,i #aaith ,,congress #b;d ,session ,h4 ,r4 #hhci ,,in ,,the ,,house ,,of ,,representatives ,may #ad1 #bjbf ,ms4 ,wasserman ,schultz 7for herself1 ,mr4 ,fitzpatrick1 ,mr4 ,de,saulnier1 ,mr4 ,wilson of ,south ,carolina1 and ,mr4 ,kennedy of ,new ,york7 introduced the following bill2 which was referred to the ,committee on ,energy and ,commerce1 and in addition to the ,committees on ,ways and ,means1 and ,education and ,workforce1 for a period to be subsequently determined by the ,speaker1 in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned ,a ,,bill ,to address the health of cancer survivors and unmet needs that survivors face through the entire continuum of care from diagnosis through active treatment and posttreatment1 in order to improve survivorship1 treatment1 transition to recovery and beyond1 quality of life and palliative care1 and long-term health outcomes1 including by developing a minimum standard of care for cancer survivorship1 irrespective of the type of cancer1 a survivor's background1 or forthcoming survivorship needs1 and for other purposes4 #a4 ,short title2 table of contents 7a7 ,short title ,this ,act may be cited as the ,lainie ,jones ,comprehensive ,cancer ,survivorship ,act of #bjbf4 7b7 ,table of contents ,the table of contents of this ,act is as follows3 ,sec4 #a4 ,short title2 table of contents4 ,sec4 #b4 ,findings4 ,sec4 #c4 ,definitions4 ,sec4 #d4 ,coverage of cancer care planning and coordination services4 ,sec4 #e4 ,stakeholder meeting on survivorship transition tools2 publication of information resources4 ,sec4 #f4 ,alternative payment model for quality cancer survivorship care4 ,sec4 #g4 ,cancer survivor employment assistance program4 ,sec4 #h4 ,comprehensive cancer survivorship program4 ,sec4 #i4 ,survivorship progress report4 ,sec4 #aj4 ,medicaid coverage of healthcare transitions for survivors of childhood and adolescent cancer4 ,sec4 #aa4 ,medicaid coverage of cancer fertility services for cancer survivors4 ,sec4 #ab4 ,office of ,cancer ,survivorship4 #b4 ,findings ,congress finds the following3 7#a7 ,a cancer survivor is any individual with a history of cancer1 from the time of diagnosis through the rest of their life1 across the continuum of care4 7#b7 ,today1 there are approximately #ah1jjj1jjj ,americans who are cancer survivors1 and the number of survivors is projected to reach #bf1jjj1jjj by #bjdj4 ,therefore1 there is a great need to be able to provide ways to sustain the care needed and to offer those living with1 through1 and beyond cancer a safe1 supportive1 and accommodating environment where such individuals can engage in physical and social support activities to sustain optimal quality of life4 7#c7 ,cancer survivors face difficult emotional1 psychological1 neurological1 financial1 legal1 and other physical challenges that persist beyond diagnosis and treatment1 often arising months and years after active cancer treatment ends4 7#d7 ,cancer survivors have unique needs and must manage short- and long-term effects of their treatment1 as well as regular screenings for cancer recurrence or new cancers4 7#e7 ,cancer survivors of racial and ethnic diversity1 as well as lower socioeconomic status1 have disproportionately lower health-related1 quality-of-life scores compared to non-,hispanic ,white cancer survivors4 7#f7 ,cancer survivors living in rural areas have less access to services and have poorer outcomes than survivors in metropolitan areas4 7#g7 ,children1 adolescent1 and young adult cancer survivors are particularly susceptible to long-term consequences from treatment1 and up to #hj percent have a severe1 disabling1 life-threatening1 or fatal health condition by the age of #ej4 ,best practices in this area would improve treatment1 quality of life1 and long-term health outcomes4 7#h7 ,clinical trials have shown that cancer survivorship programs help cancer survivors meet or exceed the recommended amount of physical activity1 significantly increasing their cardiovascular health and overall quality of life and decreasing their cancer-related fatigue4 7#i7 ,despite the ,national ,cancer ,institute and other professional organizations' definition of a cancer survivor beginning on the day of a cancer diagnosis1 there is little agreement among clinicians1 researchers1 and insurance companies on what services are included in survivorship care and the point at which survivorship care begins4 7#aj7 ,cancer survivors1 their families1 their caregivers1 and their providers face many difficulties understanding and coordinating the transition from specialty to primary care1 and for this reason communication and treatment are often fragmented and inconsistent4 7#aa7 ,to avoid additional health-related or financial hardships to cancer survivors and their families1 comprehensive and forward-thinking cancer survivorship studies and programs across ,federal agencies1 in collaboration with ,states1 localities1 and medical and professional organizations1 are required to engage in a coordinated effort to improve health outcomes and quality of life of survivors4 #c4 ,definitions ,in this ,act3 7#a7 ,cancer survivor ,the term cancer survivor means an individual from the time of cancer diagnosis through the balance of his or her life4 7#b7 ,caregiver ,the term caregiver means a family member1 friend1 or other person who cares for an individual with a chronic or disabling condition1 including cancer4 7#c7 ,patient experience data ,the term patient experience data means patient experiences1 perspectives1 needs1 and priorities related to-- 7,a7 the symptoms of the patient's conditions and the natural history of such conditions2 7,b7 the impact of the conditions on the patient's functioning and quality of life2 7,c7 the patient's experience with treatments2 7,d7 input on which outcomes are important to the patient2 7,e7 patient preferences for outcomes and treatments2 and 7,f7 the relative importance of any issues as defined by patients4 7#d7 ,psychosocial effects ,the term psychosocial effects-- 7,a7 means the psychological1 behavioral1 emotional1 and social effects of a disease1 such as cancer1 and its treatment2 and 7,b7 in the case of such effects of cancer1 includes changes in how a patient thinks1 their feelings1 moods1 beliefs1 ways of coping1 and relationships with family1 friends1 and coworkers4 7#e7 ,psychosocial care ,the term psychosocial care means psychological and social services and interventions that enable survivors1 patients1 their families1 and health care providers to optimize health care and to manage the psychological1 behavioral1 physical1 emotional1 and social aspects of illness and its consequences so as to promote better health and well-being4 7#f7 ,secretary ,except as otherwise specified1 the term ,secretary means the ,secretary of ,health and ,human ,services4 7#g7 ,survivorship ,the term survivorship means the period from the time of cancer diagnosis until the end of life1 including any portions of such period during which interventions are necessary to address-- 7,a7 the physical1 mental1 emotional1 social1 and financial effects of cancer that begin at diagnosis and continue through treatment and beyond2 and 7,b7 issues related to follow-up care 7including regular health and wellness checkups71 late and long-term effects of treatment1 screening for cancer recurrence and new cancers1 and quality of life4 7#h7 ,survivorship care plan ,the term survivorship care plan-- 7,a7 means an individualized care plan for patients who have been diagnosed with cancer2 and 7,b7 includes a treatment summary and any follow-up care guidelines in such plan that-- 7i7 are for monitoring and maintaining the patient's medical and psychosocial health and well-being2 and 7ii7 are meant to be a transition and communication tool for the survivor1 their family1 their caregiver1 and all their health care providers4 7#i7 ,survivorship navigation ,the term survivorship navigation means a service that-- 7,a7 helps patients overcome health care system and other barriers2 and 7,b7 provides patients with timely access to high-quality medical1 physical1 and psychosocial care from their cancer diagnosis through all phases of their cancer experience4 7#aj7 ,treatment summary ,the term treatment summary means a detailed summary of a patient's disease1 the types of treatment the patient received1 members of the patient's care team1 and any side effects or other problems1 including psychosocial effects1 caused by treatment4 #d4 ,coverage of cancer care planning and coordination services 7a7 ,in general ,section #ahfa of the ,social ,security ,act 7#db ,u4,s4,c4 #aciex7 is amended-- 7#a7 in subsection 7s77#b7-- 7,a7 by striking and at the end of subparagraph 7,,ii72 7,b7 by adding and at the end of subparagraph 7,,jj72 and 7,c7 by adding at the end the following new subparagraph3 7,,kk7 cancer care planning and coordination services 7as defined in subsection 7nnn772 2 and 7#b7 by adding at the end the following new subsection3 7nnn7 ,cancer care planning and coordination services 7#a7 ,the term cancer care planning and coordination services means1 with respect to an individual who is diagnosed with cancer1 the development of a treatment plan by a physician1 physician assistant1 or nurse practitioner that-- 7,a7 includes each component of the ,institute of ,medicine ,care ,management ,plan 7as described in the article entitled ,delivering ,high-,quality ,cancer ,care3 ,charting a ,new ,course for a ,system in ,crisis published by the ,institute of ,medicine72 7,b7 is furnished in written form or electronically1 at the visit of such individual with such physician1 physician assistant1 or nurse practitioner1 or as soon after the date of the visit as practicable2 and 7,c7 is furnished1 to the greatest extent practicable1 in a form that appropriately takes into account cultural and linguistic needs of the individual in order to make the plan accessible to such individual4 7#b7 ,the ,secretary shall establish frequencies at which services described in paragraph 7#a7 may be furnished1 provided that such services may be furnished with respect to an individual-- 7,a7 at the time such individual is diagnosed with cancer for purposes of planning treatment2 7,b7 if there is a change in the condition of such individual or such individual's treatment preferences2 7,c7 at the end of active treatment and beginning of survivorship care2 and 7,d7 if there is a recurrence of such cancer4 4 7b7 ,payment under physician fee schedule 7#a7 ,in general ,section #ahdh7;j77#c7 of the ,social ,security ,act 7#db ,u4,s4,c4 #aciew-#d7;j77#c77 is amended by inserting 7#b77,,kk71 after health risk assessment714 7#b7 ,initial rates ,unless the ,secretary otherwise provides1 the payment rate specified under the physician fee schedule under the amendment made by paragraph 7#a7 for cancer care planning and coordination services shall be the same payment rate as provided for transitional care management services 7as defined in ,,cpt code #iidif74 7c7 ,effective date ,the amendments made by this section shall apply to services furnished on or after the first day of the first calendar year that begins after the date of the enactment of this ,act4 #e4 ,stakeholder meeting on survivorship transition tools2 publication of information resources 7a7 ,in general ,the ,secretary shall convene a stakeholder meeting 7in this section referred to as the meeting7 to evaluate strategies1 including the use of information technology1 to improve transitions in care from active treatment to long-term4 7b7 ,participants ,in conducting the meeting1 the ,secretary shall ensure that the participants include representatives of patient advocacy organizations1 medical professional societies1 community-based organizations1 electronic health record vendors1 information technology experts1 and other stakeholders of the meeting4 7c7 ,consideration of existing tools ,in conducting the meeting1 the ,secretary shall ensure that the participants consider existing tools for improving transitions to survivorship care1 such as-- 7#a7 the survivorship guidelines of the ,national ,comprehensive ,cancer ,network and the ,american ,society of ,clinical ,oncology2 7#b7 the ,passport for ,care survivor website2 7#c7 survivorship care software applications that have been developed by patient advocacy organizations1 research foundations1 and for-profit entities2 and 7#d7 other information and tools that may improve transitions in care and improve overall quality of survivorship care4 7d7 ,consideration of privacy and security implications ,in conducting the meeting1 the ,secretary shall feature collaboration with the ,office for ,civil ,rights of the ,department of ,health and ,human ,services to evaluate the privacy and security implications of-- 7#a7 consolidating treatment history and survivorship guidelines into a personalized survivorship care plan that outlines future health care needs after completion of active treatment2 7#b7 patient use of computer or mobile phone-based application programs described in subsection 7c77#c72 and 7#c7 taking into consideration the results of meeting under subsection 7a74 7e7 ,publication of information resources 7#a7 ,in general ,not later than #cf months after the date of enactment of this ,act1 the ,secretary shall1 taking into consideration the results of the meeting1 publish information resources for cancer patients and providers on strategies for consolidating treatment history and survivorship guidelines into a personalized survivorship care plan to guide survivorship monitoring and follow-up care4 7#b7 ,inclusion of recommendations on patient use of software application programs ,the information resources referred to in paragraph 7#a7 shall include recommendations on patient use of software application programs to develop personalized survivorship care plans4 7f7 ,electronic health record defined ,in this section1 the term electronic health record means an electronic record of health-related information on an individual that is created1 gathered1 managed1 and consulted by authorized health care clinicians and staff4 #f4 ,alternative payment model for quality cancer survivorship care 7a7 ,in general ,not later than one year after the date of enactment of this ,act1 the ,secretary of ,health and ,human ,services shall develop an alternative payment model for payments made under titles ,,xviii and ,,xix of the ,social ,security ,act 7#db ,u4,s4,c4 #acie et seq41 #acif et seq47 for items and services relating to cancer survivorship care 7as defined by the ,secretary74 7b7 ,report to ,congress ,following development of the alternative payment model under subsection 7a71 the ,secretary shall submit to ,congress a report containing a description of such model that includes the following information3 7#a7 ,a description of what event would trigger an individual's entry into such a model 7such as the end of the individual's active cancer treatment1 the beginning of the individual's need for supportive care during active treatment1 or another event74 7#b7 ,the length of the individual's participation under such model1 including a description of any ability to extend such participation1 or a definition of survivorship care as extending until death4 7#c7 ,in the case that such model is based on an episode of care1 the appropriate length of the survivorship episode of care1 whether additional episodes may be triggered1 if necessary1 and whether the episode should end at the beneficiary's death but not before4 7#d7 ,strategies to ensure that any episode of care under such a model begins with the development and dissemination of a survivorship care plan for the transition from active cancer treatment to follow-up care to the individual and all relevant health care providers4 7#e7 ,a description of the navigation services that will be provided as part of such model4 7#f7 ,a description of any bundled payment packages that will be used under such model4 7#g7 ,a specification of any follow-up or new screening under such model for unmet needs of individuals participating in such model4 7#h7 ,a description of how consistent1 shared decision-making will be promoted under such model so that individuals are given the knowledge needed for self-management between episodes of care4 7#i7 ,a specification of which types of health care providers may furnish items and services under such model1 including genetic counselors and mental health professionals4 7#aj7 ,strategies for applying evidence-based risk stratification principles to direct survivors to personalized care pathways that match the level of care needed to the relative risks and needs of the survivor4 7#aa7 ,strategies for coordination of care between such providers1 such as between specialists and primary care providers1 and how principal responsibility will be assigned for an episode of care4 7#ab7 ,strategies for addressing social determinants of health through such model4 7#ac7 ,a description of how such model will promote-- 7,a7 prevention1 early detection surveillance1 and treatment for individuals continuing to receive systemic therapy after the end of active cancer treatment2 7,b7 such individuals' understanding of1 and access to1 treatment2 7,c7 survivorship research2 and 7,d7 the continuing health of cancer survivors4 7#ad7 ,an analysis of how different forms and stages of cancer may require the development of different survivorship plans and suggest variations in elements of the alternative payment model based on form and stage of cancer4 7#ae7 ,a plan for testing any alternative payment model described in the report1 including the timing of such testing1 an analysis of the impact of such testing1 any barriers to implementing such testing1 and any other recommendations determined appropriate by the ,secretary4 #g4 ,cancer survivor employment assistance program 7a7 ,in general ,the ,secretary of ,labor1 in consultation with the ,secretary of ,health and ,human ,services1 shall carry out a program to award grants to non-profit organizations and other entities to provide education and targeted assistance-- 7#a7 to eligible cancer survivors facing barriers to employment1 including those who remain in the workforce during treatment1 those who reduce working hours while in treatment1 and those who reenter the workforce after a treatment-related departure2 and 7#b7 to the families and caregivers of such eligible cancer survivors4 7b7 ,program components ,the program under this section shall include the following3 7#a7 ,assistance1 career and training services1 and supportive services for eligible cancer survivors who stay in the workforce during treatment1 and for their families and caregivers1 including-- 7,a7 transportation assistance2 7,b7 childcare assistance2 7,c7 nutritional assistance2 7,d7 physical activity assistance2 7,e7 psychosocial assistance2 7,f7 financial assistance during a period of medical leave2 and 7,g7 other similar assistance4 7#b7 ,assistance and education for eligible cancer survivors who leave the workforce during treatment1 and for their families and caregivers1 including-- 7,a7 financial assistance during a period of medical leave2 7,b7 assistance with premiums for continuation coverage provided pursuant to part #f of subtitle ,b of title ,i of the ,employee ,retirement ,income ,security ,act of #aigd 7#bi ,u4,s4,c4 #aafa et seq471 title ,,xxii of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #cjj;bb-#a et seq471 or section #dihj;,b of the ,internal ,revenue ,code of #aihf 7#bf ,u4,s4,c4 #dihj;,b72 and 7,c7 career and training services1 including upskilling and reskilling1 for eligible cancer survivors who are not able to return to work after treatment4 7#c7 ,assistance1 career and training services1 and supportive services for eligible cancer survivors who are unable to work after a cancer diagnosis1 and their families and caregivers1 including-- 7,a7 assistance in applying for-- 7i7 supplemental security income benefits under title ,,xvi of the ,social ,security ,act 7#db ,u4,s4,c4 #acha et seq472 7ii7 disability insurance benefits under section #bbc of the ,social ,security ,act 7#db ,u4,s4,c4 #dbc72 7iii7 benefits under a ,state plan1 or waiver of such plan1 under title ,,xix of the ,social ,security ,act 7#db ,u4,s4,c4 #acif et seq472 7iv7 with respect to minimizing delays in eligibility before a cancer survivor becomes eligible for ,medicare coverage1 benefits under the ,medicare program under title ,,xviii of the ,social ,security ,act 7#db ,u4,s4,c4 #ahja et seq471 including with respect to enrolling in plans under part ,c or ,d of such title and supplemental plans under section #ahhb of such title2 7v7 ,state and private sector assistance programs for such cancer survivors2 and 7vi7 career and training services available under title ,i1 ,,ii1 or ,,iv of the ,workforce ,innovation and ,opportunity ,act 7#bi ,u4,s4,c4 #caja et seq472 and 7,b7 information on the eligibility of a cancer survivor1 and their families and caregivers1 for benefits or services described in any of clauses 7i7 through 7vi7 of subparagraph 7,a74 7c7 ,evidence-,based resources ,in carrying out this section1 the ,secretary of ,labor1 in consultation with the ,secretary of ,health and ,human ,services1 shall use evidence-based resources1 including-- 7#a7 nationally recognized evidence-based guidelines2 and 7#b7 other resources as determined by the ,secretary4 7d7 ,definitions ,in this section3 7#a7 ,the term eligible cancer survivor means a cancer survivor 7as defined in section #c7 who-- 7,a7 remains in the workforce during cancer treatment2 7,b7 reduces working hours during cancer treatment2 7,c7 reenters the workforce after a cancer treatment-related departure2 or 7,d7 leaves the workforce as the result of a cancer diagnosis or related complications4 7#b7 ,the term supportive services has the meaning given such term in section #c of the ,workforce ,innovation and ,opportunity ,act 7#bi ,u4,s4,c4 #cajb74 #h4 ,comprehensive cancer survivorship program 7a7 ,in general ,the ,secretary shall carry out a comprehensive cancer survivorship program that includes a program of supportive care services in accordance with subsection 7b7 to improve the quality of life and long-term survivorship of cancer survivors4 7b7 ,cancer survivorship quality-of-,life program 7#a7 ,in general ,the ,secretary shall carry out a program of awarding grants to eligible entities to provide services to cancer survivors to enhance their quality of life and improve their long-term survival rates4 ,not later than #ah months after the date of enactment of this ,act1 the ,secretary shall commence operating such program4 7#b7 ,eligible entity defined ,in this subsection1 the term eligible entity includes an entity that is-- 7,a7 a ,state comprehensive cancer program2 7,b7 a ,national ,cancer ,institute-designated cancer center or centers2 or 7,c7 a community-based organization1 including a patient advocacy organization1 that-- 7i7 has the capacity to reach cancer survivors through local1 ,state1 or national organizations2 and 7ii7 is focused on cancer survivors and strategies for meeting their needs related to their health and well-being4 7#c7 ,use of funds ,a grant received under this subsection shall be used to provide services to cancer survivors to enhance their quality of life and improve their long-term survival rates1 such as by assisting survivors to-- 7,a7 engage in moderate physical activity and other health-promoting activities1 including ceasing tobacco use and increasing consumption of healthy foods2 7,b7 increase access to services to mitigate anxiety1 depression1 and uncertainty2 7,c7 utilize community support services to fully implement survivorship care plans2 7,d7 access nutrition education and counseling2 and 7,e7 adhere to a schedule for1 and access1 screening for recurrence of cancer or the occurrence of other primary cancers4 7#d7 ,standards for application from eligible entities ,to seek a grant under this subsection1 an eligible entity shall submit an application1 at such time as may be required by the ,secretary1 that includes-- 7,a7 an explanation of how the entity will-- 7i7 provide cancer survivors access to cancer patient navigator services2 7ii7 overcome barriers to care for communities of color and multilingual communities2 7iii7 provide culturally competent care2 and 7iv7 work with and support caregivers of cancer survivors2 7,b7 a description of how the entity receives referrals of cancer survivors from health care professionals1 including health care professionals serving historically disadvantaged and underserved communities2 7,c7 documentation of the curriculum that will be used for providers in the program1 including mechanisms to update the staff on curriculum changes2 and 7,d7 an agreement to provide the ,secretary semiannual reports on-- 7i7 the number of participants served2 7ii7 quality-of-life measures for participants2 and 7iii7 plans for fostering communication between oncology and non-oncology providers serving participants4 7#e7 ,responsibilities of the secretary ,the ,secretary shall-- 7,a7 conduct outreach to inform health care professionals of the availability of programs and activities funded under this subsection2 7,b7 analyze the data submitted by grantees under this subsection to determine the number of cancer survivors served and the impact of the program under this subsection on their quality of life2 7,c7 share best practices among all grantees under this subsection2 and 7,d7 consider strategies for the coordination of the program carried out under this section with the alternative payment model for quality survivorship care developed under section #f to ensure that enrollees in the alternative payment model have access to the services that will be funded through the program4 #i4 ,survivorship progress report 7a7 ,in general ,not later than #f months after the date of enactment of this ,act1 the ,secretary shall enter into an agreement with the ,government ,accountability ,office to conduct a study of the progress made in cancer survivorship over the period beginning on the date of enactment of the ,national ,cancer ,act of #aiga 7,public ,law #ib-baf74 7b7 ,scope of the study ,the study under subsection 7a7 shall investigate developments over the period described in subsection 7a7 in-- 7#a7 the nature and quality of survivorship care2 7#b7 transitions from active treatment to survivorship care2 7#c7 the quality of life of cancer survivors2 7#d7 outcomes for cancer survivors2 7#e7 disparities in access to care and survivorship outcomes2 7#f7 the health care systems for providing survivorship care2 7#g7 the contribution of community-based services to the survivorship care system2 and 7#h7 payment for survivorship care by public and private third-party payors4 7c7 ,role of office of cancer survivorship ,the study under subsection 7a7 shall-- 7#a7 consider the contribution of the ,office of ,cancer ,survivorship to the evolution of cancer survivorship care over the last #be years2 and 7#b7 assess the impact of the mission of the ,office and the resources provided to the ,office on its leadership in cancer survivorship care4 7d7 ,public meeting ,in conducting the study under subsection 7a71 the ,comptroller ,general of the ,united ,states shall hold a public meeting with a broad cross section of stakeholders to inform the study's findings and conclusions4 ,such stakeholders shall include-- 7#a7 cancer survivors and their caregivers and families2 7#b7 patient organizations representing cancer survivors2 7#c7 oncologists involved in survivorship care and the professional societies representing them2 7#d7 primary care providers involved in survivor-ship care and the professional societies representing them2 7#e7 other health professionals providing survivorship care and the professional societies representing them2 7#f7 community-based organizations involved in survivorship care2 7#g7 representatives of the ,national ,cancer ,institute2 7#h7 third-party payors2 7#i7 researchers engaged in survivorship research2 7#aj7 epidemiologists with knowledge of trends in cancer survivorship2 and 7#aa7 such other stakeholders as the ,comptroller ,general deems important to participate in the public meeting4 7e7 ,report ,the ,comptroller ,general of the ,united ,states shall-- 7#a7 release a report on the results of the study under subsection 7a72 and 7#b7 in addition to the public meeting convened under subsection 7d7-- 7,a7 convene another public meeting to be held on the day of the release of the report2 and 7,b7 include in such meeting all categories of stakeholders listed in subsection 7d74 #aj4 ,medicaid coverage of healthcare transitions for survivors of childhood and adolescent cancer 7a7 ,in ,general ,section #aijb7;a77#aj7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acif;a7a77#aj77 is amended-- 7#a7 in subparagraph 7,f71 by striking 2 and and inserting a semicolon2 7#b7 in subparagraph 7,g71 by adding at the end and2 and 7#c7 by inserting after subparagraph 7,g7 the following new subparagraph3 7,h7 notwithstanding section #aijb7;a77#aj77;,b7 7relating to comparability71 for making medical assistance available for healthcare transitions for survivors of childhood and adolescent cancer 7as defined in section #aije7;jj772 4 7b7 ,definition ,section #aije of the ,social ,security ,act 7#db ,u4,s4,c4 #acif;d7 is amended by adding at the end the following new subsection3 7jj7 ,healthcare transitions for survivors of childhood and adolescent cancer 7#a7 ,definition ,for purposes of section #aijb7;a77#aj77;,h7 and this subsection1 the term healthcare transitions for survivors of childhood and adolescent cancer-- 7,a7 means transition services from active oncological care to primary care of a child or adolescent with cancer ensuring development and delivery of survivorship care plans to patients1 families and primary care providers and transition coverage2 and 7,b7 includes-- 7i7 transition care based on the ,children's ,oncology ,group 7in this section referred to as the ,,cog7 ,long-term ,follow-,up ,guidelines for ,survivors of ,childhood1 ,adolescent1 and ,young ,adult ,cancers2 and 7ii7 coverage based on the ,,cog exposure-based standard of care for risk assessment and surveillance recommendations2 7iii7 transition services that include evidence-based recommendations for screening and management of late effects that may arise as a result of treatment for childhood cancer1 increase awareness of potential late effects1 and follow-up care for childhood cancer and adolescent survivors2 and 7iv7 at least #b survivorship transition care visits per year4 4 #aa4 ,medicaid coverage of cancer fertility services for cancer survivors 7a7 ,medicaid 7#a7 ,mandatory coverage ,section #aijb7;a77#aj7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acif;a7 is amended-- 7,a7 in subparagraph 7,f71 by striking 2 and and inserting a semicolon2 7,b7 in subparagraph 7,g71 by adding at the end and2 and 7,c7 by inserting after subparagraph 7,g7 the following new subparagraph3 7,h7 notwithstanding section #aijb7;a77#aj77;,b7 7relating to comparability71 for making medical assistance available for cancer fertility services 7as defined in subsection 7kk772 4 7#b7 ,definition ,section #aije of the ,social ,security ,act 7#db ,u4,s4,c4 #acif;d71 as amended by section #aj7d7 of this ,act1 is further amended by adding at the end the following new subsection3 7kk7 ,cancer fertility services 7#a7 ,definition ,for purposes of section #aijb7;a77#aj77;,h7 and this subsection1 the term cancer fertility services-- 7,a7 means fertility treatment and fertility preservation services for individuals diagnosed with cancer who-- 7i7 are undergoing treatment for such cancer where such treatment may lead to iatrogenic infertility2 7ii7 previously underwent such treatment and may be at risk of such infertility due to such treatment2 or 7iii7 are preparing to undergo such treatment where such treatment may lead to such infertility2 and 7,b7 includes-- 7i7 other services1 including experimental and non-experimental services to preserve fertility or treat infertility 7as determined by the ,secretary1 consistent with established medical practices and professional guidelines published by the ,american ,society for ,reproductive ,medicine1 the ,american ,society of ,clinical ,oncology1 or other professional medical organizations specified by the ,secretary72 and 7ii7 long-term storage costs-- 7,i7 with respect to individuals under the age of #ah1 for a period of not less than #ae years2 and 7,,ii7 with respect to individuals age #ah or older1 for a period of not less than #aj years4 7#b7 ,exception for territories ,notwithstanding any other provision of this title1 in the case of a ,state 7other than the #ej ,states and the ,district of ,columbia71 the requirement stated in section #aijb7;a77#aj77;,h7 shall be optional4 4 7#c7 ,prohibition on cost-sharing 7,a7 ,in general ,section #aiaf of the ,social ,security ,act 7#db ,u4,s4,c4 #acifo7 is amended-- 7i7 in subsection 7a77#b7-- 7,i7 in subparagraph 7,i71 by striking at the end 1 or and inserting a semicolon2 7,,ii7 in subparagraph 7,j71 by striking at the end 2 and and inserting 2 or2 and 7,,iii7 by adding at the end the following new subparagraph3 7,k7 cancer fertility services 7as defined in section #aije7kk772 and 2 and 7ii7 in subsection 7b77#b7-- 7,i7 in subparagraph 7,i71 by striking at the end 1 or and inserting a semicolon2 7,,ii7 in subparagraph 7,j71 by striking at the end 2 and and inserting 2 or2 and 7,,iii7 by adding at the end the following new subparagraph3 7,k7 cancer fertility services 7as defined in section #aije7;jj772 and 4 7,b7 ,application to alternative cost-sharing ,section #aiaf;,a7b77#c77;,b7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acifo-#a7;b77#c77;,b77 is amended by adding at the end the following new clause3 7xv7 ,cancer fertility services 7as defined in section #aije7;jj774 4 7b7 ,,chip 7#a7 ,in general ,section #bajc7;c7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acig;cc7c77 is amended-- 7,a7 by redesignating the paragraph 7#ab7 added by section #aadje7;b77#a7 of ,public ,law #aag-afi as paragraph 7#ac72 and 7,b7 by inserting after paragraph 7#aa7 the following new paragraph3 7#ab7 ,required coverage of cancer fertility services for cancer survivors ,regardless of the type of coverage elected by a ,state under subsection 7a71 the child health assistance provided for a targeted low-income child1 and1 in the case of a ,state that elects to provide pregnancy-related assistance pursuant to section #baab1 the pregnancy-related assistance provided for a targeted low-income pregnant woman 7as such terms are defined for purposes of such section71 shall include coverage of cancer fertility services 7as described in section #aije7;jj774 4 7#b7 ,prohibition on cost-sharing ,section #bajc7;e77#b7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acig;cc7e77#b77 is amended-- 7,a7 in the heading1 by inserting ,cancer fertility services after ,,covid-#ai treatment2 and 7,b7 by inserting cancer fertility services 7as described in section #aije7;jj771 after testing or treatments described in section #aiaf7;a77#b77;,i7 furnished during the period described in such section4 7#c7 ,effective date ,the amendment made by paragraph 7#a77;,a7 shall take effect on ,october #a1 #bjbf4 7c7 ,effective date ,the amendments made by this section 7other than the amendment made by subsection 7b77#a77;,a77 shall apply with respect to medical assistance1 child health assistance1 and pregnancy-related assistance furnished on or after the date that is #ah months after the date of the enactment of this ,act4 #ab4 ,office of ,cancer ,survivorship 7a7 ,in general ,the ,secretary shall establish within ,office of the ,director of the ,national ,cancer ,institute 7referred to in this section as ,,nci7 the ,office of ,cancer ,survivorship 7referred to in this section as the ,office74 7b7 ,purpose ,the ,office shall function as the entity within ,,nci with primary responsibility for improving cancer survivorship for individuals living with and through cancer4 7c7 ,responsibilities ,the ,office shall undertake the following responsibilities3 7#a7 ,management of a portfolio of research grants focused on survivorship topics1 including-- 7,a7 late and long-term effects of cancer and cancer treatment2 7,b7 interventions to address late and long-term effects of cancer2 7,c7 health delivery models that ensure access to quality survivorship care for all survivors2 and 7,d7 communication and education efforts to enhance access to survivorship care for all survivors4 7#b7 ,professional education efforts to share best practices in survivorship care and to improve survivorship care delivery4 7#c7 ,survivor education efforts related to-- 7,a7 understanding the late and long-term effects of cancer and cancer treatment2 7,b7 improving access to monitoring and follow-up care after active treatment for all survivors2 and 7,c7 enhancing survivor management of long-term follow-up survivorship care4