,i #aai? ,,congress #a/ ,session ,h4 ,r4 #fgba ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,decemb] #ae1 #bjbe ,mr4 ,murphy 7= himself & ,mr4 ,?ompson ( ,cali=nia7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce1 & 9 addition to ! ,committee on ,ways & ,means1 = a p]iod to be subsequ5tly det]m9$ by ! ,speak]1 9 ea* case = consid]ation ( su* provisions z fall )9 ! jurisdiction ( ! committee conc]n$ ,a ,,bill ,to am5d title ,,xviii ( ! ,social ,security ,act to enc\rage ,m$ic>e b5efici>ies to volunt>ily adopt advance directives guid+ ! m$ical c>e !y receive4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,m$ic>e ,advance ,plann+ = ,c>e ,act or ! ,,map = ,c>e ,act4 #b4 ,m$ic>e ,advance ,directive ,c]tification ,program ,"p ,b ( title ,,xviii ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acie;j et seq47 is am5d$ by add+ at ! end ! foll[+ new section3 #ahdi4 ,m$ic>e ,advance ,directive ,c]tification ,program 7a7 ,9 g5]al 7#a7 ,e/abli%m5t ( ,program ,! ,secret>y %all e/abli% & implem5t an ,advance ,directive ,c]tification ,program 79 ?is section ref]r$ to z ! ,program7 "u :i* ! ,secret>y %all enc\rage eligible b5efici>ies to adopt & ma9ta9 c]tifi$ advance directives to guide ! deliv]y ( heal? c>e to su* b5efici>ies4 ,! ,secret>y %all implem5t ! ,program n lat] ?an #e ye>s aft] ! date ( enactm5t ( ?is section4 7#b7 ,def9itions ,9 ?is section3 7,a7 ,c]tifi$ advance directive ,! t]m c]tifi$ advance directive means an electronically /or$ writt5 in/ruction by an eligible b5efici>y1 su* z a liv+ w or durable p[] ( attorney = heal? c>e1 recogniz$ "u ,/ate law 7:e!r /atutory or z recogniz$ by ! c\rts ( ! ,/ate7 & relat+ to ! provision ( su* c>e :5 ! individual is incapacitat$ t-- 7i7 provides in/ructions t outl9e ! k9d ( m$ical treatm5ts & c>e t su* b5efici>y w\ld want or n want "u p>ticul> conditions1 & may also include ! id5tification ( a heal? c>e proxy or legal repres5tative to make m$ical treatm5t decisions = ! b5efici>y if ! b5efici>y becomes unable to make or communicate ^? decisions on _! own2 & 7ii7 is (f]$ by an entity t has receiv$ accr$itation f ! ,secret>y "u subsection 7c74 7,b7 ,eligible b5efici>y ,! t]m eligible b5efici>y means an individual entitl$ to1 or enroll$ = b5efits1 "u "p ,a or enroll$ = b5efits "u ?is "p4 7,c7 ,program p>ticipant ,! t]m ,program p>ticipant means an eligible b5efici>y :o is enroll$ 9 ! ,program4 7#c7 ,volunt>y p>ticipation ,an eligible b5efici>y :o has regi/]$ a c]tifi$ advance directive ) a advance directive v5dor accr$it$ "u subsection 7c7 may dis5roll & t]m9ate su* directive at any "t4 7#d7 ,be/ practices ,9 e/abli%+ & implem5t+ ! ,program1 ! ,secret>y %all consid] be/ practices-- 7,a7 )9 exi/+ advance directive regi/ry te*nologies1 programs1 & sy/ems1 includ+ web-bas$ or cl\d-bas$ advance directive te*nologies-- 7i7 :i* may utilize "t & date /amps1 video1 or o!r innovative measures to protect ! au!nticity1 improve ! quality (1 & enhance ! security ( su* directives2 & 7ii7 :i* may utilize secure email & messag+ te*nologies & nationally recogniz$ heal? c>e in=mation te*nology /&>ds to improve ! accessibility & int]op]ability ( su* directives2 & 7,b7 = educat+ b5efici>ies on ways to-- 7i7 communicate _! au!nticat$ wi%es to applicable family memb]s1 legal repres5tatives1 & provid]s or heal? c>e proxies1 includ+ ?r\gh ! use ( email or o!r mail =mats2 & 7ii7 access c]tifi$ advance directives1 includ+ ?r\gh ! use ( mobile devices4 7#e7 ,/ate law ,! provisions ( ?is section %all n preempt any ,/ate or local law requirem5t gov]n+ advance directives4 7#f7 ,display ( /atutory & alt]native advance directive =ms ,"u ! ,program1 ! ,secret>y %all provide1 on ! ,int]net website ( ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices1 l9ks to /atutory advance directive =ms 7z describ$ 9 subsection 7d77#a77;,c771 alt]native advance directive =ms 7z describ$ 9 subsection 7d77#a77;,d771 & a ,/ate-by-,/ate index to su* =ms to all[ a ,program p>ticipant to create1 adopt1 modify1 & t]m9ate a c]tifi$ advance directive ) any cont5t p]mitt$ or requir$ "u ?is section1 & 9 any =m au?oriz$ by a ,/ate4 7b7 ,enrollm5t 9 ! ,program & regi/ration ( advance directives 7#a7 ,requir$ in=mation ,9 addition to su* o!r in=mation z ! ,secret>y det]m9es is appropriate1 a ,program p>ticipant seek+ to regi/] a c]tifi$ advance directive "u ! ,program %all indicate :]e ! advance directive is ma9ta9$ or h[ x may be access$4 7#b7 ,notification reg>d+ ,program ,dur+ ! annual1 coord9at$ election p]iod "u section #ahea7;e77#c71 ! ,secret>y %all notify ea* eligible b5efici>y ( ! ,program4 7#c7 ,privacy & security 7,a7 ,9 g5]al ,! ,secret>y %all ensure t all aspects ( ! enrollm5t & regi/ration sy/em comply ) ! ,f$]al regulations 7conc]n+ ! privacy & security ( individually id5tifiable heal? in=mation7 promulgat$ "u ! ,heal? ,insurance ,portability & ,acc\ntability ,act ( #aiif subject to ! access au?oriz$ "u subsection 7c77#b77;,e7 & 9 accordance ) subsection 7c77#b77;,f74 7,b7 ,access ,! ,secret>y %all utilize /&>diz$ data protections & privacy /&>ds1 includ+ ! ,f$]al regulations describ$ 9 subp>agraph 7,a71 to ensure t ! regi/ration record ( a ,program p>ticipant c only be access$ by-- 7i7 ! ,program p>ticipant1 ?r\gh ! process e/abli%$ "u subsection 7c77#b77;,b72 7ii7 ^? au?oriz$ to access ! c]tifi$ advance directive "u subsection 7c77#b77;,e72 & 7iii7 provid]s ( s]vices & suppli]s p>ticipat+ "u ?is title :o furni% items or s]vices to ! ,program p>ticipant1 ?r\gh a process e/abli%$ by ! ,secret>y4 7c7 ,accr$itation 7#a7 ,9 g5]al 7,a7 ,accr$itation by ! ,secret>y ,"u ! ,program1 ! ,secret>y %all-- 7i7 accr$it advance directive v5dors & o!r entities provid+ advance directives t meet ! accr$itation crit]ia e/abli%$ "u p>agraph 7#b7 & any o!r crit]ia det]m9$ appropriate by ! ,secret>y2 & 7ii7 e/abli% a process :]eby advance directive v5dors & o!r entities provid+ advance directives may obta9 accr$itation "u ?is subsection4 7,b7 ,accr$itation by advance directive accr$itation organization ,! ,secret>y may contract ) an advance directive accr$itation organization to accr$it advance directive v5dors & o!r entities "u subp>agraph 7,a77i74 7#b7 ,accr$itation crit]ia ,! ,secret>y1 9 consultation ) ! ,comptroll] ,g5]al ( ! ,unit$ ,/ates1 %all e/abli% accr$itation crit]ia = advance directive v5dors & o!r entities provid+ advance directives to be c]tifi$ "u ! ,program4 ,su* crit]ia %all consi/ ( ea* ( ! foll[+3 7,a7 ,c]tifi$ advance directives ,! advance directive v5dor or o!r entity %all agree to (f] c]tifi$ advance directives to eligible b5efici>ies4 7,b7 ,proc$ures = enrollm5t 7i7 ,9 g5]al ,! advance directive v5dor or o!r entity %all e/abli% proc$ures t-- 7,i7 all[ = a ,program p>ticipant to-- 7aa7 enroll 9 & dis5roll f ! ,program2 & 7bb7 regi/] or update a c]tifi$ advance directive adopt$ by ! p>ticipant2 & 7,,ii7 ensure t a ,program p>ticipant is able to-- 7aa7 create1 adopt1 modify1 update1 am5d1 or t]m9ate a c]tifi$ advance directive 9 a timely & secure mann]2 7bb7 update previ\sly regi/]$ in=mation2 & 7cc7 indicate t a previ\sly regi/]$ c]tifi$ advance directive has be5 t]m9at$4 7ii7 ,onl9e enrollm5t & regi/ration ,! proc$ures e/abli%$ pursuant to clause 7i7 %all ensure t su* enrollm5t & regi/ration is available ?r\gh an onl9e process1 or o!r means det]m9$ appropriate by ! advance directive v5dor or o!r entity4 7,c7 ,quality review 7i7 ,9 g5]al ,= purposes ( det]m9+ compliance ) ! requirem5ts ( ?is section1 ! advance directive v5dor or o!r entity %all comply ) an annual quality review to be conduct$ by ! ,secret>y4 7ii7 ,en=cem5t ,if ! ,secret>y det]m9es t an advance directive v5dor or o!r entity is n 9 compliance ) ! requirem5ts ( ?is section1 ! ,secret>y %all remove any c]tifi$ advance directive ( su* advance directive v5dor or o!r entity f ! ,int]net website ( ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices4 7,d7 ,use ( /atutory & alt]native advance directive =ms ,! advance directive v5dor or o!r entity %all all[ a ,program p>ticipant to-- 7i7 access1 complete1 modify1 & adopt any advance directive =ms describ$ 9 subp>agraphs 7,c7 & 7,d7 ( subsection 7d77#a72 & 7ii7 se>* = su* =ms by ,/ate4 7,e7 ,access ,! advance directive v5dor or o!r entity %all-- 7i7 provide ne> real-"t onl9e access to ! c]tifi$ advance directive ( a ,program p>ticipant = purposes ( view+ & %>+ su* advance directive1 includ+ communicat+ ! c]tifi$ advance directive & ! ,program p>ticipant's au!nticat$ wi%es us+ nationally recogniz$ /&>ds = securely transf]r+ s5sitive data specifi$ by ! ,secret>y to-- 7,i7 ! ,program p>ticipant2 7,,ii7 any family memb]1 legal repres5tative1 or heal? c>e proxy legally designat$ by ! p>ticipant2 & 7,,iii7 a provid] ( s]vices or suppli] t furni%es items or s]vices to ! p>ticipant2 & 7ii7 at ! reque/ ( ! ,program p>ticipant or any family memb]1 legal repres5tative1 or heal? c>e proxy legally designat$ by ! ,program p>ticipant1 provide a h>d copy ( ! c]tifi$ advance directive ( ! ,program p>ticipant to a provid] ( s]vices or suppli]4 7,f7 ,privacy protections 7i7 ,9 g5]al ,! advance directive v5dor or o!r entity %all comply ) ! ,f$]al regulations 7conc]n+ ! privacy ( individually id5tifiable heal? in=mation7 promulgat$ "u section #bfd7;c7 ( ! ,heal? ,insurance ,portability & ,acc\ntability ,act ( #aiif1 subject to ! access au?oriz$ "u subp>agraph 7,e74 7ii7 ,access ,su* v5dor or entity %all comply ) /&>diz$ data protections & privacy /&>ds1 includ+ ! ,f$]al ,regulations describ$ 9 clause 7i71 to ensure t ! cont5t ( a ,program p>ticipant's c]tifi$ advance directive is own$ & ma9ta9$ by ! p>ticipant & c only be access$ by ^? au?oriz$ to access ! advance directive "u subp>agraph 7,e74 7,g7 ,security & te/+ ,! advance directive v5dor or o!r entity %all c]tify t-- 7i7 all data managem5t & data transf] elem5ts involv$ 9 adopt+1 ma9ta9+1 & access+ a c]tifi$ advance directive ( a ,program p>ticipant-- 7,i7 h successfully pass$ rigor\s indep5d5t te/+ reg>d+ /&>ds ( timel9ess1 accuracy1 & effici5cy2 & 7,,ii7 meet widely accept$ indu/ry security /&>ds 7z det]m9$ by ! ,secret>y72 & 7ii7 ! sy/em t provides access to a c]tifi$ advance directive ( a ,program p>ticipant has pass$ real-"t te/s simulat+ a reali/ic volume ( ,program p>ticipants1 _! family memb]s1 legal repres5tatives1 & legally designat$ heal? c>e proxies1 provid]s ( s]vices1 & suppli]s access+ su* directives simultane\sly4 7,h7 ,b5efici>y surveys 7i7 ,9 g5]al ,! advance directive v5dor or o!r entity %all adm9i/] an annual survey ( ,program p>ticipants on ! in=mation describ$ 9 clause 7ii7 & submit ! results ( su* survey to ! ,secret>y4 7ii7 ,in=mation ,! in=mation describ$ 9 ?is clause1 ) respect to a ,program p>ticipant & a c]tifi$ advance directive ( su* p>ticipant1 is ! foll[+3 7,i7 ,:e!r ! p>ticipant _h to pay any ?ird p>ty = ! creation1 /orage1 or retrieval ( ! c]tifi$ advance directive4 7,,ii7 ,:e!r ! p>ticipant _h a heal? c>e enc\nt] or em]g5cy t requir$ ! location1 access1 retrieval1 or consultation ( ! c]tifi$ advance directive & if s1 :e!r ! c]tifi$ advance directive 0 accessible onl9e & 9 ne> real-"t1 z requir$ "u ?is section4 7,,iii7 ,:e!r ! c]tifi$ advance directive 0 suffici5tly cle> & actionable4 7,,iv7 ,:e!r m$ical p]sonnel foll[$ ! c]tifi$ advance directive4 7,i7 ,process = comply+ ) ,/ate law ,! advance directive v5dor or o!r entity %all enable a ,program p>ticipant us+ _! s]vices to complete a c]tifi$ advance directive t fully complies ) ! law gov]n+ advance directives ( ! applicable ,/ate4 7,j7 ,access 9 cases ( dispute ov] treatm5t 7i7 ,special access ,! advance directive v5dor or o!r entity %all e/abli% a process :]eby1 ) respect to a ,program p>ticipant1 an int]e/$ individual describ$ 9 clause 7ii7 may obta9 access to ! c]tifi$ advance directive ( ! ,program p>ticipant = ! purposes ( view+ & %>+ su* advance directive :5-- 7,i7 ! provisions ( ! c]tifi$ advance directive h come into =ce "u ! law ( ! applicable ,/ate because ! ,program p>ticipant has become incapable ( mak+ heal? c>e decisions on _! own or "u o!r circum/ances provid$ "u ,/ate law2 & 7,,ii7 at lea/ #a p]son describ$ 9 clause 7ii7 is que/ion+ or disput+ ! provision1 )hold+1 or )drawal ( m$ical treatm5t1 food1 or fluids ) respect to ! ,program p>ticipant4 7ii7 ,int]e/$ individuals 7,i7 ,9 g5]al ,an int]e/$ individual describ$ 9 ?is clause1 ) respect to a ,program p>ticipant1 is-- 7aa7 any individual :o is a memb] ( any class ( p]sons :o1 "u ! law ( ! applicable ,/ate1 w\ld pot5tially be eligible to s]ve z a heal? c>e decision mak] = ! ,program p>ticipant if an advance directive _h n be5 execut$1 reg>dless ( :e!r ano!r individual w\ld h high] priority = su* eligibility2 or 7bb7 if ! law ( ! applicable ,/ate does n designate a p]son or class ( p]sons describ$ 9 item 7aa71 any individual relat$ )9 ! ?ird degree ( consangu9ity or aff9ity to ! ,program p>ticipant id5tifi$ by ! ,program p>ticipant 9 ! c]tifi$ advance directive4 7,,ii7 ,p]iodic update ,9 ! case t ! law ( ! applicable ,/ate does n designate a p]son or class ( p]sons describ$ 9 subclause 7,i77aa7 & ! ,program p>ticipant has id5tifi$ 9 a c]tifi$ advance directive an individual )9 ! ?ird degree ( consangu9ity or aff9ity ( su* p>ticipant1 ! advance directive v5dor or o!r entity %all annually dur+ ! annual1 coord9at$ election p]iod "u section #ahea7;e77#c7 prompt ! ,program p>ticipant to update su* individual4 7d7 ,education & outrea* 7#a7 ,9 g5]al ,! ,secret>y %all-- 7,a7 include a /atem5t describ$ 9 p>agraph 7#c7 9 ! notice describ$ 9 section #ahjd7;a7 & provide = ! inclusion ( su* /atem5t on ! ,int]net website ( ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices2 7,b7 communicate ! b5efits ( electronic advance directives s]vices1 z !y become available2 7,c7 provide = ! inclusion1 "u ! head+ ,/atutory ,advance ,directive ,=ms1 ( any relevant =ms1 :e!r m&atory or optional1 specifi$ 9 ! /atutes or regulations ( ,/ates to be display$ on a su* website2 7,d7 provide = ! inclusion1 "u ! head+ ,alt]native ,advance ,directive ,=ms1 on su* website1 & 9 accordance ) p>agraph 7#b7-- 7i7 ( o!r advance directive =ms submitt$ to ! ,secret>y by individuals & gr\ps 9 an electronic =mat specifi$ by ! ,secret>y = :i* ! submitt+ entity includes1 = ea* =m submitt$1 an op9ion by an attorney lic5s$ to practice 9 ! relevant ,/ate demon/rat+ t ! submitt$ =m complies ) ! law ( t ,/ate2 & 7ii7 ( ! foll[+ disclaim]1 :i* %all be prom95tly po/$ on ! website3 ,?is website includes = y\r consid]ation alt]native advance directive =ms submitt$ by individuals or gr\ps reflect+ diff]5t p]spectives on advance heal? c>e decisions :i* y may wi% to review be=e complet+ y\r own advance directive42 & 7,e7 provide = ! inclusion ( a us]-fri5dly index on ! website by ,/ate &1 9 ! case ( ! ,alt]native ,advance ,directive ,=ms1 by ! "n ( ! individual or gr\p :o provid$ ea* alt]native advance directive1 s t a us] may readily access ^? /atutory & alt]native =ms4 7#b7 ,alt]native advance directive =ms 7,a7 ,9 g5]al ,= purposes ( p>agraph 7#a77;,d71 ! foll[+ %all apply3 7i7 ,n lat] ?an #fj days aft] receiv+ an alt]native advance directive =m submitt$ "u su* p>agraph1 ! ,secret>y %all ei!r po/ ! submitt$ =m on ! ,int]net website ( ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices or provide to ! submitt+ entity an explanation ( ! basis = ! ,secret>y's det]m9ation t ! submitt$ =m does n comply ) relevant ,/ate or ,f$]al law1 :i* det]m9ation %all be subject to judicial review "u section #gjb ( title #e ( ! ,unit$ ,/ates ,code4 7ii7 ,! ,secret>y %all ei!r remove or refuse to po/ any submitt$ =m if provid$ ) an (ficial det]m9ation by ! attorney g5]al ( ! applicable ,/ate t ! =m is n 9 compliance ) ,/ate law1 subject to applicable ,/ate law describ$ 9 subp>agraph 7,b74 7,b7 ,/ate law describ$ ,= purposes ( subp>agraph 7,a71 ,/ate law describ$ 9 ?is subp>agraph is-- 7i7 a rul+ by a c\rt ( ! applicable ,/ate1 or by a ,f$]al c\rt apply+ t ,/ate's law1 subject to subsequ5t rul+s by a c\rt or c\rts ) au?ority to sup]c$e t rul+2 or 7ii7 a /atute or regulation ( ! applicable ,/ate t provides = a specific proc$ure = (ficially det]m9+ :e!r p>ticul> advance directive =ms comply ) ,/ate law4 7#c7 ,/atem5t ,= purposes ( p>agraph 7#a77;,a71 ! /atem5t describ$ 9 ?is p>agraph is a /atem5t ( ! reasons :y b5efici>ies may want to consid] advance directives1 a sugge/ion = ! b5efici>y to c>efully consid] decisions reg>d+ advance directives1 & ref]5ces to res\rces ab\t advance directives4 7e7 ,advance directive in=mation 9 ,m$ic>e enrollm5t =ms ,aft] ! ,secret>y implem5ts ! ,program1 ! ,secret>y %all include on ea* application = enrollm5t ( an individual 9 "p ,a1 ?is "p1 or "p ,c a l9k to an ,int]net website ) res\rces to assi/ 9 complet+ an advance directive4 4