,i #aai? ,,congress #b;d ,session ,h4 ,r4 #gfid ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,febru>y #be1 #bjbf,mr4 ,got!im] 7= himself1 ,ms4 ,pett]s51 & ,mr4 ,lawl]7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to direct ! ,secret>y ( ,heal? & ,human ,s]vices to c>ry out a public aw>5ess campaign to increase p>ticipation by wom5 9 cl9ical trials t are conduct$ or support$ by ! ,national ,in/itutes ( ,heal?1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,gw5n's ,law4 #b4 ,public aw>5ess campaign to increase p>ticipation ( wom5 9 ,,nih cl9ical trials 7a7 ,9 g5]al ,! ,secret>y ( ,heal? & ,human ,s]vices1 act+ ?r\gh ! ,director ( ! ,national ,in/itutes ( ,heal? 79 ?is section ref]r$ to z ! ,secret>y7 %all c>ry out a public aw>5ess campaign to increase ! p>ticipation ( wom5 9 cl9ical trials conduct$ or support$ by ! ,national ,in/itutes ( ,heal?4 7b7 ,t>get$ outrea* ,9 c>ry+ out ! campaign "u subsection 7a71 ! ,secret>y %all increase outrea* at hospitals1 physicians' (fices1 heal? c5t]s1 heal? c>e cl9ics1 & o!r locations t ! ,secret>y det]m9es appropriate4 7c7 ,priority ,9 c>ry+ out ! campaign "u subsection 7a71 ! ,secret>y %all prioritize increas+ ! p>ticipation ( wom5 9 cl9ical trials involv+ rese>* on1 & developm5t (1 products to prev5t1 diagnose1 or treat r>e diseases & conditions4 7d7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #aj1jjj1jjj = ea* ( fiscal ye>s #bjbg ?r\gh #bjca4 #c4 ,public aw>5ess campaign to increase aw>5ess ( ble$+ & clott+ disord]s 9 wom5 7a7 ,9 g5]al ,! ,secret>y ( ,heal? & ,human ,s]vices %all c>ry out a public aw>5ess campaign to increase ! numb] ( wom5 p>ticipat+ 9 programs ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices = rese>*1 surveillance1 & prev5tion ) respect to ble$+ & clott+ disord]s1 includ+ hemophilia4 7b7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #aj1jjj1jjj = ea* ( fiscal ye>s #bjbg ?r\gh #bjca4 #d4 ,int]ag5cy ,task ,=ce on ,advanc+ ,treatm5ts = ,r>e ,diseases ,"p ,a ( title ,,iii ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bda et seq47 is am5d$ by add+ at ! end ! foll[+3 #caj;,c4 ,int]ag5cy ,task ,=ce on ,advanc+ ,treatm5ts = ,r>e ,diseases 7a7 ,9 g5]al ,! ,secret>y %all ma9ta9 a p]man5t task =ce1 to be kn[n z ! ,int]ag5cy ,task ,=ce on ,advanc+ ,treatm5ts = ,r>e ,diseases 79 ?is section ref]r$ to z ! ,task ,=ce74 ,! ,secret>y %all e/abli% ! ,task ,=ce n lat] ?an #ij days aft] ! date ( enactm5t ( ! legislation4 7b7 ,composition ,! ,task ,=ce %all be compos$ ( ! foll[+ memb]s3 7#a7 ,! ,secret>y4 7#b7 ,! ,adm9i/rator ( ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices4 7#c7 ,! ,commission] ( ,food & ,drugs4 7#d7 ,! ,director ( ! ,national ,in/itutes ( ,heal?4 7#e7 ,! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion4 7#f7 ,f\r individuals1 to be appo9t$ by ! ,secret>y1 :o are-- 7,a7 bioph>maceutical innovators ) respect to r>e diseases & conditions2 7,b7 private heal? plan adm9i/rators2 or 7,c7 repres5tatives ( in/itutions or organizations conduct+ f$]ally fund$ rese>* ) respect to r>e diseases & conditions4 7#g7 ,f\r individuals1 to be appo9t$ by ! ,secret>y1 :o are repres5tatives ( r>e disease advocacy gr\ps4 7c7 ,duties ,! ,task ,=ce %all-- 7#a7 assess-- 7,a7 ,f$]al ag5cy activities conc]n+ r>e diseases1 includ+ projects involv+ two or m ag5cies2 7,b7 ov]all programmatic fund+2 & 7,c7 pot5tial measurable outcomes to include 9 future reports2 & 7#b7 coord9ate ! ef=ts ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices to inc5tivize rese>* on1 & developm5t (1 products = prev5tion1 diagnosis1 & treatm5t ) respect to r>e diseases & conditions1 p>ticul>ly r>e diseases & conditions t disproportionately impact wom54 4 #e4 ,action plan = coord9at+ ,,hhs ef=ts ) respect to c]ta9 r>e diseases & conditions 7a7 ,9 g5]al ,! ,secret>y ( ,heal? & ,human ,s]vices %all prep>e an action plan = coord9at+ ef=ts ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices to inc5tivize rese>* on1 & developm5t (1 products = prev5tion1 diagnosis1 & treatm5t ) respect to r>e diseases & conditions t disproportionately impact wom54 7b7 ,submission & public availability ,n lat] ?an #ahj days aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y %all-- 7#a7 complete ! action plan requir$ by subsection 7a72 7#b7 submit su* action plan to ! ,congress2 & 7#c7 make su* plan publicly available1 includ+ by po/+ on ! websites ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices & ! ,national ,in/itutes ( ,heal?4