,i #aaith ,,congress #ast ,session ,h4 ,r4 #djhf ,,in ,,the ,,house ,,of ,,representatives ,june #bc1 #bjbe,mr4 ,min 7for himself1 ,ms4 ,meng1 ,mr4 ,fitzpatrick1 ,mr4 ,cuellar1 ,mr4 ,bacon1 ,ms4 ,salazar1 ,mr4 ,correa1 ,mr4 ,valadao1 ,mr4 ,krishnamoorthi1 ,mr4 ,gottheimer1 ,ms4 ,malliotakis1 ,ms4 ,norton1 ,mrs4 ,mc,iver1 ,mr4 ,cohen1 ,mrs4 ,hayes1 ,mr4 ,mannion1 ,mr4 ,kennedy of ,new ,york1 ,mr4 ,tonko1 ,mr4 ,khanna1 ,ms4 ,mc,bride1 ,mr4 ,raskin1 ,ms4 ,budzinski1 and ,mr4 ,garcia of ,california7 introduced the following bill2 which was referred to the ,committee on ,energy and ,commerce ,a ,,bill ,to authorize the ,secretary of ,health and ,human ,services1 acting through the ,administrator of the ,health ,resources and ,services ,administration1 to award grants for providing evidence-based caregiver skills training to family caregivers of children with autism spectrum disorder or other developmental disabilities or delays1 and for other purposes4 #a4 ,short title ,this ,act may be cited as the ,autism ,family ,caregivers ,act of #bjbe4 #b4 ,caregiver skills training pilot program 7a7 ,authorization ,the ,secretary of ,health and ,human ,services1 acting through the ,administrator of the ,health ,resources and ,services ,administration 7referred to in this ,act as the ,secretary71 shall carry out a program1 to be known as the ,caregiver ,skills ,training ,pilot ,program1 under which the ,secretary shall award grants to eligible entities to provide evidence-based caregiver skills training to family caregivers1 for the purposes of-- 7#a7 improving the well-being of children with autism spectrum disorder or another developmental disability or developmental delay and their caregivers2 and 7#b7 teaching family caregivers evidenced-based intervention strategies to promote-- 7,a7 improvement in the well-being of such children and their caregivers2 and 7,b7 the greater inclusion of such children in family and community life4 7b7 ,application ,to seek a grant under this section1 an eligible entity shall submit to the ,secretary an application that includes-- 7#a7 a description of-- 7,a7 the applicant's experience delivering evidence-based caregiver skills training to family caregivers2 7,b7 the activities that the applicant proposes to carry out through the grant2 and 7,c7 how such activities will achieve the purposes described in subsection 7a72 and 7#b7 a plan for-- 7,a7 coordination with-- 7i7 community-based organizations2 7ii7 ,state and local early intervention providers2 7iii7 ,state plans 7or waivers of such plans7 under the ,medicaid program under title ,,xix of the ,social ,security ,act 7#db ,u4,s4,c4 #acif et seq472 7iv7 ,state ,directors of ,head ,start ,collaboration 7as described in section #fdb;,b of the ,head ,start ,act 7#db ,u4,s4,c4 #ihcg;b772 7v7 schools2 and 7vi7 other providers of early intervening services2 7,b7 collaboration with health care payors 7including public and private insurance71 ,state departments of insurance1 health plans1 and other relevant payors2 7,c7 expanding the skills training program proposed to be carried out through the grant2 7,d7 achieving sustainability of such program2 and 7,e7 establishing and maintaining a stakeholder implementation committee under subsection 7e74 7c7 ,reducing disparities ,in awarding grants under this section1 the ,secretary may consider the extent to which an eligible entity can deliver evidence-based1 culturally competent and linguistically appropriate information to family caregivers from diverse racial1 ethnic1 geographic1 or linguistic backgrounds4 7d7 ,use of funds ,the recipient of a grant under this section shall use funds received through the grant-- 7#a7 to provide1 at no cost to participants-- 7,a7 evidence-based caregiver skills training to family caregivers2 and 7,b7 such training in areas related to children's learning and development1 including-- 7i7 communication skills2 7ii7 social engagement2 7iii7 daily living skills2 7iv7 caregiver response strategies to challenging behaviors2 and 7v7 coping and self-care strategies for family caregivers2 and 7#b7 to establish and maintain a stakeholder implementation committee under subsection 7e74 7e7 ,stakeholder implementation committee 7#a7 ,in general ,an eligible entity shall establish and maintain a stakeholder implementation committee referred to in subsection 7d77#b7 to advise on ensuring that the training provided pursuant to the grant is accessible and culturally appropriate and linguistically appropriate4 7#b7 ,composition ,the members of the stakeholder implementation committee shall all be from the local community served pursuant to the grant 7or the relevant metropolitan statistical area7 and shall include1 at a minimum1 the following3 7,a7 ,family caregivers1 including autistic caregivers and other caregivers with disabilities4 7,b7 ,pediatric health care and early intervention providers1 including developmental behavioral pediatricians1 with expertise providing services to children with autism spectrum disorder or other developmental disabilities and delays4 7,c7 ,educators or related service professionals1 including child care providers1 with experience serving children with autism spectrum disorder or other developmental disabilities and delays4 7,d7 ,representatives of local organizations familiar with the cultural values and priorities of individuals in the local community4 7,e7 ,local government officials4 7f7 ,requirements 7#a7 ,number of recipients and states ,the ,secretary shall award grants under subsection 7a7 to not fewer than #be eligible entities in not fewer than #ae ,states4 7#b7 ,amount ,the total amount of each grant awarded under subsection 7a7 shall be not less than #ejj1jjj over a #e-year period4 7g7 ,supplement not supplant ,amounts received through a grant under this section shall be used to supplement1 not supplant1 other amounts received to provide-- 7#a7 behavioral1 medical1 habilitative1 and other services covered by the ,medicaid program under title ,,xix of the ,social ,security ,act 7#db ,u4,s4,c4 #acif et seq47 or private health insurance2 7#b7 services provided under the ,individuals with ,disabilities ,education ,act 7#bj ,u4,s4,c4 #adjj et seq472 or 7#c7 adaptations of a training program using evidence-based approaches to serve children of different ages1 communities1 and underrepresented groups4 7h7 ,activities of the secretary ,the ,secretary1 acting through the ,administrator of the ,health ,resources and ,services ,administration1 shall-- 7#a7 assist recipients of grants under subsection 7a7 in-- 7,a7 the implementation of caregiver skills training programs using lessons learned from other evidenced-based activities or caregiver programs conducted or supported by the ,health ,resources and ,services ,administration2 7,b7 ensuring the programs of the recipients assist medically underserved communities 7as defined in section #gii;,b7#f7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #biep7#f7771 when possible2 and 7,c7 developing plans for achieving sustainability of the programs of the recipients2 7#b7 conduct an annual evaluation of activities funded through grants under subsection 7a71 in consultation with the grant recipients1 including evaluation of the effectiveness of-- 7,a7 the communication1 social engagement1 and daily living skills of children with autism spectrum disorder or other developmental disabilities and delays2 and 7,b7 the extent to which family caregivers see improvements in the communication1 social engagement1 and daily living skills of such children2 and 7#c7 convene at least one national or regional meeting of such grant recipients to discuss best practices4 7i7 ,reports 7#a7 ,initial report ,not later than #f months after awarding the first grant under subsection 7a71 the ,secretary shall submit to the ,committee on ,energy and ,commerce of the ,house of ,representatives and the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate1 a report on the implementation of this section4 ,such report shall include-- 7,a7 how many grants have been awarded2 7,b7 the name and location of the grant recipients2 7,c7 the communities served by the grants2 7,d7 a description of the kind of activities to be carried out with the grants2 7,e7 an analysis1 conducted by the ,administrator of the ,health ,resources and ,services ,administration1 based on the evaluation under subsection 7h77#b71 of the effectiveness of such grants with respect to-- 7i7 the communication1 social engagement1 and daily living skills of children with autism spectrum disorder or other developmental disabilities and delays2 and 7ii7 the extent to which family caregivers see improvements in the communication1 social engagement1 and daily living skills of such children2 and 7,f7 best practices to increase access to caregiver skills training programs described in subsection 7a7 in medically underserved communities4 7#b7 ,final report ,not later than the end of fiscal year #bjbg1 the ,secretary shall submit to the ,committee on ,energy and ,commerce of the ,house of ,representatives and the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate1 a final report on the implementation of this section1 including-- 7,a7 the information1 analysis1 and best practices listed in subparagraphs 7,a7 through 7,f7 of paragraph 7#a72 and 7,b7 recommendations on how to expand and extend the program under this section4 7j7 ,definitions ,in this section3 7#a7 ,developmental delay ,the term developmental delay has the meaning given such term in section #fcb7c7 of the ,individuals with ,disabilities ,education ,act 7#bj ,u4,s4,c4 #adcb7c774 7#b7 ,developmental disability ,the term developmental disability has the meaning given such term in section #ajb7h77;,a7 of the ,developmental ,disabilities ,assistance and ,bill of ,rights ,act of #bjjj 7#db ,u4,s4,c4 #aejjb74 7#c7 ,eligible entity ,the term eligible entity means an entity that-- 7,a7 is-- 7i7 a nonprofit or other community-based organization2 7ii7 a ,federally qualified health center2 7iii7 an accredited academic medical center2 7iv7 a health system2 or 7v7 a collaboration or consortium of #b or more entities listed in clauses 7i7 through 7iv72 7,b7 has at least #c years of demonstrated experience-- 7i7 delivering culturally appropriate and linguistically appropriate services for children with autism spectrum disorder or other developmental disabilities or developmental delays1 as well as collaborating directly with their families1 including in medically underserved communities2 7ii7 providing services to such children1 as well as collaborating directly with their families2 7iii7 providing individual caregiver coaching to caregivers of such children2 and 7iv7 working with self-advocates or adults with autism spectrum disorder or other developmental disabilities or developmental delays2 7,c7 can demonstrate the ability to access resources from and collaborate with-- 7i7 health care providers2 7ii7 allied health professionals2 7iii7 educators1 including childcare providers2 7iv7 social workers2 and 7v7 direct care professionals2 and 7,d7 has prior demonstrated experience delivering mental health services that address both developmental disabilities and one or more cooccurring mental health conditions1 including depression1 anxiety1 and attention-deficit_/hyperactivity disorder 7,,adhd7 7#d7 ,family caregiver ,the term family caregiver means an adult family member or other individual who has a significant relationship with1 and who provides a broad range of assistance to1 a child between the ages of #j and #i diagnosed with autism spectrum disorder or another developmental disability or developmental delay4 7#e7 ,federally qualified health center ,the term ,federally qualified health center has the meaning given the term in section #ahfa7;aa7 of the ,social ,security ,act 7#db ,u4,s4,c4 #aciex7aa774 7k7 ,authorization of appropriations ,to carry out this section1 there is authorized to be appropriated #aj1jjj1jjj for each of fiscal years #bjbf through #bjcj4