,i  #aai? ,,congress  #b;d ,session  ,h4
 ,r4 #ghgg  ,,9 ,,! ,,h\se ,,(          
,,repres5tatives  ,m>* #i1 #bjbf,mr4    
,l&sman introduc$ ! foll[+ bill2 :i* 0  
ref]r$ to ! ,committee on ,en]gy &      
,comm]ce  ,a ,,bill  ,to require !      
,secret>y ( ,heal? & ,human ,s]vices to 
e/abli% a demon/ration program to te/   
m&atory cov]age ( treatm5t = w\nd c>e = 
epid]molysis bullosa "u ! ,m$icaid      
program4  #a4 ,%ort title ,?is ,act may 
be cit$ z ! ,%ane ,di,giovanna ,act4    
#b4 ,demon/ration program to te/ m&atory
 cov]age ( treatm5t = w\nd c>e =        
epid]molysis bullosa "u ! ,m$icaid      
program  7a7 ,9 g5]al ,beg9n+ n lat] ?an
 #a ye> aft] ! date ( ! enactm5t ( ?is  
,act1 ! ,secret>y ( ,heal? & ,human     
,s]vices 79 ?is section ref]r$ to z !   
,secret>y7 %all conduct a #b-ye>        
demon/ration program "u :i* items &     
s]vices specifi$ 9 subsection 7b7       
furni%$ = ! treatm5t ( epid]molysis     
bullosa are requir$ to be includ$ z     
m$ical assi/ance "u a ,/ate plan 7or    

waiv] ( su* plan7 "u title ,,xix ( !    
,social ,security ,act 7#db ,u4,s4,c4   
#acif et seq47 = individuals describ$ 9 
section #aijb7;a77#aj77;,a77i7 ( su*    
,act 7#db ,u4,s4,c4                     
#acif;a7a77#aj77;,a77i774  7b7 ,specifi$
 items & s]vices ,= purposes (          
subsection 7a71 ! items & s]vices       
specifi$ 9 ?is subsection are           
ov]-!-c\nt] antihi/am9es1 acetam9oph51  
non/]oidal anti-inflammatory drugs1     
antiseptics1 z9c oxide1 antibiotic      
o9tm5ts1 & necess>y w\nd c>e supplies1  
includ+ w\nd c>e dress+s 7inclusive (   
prim>y & second>y dress+s71 gauze1 &    
b&age reta9]s4  7c7 ,scope (            
demon/ration ,! ,secret>y %all conduct !
 demon/ration program describ$ 9        
subsection 7a7 on a nationwide basis4   
7d7 ,/udy ,n lat] ?an #a ye> aft] ! end 
( ! demon/ration program describ$ 9     
subsection 7a71 ! ,secret>y %all submit 
to ,congress a report on su* program4   
,su* report %all include ! foll[+3 7#a7 
,an evaluation ( ! effect ( su* program 

on exp5ditures = treatm5t ( individuals 
) epid]molysis bullosa "u ! ,m$icaid    
program 7tak+ into acc\nt any su*       
treatm5t avoid$ due to su* program74    
7#b7 ,an analysis ( heal? outcomes = su*
 individuals comp>$ to su* outcomes be=e
 su* program4  7#c7 ,any recomm5dations 
relat+ to h[ to prev5t hospitalizations 
relat+ to epid]molysis bullosa4