,i #aai? ,,congress #a/ ,session ,h4 ,r4 #fhig ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,decemb] #ah1 #bjbe,ms4 ,/ev5s 7= h]self & ,ms4 ,und]wood7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to advance rese>*1 promote aw>5ess & education1 & improve heal? c>e1 ) respect to ?yroid disease1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,?yroid ,disease ,cov]age1 ,aw>5ess1 ,rese>*1 & ,education ,act ( #bjbe or ! ,?yroid ,disease ,,c>e ,act ( #bjbe4 #b4 ,?yroid disease rese>* 7a7 ,9 g5]al ,! ,secret>y1 9 consultation ) ! ,national ,academies ( ,sci5ces1 ,eng9e]+1 & ,m$ic9e1 %all-- 7#a7 conduct or support rese>* & relat$ activities reg>d+ ?yroid disease1 includ+ rese>*-- 7,a7 to inve/igate ! root causes ( ?yroid disease2 7,b7 to improve diagno/ic te*niques & develop improv$ treatm5ts2 7,c7 to improve ?yroid canc]-relat$ c>e1 includ+ ! prev5tion1 diagnosis1 & treatm5t ( ?yroid nodules & ?yroid canc]2 7,d7 to enhance ! quality ( ?yroid canc] survivor%ip1 includ+ und]/&+ h[ a ?yroid canc] diagnosis impacts wom5 ( reproductive ye>s & beyond2 7,e7 to und]/& ! symptoms ( pati5ts treat$ = ?yroid disease & to design /udies to improve symptom managem5t2 7,f7 to assess-- 7i7 ?yroid disease preval5ce1 detection1 treatm5t1 & outcome disp>ties by race1 e?nicity1 geography1 prim>y language1 sex1 sexual ori5tation1 g5d] id5tity1 disability /atus1 & insurance /atus1 & relat$ topics z det]m9$ by ! ,secret>y2 & 7ii7 ) respect to ?yroid canc] pati5ts1 su* disp>ities relat+ to prim>y tumor site1 tumor morphology1 /age at diagnosis1 & fir/ c\rse ( treatm5t2 & 7,g7 to /udy ! effects ( ?yroid disease1 includ+ subcl9ical hypo?yroidism1 9 pati5ts :o cont9ue to exp]i5ce symptoms despite _! te/ results becom+ normal2 & 7#b7 propose recomm5dations on h[ to address rese>* gaps relat+ to disp>ities ref]r$ to 9 p>agraph 7#a77;,f74 7b7 ,int]im report ,! ,secret>y %all-- 7#a7 n lat] ?an #bd mon?s aft] ! date ( enactm5t ( ?is ,act1 transmit an int]im report on ! /atus & results ( ! rese>* & relat$ activities "u ?is section to ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives & ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate2 & 7#b7 make su* report publicly available4 7c7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #cj1jjj1jjj = ea* ( fiscal ye>s #bjbf ?r\gh #bjcj4 #c4 ,analyz+ rese>* gaps & disproportionate impacts ) respect to ?yroid disease 7a7 ,rese>* ,! ,secret>y %all-- 7#a7 id5tify & analyze gaps 9 rese>* on diagnos+ & treat+ ?yroid disease2 7#b7 analyze-- 7,a7 ! disproportionate impacts ( ?yroid disease on specific populations1 disaggregat$ by race1 e?nicity1 geography1 prim>y language1 sex1 sexual ori5tation1 g5d] id5tity1 disability /atus1 & insurance /atus1 ) a p>ticul> focus on su* disproportionate impacts on wom52 7,b7 ! reasons = ! disproportionate impacts ref]r$ to 9 subp>agraph 7,a7 9 su* specific populations1 includ+ ) respect to disproportionate access to specializ$ c>e2 & 7,c7 ! level ( k ( heal? c>e pr(essionals ab\t su* disproportionate impacts2 & 7#c7 analyze1 & =mulate recomm5dations ) respect to1 bett] options =-- 7,a7 diagnos+ & treat+ ?yroid disease 9 su* populations2 & 7,b7 pay+ = su* diagnosis & treatm5t4 7b7 ,topics ,9 c>ry+ out ! analysis "u subsection 7a71 ! ,secret>y may assess-- 7#a7 data f ! ,trans=m$ ,m$icaid ,/ati/ical ,in=mation ,sy/em relat$ to s]vices furni%$ to individuals diagnos$ ) ?yroid disease = ! treatm5t ( ?yroid disease symptoms "u ,/ate ,m$icaid programs & ,/ate *ildr5's heal? insurance programs2 7#b7 data collect$ ?r\gh ! ,surveillance1 ,epidemiology1 & ,end ,results 7,,se]7 program ( ! ,national ,canc] ,in/itute2 7#c7 data collect$ ?r\gh ! ,m$ic>e program "u title ,,xviii ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acie et seq472 7#d7 data relat$ to s]vices furni%$ to individuals diagnos$ ) ?yroid disease = ! treatm5t ( ?yroid disease symptoms "u gr\p heal? plans or gr\p or individual heal? insurance cov]age (f]$ by a heal? insurance issu]2 7#e7 data f nationally repres5tative sample surveys 7su* z ! ,national ,heal? ,int]view ,survey ( ! ,c5t]s = ,disease ,control & ,prev5tion 7or any successor survey772 & 7#f7 su* o!r data z ! ,secret>y det]m9es relevant4 7c7 ,data collection ,to c>ry out ! analysis "u subsection 7a71 ! ,secret>y may reque/-- 7#a7 gr\p heal? plans 7z def9$ 9 section #bgia ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #cjj;gg-#ia771 heal? insurance issu]s (f]+ gr\p or individual heal? insurance cov]age 7z s def9$71 & heal? b5efits plans (f]$ "u ! ,f$]al ,employee ,heal? ,b5efits ,program "u *apt] #hi ( title #e1 ,unit$ ,/ates ,code1 to provide su* in=mation z may be requir$ to assess b>ri]s t individuals diagnos$ ) ?yroid disease face 9 access+ treatm5ts = ?yroid disease symptoms1 includ+ a lack ( insurance cov]age & co/-%>+ requirem5ts = su* treatm5ts2 & 7#b7 ,/ate ,m$icaid programs & ,/ate *ildr5's heal? insurance programs to collect & report1 ?r\gh ! ,trans=m$ ,m$icaid ,/ati/ical ,in=mation ,sy/em1 data relat$ to s]vices furni%$ to individuals diagnos$ ) ?yroid disease = ! treatm5t ( ?yroid disease symptoms1 includ+ data /ratifi$ by relevant demographic *>act]i/ics4 7d7 ,privacy requirem5ts ,9 c>ry+ out ! analysis "u subsection 7a71 includ+ mak+ reque/s "u subsection 7c71 & 9 submitt+ ! report "u subsection 7e71 ! ,secret>y %all ensure t ! privacy & confid5tiality ( individual pati5ts are protect$ 9 a mann] consi/5t ) relevant privacy & confid5tiality laws4 7e7 ,report ,! ,secret>y %all-- 7#a7 n lat] ?an #b ye>s aft] ! date ( enactm5t ( ?is ,act1 submit to ,congress & make publicly available on ! website ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices a prelim9>y report on ! analysis c>ri$ out "u ?is section2 & 7#b7 n lat] ?an ! end ( fiscal ye> #bjcj1 submit to ,congress & make publicly available on ! website ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices a f9al report on su* analysis4 7f7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #cj1jjj1jjj = ea* ( fiscal ye>s #bjbf ?r\gh #bjcj4 #d4 ,public aw>5ess campaign ) respect to ?yroid disease 7a7 ,9 g5]al ,! ,secret>y %all c>ry out a public aw>5ess campaign reg>d+ ?yroid disease1 includ+ by develop+ & dissem9at+ in=mation on-- 7#a7 ! aw>5ess1 incid5ce1 & preval5ce ( ?yroid disease & associat$ impacts1 ) a p>ticul> focus on ! disp>ities & disproportionate impacts describ$ 9 sections #b7;a77#a77;,f7 & #c7;a77#b71 especially on wom52 7#b7 ! availability1 z m$ically appropriate1 ( ! range ( treatm5t options = symptoms ( ?yroid disease2 7#c7 h[ pati5ts c bett] recognize ! signs & symptoms ( ?yroid disease2 & 7#d7 :e!r !re are b5efits ( r\t9e scre5+1 especially dur+ pregnancy & reproductive /ages4 7b7 ,in=mation to heal? c>e provid]s ,9 c>ry+ out ! public aw>5ess campaign "u subsection 7a71 ! ,secret>y1 9 consultation ) relevant heal? c>e pr(essional societies & associations1 %all dissem9ate in=mation to heal? c>e pr(essionals1 heal? c>e-relat$ organizations1 & heal? sy/ems to promote evid5ce-bas$ c>e = individuals ) ?yroid disease1 includ+ in=mation relat$ to-- 7#a7 detect+ & diagnos+ ?yroid disease ) an emphasis on bett] address+ ?yroid disease 9 populations at increas$ risk = ! disease2 7#b7 provid+ c>e = individuals ) ?yroid disease2 7#c7 communicat+ ) pati5ts ab\t ?yroid disease2 7#d7 enhanc+ ! prev5tion ( implicit bias 9 ! provision ( c>e2 & 7#e7 relat$ topics1 includ+ rese>* on ! reasons :y ?yroid disease occurs4 7c7 ,dissem9ation ( in=mation ,! ,secret>y may dissem9ate in=mation "u subsection 7a7 directly or ?r\gh arrangem5ts ) intra-ag5cy initiatives1 nonpr(it organizations1 consum] gr\ps1 in/itutions ( high] education1 or ,f$]al1 ,/ate1 or local public-private p>tn]%ips4 7d7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #c1jjj1jjj = ea* ( fiscal ye>s #bjbf ?r\gh #bjcj4 #e4 ,collaboration ) relevant pr(essional societies ,9 c>ry+ out ?is ,act1 ! ,secret>y %all collaborate )-- 7#a7 relevant pr(essional societies2 & 7#b7 relevant ag5cies ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices1 includ+ ! ,national ,in/itutes ( ,heal?4 #f4 ,def9itions ,9 ?is ,act3 7#a7 ,in/itution ( high] education ,! t]m in/itution ( high] education has ! mean+ giv5 to su* t]m 9 section #aja ( ! ,high] ,education ,act ( #aife 7#bj ,u4,s4,c4 #ajja74 7#b7 ,racial & e?nic m9ority gr\p ,! t]m racial & e?nic m9ority gr\p has ! mean+ giv5 su* t]m 9 section #agjg7;g7 ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #cjju-#f7;g774 7#c7 ,secret>y ,! t]m ,secret>y means ! ,secret>y ( ,heal? & ,human ,s]vices4 7#d7 ,?yroid disease ,! t]m ?yroid disease means-- 7,a7 disord]s & abnormalities ( ?yroid gl& function2 & 7,b7 abnormalities ( ?yroid /ructure1 includ+ ?yroid nodules & ?yroid canc]4