,i  #aaith ,,congress  #b;d ,session    
,h4 ,r4 #ghgg  ,,in ,,the ,,house ,,of  
,,representatives  ,march #i1 #bjbf,mr4 
,landsman introduced the following bill2
 which was referred to the ,committee on
 ,energy and ,commerce  ,a ,,bill  ,to  
require the ,secretary of ,health and   
,human ,services to establish a         
demonstration program to test mandatory 
coverage of treatment for wound care for
 epidermolysis bullosa under the        
,medicaid program4  #a4 ,short title    
,this ,act may be cited as the ,shane   
,di,giovanna ,act4  #b4 ,demonstration  
program to test mandatory coverage of   
treatment for wound care for            
epidermolysis bullosa under the         
,medicaid program  7a7 ,in general      
,beginning not later than #a year after 
the date of the enactment of this ,act1 
the ,secretary of ,health and ,human    
,services 7in this section referred to  
as the ,secretary7 shall conduct a      
#b-year demonstration program under     
which items and services specified in   

subsection 7b7 furnished for the        
treatment of epidermolysis bullosa are  
required to be included as medical      
assistance under a ,state plan 7or      
waiver of such plan7 under title ,,xix  
of the ,social ,security ,act 7#db      
,u4,s4,c4 #acif et seq47 for individuals
 described in section                   
#aijb7;a77#aj77;,a77i7 of such ,act 7#db
 ,u4,s4,c4 #acif;a7a77#aj77;,a77i774    
7b7 ,specified items and services ,for  
purposes of subsection 7a71 the items   
and services specified in this          
subsection are over-the-counter         
antihistamines1 acetaminophen1          
nonsteroidal anti-inflammatory drugs1   
antiseptics1 zinc oxide1 antibiotic     
ointments1 and necessary wound care     
supplies1 including wound care dressings
 7inclusive of primary and secondary    
dressings71 gauze1 and bandage          
retainers4  7c7 ,scope of demonstration 
,the ,secretary shall conduct the       
demonstration program described in      
subsection 7a7 on a nationwide basis4   

7d7 ,study ,not later than #a year after
 the end of the demonstration program   
described in subsection 7a71 the        
,secretary shall submit to ,congress a  
report on such program4 ,such report    
shall include the following3 7#a7 ,an   
evaluation of the effect of such program
 on expenditures for treatment of       
individuals with epidermolysis bullosa  
under the ,medicaid program 7taking into
 account any such treatment avoided due 
to such program74  7#b7 ,an analysis of 
health outcomes for such individuals    
compared to such outcomes before such   
program4  7#c7 ,any recommendations     
relating to how to prevent              
hospitalizations relating to            
epidermolysis bullosa4