,i #aai? ,,congress #a/ ,session ,h4 ,r4 #ffhb ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,decemb] #aa1 #bjbe,ms4 ,williams ( ,georgia 7= h]self1 ,ms4 ,und]wood1 ,ms4 ,adams1 ,mr4 ,cisn]os1 ,ms4 ,cl>ke ( ,new ,york1 ,ms4 ,fri$man1 ,mr4 ,fro/1 ,mr4 ,goldman ( ,new ,york1 ,mr4 ,h]nndez1 ,mr4 ,k5n$y ( ,new ,york1 ,mrs4 ,mc,iver1 ,ms4 ,norton1 ,mr4 ,pocan1 ,mr4 ,david ,scott ( ,georgia1 ,ms4 ,tlaib1 ,mr4 ,tonko1 ,mrs4 ,watson ,coleman1 ,mr4 ,bi%op1 ,mr4 ,m\lton1 ,ms4 ,br[n1 ,ms4 ,l(gr51 & ,mr4 ,got!im]7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to advance rese>*1 promote aw>5ess1 & provide pati5t support ) respect to endometriosis1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,endometriosis ,cov]age1 ,aw>5ess1 ,rese>*1 & ,education ,act or ! ,endometriosis ,,c>e ,act4 #b4 ,f9d+s ,! ,congress f9ds z foll[s3 7#a7 ,endometriosis is a disease 9 :i* tissue simil> to ! l9+ ( ! ut]us gr[s outside ! ut]us4 ,x c cause sev]e pa9 9 ! pelvis & make x h>d] to get pregnant4 ,endometriosis (t5 causes sev]e pa9 9 ! pelvis1 especially dur+ m5/rual p]iods4 ,"s p also h pa9 dur+ sex or :5 us+ ! ba?room4 ,"s p h tr\ble gett+ pregnant4 7#b7 ,x causes a *ronic inflammatory reaction t may result 9 ! =mation ( sc> tissue 7adhesions1 fibrosis7 )9 ! pelvis & o!r p>ts ( ! body4 ,! cause ( endometriosis is unkn[n4 ,!re is no kn[n way to prev5t endometriosis4 ,!re is no cure1 b its symptoms c be treat$ ) m$ic9es or1 9 "s cases1 surg]y4 #c4 ,endometriosis cov]age1 aw>5ess1 rese>*1 & education ,"p ,f ( title ,,iv ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhg;d et seq47 is am5d$ by add+ at ! end ! foll[+3 #dhf;,c4 ,endometriosis cov]age1 aw>5ess1 rese>*1 & education 7a7 ,advanc+ endometriosis data collection1 surveillance1 & rese>* 7#a7 ,9 g5]al ,! ,director ( ,,nih %all conduct or support data collection1 surveillance1 & rese>* relat$ to endometriosis4 7#b7 ,use ( funds ,9 c>ry+ out subsection 7a71 ! ,director may-- 7,a7 conduct or support rese>* & relat$ activities reg>d+ endometriosis1 includ+ rese>* to improve treatm5t options & develop a cure = endometriosis2 7,b7 e/abli% or exp& an int]net cle>+h\se to catalog exi/+ endometriosis rese>*1 treatm5t options1 & relat$ in=mation = pati5ts & heal? c>e pr(essionals2 or 7,c7 c>ry out relat$ activities z det]m9$ by ! ,director4 7#c7 ,au?orization ( appropriations ,to c>ry out ?is subsection1 !re is au?oriz$ to be appropriat$ #ej1jjj1jjj = ea* ( fiscal ye>s #bjbf ?r\gh #bjcj4 7b7 ,id5tify+ b>ri]s to access+ treatm5ts = endometriosis symptoms 7#a7 ,rese>* ,! ,secret>y %all conduct an analysis ( b>ri]s t individuals diagnos$ ) endometriosis face 9 access+ treatm5ts = endometriosis symptoms1 includ+ transportation b>ri]s & b>ri]s caus$ by heal? c>e pr(essional %ortages4 7#b7 ,topics ,9 c>ry+ out ! analysis "u p>agraph 7#a71 ! ,secret>y may-- 7,a7 assess data f ! ,trans=m$ ,m$icaid ,/ati/ical ,in=mation ,sy/em relat$ to s]vices furni%$ to individuals diagnos$ ) endometriosis = ! treatm5t ( endometriosis symptoms "u ,/ate ,m$icaid programs "u title ,,xix ( ! ,social ,security ,act & ,*ildr5's ,heal? ,insurance ,programs "u title ,,xxi ( su* ,act2 & 7,b7 assess data relat$ to s]vices furni%$ to individuals diagnos$ ) endometriosis = ! treatm5t ( endometriosis symptoms "u gr\p heal? plans or gr\p or individual heal? insurance cov]age (f]$ by a heal? insurance issu] 7z ^? t]ms are def9$ 9 section #bgia74 7#c7 ,data collection ,to c>ry out ! analysis "u p>agraph 7#a71 ! ,secret>y may require-- 7,a7 gr\p heal? plans or issu]s ( gr\p or individual heal? insurance cov]age to provide su* in=mation z may be requir$ to assess b>ri]s t individuals diagnos$ ) endometriosis face 9 access+ treatm5ts = endometriosis symptoms1 includ+ a lack ( insurance cov]age or co/-%>+ requirem5ts = su* treatm5ts2 & 7,b7 ,/ate ,m$icaid programs & ,*ildr5's ,heal? ,insurance ,programs to collect & report data relat$ to s]vices furni%$ to individuals diagnos$ ) endometriosis = ! treatm5t ( endometriosis symptoms ?r\gh ! ,trans=m$ ,m$icaid ,/ati/ical ,in=mation ,sy/em1 includ+ data /ratifi$ by relevant demographic *>act]i/ics4 7#d7 ,privacy requirem5ts ,9 c>ry+ out ! analysis "u p>agraph 7#a71 ! ,secret>y %all ensure t ! privacy & confid5tiality ( individual pati5ts are protect$ 9 a mann] consi/5t ) relevant privacy & confid5tiality laws4 7#e7 ,report ,n lat] ?an two ye>s aft] ! date ( enactm5t ( ?is section1 ! ,secret>y %all submit to ! ,congress1 & make publicly available on ! website ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices1 a report on ! analysis c>ri$ out "u ?is subsection4 7c7 ,education & dissem9ation ( in=mation ) respect to endometriosis 7#a7 ,endometriosis public education program ,! ,secret>y %all develop1 & dissem9ate to ! public1 in=mation reg>d+ endometriosis1 includ+ in=mation on-- 7,a7 ! aw>5ess1 incid5ce1 & preval5ce ( endometriosis1 ) a p>ticul> focus on individuals f racial & e?nic m9ority gr\ps 7z def9$ 9 section #agjg7;g77 & o!r und]s]v$ gr\ps2 7,b7 culturally & l+ui/ically appropriate support t is available to address ! m5tal heal? impacts ( endometriosis2 & 7,c7 ! availability1 z m$ically appropriate1 ( ! range ( treatm5t options = symptoms ( endometriosis4 7#b7 ,dissem9ation ( in=mation ,! ,secret>y may dissem9ate in=mation "u p>agraph 7#a7 directly or ?r\gh arrangem5ts ) intra-ag5cy initiatives1 nonpr(it organizations1 consum] gr\ps1 in/itutions ( high] education 7z def9$ 9 section #aja ( ! ,high] ,education ,act ( #aife71 or ,f$]al1 ,/ate1 or local public private p>tn]%ips4 7#c7 ,au?orization ( appropriations ,to c>ry out ?is subsection1 !re is au?oriz$ to be appropriat$ #b1jjj1jjj = ea* ( fiscal ye>s #bjbf ?r\gh #bjcj4 7d7 ,in=mation to heal? c>e provid]s ) respect to endometriosis 7#a7 ,dissem9ation ( in=mation ,! ,secret>y %all1 9 consultation ) relevant heal? c>e pr(essional societies & associations1 dissem9ate in=mation to heal? c>e pr(essionals1 heal? c>e-relat$ organizations1 & heal? sy/ems to promote evid5ce-bas$ c>e = individuals ) endometriosis1 includ+ in=mation relat$ to-- 7,a7 detect+ & diagnos+ endometriosis2 7,b7 provid+ c>e = individuals ) endometriosis2 7,c7 communicat+ ) pati5ts ab\t endometriosis2 & 7,d7 relat$ topics4 7#b7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #b1jjj1jjj = ea* ( fiscal ye>s #bjbf ?r\gh #bjcj4 7e7 ,endometriosis disp>ities /udy ?r\gh ,national ,academies 7#a7 ,9 g5]al ,! ,secret>y %all seek to ent] an agreem5t1 n lat] ?an #ij days aft] ! date ( enactm5t ( ?is section1 ) ! ,national ,academies ( ,sci5ces1 ,eng9e]+1 & ,m$ic9e 7ref]r$ to 9 ?is section z ! ,national ,academies7 "u :i* ! ,national ,academies agree to conduct a /udy on endometriosis disp>ities4 7#b7 ,/udy requirem5ts ,! agreem5t "u p>agraph 7#a7 %all direct ! ,national ,academies to-- 7,a7 assess endometriosis preval5ce1 detection1 treatm5t1 & outcome disp>ities by race1 e?nicity1 geography1 prim>y language1 sexual ori5tation1 g5d] id5tity1 disability /atus1 & insurance /atus1 & relat$ topics z det]m9$ by ! ,secret>y2 & 7,b7 make recomm5dations to ! ,congress1 ,f$]al ag5cies1 heal? c>e pr(essionals1 & o!r relevant /akehold]s bas$ on ! ,national ,academies' f9d+s pursuant to subp>agraph 7,a74 7#c7 ,report ,! agreem5t "u p>agraph 7#a7 %all direct ! ,national ,academies to complete ! /udy "u ?is section1 & transmit to ! ,congress & make publicly available a report on ! results ( ! /udy1 n lat] ?an #bd mon?s aft] ! date ( enactm5t ( ?is section4 7#d7 ,au?orization ( appropriations ,to c>ry out ?is subsection1 !re is au?oriz$ to be appropriat$ #ejj1jjj4 4