,i #aai? ,,congress #a/ ,session ,h4 ,r4 #fjeb ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,novemb] #ag1 #bjbe,mrs4 ,d+ell 7= h]self1 ,mr4 ,fitzpatrick1 ,ms4 ,cl>ke ( ,new ,york1 & ,mr4 ,valadao7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to am5d ! ,public ,heal? ,s]vice ,act ) reg>d to rese>* on a/hma1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,elijah ,e4 ,cumm+s ,family ,a/hma ,act4 #b4 ,f9d+s ,congress f9ds ! foll[+3 7#a7 ,accord+ to ! ,c5t]s = ,disease ,control & ,prev5tion1 9 #bjbc1 m ?an #bg1hjj1jjj p 9 ! ,unit$ ,/ates _h a/hma1 includ+ an e/imat$ #d1hjj1jjj *ildr54 7#b7 ,accord+ to ! ,c5t]s = ,disease ,control & ,prev5tion1 a/hma is m common among ,black ,am]icans1 ,native individuals 7,am]ican ,indians_/,alaska ,natives71 ,pu]to ,ricans1 & p ( multiple races comp>$ to non-,hispanic1 ,:ite individuals4 7#c7 ,accord+ to ! ,c5t]s = ,disease ,control & ,prev5tion1 among *ildr51 males h high] rates ( a/hma ?an females1 & 9 adults1 wom5 h high] rates ( a/hma ?an m54 ,individuals liv+ bel[ ! pov]ty ?re%old also _h significantly high] rates ( a/hma 9 #bjbc ?an individuals liv+ above ! pov]ty ?re%old4 7#d7 ,accord+ to ! ,c5t]s = ,disease ,control & ,prev5tion1 9 #bjbc m ?an #c1fjj p 9 ! ,unit$ ,/ates di$ f a/hma4 ,! rate ( mortality f a/hma is high] among ,black ,am]icans & wom54 7#e7 ,! ,ag5cy = ,heal?c>e & ,quality reports t a/hma acc\nt$ = approximately #aca1jjj hospitalizations & #a1ajj1jjj visits to hospital em]g5cy dep>tm5ts 9 #bjbb4 7#f7 ,accord+ to ! ,c5t]s = ,disease ,control & ,prev5tion1 ! annual co/ ( a/hma to ! ,unit$ ,/ates is approximately #ha1ijj1jjj1jjj1 includ+ #c1jjj1jjj1jjj 9 indirect co/s f miss$ days ( s*ool & "w4 7#g7 ,accord+ to ! ,c5t]s = ,disease ,control & ,prev5tion1 m ?an #g1ijj1jjj s*ool days & #aj1ijj1jjj workdays are miss$ annually z a result ( a/hma4 7#h7 ,a/hma episodes c be trigg]$ by bo? outdoor air pollution & indoor air pollution1 includ+ pollutants su* z cig>ette smoke & combu/ion by-products4 ,a/hma episodes c also be trigg]$ by indoor all]g5s1 su* z animal d&]1 mold1 cockroa*es1 & rod5ts1 & outdoor all]g5s su* z poll54 7#i7 ,public heal? int]v5tions & m$ical c>e 9 accordance ) exi/+ guidel9es h be5 prov5 effective 9 ! treatm5t & managem5t ( a/hma4 ,bett] a/hma managem5t c\ld r$uce ! numb]s ( em]g5cy dep>tm5t visits & hospitalizations due to a/hma4 ,/udies publi%$ 9 m$ical j\rnals1 includ+ ! ,j\rnal ( ,a/hma & ,! ,j\rnal ( ,p$iatrics1 h %[n t bett] a/hma managem5t results 9 improv$ a/hma outcomes at a l[] co/4 ,h[ev]1 rese>* publi%$ 9 ,prev5t+ ,*ronic ,disease has %[n gaps 9 consi/5t & compreh5sive cov]age ( guidel9es-bas$ a/hma c>e across ,/ate ,m$icaid programs4 7#aj7 ,! high heal? & f9ancial burd5 caus$ by a/hma und]scores ! importance ( adh]5ce to ! ,national ,a/hma ,education & ,prev5tion ,program ,guidel9es ( ! ,national ,he>t1 ,lung1 & ,blood ,in/itute4 ,increas+ adh]5ce to guidel9es-bas$ c>e & result+ pati5t managem5t practices w enhance ! quality ( life = pati5ts ) a/hma & decrease a/hma-relat$ morbidity & mortality4 7#aa7 ,9 #bjaf1 ! ,c5t]s = ,disease ,control & ,prev5tion report$ t less ?an half ( p ) a/hma report$ receiv+ self-managem5t tra9+ = _! a/hma4 ,m education ab\t trigg]s1 prop] treatm5t1 & a/hma managem5t me?ods is ne$$4 7#ab7 #ba ,/ates d n receive fund+ ?r\gh ! ,national ,a/hma ,control ,program ( ! ,c5t]s = ,disease ,control & ,prev5tion4 ,)\t ?is fund+1 ,/ate heal? dep>tm5ts h a limit$ capacity to improve ! rea*1 quality1 effectiv5ess1 & su/a9ability ( a/hma control s]vices1 conduct compreh5sive adult & p$iatric surveillance1 & r$uce a/hma morbidity1 mortality1 & disp>ities4 7#ac7 ,= e #a sp5t by ! ,national ,a/hma ,control ,program ( ! ,c5t]s = ,disease ,control & ,prev5tion1 !re is a #ga return on inve/m5t f r$uc$ heal?c>e & economic co/s relat$ to a/hma4 7#ad7 ,! al>m+ rise 9 ! preval5ce ( a/hma1 its adv]se effect on s*ool att5dance & productivity1 & its co/ = hospitalizations & em]g5cy room visits highlight ! importance ( public heal? int]v5tions1 includ+ increas+ aw>5ess ( a/hma z a *ronic illness1 its symptoms1 ! role ( bo? indoor & outdoor environm5tal factors t exac]bate ! disease1 & o!r factors t affect its exac]bations & sev]ity4 ,! goals ( ! ,f$]al ,gov]nm5t & its p>tn]s 9 ! nonpr(it & private sectors %\ld include r$uc+ ! numb] & sev]ity ( a/hma attacks1 a/hma's f9ancial burd51 & ! heal? disp>ities associat$ ) a/hma4 #c4 ,a/hma-relat$ activities ( ! ,c5t]s = ,disease ,control & ,prev5tion ,section #cag;,i ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bdg;b-#aj7 is am5d$ to read z foll[s3 #cag;,i4 ,a/hma-relat$ activities ( ! ,c5t]s = ,disease ,control & ,prev5tion 7a7 ,program = provid+ in=mation & education to ! public ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion & ! ,director ( ! ,national ,c5t] = ,environm5tal ,heal?1 %all collaborate ) ,/ate & local heal? dep>tm5ts to conduct activities reg>d+ a/hma1 includ+ ! provision ( in=mation & education to ! public reg>d+ a/hma1 includ+-- 7#a7 det]r+ ! h>mful consequ5ces ( uncontroll$ a/hma2 & 7#b7 dissem9at+ heal? education & in=mation reg>d+ prev5tion ( a/hma episodes & /rategies = manag+ a/hma4 7b7 ,developm5t ( ,/ate /rategic plans = a/hma control ,n lat] ?an #a ye> aft] ! date ( enactm5t ( ! ,elijah ,e4 ,cumm+s ,family ,a/hma ,act1 ! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 %all collaborate ) ,/ate & local heal? dep>tm5ts to develop ,/ate /rategic plans = a/hma control incorporat+ public heal? responses to r$uce ! burd5 ( a/hma1 p>ticul>ly reg>d+ disproportionately affect$ populations4 7c7 ,compilation ( data 7#a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 9 collaboration ) ,/ate & local heal? dep>tm5ts1 %all-- 7,a7 conduct a/hma surveillance activities to collect data on ! preval5ce & sev]ity ( a/hma1 ! effectiv5ess ( public heal? a/hma int]v5tions1 & ! quality ( a/hma managem5t1 includ+-- 7i7 collection ( data on or among p ) a/hma to monitor ! impact on heal? & quality ( life2 7ii7 surveillance ( heal? c>e facilities2 & 7iii7 collection ( data f electronic heal? records or o!r electronic communications2 7,b7 compile & annually publi% data reg>d+-- 7i7 ! preval5ce ( *ildhood a/hma2 7ii7 ! *ild mortality rate ( a/hma2 7iii7 ! numb] ( hospital admissions & em]g5cy dep>tm5t visits by *ildr5 associat$ ) a/hma nationally1 disaggregat$ by ,/ate1 age1 sex1 race1 & e?nicity2 7iv7 ! preval5ce ( adult a/hma2 7v7 ! adult mortality rate ( a/hma2 & 7vi7 ! numb] ( hospital admissions & em]g5cy dep>tm5t visits by adults associat$ ) a/hma nationally1 disaggregat$ by ,/ate1 age1 sex1 race1 & e?nicity2 & 7,c7 mod]nize a/hma surveillance sy/ems to-- 7i7 enable real-"t ex*ange ( data f heal?c>e1 s*ools1 & public heal? entities2 & 7ii7 support timely publication ( national & ,/ate tr5d reports1 disaggregat$ by age1 sex1 race1 e?nicity1 pay]1 & geography4 7#b7 ,data privacy ,none ( ! data collect$1 compil$1 or publi%$ "u p>agraph 7#a7 may conta9 individually id5tifiable in=mation4 7#c7 ,ensur+ comp>ability ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 9 collaboration ) ,/ate & local heal? dep>tm5ts1 %all ensure t ! data describ$ 9 p>agraph 7#a7 are collect$ & compil$ us+ a consi/5t me?odology s z to maximize ! comp>ability ( results4 7d7 ,collaboration ) nonpr(its ,! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion may collaborate ) national1 ,/ate1 & local nonpr(it organizations to provide in=mation & education ab\t a/hma4 7e7 ,reports to ,congress 7#a7 ,9 g5]al ,n lat] ?an #c ye>s aft] ! date ( enactm5t ( ! ,elijah ,e4 ,cumm+s ,family ,a/hma ,act1 & #b ye>s !reaft]1 ! ,secret>y %all1 9 collaboration ) pati5t gr\ps1 nonpr(it organizations1 m$ical societies1 & o!r relevant gov]nm5tal & nongov]nm5tal entities1 submit to ,congress a report t-- 7,a7 catalogs1 ) respect to a/hma prev5tion1 managem5t1 & surveillance-- 7i7 ! activities ( ! ,f$]al ,gov]nm5t1 includ+ an assessm5t ( ! progress ( ! ,f$]al ,gov]nm5t & ,/ates1 ) respect to a*iev+ ! goals ( ! ,heal?y ,p #bjcj initiative2 & 7ii7 ! activities ( o!r entities t p>ticipate 9 ! program "u ?is section1 includ+ nonpr(it organizations1 pati5t advocacy gr\ps1 & m$ical societies2 & 7,b7 makes recomm5dations = ! future direction ( a/hma-relat$ activities1 9 consultation ) rese>*]s f ! ,national ,in/itutes ( ,heal?1 includ+-- 7i7 a description ( h[ ! ,f$]al ,gov]nm5t may improve its response to a/hma1 includ+ id5tify+ any b>ri]s t may exi/2 7ii7 a description ( h[ ! ,f$]al ,gov]nm5t may cont9ue1 exp&1 & improve its private-public p>tn]%ips ) respect to a/hma1 includ+ id5tify+ any b>ri]s t may exi/2 7iii7 ! id5tification ( /eps t may be tak5 to r$uce !-- 7,i7 morbidity1 mortality1 & ov]all preval5ce ( a/hma2 7,,ii7 f9ancial burd5 ( a/hma on society2 7,,iii7 burd5 ( a/hma on disproportionately affect$ areas1 p>ticul>ly ^? 9 m$ically und]s]v$ populations 7z def9$ 9 section #ccj7;b77#c772 & 7,,iv7 burd5 ( a/hma z a *ronic disease t c be wors5$ by environm5tal exposures2 7iv7 ! id5tification ( programs & policies t h a*iev$ ! /eps describ$ 9 clause 7iii72 7v7 ! id5tification ( /eps t may be tak5 to exp& su* programs & policies to b5efit l>g] populations2 & 7vi7 recomm5dations = future rese>* & int]v5tions4 7#b7 ,coord9ation = recomm5dations ,9 mak+ recomm5dations "u p>agraph 7#a77;,b71 ! ,secret>y %all coord9ate )-- 7,a7 ! ,secret>y ( ,heal? & ,human ,s]vices1 includ+ ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion & ! ,adm9i/rator ( ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices2 7,b7 ! ,adm9i/rator ( ! ,environm5tal ,protection ,ag5cy2 7,c7 ! ,secret>y ( ,h\s+ & ,urban ,developm5t2 7,d7 ! ,secret>y ( ,education2 7,e7 ! ,secret>y ( ,vet]ans ,affairs2 & 7,f7 ! ,secret>y ( ,def5se4 7f7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #gj1jjj1jjj = ! p]iod ( fiscal ye>s #bjbe ?r\gh #bjbi4 4