,i #aai? ,,congress #a/ ,session ,h4 ,r4 #ddgj ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,july #af1 #bjbe,ms4 ,van ,duyne 7= h]self1 ,ms4 ,del,bene1 ,mrs4 ,mill] ( ,we/ ,virg9ia1 & ,mr4 ,co/a7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,ways & ,means1 & 9 addition to ! ,committee on ,en]gy & ,comm]ce1 = a p]iod to be subsequ5tly det]m9$ by ! ,speak]1 9 ea* case = consid]ation ( su* provisions z fall )9 ! jurisdiction ( ! committee conc]n$ ,a ,,bill ,to am5d title ,,xi ( ! ,social ,security ,act to require hospitals p>ticipat+ 9 ! ,m$ic>e & ,m$icaid programs to e/abli% c]ta9 notification proc$ures ) respect to organ procurem5t ag5cies4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,remov+ ,burd5s ,f ,organ ,donation ,act4 #b4 ,notify+ organ procurem5t ag5cies ) respect to pot5tial organ donors 7a7 ,9 g5]al ,section #aach7;a7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acbj;b-#h7;a77 is am5d$-- 7#a7 9 p>agraph 7#a77;,a77iii7-- 7,a7 by add+ & at ! end2 7,b7 by /rik+ t su* & ins]t+ t-- 7,i7 su* 2 & 7,c7 by add+ at ! end ! foll[+ new subclause3 7,,ii7 subject to p>agraph 7#d71 beg9n+ on ! date t is #b ye>s aft] ! date ( ! enactm5t ( ! ,remov+ ,burd5s ,f ,organ ,donation ,act1 ) respect to su* a pot5tial organ donor1 su* hospital's designat$ organ procurem5t ag5cy is issu$ an automat$ electronic notification & is provid$ electronic & remote access to ! electronic heal? records ( su* pot5tial organ donor :5 su* electronic heal? records are updat$ to indicate t su* pot5tial organ donor is deceas$ or t ! dea? ( su* pot5tial organ donor is imm95t1 z det]m9$ 9 accordance ) ! protocol describ$ 9 section #dhb4de7;a77#a7 ( title #db1 ,code ( ,f$]al ,regulations 7or any successor regulation72 2 & 7#b7 by add+ at ! end ! foll[+ new p>agraph3 7#d7 ,exemptions f automat$ ,,ehr access requirem5t 7,a7 ,exemptions 7i7 ,9 g5]al ,! ,secret>y may exempt a hospital or critical access hospital f ! automat$ electronic notification & remote access requirem5t "u p>agraph 7#a77;,a77iii77,,ii7 = a p]iod ( #c ye>s if ! ,secret>y det]m9es t meet+ su* requirem5t w\ld result 9 a significant h>d%ip1 su* z 9 ! case ( a hospital or critical access hospital locat$ 9 a rural area )\t suffici5t ,int]net access1 or o!r exceptional circum/ances demon/rat$ by ! hospital4 7ii7 ,automatic exemption ,! ,secret>y %all grant an exemption describ$ 9 clause 7i7 to a hospital or critical access hospital = a p]iod ( #a ye> if ! ,secret>y det]m9es t su* hospital is affect$ by a cyb]security attack 7z def9$ 9 subp>agraph 7,c771 or is locat$ 9 an area affect$ by a major disa/] 7z def9$ 9 section #eabb7b7 ( title #db1 ,unit$ ,/ates ,code7 or any o!r natural or man-made disa/]1 & %all notify su* hospital or critical access hospital ( su* exemption4 7iii7 ,ext5sion ,! ,secret>y may ext5d an exemption grant$ "u clause 7i7 or 7ii7 if ! hospital or critical access hospital demon/rates to ! satisfaction ( ! ,secret>y t su* an ext5sion is necess>y4 7,b7 ,report ,n lat] ?an #b ye>s aft] ! date ( ! enactm5t ( ! ,remov+ ,burd5s ,f ,organ ,donation ,act1 & n less frequ5tly ?an annually !reaft]1 ! ,secret>y %all submit to ! ,committee on ,ways & ,means & ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives1 & to ! ,committee on ,f9ance & ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate1 a report on ! numb] ( exemptions grant$ "u subp>agraph 7,a7 dur+ ! previ\s ye> & ! reason = grant+ ea* su* exemption4 7,c7 ,cyb]security attack def9$ ,= purposes ( subp>agraph 7,a71 ! t]m cyb]security attack means1 ) respect to a hospital or a critical access hospital1 any k9d ( malici\s activity t-- 7i7 attempts to collect1 modify1 disrupt1 d5y1 degrade1 or de/roy in=mation sy/em res\rces ( ! hospital1 includ+ ! in=mation itself2 7ii7 affects ! confid5tiality1 integrity or availability ( data1 in=mation1 or op]ational te*nology sy/em res\rces ( ! hospital2 or 7iii7 poses any o!r ?reat to ! in=mation1 in=mation sy/ems1 te*nology1 or te*nological capabilities ( ! hospital1 z det]m9$ by ! ,secret>y4 4 7b7 ,guidance on be/ practices 7#a7 ,9 g5]al ,n lat] ?an #a ye> aft] ! date ( ! enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices %all issue guidance to hospitals1 critical access hospitals1 organ procurem5t ag5cies1 & electronic heal? record companies reg>d+ be/ practices = comply+ ) ! automat$ electronic notification & remote access requirem5t "u subclause 7,,ii7 ( section #aach7;a77#a77;,a77iii7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acbj;b-#h7;a77#a77;,a77iii771 z add$ by subsection 7a74 ,su* guidance %all be bas$ ^u ! exp]i5ces ( entities t h previ\s exp]i5ce ) ! implem5tation ( simil> automat$ electronic notifications & remote access1 & %all provide insights on :at work$ well & :at did n4 7#b7 ,explanation ( *anges to donors & family memb]s ,n lat] ?an #a ye> aft] ! date ( ! enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices %all issue guidance to ,/ate heal? ag5cies 7or su* o!r ,/ate ag5cy1 dep>tm5t1 or au?ority z ! ,gov]nor ( ea* ,/ate may det]m9e appropriate7 reg>d+ be/ practices = expla9+ ! automat$ electronic notification & remote access requirem5t "u subclause 7,,ii7 ( section #aach7;a77#a77;,a77iii7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acbj;b-#h7;a77#a77;,a77iii771 z add$ by subsection 7a71 to organ donors1 pot5tial organ donors1 & ! family memb]s ( su* donors & pot5tial donors4 7c7 ,,gao report & /udy ,! ,comptroll] ,g5]al ( ! ,unit$ ,/ates 79 ?is subsection ref]r$ to z ! ,comptroll] ,g5]al7 %all-- 7#a7 c>ry out a /udy on ! implem5tation ( ! automat$ electronic notification & remote access requirem5t "u subclause 7,,ii7 ( section #aach7;a77#a77;,a77iii7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acbj;b-#h7;a77#a77;,a77iii771 z add$ by subsection 7a71 t takes into acc\nt-- 7,a7 ! co/ ( implem5t+ ! automat$ electronic notification & remote access requirem5t describ$ 9 su* p>agraph2 7,b7 ! impact ( hospital location on ! implem5tation ( su* requirem5t1 includ+ ! impact ( limit$ broadb& access 9 rural areas1 & improvem5ts t c\ld be made to facilitate su* implem5tation2 & 7,c7 ! reports submitt$ by ! ,secret>y pursuant to p>agraph 7#d77;,b7 ( section #aach7;a7 ( su* ,act 7#db ,u4,s4,c4 #acbj;b-#h7;a771 z add$ by subsection 7a72 & 7#b7 n lat] ?an #c ye>s aft] ! date ( ! enactm5t ( ! ,remov+ ,burd5s f ,organ ,donation ,act1 submit to ,congress a report on ! results ( ! /udy c>ri$ out "u p>agraph 7#a7 t includes-- 7,a7 an analysis ( data ma9ta9$ by ! ,dep>tm5t ( ,heal? & ,human ,s]vices relat$ to ! outcomes ( organ transplants p]=m$ aft] ! enactm5t ( ! ,remov+ ,burd5s f ,organ ,donation ,act2 7,b7 a review ( issues relat$ to secur+ pati5t data & ! roles ( ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices & ! ,heal? ,res\rces & ,s]vices ,adm9i/ration ) respect to ^? issues2 & 7,c7 any recomm5dations = fur!r action1 z appropriate4