,i  #aai? ,,congress  #b;d ,session  ,h4
 ,r4 #hjfg  ,,9 ,,! ,,h\se ,,(          
,,repres5tatives  ,m>* #bd1 #bjbf,mr4   
,v9dman introduc$ ! foll[+ bill2 :i* 0  
ref]r$ to ! ,committee on ,en]gy &      
,comm]ce  ,a ,,bill  ,to direct !       
,secret>y ( ,heal? & ,human ,s]vices to 
c>ry out a program "u :i* ! ,secret>y w 
collect data ) respect to sickle cell   
disease 9 ! ,unit$ ,/ates1 & = o!r      
purposes4  #a4 ,%ort title  ,?is ,act   
may be cit$ z ! ,c&is ,k+ ,hope =       
,sickle ,cell ,families ,act4  #b4      
,sickle ,cell ,data ,collection program 
7a7 ,9 g5]al ,! ,secret>y ( ,heal? &    
,human ,s]vices1 act+ ?r\gh ! ,director 
( ! ,c5t]s = ,disease ,control &        
,prev5tion 79 ?is ,act ref]r$ to z !    
,secret>y71 %all c>ry out a program "u  
:i* ! ,secret>y w collect data on !     
incid5ce & preval5ce ( sickle cell      
disease 9 ! ,unit$ ,/ates1 to be kn[n z 
! ,sickle ,cell ,data ,collection       
program1 ?r\gh aw>d+ grants to ,/ates = 
! foll[+ purposes3 7#a7 ,to collect &   

ma9ta9 data on sickle cell disease to   
ga9 a bett] und]/&+ ( ! incid5ce &      
preval5ce ( sickle cell disease 9 !     
,unit$ ,/ates1 ! demographics (         
individuals 9 ! ,unit$ ,/ates liv+ )    
sickle cell disease1 & ! heal?c>e       
utilization patt]ns ( individuals 9 !   
,unit$ ,/ates liv+ ) sickle cell        
disease4  7#b7 ,to collaborate ) o!r    
entities :o receiv$ grants "u ! ,sickle 
,cell ,data ,collection program ( !     
,c5t]s = ,disease ,control & ,prev5tion 
7z 9 effect on ! day be=e ! date ( !    
enactm5t ( ?is ,act7 & ! ,c5t]s =       
,disease ,control & ,prev5tion =        
purposes ( increas+ ! /&>dization (     
me?ods = sickle cell disease            
surveillance4  7b7 ,au?orization (      
appropriations ,!re are au?oriz$ to be  
appropriat$ to c>ry out ! program ref]r$
 to 9 subsection 7a71 #aj1jjj1jjj = ea* 
( fiscal ye>s #bjbg ?r\gh #bjca4  #c4   
,division ( ,blood ,disord]s & ,public  
,heal? ,g5omics  7a7 ,9 g5]al ,!        
,secret>y ( ,heal? & ,human ,s]vices    

%all re9/ate any cov]$ employee ( !     
,division ( ,blood ,disord]s & ,public  
,heal? ,g5omics ( ! ,c5t]s = ,disease   
,control & ,prev5tion4  7b7 ,cov]$      
employee def9$ ,9 ?is section1 ! t]m    
cov]$ employee means an employee ( !    
,division ( ,blood ,disord]s & ,public  
,heal? ,g5omics ( ! ,c5t]s = ,disease   
,control & ,prev5tion :o 0 remov$ on or 
aft] ,janu>y #a1 #bjbe1 "u any ag5cy    
action 7includ+ any r$uction 9 =ce      
conduct$ pursuant to sub*apt] ,i ( *apt]
 #ce ( title #e1 ,unit$ ,/ates ,code or 
any ag5cy reorganization7 t provides = !
 removal ( #c p]c5t or m ( ! total numb]
 ( employees at su* ,division )9 a      
#fj-;day p]iod4