,i #aai? ,,congress #b;d ,session ,h4 ,r4 #ggag ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,febru>y #be1 #bjbf,mr4 ,torres ( ,new ,york introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to e/abli% a pilot program at ! ,c5t]s = ,disease ,control & ,prev5tion to support local jurisdictions 9 develop+ neighborhood-level1 publicly accessible heal? data plat=ms1 to e/abli% a ,national ,neighborhood ,heal? ,data ,repository1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,community ,heal? ,pr(iles ,act4 #b4 ,community heal? data pilot program 7a7 ,e/abli%m5t ,n lat] ?an #a ye> aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion 79 ?is section ref]r$ to z ! ,secret>y71 %all e/abli% a pilot program 79 ?is section ref]r$ to z ! ,program7 to aw>d grants1 on a competitive basis1 to n m ?an #be eligible entities to develop or enhance neighborhood-level1 publicly accessible heal? data plat=ms4 ,su* plat=ms %all submit de-id5tifi$1 aggregat$ data to ! ,national ,neighborhood ,heal? ,data ,repository e/abli%$ "u subsection 7h71 consi/5t ) applicable ,f$]al1 ,/ate1 & local privacy laws4 7b7 ,program objectives ,! objectives ( ! ,program %all be to-- 7#a7 promote equitable access to local heal? data2 7#b7 support ! integration ( ,f$]al1 ,/ate1 & local surveillance sy/ems into us]-fri5dly1 publicly accessible heal? data plat=ms2 7#c7 facilitate data-driv5 public heal? plann+ & community engagem5t2 7#d7 provide actionable insights at ! ,/ate & local level1 ) a focus on address+ heal? disp>ities2 & 7#e7 support ! e/abli%m5t & ma9t5ance ( ! ,national ,neighborhood ,heal? ,data ,repository to enable national comp>ability :ile uphold+ local data privacy /&>ds4 7c7 ,eligible entities ,to be eligible = a grant "u ! ,program1 an entity %all be-- 7#a7 a ,/ate or local heal? dep>tm5t2 or 7#b7 a municipality or c\nty gov]nm5t4 7d7 ,p>tn]%ip ) academic & nonpr(it in/itutions ,9 adm9i/]+ a grant "u ! ,program1 an eligible entity may p>tn] ) an academic or nonpr(it in/itution4 7e7 ,priority ,9 aw>d+ grants "u ! ,program1 ! ,secret>y-- 7#a7 %all prioritize eligible entities t-- 7,a7 s]ve populations exp]i5c+ heal? disp>ities1 su* z m$ically und]s]v$ communities1 l[-income communities1 or environm5tally burd5$ communities2 7,b7 lack a neighborhood-level1 publicly accessible heal? data sy/em2 & 7,c7 demon/rate plans to use ! data collect$ f su* a sy/em to r$uce heal? disp>ities2 & 7#b7 may prioritize eligible entities t propose innovative indicators beyond traditional public heal? surveillance 7pursuant to subsection 7f77#a774 7f7 ,use ( funds ,a grant "u ! ,program may only be us$ to-- 7#a7 develop or exp& a publicly accessible heal? data plat=m to provide neighborhood-level data across key doma9s1 includ+-- 7,a7 social & economic conditions1 su* z education1 economic /ress1 neighborhood1 viol5ce1 & inc>c]ation2 7,b7 h\s+ & neighborhood conditions1 su* z ! preval5ce & quality ( air condition]s1 h\s+ quality1 & ! quality ( ! built environm5t2 7,c7 mat]nal & *ild heal?2 7,d7 heal?y liv+1 su* z self-report$ heal? /atus2 7,e7 heal? c>e1 su* z access to c>e & avoidable hospitalization & vacc9ation2 & 7,f7 heal? outcomes1 su* z *ronic conditions1 ! preval5ce or treatm5t ( human immunodefici5cy virus 7commonly kn[n z ,,hiv7 & ,hepatitis ,c1 b+e dr9k+ & psy*iatric hospitalizations1 infant mortality & premature dea?1 & life expectancy2 7#b7 integrate data f multiple s\rces1 includ+-- 7,a7 ,f$]al surveillance sy/ems2 7,b7 ,/ate & local adm9i/rative survey data2 & 7,c7 local education1 h\s+1 & public safety data2 7#c7 ensure data disaggregation by neighborhood1 ,,zip code1 or c5sus tract1 & support comp>ability across local jurisdictions :]e feasible2 7#d7 design neighborhood-level1 publicly accessible heal? data plat=ms ) cle> citation ( s\rces & transp>5t me?odology2 7#e7 incorporate into su* plat=ms-- 7,a7 visualization tools1 su* z *>ts1 maps1 & tr5d l9es2 & 7,b7 d[nloadable datasets = public use2 7#f7 provide tra9+ or te*nical assi/ance to community & local in/itutions to ensure su/a9ability & usability ( su* plat=ms1 includ+ assi/ance 9 align+ su* plat=ms ) ,f$]al int]op]ability /&>ds & model legal frameworks = privacy1 confid5tiality1 & data-%>+ compliance2 & 7#g7 submit de-id5tifi$1 aggregat$ data collect$ or g5]at$ us+ grant funds "u ! ,program to ! ,national ,neighborhood ,heal? ,data ,repository1 9 su* /&>diz$ =mat z ! ,secret>y may require4 7g7 ,adm9i/ration & evaluation 7#a7 ,adm9i/ration ,9 adm9i/]+ ! ,program1 ! ,secret>y %all-- 7,a7 issue program guidance & te*nical assi/ance = plat=m developm5t1 data integration1 & public accessibility1 includ+-- 7i7 /&>ds = secure data report+ to ! ,national ,neighborhood ,heal? ,data ,repository & alignm5t ) ,f$]al1 ,/ate1 & local laws2 & 7ii7 model provisions on confid5tiality & comp>ability2 7,b7 provide te*nical assi/ance to grant recipi5ts on data me?odology1 privacy protection1 & sy/em int]op]ability2 & 7,c7 facilitate collaboration & pe] le>n+ among grant recipi5ts to %>e be/ practices & promote replicability4 7#b7 ,evaluation 7,a7 ,initial report ,n lat] ?an #a ye> aft] ! e/abli%m5t ( ! ,program1 ! ,secret>y %all submit to ,congress a report t-- 7i7 summ>izes ! outcomes ( ! ,program & ! progress made on ! developm5t ( neighborhood-level1 publicly accessible heal? data plat=ms2 7ii7 assesses improvem5ts ! ,program has made 9 public access to heal? data1 data usability1 & community engagem5t2 & 7iii7 id5tifies lessons le>n$ & makes recomm5dations = :e!r & h[ ! ,program c\ld be exp&$ nationally or ext5d$ beyond ! #d-ye> t]m9ation p]iod describ$ 9 subsection 7k74 7,b7 ,updates ,! ,secret>y may update or supplem5t ! report describ$ 9 subp>agraph 7,a7 z ! ,secret>y det]m9es appropriate4 7h7 ,national ,neighborhood ,heal? ,data ,repository 7#a7 ,e/abli%m5t ,! ,secret>y %all e/abli% & ma9ta9 a publicly accessible1 se>*able ,national ,neighborhood ,heal? ,data ,repository to aggregate de-id5tifi$1 neighborhood-level heal? data f recipi5ts ( grants "u ! ,program4 7#b7 ,elem5ts ,! ,repository %all-- 7,a7 display data submitt$ by recipi5ts ( grants "u ! ,program2 7,b7 enable comp>isons across local jurisdictions2 & 7,c7 include tools = visualization1 filt]+1 & d[nload+ ( data4 7#c7 ,ov]sight ,! ,secret>y %all provide ov]sight ( ! ,repository by-- 7,a7 review+ data submissions2 7,b7 develop+ & implem5t+ a me?odology = ! aggregation ( heal? data z describ$ 9 p>agraph 7#d72 & 7,c7 9 consultation ) ,/ates & local jurisdictions1 en=c+ national data /&>ds = quality & consi/5cy4 7#d7 ,review ( me?odology by indep5d5t panel 7,a7 ,e/abli%m5t ,! ,secret>y %all e/abli% an indep5d5t advisory panel 79 ?is p>agraph ref]r$ to z ! panel7 = ! purposes ( review+ ! me?odology develop$ by ! ,secret>y "u subp>agraph 7,c74 7,b7 ,appo9tm5t ( memb]s ,! ,comptroll] ,g5]al ( ! ,unit$ ,/ates %all develop1 ma9ta91 & make publicly available a li/ ( nom9ees to s]ve z memb]s ( ! panel4 ,! ,secret>y %all appo9t a memb] ( ! panel only aft] review+ su* li/4 ,su* memb]s %all be exp]ts 9 epidemiology1 /ati/ics1 public heal? surveillance1 & data privacy4 7,c7 ,review au?ority ,! ,secret>y %all develop & implem5t a me?odology = ! aggregation ( heal? data = ! purposes ( ! ,repository1 :i* %all g into effect only ^u c]tification by ! panel t su* me?odology-- 7i7 reflects sci5tific be/ practices2 & 7ii7 ma9ta9s public accessibility1 privacy protections1 & data comp>ability across jurisdictions4 7i7 ,def9itions ,9 ?is section3 7#a7 ,heal? disp>ity ,! t]m heal? disp>ity means a diff]5ce 9 heal? outcomes or access to heal? s]vices t is closely l9k$ to social1 economic1 environm5tal1 racial1 e?nic1 or o!r demographic factors4 7#b7 ,local jurisdiction ,! t]m local jurisdiction means a municipality1 c\nty1 local heal? dep>tm5t1 or regional public heal? au?ority ) ! capacity to implem5t a neighborhood-level1 publicly accessible heal? data plat=m4 7#c7 ,m$ically und]s]v$ community ,! t]m m$ically und]s]v$ community has ! mean+ giv5 su* t]m 9 section #gii;,b ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #biep74 7#d7 ,national ,neighborhood ,heal? ,data ,repository ,! t]m ,national ,neighborhood ,heal? ,data ,repository means ! ,national ,neighborhood ,heal? ,data ,repository e/abli%$ "u subsection 7h74 7#e7 ,neighborhood-level ,! t]m neighborhood-level means1 ) respect to a publicly accessible heal? data plat=m1 t su* heal? data plat=m focuses on a geographic area )9 a local jurisdiction t is small] ?an ! municipal or c\nty level1 su* z a ,,zip code1 c5sus tract1 or community di/rict4 7#f7 ,publicly accessible heal? data plat=m ,! t]m publicly accessible heal? data plat=m means an onl9e tool1 website1 or da%bo>d t makes heal? data accessible to ! g5]al public ?r\gh visualizations1 d[nloadable datasets1 or writt5 summ>ies4 7j7 ,rule ( con/ruction ,no?+ 9 ?is section %all be con/ru$ to preempt or sup]s$e any applicable ,f$]al1 ,/ate1 or local privacy laws4 7k7 ,t]m9ation ,! ,program %all t]m9ate on ! date t is #d ye>s aft] ! date on :i* ! ,secret>y e/abli%es ! ,program4