reason communication & treatm5t are (t5 fragm5t$ & inconsi/5t4 7#aa7 ,to avoid additional heal?-relat$ or f9ancial h>d%ips to canc] survivors & _! families1 compreh5sive & =w>d-?9k+ canc] survivor%ip /udies & programs across ,f$]al ag5cies1 9 collaboration ) ,/ates1 localities1 & m$ical & pr(essional organizations1 are requir$ to engage 9 a coord9at$ ef=t to improve heal? outcomes & quality ( life ( survivors4 #c4 ,def9itions ,9 ?is ,act3 7#a7 ,canc] survivor ,! t]m canc] survivor means an individual f ! "t ( canc] diagnosis ?r\gh ! balance ( 8 or h] life4 7#b7 ,c>egiv] ,! t]m c>egiv] means a family memb]1 fri5d1 or o!r p]son :o c>es = an individual ) a *ronic or disabl+ condition1 includ+ canc]4 7#c7 ,pati5t exp]i5ce data ,! t]m pati5t exp]i5ce data means pati5t exp]i5ces1 p]spectives1 ne$s1 & priorities relat$ to-- 7,a7 ! symptoms ( ! pati5t's conditions & ! natural hi/ory ( su* conditions2 7,b7 ! impact ( ! conditions on ! pati5t's function+ & quality ( life2 7,c7 ! pati5t's exp]i5ce ) treatm5ts2 7,d7 input on :i* outcomes are important to ! pati5t2 7,e7 pati5t pref]5ces = outcomes & treatm5ts2 & 7,f7 ! relative importance ( any issues z def9$ by pati5ts4 7#d7 ,psy*osocial effects ,! t]m psy*osocial effects-- 7,a7 means ! psy*ological1 behavioral1 emotional1 & social effects ( a disease1 su* z canc]1 & its treatm5t2 & 7,b7 9 ! case ( su* effects ( canc]1 includes *anges 9 h[ a pati5t ?9ks1 _! feel+s1 moods1 beliefs1 ways ( cop+1 & relation%ips ) family1 fri5ds1 & c[ork]s4 7#e7 ,psy*osocial c>e ,! t]m psy*osocial c>e means psy*ological & social s]vices & int]v5tions t enable survivors1 pati5ts1 _! families1 & heal? c>e provid]s to optimize heal? c>e & to manage ! psy*ological1 behavioral1 physical1 emotional1 & social aspects ( illness & its consequ5ces s z to promote bett] heal? & well-be+4 7#f7 ,secret>y ,except z o!rwise specifi$1 ! t]m ,secret>y means ! ,secret>y ( ,heal? & ,human ,s]vices4 7#g7 ,survivor%ip ,! t]m survivor%ip means ! p]iod f ! "t ( canc] diagnosis until ! end ( life1 includ+ any portions ( su* p]iod dur+ :i* int]v5tions are necess>y to address-- 7,a7 ! physical1 m5tal1 emotional1 social1 & f9ancial effects ( canc] t beg9 at diagnosis & cont9ue ?r\gh treatm5t & beyond2 & 7,b7 issues relat$ to foll[-up c>e 7includ+ regul> heal? & wellness *eckups71 late & long-t]m effects ( treatm5t1 scre5+ = canc] recurr5ce & new canc]s1 & quality ( life4 7#h7 ,survivor%ip c>e plan ,! t]m survivor%ip c>e plan-- 7,a7 means an individualiz$ c>e plan = pati5ts :o h be5 diagnos$ ) canc]2 & 7,b7 includes a treatm5t summ>y & any foll[-up c>e guidel9es 9 su* plan t-- 7i7 are = monitor+ & ma9ta9+ ! pati5t's m$ical & psy*osocial heal? & well-be+2 & 7ii7 are meant to be a transition & communication tool = ! survivor1 _! family1 _! c>egiv]1 & all _! heal? c>e provid]s4 7#i7 ,survivor%ip navigation ,! t]m survivor%ip navigation means a s]vice t-- 7,a7 helps pati5ts ov]come heal? c>e sy/em & o!r b>ri]s2 & 7,b7 provides pati5ts ) timely access to high-quality m$ical1 physical1 & psy*osocial c>e f _! canc] diagnosis ?r\gh all phases ( _! canc] exp]i5ce4 7#aj7 ,treatm5t summ>y ,! t]m treatm5t summ>y means a detail$ summ>y ( a pati5t's disease1 ! types ( treatm5t ! pati5t receiv$1 memb]s ( ! pati5t's c>e team1 & any side effects or o!r problems1 includ+ psy*osocial effects1 caus$ by treatm5t4 #d4 ,cov]age ( canc] c>e plann+ & coord9ation s]vices 7a7 ,9 g5]al ,section #ahfa ( ! ,social ,security ,act 7#db ,u4,s4,c4 #aciex7 is am5d$-- 7#a7 9 subsection 7s77#b7-- 7,a7 by /rik+ & at ! end ( subp>agraph 7,,ii72 7,b7 by add+ & at ! end ( subp>agraph 7,,jj72 & 7,c7 by add+ at ! end ! foll[+ new subp>agraph3 7,,kk7 canc] c>e plann+ & coord9ation s]vices 7z def9$ 9 subsection 7nnn772 2 & 7#b7 by add+ at ! end ! foll[+ new subsection3 7nnn7 ,canc] c>e plann+ & coord9ation s]vices 7#a7 ,! t]m canc] c>e plann+ & coord9ation s]vices means1 ) respect to an individual :o is diagnos$ ) canc]1 ! developm5t ( a treatm5t plan by a physician1 physician assi/ant1 or nurse practition] t-- 7,a7 includes ea* compon5t ( ! ,in/itute ( ,m$ic9e ,c>e ,managem5t ,plan 7z describ$ 9 ! article entitl$ ,deliv]+ ,high-,quality ,canc] ,c>e3 ,*>t+ a ,new ,c\rse = a ,sy/em 9 ,crisis publi%$ by ! ,in/itute ( ,m$ic9e72 7,b7 is furni%$ 9 writt5 =m or electronically1 at ! visit ( su* individual ) su* physician1 physician assi/ant1 or nurse practition]1 or z soon aft] ! date ( ! visit z practicable2 & 7,c7 is furni%$1 to ! greate/ ext5t practicable1 9 a =m t appropriately takes into acc\nt cultural & l+ui/ic ne$s ( ! individual 9 ord] to make ! plan accessible to su* individual4 7#b7 ,! ,secret>y %all e/abli% frequ5cies at :i* s]vices describ$ 9 p>agraph 7#a7 may be furni%$1 provid$ t su* s]vices may be furni%$ ) respect to an individual-- 7,a7 at ! "t su* individual is diagnos$ ) canc] = purposes ( plann+ treatm5t2 7,b7 if !re is a *ange 9 ! condition ( su* individual or su* individual's treatm5t pref]5ces2 7,c7 at ! end ( active treatm5t & beg9n+ ( survivor%ip c>e2 & 7,d7 if !re is a recurr5ce ( su* canc]4 4 7b7 ,paym5t "u physician fee s*$ule 7#a7 ,9 g5]al ,section #ahdh7;j77#c7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #aciew-#d7;j77#c77 is am5d$ by ins]t+ 7#b77,,kk71 aft] heal? risk assessm5t714 7#b7 ,initial rates ,unless ! ,secret>y o!rwise provides1 ! paym5t rate specifi$ "u ! physician fee s*$ule "u ! am5dm5t made by p>agraph 7#a7 = canc] c>e plann+ & coord9ation s]vices %all be ! same paym5t rate z provid$ = transitional c>e managem5t s]vices 7z def9$ 9 ,,cpt code #iidif74 7c7 ,effective date ,! am5dm5ts made by ?is section %all apply to s]vices furni%$ on or aft] ! fir/ day ( ! fir/ cal5d> ye> t beg9s aft] ! date ( ! enactm5t ( ?is ,act4 #e4 ,/akehold] meet+ on survivor%ip transition tools2 publication ( in=mation res\rces 7a7 ,9 g5]al ,! ,secret>y %all conv5e a /akehold] meet+ 79 ?is section ref]r$ to z ! meet+7 to evaluate /rategies1 includ+ ! use ( in=mation te*nology1 to improve transitions 9 c>e f active treatm5t to long-t]m4 7b7 ,p>ticipants ,9 conduct+ ! meet+1 ! ,secret>y %all ensure t ! p>ticipants include repres5tatives ( pati5t advocacy organizations1 m$ical pr(essional societies1 community-bas$ organizations1 electronic heal? record v5dors1 in=mation te*nology exp]ts1 & o!r /akehold]s ( ! meet+4 7c7 ,consid]ation ( exi/+ tools ,9 conduct+ ! meet+1 ! ,secret>y %all ensure t ! p>ticipants consid] exi/+ tools = improv+ transitions to survivor%ip c>e1 su* z-- 7#a7 ! survivor%ip guidel9es ( ! ,national ,compreh5sive ,canc] ,network & ! ,am]ican ,society ( ,cl9ical ,oncology2 7#b7 ! ,passport = ,c>e survivor website2 7#c7 survivor%ip c>e s(tw>e applications t h be5 develop$ by pati5t advocacy organizations1 rese>* f\ndations1 & =-pr(it entities2 & 7#d7 o!r in=mation & tools t may improve transitions 9 c>e & improve ov]all quality ( survivor%ip c>e4 7d7 ,consid]ation ( privacy & security implications ,9 conduct+ ! meet+1 ! ,secret>y %all feature collaboration ) ! ,(fice = ,civil ,rights ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices to evaluate ! privacy & security implications (-- 7#a7 consolidat+ treatm5t hi/ory & survivor%ip guidel9es into a p]sonaliz$ survivor%ip c>e plan t outl9es future heal? c>e ne$s aft] completion ( active treatm5t2 7#b7 pati5t use ( comput] or mobile phone-bas$ application programs describ$ 9 subsection 7c77#c72 & 7#c7 tak+ into consid]ation ! results ( meet+ "u subsection 7a74 7e7 ,publication ( in=mation res\rces 7#a7 ,9 g5]al ,n lat] ?an #cf mon?s aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y %all1 tak+ into consid]ation ! results ( ! meet+1 publi% in=mation res\rces = canc] pati5ts & provid]s on /rategies = consolidat+ treatm5t hi/ory & survivor%ip guidel9es into a p]sonaliz$ survivor%ip c>e plan to guide survivor%ip monitor+ & foll[-up c>e4 7#b7 ,inclusion ( recomm5dations on pati5t use ( s(tw>e application programs ,! in=mation res\rces ref]r$ to 9 p>agraph 7#a7 %all include recomm5dations on pati5t use ( s(tw>e application programs to develop p]sonaliz$ survivor%ip c>e plans4 7f7 ,electronic heal? record def9$ ,9 ?is section1 ! t]m electronic heal? record means an electronic record ( heal?-relat$ in=mation on an individual t is creat$1 ga!r$1 manag$1 & consult$ by au?oriz$ heal? c>e cl9icians & /aff4 #f4 ,alt]native paym5t model = quality canc] survivor%ip c>e 7a7 ,9 g5]al ,n lat] ?an "o ye> aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices %all develop an alt]native paym5t model = paym5ts made "u titles ,,xviii & ,,xix ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acie et seq41 #acif et seq47 = items & s]vices relat+ to canc] survivor%ip c>e 7z def9$ by ! ,secret>y74 7b7 ,report to ,congress ,foll[+ developm5t ( ! alt]native paym5t model "u subsection 7a71 ! ,secret>y %all submit to ,congress a report conta9+ a description ( su* model t includes ! foll[+ in=mation3 7#a7 ,a description ( :at ev5t w\ld trigg] an individual's entry into su* a model 7su* z ! end ( ! individual's active canc] treatm5t1 ! beg9n+ ( ! individual's ne$ = supportive c>e dur+ active treatm5t1 or ano!r ev5t74 7#b7 ,! l5g? ( ! individual's p>ticipation "u su* model1 includ+ a description ( any ability to ext5d su* p>ticipation1 or a def9ition ( survivor%ip c>e z ext5d+ until dea?4 7#c7 ,9 ! case t su* model is bas$ on an episode ( c>e1 ! appropriate l5g? ( ! survivor%ip episode ( c>e1 :e!r additional episodes may be trigg]$1 if necess>y1 & :e!r ! episode %\ld end at ! b5efici>y's dea? b n be=e4 7#d7 ,/rategies to ensure t any episode ( c>e "u su* a model beg9s ) ! developm5t & dissem9ation ( a survivor%ip c>e plan = ! transition f active canc] treatm5t to foll[-up c>e to ! individual & all relevant heal? c>e provid]s4 7#e7 ,a description ( ! navigation s]vices t w be provid$ z "p ( su* model4 7#f7 ,a description ( any bundl$ paym5t packages t w be us$ "u su* model4 7#g7 ,a specification ( any foll[-up or new scre5+ "u su* model = unmet ne$s ( individuals p>ticipat+ 9 su* model4 7#h7 ,a description ( h[ consi/5t1 %>$ decision-mak+ w be promot$ "u su* model s t individuals are giv5 ! k ne$$ = self-managem5t betwe5 episodes ( c>e4 7#i7 ,a specification ( :i* types ( heal? c>e provid]s may furni% items & s]vices "u su* model1 includ+ g5etic c\nselors & m5tal heal? pr(essionals4 7#aj7 ,/rategies = apply+ evid5ce-bas$ risk /ratification pr9ciples to direct survivors to p]sonaliz$ c>e pa?ways t mat* ! level ( c>e ne$$ to ! relative risks & ne$s ( ! survivor4 7#aa7 ,/rategies = coord9ation ( c>e betwe5 su* provid]s1 su* z betwe5 speciali/s & prim>y c>e provid]s1 & h[ pr9cipal responsibility w be assign$ = an episode ( c>e4 7#ab7 ,/rategies = address+ social det]m9ants ( heal? ?r\gh su* model4 7#ac7 ,a description ( h[ su* model w promote-- 7,a7 prev5tion1 e>ly detection surveillance1 & treatm5t = individuals cont9u+ to receive sy/emic !rapy aft] ! end ( active canc] treatm5t2 7,b7 su* individuals' und]/&+ (1 & access to1 treatm5t2 7,c7 survivor%ip rese>*2 & 7,d7 ! cont9u+ heal? ( canc] survivors4 7#ad7 ,an analysis ( h[ diff]5t =ms & /ages ( canc] may require ! developm5t ( diff]5t survivor%ip plans & sugge/ v>iations 9 elem5ts ( ! alt]native paym5t model bas$ on =m & /age ( canc]4 7#ae7 ,a plan = te/+ any alt]native paym5t model describ$ 9 ! report1 includ+ ! tim+ ( su* te/+1 an analysis ( ! impact ( su* te/+1 any b>ri]s to implem5t+ su* te/+1 & any o!r recomm5dations det]m9$ appropriate by ! ,secret>y4 #g4 ,canc] survivor employm5t assi/ance program 7a7 ,9 g5]al ,! ,secret>y ( ,labor1 9 consultation ) ! ,secret>y ( ,heal? & ,human ,s]vices1 %all c>ry out a program to aw>d grants to non-pr(it organizations & o!r entities to provide education & t>get$ assi/ance-- 7#a7 to eligible canc] survivors fac+ b>ri]s to employm5t1 includ+ ^? :o rema9 9 ! work=ce dur+ treatm5t1 ^? :o r$uce work+ h\rs :ile 9 treatm5t1 & ^? :o re5t] ! work=ce aft] a treatm5t-relat$ dep>ture2 & 7#b7 to ! families & c>egiv]s ( su* eligible canc] survivors4 7b7 ,program compon5ts ,! program "u ?is section %all include ! foll[+3 7#a7 ,assi/ance1 c>e] & tra9+ s]vices1 & supportive s]vices = eligible canc] survivors :o /ay 9 ! work=ce dur+ treatm5t1 & = _! families & c>egiv]s1 includ+-- 7,a7 transportation assi/ance2 7,b7 *ildc>e assi/ance2 7,c7 nutritional assi/ance2 7,d7 physical activity assi/ance2 7,e7 psy*osocial assi/ance2 7,f7 f9ancial assi/ance dur+ a p]iod ( m$ical leave2 & 7,g7 o!r simil> assi/ance4 7#b7 ,assi/ance & education = eligible canc] survivors :o leave ! work=ce dur+ treatm5t1 & = _! families & c>egiv]s1 includ+-- 7,a7 f9ancial assi/ance dur+ a p]iod ( m$ical leave2 7,b7 assi/ance ) premiums = cont9uation cov]age provid$ pursuant to "p #f ( subtitle ,b ( title ,i ( ! ,employee ,retirem5t ,income ,security ,act ( #aigd 7#bi ,u4,s4,c4 #aafa et seq471 title ,,xxii ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #cjj;bb-#a et seq471 or section #dihj;,b ( ! ,int]nal ,rev5ue ,code ( #aihf 7#bf ,u4,s4,c4 #dihj;,b72 & 7,c7 c>e] & tra9+ s]vices1 includ+ upskill+ & reskill+1 = eligible canc] survivors :o are n able to return to "w aft] treatm5t4 7#c7 ,assi/ance1 c>e] & tra9+ s]vices1 & supportive s]vices = eligible canc] survivors :o are unable to "w aft] a canc] diagnosis1 & _! families & c>egiv]s1 includ+-- 7,a7 assi/ance 9 apply+ =-- 7i7 supplem5tal security income b5efits "u title ,,xvi ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acha et seq472 7ii7 disability insurance b5efits "u section #bbc ( ! ,social ,security ,act 7#db ,u4,s4,c4 #dbc72 7iii7 b5efits "u a ,/ate plan1 or waiv] ( su* plan1 "u title ,,xix ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acif et seq472 7iv7 ) respect to m9imiz+ delays 9 eligibility be=e a canc] survivor becomes eligible = ,m$ic>e cov]age1 b5efits "u ! ,m$ic>e program "u title ,,xviii ( ! ,social ,security ,act 7#db ,u4,s4,c4 #ahja et seq471 includ+ ) respect to enroll+ 9 plans "u "p ,c or ,d ( su* title & supplem5tal plans "u section #ahhb ( su* title2 7v7 ,/ate & private sector assi/ance programs = su* canc] survivors2 & 7vi7 c>e] & tra9+ s]vices available "u title ,i1 ,,ii1 or ,,iv ( ! ,work=ce ,innovation & ,opportunity ,act 7#bi ,u4,s4,c4 #caja et seq472 & 7,b7 in=mation on ! eligibility ( a canc] survivor1 & _! families & c>egiv]s1 = b5efits or s]vices describ$ 9 any ( clauses 7i7 ?r\gh 7vi7 ( subp>agraph 7,a74 7c7 ,evid5ce-,bas$ res\rces ,9 c>ry+ out ?is section1 ! ,secret>y ( ,labor1 9 consultation ) ! ,secret>y ( ,heal? & ,human ,s]vices1 %all use evid5ce-bas$ res\rces1 includ+-- 7#a7 nationally recogniz$ evid5ce-bas$ guidel9es2 & 7#b7 o!r res\rces z det]m9$ by ! ,secret>y4 7d7 ,def9itions ,9 ?is section3 7#a7 ,! t]m eligible canc] survivor means a canc] survivor 7z def9$ 9 section #c7 :o-- 7,a7 rema9s 9 ! work=ce dur+ canc] treatm5t2 7,b7 r$uces work+ h\rs dur+ canc] treatm5t2 7,c7 re5t]s ! work=ce aft] a canc] treatm5t-relat$ dep>ture2 or 7,d7 leaves ! work=ce z ! result ( a canc] diagnosis or relat$ complications4 7#b7 ,! t]m supportive s]vices has ! mean+ giv5 su* t]m 9 section #c ( ! ,work=ce ,innovation & ,opportunity ,act 7#bi ,u4,s4,c4 #cajb74 #h4 ,compreh5sive canc] survivor%ip program 7a7 ,9 g5]al ,! ,secret>y %all c>ry out a compreh5sive canc] survivor%ip program t includes a program ( supportive c>e s]vices 9 accordance ) subsection 7b7 to improve ! quality ( life & long-t]m survivor%ip ( canc] survivors4 7b7 ,canc] survivor%ip quality-(-,life program 7#a7 ,9 g5]al ,! ,secret>y %all c>ry out a program ( aw>d+ grants to eligible entities to provide s]vices to canc] survivors to enhance _! quality ( life & improve _! long-t]m survival rates4 ,n lat] ?an #ah mon?s aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y %all comm5ce op]at+ su* program4 7#b7 ,eligible entity def9$ ,9 ?is subsection1 ! t]m eligible entity includes an entity t is-- 7,a7 a ,/ate compreh5sive canc] program2 7,b7 a ,national ,canc] ,in/itute-designat$ canc] c5t] or c5t]s2 or 7,c7 a community-bas$ organization1 includ+ a pati5t advocacy organization1 t-- 7i7 has ! capacity to rea* canc] survivors ?r\gh local1 ,/ate1 or national organizations2 & 7ii7 is focus$ on canc] survivors & /rategies = meet+ _! ne$s relat$ to _! heal? & well-be+4 7#c7 ,use ( funds ,a grant receiv$ "u ?is subsection %all be us$ to provide s]vices to canc] survivors to enhance _! quality ( life & improve _! long-t]m survival rates1 su* z by assi/+ survivors to-- 7,a7 engage 9 mod]ate physical activity & o!r heal?-promot+ activities1 includ+ ceas+ tobacco use & increas+ consumption ( heal?y foods2 7,b7 increase access to s]vices to mitigate anxiety1 depression1 & unc]ta9ty2 7,c7 utilize community support s]vices to fully implem5t survivor%ip c>e plans2 7,d7 access nutrition education & c\nsel+2 & 7,e7 adh]e to a s*$ule =1 & access1 scre5+ = recurr5ce ( canc] or ! occurr5ce ( o!r prim>y canc]s4 7#d7 ,/&>ds = application f eligible entities ,to seek a grant "u ?is subsection1 an eligible entity %all submit an application1 at su* "t z may be requir$ by ! ,secret>y1 t includes-- 7,a7 an explanation ( h[ ! entity w-- 7i7 provide canc] survivors access to canc] pati5t navigator s]vices2 7ii7 ov]come b>ri]s to c>e = communities ( color & multil+ual communities2 7iii7 provide culturally compet5t c>e2 & 7iv7 "w ) & support c>egiv]s ( canc] survivors2 7,b7 a description ( h[ ! entity receives ref]rals ( canc] survivors f heal? c>e pr(essionals1 includ+ heal? c>e pr(essionals s]v+ hi/orically disadvantag$ & und]s]v$ communities2 7,c7 docum5tation ( ! curriculum t w be us$ = provid]s 9 ! program1 includ+ me*anisms to update ! /aff on curriculum *anges2 & 7,d7 an agreem5t to provide ! ,secret>y semiannual reports on-- 7i7 ! numb] ( p>ticipants s]v$2 7ii7 quality-(-life measures = p>ticipants2 & 7iii7 plans = fo/]+ communication betwe5 oncology & non-oncology provid]s s]v+ p>ticipants4 7#e7 ,responsibilities ( ! secret>y ,! ,secret>y %all-- 7,a7 conduct outrea* to in=m heal? c>e pr(essionals ( ! availability ( programs & activities fund$ "u ?is subsection2 7,b7 analyze ! data submitt$ by grantees "u ?is subsection to det]m9e ! numb] ( canc] survivors s]v$ & ! impact ( ! program "u ?is subsection on _! quality ( life2 7,c7 %>e be/ practices among all grantees "u ?is subsection2 & 7,d7 consid] /rategies = ! coord9ation ( ! program c>ri$ out "u ?is section ) ! alt]native paym5t model = quality survivor%ip c>e develop$ "u section #f to ensure t enrollees 9 ! alt]native paym5t model h access to ! s]vices t w be fund$ ?r\gh ! program4 #i4 ,survivor%ip progress report 7a7 ,9 g5]al ,n lat] ?an #f mon?s aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y %all ent] into an agreem5t ) ! ,gov]nm5t ,acc\ntability ,(fice to conduct a /udy ( ! progress made 9 canc] survivor%ip ov] ! p]iod beg9n+ on ! date ( enactm5t ( ! ,national ,canc] ,act ( #aiga 7,public ,law #ib-baf74 7b7 ,scope ( ! /udy ,! /udy "u subsection 7a7 %all inve/igate developm5ts ov] ! p]iod describ$ 9 subsection 7a7 9-- 7#a7 ! nature & quality ( survivor%ip c>e2 7#b7 transitions f active treatm5t to survivor%ip c>e2 7#c7 ! quality ( life ( canc] survivors2 7#d7 outcomes = canc] survivors2 7#e7 disp>ities 9 access to c>e & survivor%ip outcomes2 7#f7 ! heal? c>e sy/ems = provid+ survivor%ip c>e2 7#g7 ! contribution ( community-bas$ s]vices to ! survivor%ip c>e sy/em2 & 7#h7 paym5t = survivor%ip c>e by public & private ?ird-p>ty payors4 7c7 ,role ( (fice ( canc] survivor%ip ,! /udy "u subsection 7a7 %all-- 7#a7 consid] ! contribution ( ! ,(fice ( ,canc] ,survivor%ip to ! evolution ( canc] survivor%ip c>e ov] ! la/ #be ye>s2 & 7#b7 assess ! impact ( ! mission ( ! ,(fice & ! res\rces provid$ to ! ,(fice on its lead]%ip 9 canc] survivor%ip c>e4 7d7 ,public meet+ ,9 conduct+ ! /udy "u subsection 7a71 ! ,comptroll] ,g5]al ( ! ,unit$ ,/ates %all hold a public meet+ ) a broad cross section ( /akehold]s to in=m ! /udy's f9d+s & conclusions4 ,su* /akehold]s %all include-- 7#a7 canc] survivors & _! c>egiv]s & families2 7#b7 pati5t organizations repres5t+ canc] survivors2 7#c7 oncologi/s involv$ 9 survivor%ip c>e & ! pr(essional societies repres5t+ !m2 7#d7 prim>y c>e provid]s involv$ 9 survivor-%ip c>e & ! pr(essional societies repres5t+ !m2 7#e7 o!r heal? pr(essionals provid+ survivor%ip c>e & ! pr(essional societies repres5t+ !m2 7#f7 community-bas$ organizations involv$ 9 survivor%ip c>e2 7#g7 repres5tatives ( ! ,national ,canc] ,in/itute2 7#h7 ?ird-p>ty payors2 7#i7 rese>*]s engag$ 9 survivor%ip rese>*2 7#aj7 epidemiologi/s ) k ( tr5ds 9 canc] survivor%ip2 & 7#aa7 su* o!r /akehold]s z ! ,comptroll] ,g5]al deems important to p>ticipate 9 ! public meet+4 7e7 ,report ,! ,comptroll] ,g5]al ( ! ,unit$ ,/ates %all-- 7#a7 release a report on ! results ( ! /udy "u subsection 7a72 & 7#b7 9 addition to ! public meet+ conv5$ "u subsection 7d7-- 7,a7 conv5e ano!r public meet+ to be held on ! day ( ! release ( ! report2 & 7,b7 include 9 su* meet+ all categories ( /akehold]s li/$ 9 subsection 7d74 #aj4 ,m$icaid cov]age ( heal?c>e transitions = survivors ( *ildhood & adolesc5t canc] 7a7 ,9 ,g5]al ,section #aijb7;a77#aj7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acif;a7a77#aj77 is am5d$-- 7#a7 9 subp>agraph 7,f71 by /rik+ 2 & & ins]t+ a semicolon2 7#b7 9 subp>agraph 7,g71 by add+ at ! end &2 & 7#c7 by ins]t+ aft] subp>agraph 7,g7 ! foll[+ new subp>agraph3 7,h7 not)/&+ section #aijb7;a77#aj77;,b7 7relat+ to comp>ability71 = mak+ m$ical assi/ance available = heal?c>e transitions = survivors ( *ildhood & adolesc5t canc] 7z def9$ 9 section #aije7;jj772 4 7b7 ,def9ition ,section #aije ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acif;d7 is am5d$ by add+ at ! end ! foll[+ new subsection3 7jj7 ,heal?c>e transitions = survivors ( *ildhood & adolesc5t canc] 7#a7 ,def9ition ,= purposes ( section #aijb7;a77#aj77;,h7 & ?is subsection1 ! t]m heal?c>e transitions = survivors ( *ildhood & adolesc5t canc]-- 7,a7 means transition s]vices f active oncological c>e to prim>y c>e ( a *ild or adolesc5t ) canc] ensur+ developm5t & deliv]y ( survivor%ip c>e plans to pati5ts1 families & prim>y c>e provid]s & transition cov]age2 & 7,b7 includes-- 7i7 transition c>e bas$ on ! ,*ildr5's ,oncology ,gr\p 79 ?is section ref]r$ to z ! ,,cog7 ,long-t]m ,foll[-,up ,guidel9es = ,survivors ( ,*ildhood1 ,adolesc5t1 & ,"y ,adult ,canc]s2 & 7ii7 cov]age bas$ on ! ,,cog exposure-bas$ /&>d ( c>e = risk assessm5t & surveillance recomm5dations2 7iii7 transition s]vices t include evid5ce-bas$ recomm5dations = scre5+ & managem5t ( late effects t may arise z a result ( treatm5t = *ildhood canc]1 increase aw>5ess ( pot5tial late effects1 & foll[-up c>e = *ildhood canc] & adolesc5t survivors2 & 7iv7 at lea/ #b survivor%ip transition c>e visits p] ye>4 4 #aa4 ,m$icaid cov]age ( canc] f]tility s]vices = canc] survivors 7a7 ,m$icaid 7#a7 ,m&atory cov]age ,section #aijb7;a77#aj7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acif;a7 is am5d$-- 7,a7 9 subp>agraph 7,f71 by /rik+ 2 & & ins]t+ a semicolon2 7,b7 9 subp>agraph 7,g71 by add+ at ! end &2 & 7,c7 by ins]t+ aft] subp>agraph 7,g7 ! foll[+ new subp>agraph3 7,h7 not)/&+ section #aijb7;a77#aj77;,b7 7relat+ to comp>ability71 = mak+ m$ical assi/ance available = canc] f]tility s]vices 7z def9$ 9 subsection 7kk772 4 7#b7 ,def9ition ,section #aije ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acif;d71 z am5d$ by section #aj7d7 ( ?is ,act1 is fur!r am5d$ by add+ at ! end ! foll[+ new subsection3 7kk7 ,canc] f]tility s]vices 7#a7 ,def9ition ,= purposes ( section #aijb7;a77#aj77;,h7 & ?is subsection1 ! t]m canc] f]tility s]vices-- 7,a7 means f]tility treatm5t & f]tility pres]vation s]vices = individuals diagnos$ ) canc] :o-- 7i7 are und]go+ treatm5t = su* canc] :]e su* treatm5t may lead to iatrog5ic inf]tility2 7ii7 previ\sly und]w5t su* treatm5t & may be at risk ( su* inf]tility due to su* treatm5t2 or 7iii7 are prep>+ to und]go su* treatm5t :]e su* treatm5t may lead to su* inf]tility2 & 7,b7 includes-- 7i7 o!r s]vices1 includ+ exp]im5tal & non-exp]im5tal s]vices to pres]ve f]tility or treat inf]tility 7z det]m9$ by ! ,secret>y1 consi/5t ) e/abli%$ m$ical practices & pr(essional guidel9es publi%$ by ! ,am]ican ,society = ,reproductive ,m$ic9e1 ! ,am]ican ,society ( ,cl9ical ,oncology1 or o!r pr(essional m$ical organizations specifi$ by ! ,secret>y72 & 7ii7 long-t]m /orage co/s-- 7,i7 ) respect to individuals "u ! age ( #ah1 = a p]iod ( n less ?an #ae ye>s2 & 7,,ii7 ) respect to individuals age #ah or old]1 = a p]iod ( n less ?an #aj ye>s4 7#b7 ,exception = t]ritories ,not)/&+ any o!r provision ( ?is title1 9 ! case ( a ,/ate 7o!r ?an ! #ej ,/ates & ! ,di/rict ( ,columbia71 ! requirem5t /at$ 9 section #aijb7;a77#aj77;,h7 %all be optional4 4 7#c7 ,prohibition on co/-%>+ 7,a7 ,9 g5]al ,section #aiaf ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acifo7 is am5d$-- 7i7 9 subsection 7a77#b7-- 7,i7 9 subp>agraph 7,i71 by /rik+ at ! end 1 or & ins]t+ a semicolon2 7,,ii7 9 subp>agraph 7,j71 by /rik+ at ! end 2 & & ins]t+ 2 or2 & 7,,iii7 by add+ at ! end ! foll[+ new subp>agraph3 7,k7 canc] f]tility s]vices 7z def9$ 9 section #aije7kk772 & 2 & 7ii7 9 subsection 7b77#b7-- 7,i7 9 subp>agraph 7,i71 by /rik+ at ! end 1 or & ins]t+ a semicolon2 7,,ii7 9 subp>agraph 7,j71 by /rik+ at ! end 2 & & ins]t+ 2 or2 & 7,,iii7 by add+ at ! end ! foll[+ new subp>agraph3 7,k7 canc] f]tility s]vices 7z def9$ 9 section #aije7;jj772 & 4 7,b7 ,application to alt]native co/-%>+ ,section #aiaf;,a7b77#c77;,b7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acifo-#a7;b77#c77;,b77 is am5d$ by add+ at ! end ! foll[+ new clause3 7xv7 ,canc] f]tility s]vices 7z def9$ 9 section #aije7;jj774 4 7b7 ,,*ip 7#a7 ,9 g5]al ,section #bajc7;c7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acig;cc7c77 is am5d$-- 7,a7 by r$esignat+ ! p>agraph 7#ab7 add$ by section #aadje7;b77#a7 ( ,public ,law #aag-afi z p>agraph 7#ac72 & 7,b7 by ins]t+ aft] p>agraph 7#aa7 ! foll[+ new p>agraph3 7#ab7 ,requir$ cov]age ( canc] f]tility s]vices = canc] survivors ,reg>dless ( ! type ( cov]age elect$ by a ,/ate "u subsection 7a71 ! *ild heal? assi/ance provid$ = a t>get$ l[-income *ild1 &1 9 ! case ( a ,/ate t elects to provide pregnancy-relat$ assi/ance pursuant to section #baab1 ! pregnancy-relat$ assi/ance provid$ = a t>get$ l[-income pregnant woman 7z su* t]ms are def9$ = purposes ( su* section71 %all include cov]age ( canc] f]tility s]vices 7z describ$ 9 section #aije7;jj774 4 7#b7 ,prohibition on co/-%>+ ,section #bajc7;e77#b7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acig;cc7e77#b77 is am5d$-- 7,a7 9 ! head+1 by ins]t+ ,canc] f]tility s]vices aft] ,,covid-#ai treatm5t2 & 7,b7 by ins]t+ canc] f]tility s]vices 7z describ$ 9 section #aije7;jj771 aft] te/+ or treatm5ts describ$ 9 section #aiaf7;a77#b77;,i7 furni%$ dur+ ! p]iod describ$ 9 su* section4 7#c7 ,effective date ,! am5dm5t made by p>agraph 7#a77;,a7 %all take effect on ,octob] #a1 #bjbf4 7c7 ,effective date ,! am5dm5ts made by ?is section 7o!r ?an ! am5dm5t made by subsection 7b77#a77;,a77 %all apply ) respect to m$ical assi/ance1 *ild heal? assi/ance1 & pregnancy-relat$ assi/ance furni%$ on or aft] ! date t is #ah mon?s aft] ! date ( ! enactm5t ( ?is ,act4 #ab4 ,(fice ( ,canc] ,survivor%ip 7a7 ,9 g5]al ,! ,secret>y %all e/abli% )9 ,(fice ( ! ,director ( ! ,national ,canc] ,in/itute 7ref]r$ to 9 ?is section z ,,nci7 ! ,(fice ( ,canc] ,survivor%ip 7ref]r$ to 9 ?is section z ! ,(fice74 7b7 ,purpose ,! ,(fice %all function z ! entity )9 ,,nci ) prim>y responsibility = improv+ canc] survivor%ip = individuals liv+ ) & ?r\gh canc]4 7c7 ,responsibilities ,! ,(fice %all und]take ! foll[+ responsibilities3 7#a7 ,managem5t ( a portfolio ( rese>* grants focus$ on survivor%ip topics1 includ+-- 7,a7 late & long-t]m effects ( canc] & canc] treatm5t2 7,b7 int]v5tions to address late & long-t]m effects ( canc]2 7,c7 heal? deliv]y models t ensure access to quality survivor%ip c>e = all survivors2 & 7,d7 communication & education ef=ts to enhance access to survivor%ip c>e = all survivors4 7#b7 ,pr(essional education ef=ts to %>e be/ practices 9 survivor%ip c>e & to improve survivor%ip c>e deliv]y4 7#c7 ,survivor education ef=ts relat$ to-- 7,a7 und]/&+ ! late & long-t]m effects ( canc] & canc] treatm5t2 7,b7 improv+ access to monitor+ & foll[-up c>e aft] active treatm5t = all survivors2 & 7,c7 enhanc+ survivor managem5t ( long-t]m foll[-up survivor%ip c>e4