,i  #aaith ,,congress  #ast ,session    
,h4 ,r4 #bagh  ,,in ,,the ,,house ,,of  
,,representatives  ,march #ah1 #bjbe,mr4
 ,cohen 7for himself1 ,mr4 ,fitzpatrick1
 ,mr4 ,cleaver1 and ,ms4 ,norton7       
introduced the following bill2 which was
 referred to the ,committee on ,energy  
and ,commerce  ,a ,,bill  ,to amend the 
,public ,health ,service ,act to        
authorize the ,secretary of ,health and 
,human ,services to carry out a program 
of research related to cerebral palsy1  
and for other purposes4  #a4 ,short     
title ,this ,act may be cited as the    
,cerebral ,palsy ,research ,program     
,authorization ,act of #bjbe4  #b4      
,findings ,congress finds the following3
  7#a7 ,cerebral palsy is the most      
common lifelong motor impairment in     
children1 affecting more than #a1jjj1jjj
 ,americans1 #a in #cde children1 and   
over #ag1jjj1jjj people worldwide4  7#b7
 ,in the ,united ,states1 more than     
#aj1jjj babies are diagnosed with       
cerebral palsy each year4  7#c7         

,cerebral palsy is a broad group of     
disorders disrupting a person's ability 
to move1 sit1 stand1 walk1 talk1 and use
 their hands4  7#d7 ,in more than #hj   
percent of cases1 the cause of cerebral 
palsy is unknown4  7#e7 ,seventy-five   
percent of individuals with cerebral    
palsy also have #a or more additional   
developmental disabilities including    
epilepsy1 intellectual disabilities1    
communication problems1 learning and    
attention disorders1 chronic pain1      
autism1 hearing disorders1 and visual   
impairments or blindness4  7#f7         
,children with cerebral palsy are more  
likely to die from the flu and related  
viruses1 including ,,covid-#ai1 than    
children without neurologic disorders4  
7#g7 ,there is no consensus of best     
practices for a person with cerebral    
palsy at the time of diagnosis or       
through the lifespan4  7#h7 ,it is      
estimated that the lifetime care and    
medical costs for all people with       
cerebral palsy who were born in #bjjj   

alone will total more than              
#ac1ejj1jjj1jjj4 ,the loss of           
productivity and lost wages of the      
individual with cerebral palsy and their
 family members is more than            
#ce1jjj1jjj1jjj4  7#i7 ,although there  
is not yet a known cure for many types  
of cerebral palsy1 we know that         
treatment breakthroughs and the         
prevention of many types of cerebral    
palsy is possible4  #c4 ,cerebral palsy 
research ,title ,,iii of the ,public    
,health ,service ,act is amended by     
inserting after section #cag;,c of such 
,act 7#db ,u4,s4,c4 #bdg;b-#d7 the      
following new section3  #cag;,c-#a4     
,cerebral palsy research  7a7 ,in       
general ,the ,secretary1 acting through 
the ,director of the ,centers for       
,disease ,control and ,prevention1 and  
in consultation with other ,federal     
agencies and partners1 shall carry out  
7directly or through grants or          
contracts7 a program of research related
 to cerebral palsy1 including-- 7#a7    

research on--  7,a7 the most promising  
avenues of cerebral palsy diagnosis and 
treatment2  7,b7 factors that may       
mitigate the prevalence of cerebral     
palsy2 and  7,c7 the health care and    
societal costs of cerebral palsy2  7#b7 
public health surveillance2 and  7#c7   
other research that the ,director of the
 ,centers for ,disease ,control and     
,prevention determines to be appropriate
 to provide education and training for  
health professionals and the general    
public for purposes of diagnosing1      
treating1 and explaining the causes1    
prevalence1 and lifelong effects of     
cerebral palsy4  7b7 ,technical         
assistance ,the ,secretary may 7directly
 or through grants or contracts7 provide
 technical assistance to public and     
nonprofit private entities in           
furtherance of research under this      
section4  7c7 ,evaluations ,the         
,secretary shall 7directly or through   
grants or contracts7 provide for the    
evaluation of activities under          

subsection 7a7 in order to determine the
 extent to which such activities have   
been effective1 including evaluation of 
the effects of such activities on       
various demographic populations4  7d7   
,authorization of appropriations ,to    
carry out this section1 there is        
authorized to be appropriated #e1jjj1jjj
 for each of fiscal years #bjbf through 
#bjca4  4