,i #aai? ,,congress #a/ ,session ,h4 ,r4 #eecf ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,septemb] #ai1 #bjbe,mrs4 ,trahan 7= h]self1 ,ms4 ,budz9ski1 ,mr4 ,m\lton1 ,ms4 ,kelly ( ,ill9ois1 & ,mrs4 ,f\%ee7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to direct ! ,secret>y ( ,heal? & ,human ,s]vices to c>ry out a ,national ,heada*e ,disord]s ,initiative1 to e/abli% an ,advisory ,c\ncil on ,heada*e ,disord]s ,rese>*1 ,c>e1 & ,s]vices1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,heada*e ,education1 ,access1 ,diagnosis1 & ,c>e ,heal? ,equity ,act or ! ,,heada*e ,act4 #b4 ,def9ition ,9 ?is ,act3 7#a7 ,heada*e disord] 7,a7 ,9 g5]al ,! t]m heada*e disord] means a prim>y or second>y m$ical condition = :i* heada*e is a pr9cipal symptom4 7,b7 ,inclusion ( c]ta9 m$ical conditions ,! m$ical conditions ref]r$ to 9 subp>agraph 7,a7 include migra9e1 clu/] heada*e1 t5sion-type heada*e1 sp9al c]ebrosp9al fluid 7,,csf7 leak1 idiopa?ic intracranial hyp]t5sion1 new daily p]si/5t heada*e1 heada*e second>y to long ,,covid1 or(acial pa9 disord]s1 po/-traumatic heada*e second>y to traumatic bra9 injury1 & heada*e disord]s affect+ vuln]able populations su* z *ildr51 pregnant wom51 & old] adults4 7#b7 ,secret>y ,! t]m ,secret>y means ! ,secret>y ( ,heal? & ,human ,s]vices1 except z o!rwise specifically provid$4 #c4 ,national ,heada*e ,disord]s ,initiative 7a7 ,9 g5]al ,! ,secret>y %all c>ry out an initiative1 to be kn[n z ! ,national ,heada*e ,disord]s ,initiative 79 ?is section ref]r$ to z ! ,,nhdi71 9 accordance ) ! requirem5ts ( ?is section4 7b7 ,compon5ts ,9 c>ry+ out ! ,,nhdi1 ! ,secret>y %all-- 7#a7 e/abli% & implem5t a compreh5sive program to address ! m$ical1 societal1 & economic impacts ( heada*e disord]s2 7#b7 take su* actions z may be necess>y to increase ! cl9ical & rese>* work=ce focus$ on ! c>e ( pati5ts ) heada*e disord]s2 7#c7 coord9ate ) o!r ,f$]al initiatives ) missions t ov]lap ) ,,nhdi1 includ+ ! ,help+ ,end ,addiction ,long-,t]m 7,,heal7 ,initiative1 ! ,,nih ,pa9 ,consortium1 ! ,int]ag5cy ,pa9 ,rese>* ,coord9at+ ,committee1 & ! ,c5t]s ( ,excell5ce 9 ,pa9 ,education2 7#d7 ensure t ,f$]al res\rces available to support heada*e disord]s rese>* & s]vices across all ag5cies are comm5surate ) ! high disease burd5 exact$ by ^! conditions2 7#e7 ensure prioritization ( fundam5tal1 translational1 & cl9ical rese>* to improve ! spe$1 accuracy1 & co/ ( diagnosis ( heada*e disord]s1 & ! developm5t ( innovative !rapeutics to prev5t & ameliorate ! symptoms ( heada*e disord]s2 7#f7 improve protocols = ! diagnosis & ! coord9ation ( c>e ( heada*e disord]s1 includ+ c>e pa?ways t address comorbid m$ical conditions2 7#g7 enhance ! epidemiological database ( heada*e disord]s to ensure compreh5sive & inclusive data collection t improves cl9ical c>e1 rese>*1 & public heal? ef=ts :ile address+ disp>ities 9 diagnosis1 treatm5t1 & access to c>e2 7#h7 enhance social rese>* ( heada*e disord]s & coord9ate public aw>5ess campaigns to r$uce /igma associat$ ) su* disord]s2 & 7#i7 coord9ate ) int]national bodies to integrate & in=m global ef=ts surr\nd+ heada*e disord]s4 7c7 ,duties ,! ,secret>y %all-- 7#a7 ov]see ! e/abli%m5t & updat+ ( ! ,,nhdi2 & 7#b7 evaluate all ,f$]al programs relat$ to heada*e disord]s1 includ+ budget reque/s & approvals4 #d4 ,advisory ,c\ncil on ,heada*e ,disord]s ,rese>*1 ,c>e1 & ,s]vices 7a7 ,e/abli%m5t ,! ,secret>y %all e/abli% & ma9ta9 an ,advisory ,c\ncil on ,heada*e ,disord]s ,rese>*1 ,c>e1 & ,s]vices 7ref]r$ to 9 ?is section z ! ,advisory ,c\ncil7 = ! purpose ( advis+ ! ,secret>y on matt]s relat+ to heada*e disord]s4 7b7 ,memb]%ip 7#a7 ,f$]al memb]s ,! ,advisory ,c\ncil %all be compris$ ( exp]ts1 to be appo9t$ by ! ,secret>y1 :o collectively are f v>i\s backgr\nds & p]spectives1 includ+ at lea/ "o memb] f ea* ( ! foll[+3 7,a7 ,! ,national ,in/itutes ( ,heal?4 7,b7 ,! ,(fice ( ,rese>* on ,wom5's ,heal?4 7,c7 ,! ,food & ,drug ,adm9i/ration4 7,d7 ,! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices4 7,e7 ,! ,indian ,heal? ,s]vice4 7,f7 ,! ,dep>tm5t ( ,vet]ans ,affairs4 7,g7 ,! ,dep>tm5t ( ,def5se4 7,h7 ,! ,c5t]s = ,disease ,control & ,prev5tion4 7,i7 ,! ,ag5cy = ,heal?c>e ,rese>* & ,quality4 7,j7 ,! ,pati5t-,c5t]$ ,outcomes ,rese>* ,in/itute4 7,k7 ,! ,advanc$ ,rese>* ,projects ,ag5cy = ,heal?4 7,l7 ,! ,national ,c5t] = ,complem5t>y & ,integrative ,heal?4 7,m7 ,! ,dep>tm5t ( ,education4 7,n7 ,o!r ,f$]al dep>tm5ts & ag5cies4 7#b7 ,non-,f$]al memb]s ,9 addition to ! memb]s specifi$ 9 p>agraph 7#a71 ! ,advisory ,c\ncil %all include #ab memb]s1 to be appo9t$ by ! ,secret>y1 :o %all include repres5tatives ( m9ority communities1 communities disproportionately affect$ by heada*e disord]s1 & communities und]repres5t$ 9 heada*e disord]s rese>*1 :o %all ea* be f outside ! ,f$]al ,gov]nm5t1 & :o %all include ! foll[+3 7,a7 ,two individuals :o are pati5t advocates1 includ+ "o individual :o is liv+ ) migra9e & "o individual ) a non-migra9e heada*e disord]4 7,b7 ,an individual :o is a c>egiv] ( a *ild or adolesc5t ) a heada*e disord]4 7,c7 ,individuals :o are heal?c>e provid]s specializ+ 9 heada*e 7^? ) a pati5t base :]e great] ?an #hj p]c5t are heada*e pati5ts71 includ+-- 7i7 at lea/ "o individual :o is ,doctor ( ,m$ic9e or ,doctor ( ,o/eopa?ic ,m$ic9e2 7ii7 at lea/ "o individual :o is an ,advanc$ ,practice ,provid]2 7iii7 at lea/ "o individual :o is a behavioral heal? speciali/2 7iv7 at lea/ "o individual :o is an or(acial pa9 speciali/2 7v7 at lea/ "o individual :o is a front-l9e provid] 7su* z a prim>y c>e physician or em]g5cy c>e provid]72 & 7vi7 at lea/ "o individual :o is a rese>*] ) exp]tise 9 heada*e disord]s4 7,d7 ,at lea/ "o individual :o is a repres5tative ( a non-pr(it pati5t advocacy organization focus$ exclusively on heada*e disord]s4 7c7 ,meet+s 7#a7 ,frequ5cy ,! ,advisory ,c\ncil %all meet-- 7,a7 at lea/ once ea* qu>t] dur+ ! #b-ye> p]iod beg9n+ on ! date on :i* ! ,advisory ,c\ncil is e/abli%$2 & 7,b7 at ! ,secret>y's discretion aft] ! expiration ( su* p]iod4 7#b7 ,annual rese>* meet+ ,n lat] ?an two ye>s aft] ! date ( enactm5t ( ?is ,act1 & e ye> !reaft]1 ! ,advisory ,c\ncil %all conv5e a meet+ ( ,f$]al & non-,f$]al organizations to discuss heada*e disord]s rese>*4 7d7 ,t]m9ation ,! ,advisory ,c\ncil %all t]m9ate on ! sunset date specifi$ 9 section #g4 #e4 ,data %>+ 7a7 ,9 g5]al ,! heads ( ,f$]al ag5cies1 )9 & outside ! ,dep>tm5t ( ,heal? & ,human ,s]vices1 t h data relat+ to heada*e disord]s %all1 at ! reque/ ( ! ,secret>y1 %>e su* data ) ! ,secret>y to enable ! ,secret>y to complete ! report requir$ "u section #f4 7b7 ,includ$ data ,! data-%>+ requirem5t "u subsection 7a7 includes /&>diz$ data collection across ag5cies & integration ) non-,f$]al s\rces1 su* z electronic heal? records1 pati5t regi/ries1 & population heal? surveys4 #f4 ,annual report to ,congress 7a7 ,9 g5]al ,! ,secret>y %all submit to ,congress an annual report conta9+ in=mation relat+ to heada*e disord]s1 z specifi$ 9 subsection 7b74 7b7 ,cont5ts ,! annual report %all include ! foll[+3 7#a7 ,an evaluation ( all f$]ally fund$ ef=ts relat+ to heada*e disord]s rese>*1 cl9ical c>e1 & o!r treatm5t programs & _! outcomes4 7#b7 ,an evaluation ( program p]=mance1 mission1 & purpose1 includ+ data on heada*e disp>ities across racial1 e?nic1 socioeconomic1 & geographic l9es4 7#c7 ,recomm5dations = priority actions1 includ+-- 7,a7 r$uc+ ! f9ancial impact ( heada*e disord]s on ,m$ic>e & o!r f$]ally fund$ programs2 7,b7 improv+ heal? outcomes by updat+ diagno/ic protocols1 improv+ access to c>e1 & advanc+ !rapeutic rese>*2 & 7,c7 /rategies to increase public aw>5ess & r$uce /igma4 7#d7 ,an annually updat$ national plan t addresses bo? %ort-t]m & long-t]m objectives = address+ heada*e disord]s4 #g4 ,sunset date ,?is ,act %all cease to be effective on ! date t is #e ye>s aft] ! date ( enactm5t ( ?is ,act4