,i  #aaith ,,congress  #b;d ,session    
,h4 ,r4 #gfid  ,,in ,,the ,,house ,,of  
,,representatives  ,february #be1       
#bjbf,mr4 ,gottheimer 7for himself1 ,ms4
 ,pettersen1 and ,mr4 ,lawler7          
introduced the following bill2 which was
 referred to the ,committee on ,energy  
and ,commerce  ,a ,,bill  ,to direct the
 ,secretary of ,health and ,human       
,services to carry out a public         
awareness campaign to increase          
participation by women in clinical      
trials that are conducted or supported  
by the ,national ,institutes of ,health1
 and for other purposes4  #a4 ,short    
title ,this ,act may be cited as the    
,gwenn's ,law4  #b4 ,public awareness   
campaign to increase participation of   
women in ,,nih clinical trials  7a7 ,in 
general ,the ,secretary of ,health and  
,human ,services1 acting through the    
,director of the ,national ,institutes  
of ,health 7in this section referred to 
as the ,secretary7 shall carry out a    
public awareness campaign to increase   

the participation of women in clinical  
trials conducted or supported by the    
,national ,institutes of ,health4  7b7  
,targeted outreach ,in carrying out the 
campaign under subsection 7a71 the      
,secretary shall increase outreach at   
hospitals1 physicians' offices1 health  
centers1 health care clinics1 and other 
locations that the ,secretary determines
 appropriate4  7c7 ,priority ,in        
carrying out the campaign under         
subsection 7a71 the ,secretary shall    
prioritize increasing the participation 
of women in clinical trials involving   
research on1 and development of1        
products to prevent1 diagnose1 or treat 
rare diseases and conditions4  7d7      
,authorization of appropriations ,to    
carry out this section1 there is        
authorized to be appropriated           
#aj1jjj1jjj for each of fiscal years    
#bjbg through #bjca4  #c4 ,public       
awareness campaign to increase awareness
 of bleeding and clotting disorders in  
women  7a7 ,in general ,the ,secretary  

of ,health and ,human ,services shall   
carry out a public awareness campaign to
 increase the number of women           
participating in programs of the        
,department of ,health and ,human       
,services for research1 surveillance1   
and prevention with respect to bleeding 
and clotting disorders1 including       
hemophilia4  7b7 ,authorization of      
appropriations ,to carry out this       
section1 there is authorized to be      
appropriated #aj1jjj1jjj for each of    
fiscal years #bjbg through #bjca4  #d4  
,interagency ,task ,force on ,advancing 
,treatments for ,rare ,diseases ,part ,a
 of title ,,iii of the ,public ,health  
,service ,act 7#db ,u4,s4,c4 #bda et    
seq47 is amended by adding at the end   
the following3  #caj;,c4 ,interagency   
,task ,force on ,advancing ,treatments  
for ,rare ,diseases  7a7  ,in general   
,the ,secretary shall maintain a        
permanent task force1 to be known as the
 ,interagency ,task ,force on ,advancing
 ,treatments for ,rare ,diseases 7in    

this section referred to as the ,task   
,force74 ,the ,secretary shall establish
 the ,task ,force not later than #ij    
days after the date of enactment of the 
legislation4  7b7 ,composition ,the     
,task ,force shall be composed of the   
following members3 7#a7 ,the ,secretary4
  7#b7 ,the ,administrator of the       
,centers for ,medicare  ,medicaid       
,services4  7#c7 ,the ,commissioner of  
,food and ,drugs4  7#d7 ,the ,director  
of the ,national ,institutes of ,health4
  7#e7 ,the ,director of the ,centers   
for ,disease ,control and ,prevention4  
7#f7 ,four individuals1 to be appointed 
by the ,secretary1 who are-- 7,a7       
biopharmaceutical innovators with       
respect to rare diseases and conditions2
  7,b7 private health plan              
administrators2 or  7,c7 representatives
 of institutions or organizations       
conducting federally funded research    
with respect to rare diseases and       
conditions4  7#g7 ,four individuals1 to 
be appointed by the ,secretary1 who are 

representatives of rare disease advocacy
 groups4  7c7 ,duties ,the ,task ,force 
shall--  7#a7 assess-- 7,a7 ,federal    
agency activities concerning rare       
diseases1 including projects involving  
two or more agencies2  7,b7 overall     
programmatic funding2 and  7,c7         
potential measurable outcomes to include
 in future reports2 and  7#b7 coordinate
 the efforts of the ,department of      
,health and ,human ,services to         
incentivize research on1 and development
 of1 products for prevention1 diagnosis1
 and treatment with respect to rare     
diseases and conditions1 particularly   
rare diseases and conditions that       
disproportionately impact women4  4  #e4
 ,action plan for coordinating ,,hhs    
efforts with respect to certain rare    
diseases and conditions  7a7 ,in general
 ,the ,secretary of ,health and ,human  
,services shall prepare an action plan  
for coordinating efforts of the         
,department of ,health and ,human       
,services to incentivize research on1   

and development of1 products for        
prevention1 diagnosis1 and treatment    
with respect to rare diseases and       
conditions that disproportionately      
impact women4  7b7 ,submission and      
public availability ,not later than #ahj
 days after the date of enactment of    
this ,act1 the ,secretary shall--  7#a7 
complete the action plan required by    
subsection 7a72  7#b7 submit such action
 plan to the ,congress2 and  7#c7 make  
such plan publicly available1 including 
by posting on the websites of the       
,department of ,health and ,human       
,services and the ,national ,institutes 
of ,health4