,i  #aai? ,,congress  #a/ ,session  ,h4 
,r4 #eagh  ,,9 ,,! ,,h\se ,,(           
,,repres5tatives  ,septemb] #h1         
#bjbe,mr4 ,dunn ( ,florida 7= himself1  
,mr4 ,davis ( ,ill9ois1 ,mr4 ,c>t] (    
,georgia1 ,mr4 ,figures1 ,mr4           
,bilirakis1 ,ms4 ,johnson ( ,texas1 ,ms4
 ,norton1 ,mrs4 ,mc,iver1 ,mr4 ,fields1 
,mr4 ,gre5 ( ,texas1 ,mr4 ,got!im]1 ,ms4
 ,tlaib1 ,mr4 ,johnson ( ,georgia1 ,mr4 
,jackson ( ,ill9ois1 ,mr4 ,davis ( ,nor?
 ,c>ol9a1 ,mr4 ,soto1 ,ms4 ,budz9ski1   
,ms4 ,sewell1 ,mr4 ,?ompson (           
,mississippi1 & ,mr4 ,m\lton7 introduc$ 
! foll[+ bill2 :i* 0 ref]r$ to !        
,committee on ,en]gy & ,comm]ce  ,a     
,,bill  ,to am5d title ,,xix ( ! ,social
 ,security ,act to enable ,/ate ,m$icaid
 programs to provide compreh5sive1      
coord9at$ c>e ?r\gh a heal? home to     
individuals ) sickle cell disease4  #a4 
,%ort title ,?is ,act may be cit$ z !   
,sickle ,cell ,disease ,compreh5sive    
,c>e ,act4  #b4 ,enabl+ ,/ate ,m$icaid  
programs to provide c>e ?r\gh heal?     

homes to individuals ) sickle cell      
disease ,section #aide ( ! ,social      
,security ,act 7#db ,u4,s4,c4 #acifw-#d7
 is am5d$--  7#a7 9 subsection 7a71 by  
ins]t+ 7&1 beg9n+ ,janu>y #a1 #bjbf1 to 
eligible individuals ) sickle cell      
disease 7z def9$ 9 subsection 7c77#e777 
aft] *ronic conditions2  7#b7 9         
subsection 7c7--  7,a7 9 p>agraph 7#a71 
by ins]t+ & ea* eligible individual )   
sickle cell disease aft] *ronic         
conditions2 &  7,b7 by add+ at ! end !  
foll[+ new p>agraph3  7#e7 ,special rule
 relat+ to sickle cell disease heal?    
homes  7,a7 ,9 g5]al ,beg9n+ ,janu>y #a1
 #bjbf1 ! ,secret>y may approve a ,/ate 
plan am5dm5t "u ?is section t is design$
 to provide heal? home s]vices prim>ily 
to eligible individuals ) sickle cell   
disease 79 ?is section ref]r$ to z a    
sickle cell disease-focus$ ,/ate plan   
am5dm5t74  7,b7 ,requirem5t to provide  
d5tal & vision s]vices ,9 ! case ( a    
sickle cell disease-focus$ ,/ate plan   
am5dm5t approv$ by ! ,secret>y on or    

aft] ,janu>y #a1 #bjbf1 a ,/ate %all    
ensure ! provision ( d5tal & vision     
s]vices to eligible individuals ) sickle
 cell disease :o are enroll$ 9 su* heal?
 home4 ,su* requirem5t %all apply       
irrespective ( exi/+ requirem5ts relat$ 
to comp>ability or :e!r or n ! ,/ate    
provides d5tal or vision s]vices to o!r 
,m$icaid b5efici>ies4  7,c7 ,report     
requirem5ts  7i7 ,9 g5]al ,9 ! case ( a 
,/ate ) a sickle cell disease-focus$    
,/ate plan am5dm5t1 su* ,/ate %all1 n   
lat] ?an ! la/ day ( ! #h? fiscal ye>   
qu>t] t su* ,/ate plan am5dm5t is 9     
effect1 submit to ! ,secret>y a report  
on ! foll[+1 ) respect to eligible      
individuals ) sickle cell disease       
provid$ heal? home s]vices "u su* ,/ate 
plan am5dm5t3 7,i7 ,! quality ( heal?   
c>e provid$ to su* individuals1 ) a     
focus on outcomes relevant to ! recov]y 
( ea* su* individual4  7,,ii7 ,! access 
( su* individuals to heal? c>e4  7,,iii7
 ,! total exp5ditures ( su* individuals 
= heal? c>e4  7ii7 ,applicable measures 

,= purposes ( ! report requir$ "u ?is   
subp>agraph1 ! ,secret>y %all specify   
all applicable measures = det]m9+       
quality ( heal? c>e provid$ to eligible 
individuals ) sickle cell disease1      
access to heal? c>e by su* individuals1 
& exp5ditures on heal? c>e by su*       
individuals4  7,d7 ,be/ practices ,n    
lat] ?an ,june #cj1 #bjbf1 ! ,secret>y  
%all make publicly available on !       
website ( ! ,c5t]s = ,m$ic>e  ,m$icaid  
,s]vices be/ practices = design+ &      
implem5t+ a sickle cell disease-focus$  
,/ate plan am5dm5t1 bas$ on cl9ical     
practice guidel9es = sickle cell disease
 develop$ by m$ical specialty societies 
& 9 consultation ) sickle cell disease  
provid]s & pati5t advocacy              
organizations4  7,e7 ,def9itions ,=     
purposes ( ?is section3 7i7 ,eligible   
individual ) sickle cell disease ,! t]m 
eligible individual ) sickle cell       
disease means1 ) respect to a ,/ate1 an 
individual :o satisfies all ( ! foll[+3 
7,i7 ,! individual is eligible = m$ical 

assi/ance "u ! ,/ate plan ( su* ,/ate or
 "u a waiv] ( su* plan4  7,,ii7 ,!      
individual has sickle cell disease4     
7,,iii7 ,! individual may or may n h    
previ\sly receiv$ heal? home s]vices "u 
any o!r ,/ate plan am5dm5t approv$ = !  
,/ate "u ?is section by ! ,secret>y4    
7ii7 ,sickle cell disease ,! t]m sickle 
cell disease means an inh]it$ blood     
disord] affect+ r$ blood cells t occurs 
:5 an individual has inh]it$ a sickle   
cell g5e f ea* p>5t1 z id5tifi$ by a    
newborn scre5+ or o!r g5etic te/4  2 &  
7#c7 9 subsection 7h77#e71 by ins]t+ or 
a heal? home = eligible individuals )   
sickle cell disease aft] *ronic         
conditions4