,i #aai? ,,congress #a/ ,session ,h4 ,r4 #agej ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,febru>y #bg1 #bjbe,ms4 ,/rickl& introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce1 & 9 addition to ! ,committees on ,ways & ,means1 & ,natural ,res\rces1 = a p]iod to be subsequ5tly det]m9$ by ! ,speak]1 9 ea* case = consid]ation ( su* provisions z fall )9 ! jurisdiction ( ! committee conc]n$ ,a ,,bill ,to am5d ! ,public ,heal? ,s]vice ,act to provide = great] inve/m5ts 9 rese>* on r>e diseases & conditions disproportionately affect+ m9ority populations1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,heal? ,equity & ,r>e ,disease ,act ( #bjbe or ! ,,he>d ,act ( #bjbe4 #b4 ,,nih expansion1 int5sification1 & coord9ation ( rese>* on r>e diseases heal? equity ,"p ,b ( title ,,iv ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhd et seq47 is am5d$ by add+ at ! end ! foll[+3 #dji,k4 ,r>e diseases heal? equity 7a7 ,expansion1 int5sification1 & coord9ation ( activities 7#a7 ,9 g5]al ,! ,director ( ,,nih %all exp&1 int5sify1 & coord9ate rese>* & o!r activities ( ! ,national ,in/itutes ( ,heal? ) respect to r>e diseases heal? equity4 7#b7 ,allocations by ,director ( ,,nih ,) respect to am\nts appropriat$ to c>ry out ?is section = a fiscal ye>1 ! ,director ( ,,nih %all allocate ! am\nts among ! national rese>* in/itutes t are c>ry+ out p>agraph 7#a74 7b7 ,coord9at+ ,committee 7#a7 ,9 g5]al ,! ,secret>y %all ma9ta9 a coord9at+ committee ) respect to r>e diseases heal? equity 7ref]r$ to 9 ?is section z ! ,coord9at+ ,committee7 to coord9ate activities across ! ,national ,in/itutes & ) o!r ,f$]al heal? programs & activities relat+ to r>e diseases heal? equity4 7#b7 ,composition ,! ,coord9at+ ,committee %all be compos$ (-- 7,a7 ! directors 7or _! designees7 ( ea* ( ! national rese>* in/itutes involv$ 9 rese>* ) respect to r>e diseases & m9ority heal? or heal? equity2 & 7,b7 repres5tatives ( all o!r ,f$]al dep>tm5ts & ag5cies ^: programs involve heal? functions or responsibilities relevant to su* r>e diseases1 includ+ ! ,c5t]s = ,disease ,control & ,prev5tion & ! ,food & ,drug ,adm9i/ration4 7#c7 ,*air 7,a7 ,9 g5]al ,) respect to r>e diseases heal? equity1 ! ,*air ( ! ,coord9at+ ,committee %all s]ve z ! pr9cipal advisor to ! ,secret>y1 ! ,assi/ant ,secret>y = ,heal?1 & ! ,director ( ,,nih1 & %all provide advice to ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 ! ,commission] ( ,food & ,drugs1 & o!r relevant ag5cies4 7,b7 ,director ( ,,nih ,! ,*air ( ! ,coord9at+ ,committee %all be directly responsible to ! ,director ( ,,nih4 7c7 ,plan = ,,nih ,activities 7#a7 ,9 g5]al ,n lat] ?an #a ye> aft] ! date ( ! enactm5t ( ?is section1 ! ,coord9at+ ,committee %all develop a plan = conduct+ & support+ rese>* & education on r>e diseases heal? equity1 & r>e diseases or conditions 9 m9ority populations1 ?r\gh ! national rese>* in/itutes4 ,! ,coord9at+ ,committee %all p]iodically review & revise ! plan4 ,! plan %all-- 7,a7 provide = a broad range ( rese>* & education activities relat+ to biom$ical1 psy*osocial1 & rehabilitative issues1 includ+ /udies ( ! disproportionate impact ( su* diseases or conditions on m9ority populations2 7,b7 id5tify priorities among ! programs & activities ( ! ,national ,in/itutes ( ,heal? reg>d+ su* diseases or conditions2 & 7,c7 reflect input f a broad range ( sci5ti/s1 pati5ts1 & advocacy gr\ps4 7#b7 ,c]ta9 elem5ts ( plan ,! plan "u p>agraph 7#a7 %all1 ) respect to r>e diseases or conditions 9 m9ority populations1 provide = ! foll[+ z appropriate3 7,a7 ,rese>* to det]m9e ! reasons und]ly+ ! incid5ce & preval5ce ( ! diseases or conditions1 includ+ among subpopulations4 7,b7 ,basic rese>* conc]n+ ! etiology & causes ( ! diseases or conditions4 7,c7 ,epidemiological /udies to address ! frequ5cy & natural hi/ory ( ! diseases or conditions1 includ+ any diff]5ces among ! sexes & among racial & e?nic gr\ps4 7,d7 ,! developm5t ( improv$ scre5+ te*niques4 7,e7 ,cl9ical rese>* = ! developm5t & evaluation ( new treatm5ts1 includ+ new biological ag5ts4 7,f7 ,in=mation & education programs = heal? c>e pr(essionals & ! public4 7#c7 ,implem5tation ( plan ,! ,director ( ,,nih %all ensure t programs & activities ( ! ,national ,in/itutes ( ,heal? reg>d+ r>e diseases or conditions 9 m9ority populations are implem5t$ 9 accordance ) ! plan "u p>agraph 7#a74 7d7 ,def9itions ,9 ?is section3 7#a7 ,! t]m m9ority has ! mean+ giv5 su* t]m 9 section #dfdz-#c4 7#b7 ,! t]m r>e disease or condition has ! mean+ giv5 su* t]m 9 section #ebf ( ! ,f$]al ,food1 ,drug1 & ,cosmetic ,act 7#ba ,u4,s4,c4 #cfj;bb74 4 #c4 ,collaborative compreh5sive plan to address r>e diseases & conditions 9 m9ority populations ,subp>t #bj ( "p ,c ( title ,,iv ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhet et seq47 is am5d$ by add+ at ! end ! foll[+3 #dfdz-#g4 ,collaborative compreh5sive plan to address r>e diseases & conditions 9 m9ority populations ,n lat] ?an #ahj days aft] ! date ( enactm5t ( ?is section1 ! ,director ( ,,nih1 ! ,director ( ! ,in/itute1 ! ,director ( ! ,national ,c5t] = ,advanc+ ,translational ,sci5ces1 ! ,director ( ! ,national ,he>t1 ,lung1 & ,blood ,in/itute1 & ! directors ( ! o!r ag5cies ( ! ,national ,in/itutes ( ,heal? 9 collaboration 7& 9 consultation ) ! advisory c\ncil = ! ,in/itute7 %all-- 7#a7 develop a compreh5sive ,f$]al plan to address r>e diseases & conditions 9 m9ority populations 7z ^? t]ms are def9$ 9 section #dji,k71 includ+ a /rategy to increase div]sity 9 g5etic programs at ! program = ,!rapeutics = ,r>e & ,neglect$ ,diseases at ! ,national ,in/itutes ( ,heal?2 7#b7 conduct or support ?r\gh grants or coop]ative agreem5ts basic1 cl9ical1 & translational rese>* on r>e diseases & conditions 9 m9ority populations1 includ+ rese>* on-- 7,a7 e>ly detection1 diagnosis1 & treatm5t ( su* diseases & conditions 9 su* populations2 & 7,b7 improv+ ! quality ( life = individuals ) r>e diseases or conditions & _! families2 7#c7 conduct or support cl9ical tra9+ programs = physicians & o!r heal? c>e practition]s ) respect to detect+1 diagnos+1 & treat+ su* diseases & conditions 9 su* populations2 & 7#d7 develop guidance = increas+ p>ticipation ( heal? pr(essionals :o are memb]s ( m9ority gr\ps 7z def9$ 9 section #dfdz-#c7 9 rese>* conduct$ or support$ by ! ,national ,in/itutes ( ,heal? on su* diseases & conditions 9 su* populations4 4 #d4 ,grants to collect & analyze data on r>e diseases & conditions 9 m9ority populations ,section #agjg7;b7 ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #cjju-#f7;b77 is am5d$ by add+ at ! end ! foll[+3 7#aa7 ,9 coord9ation ) ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 aw>d grants to public & private nonpr(it entities to-- 7,a7 collect1 analyze1 & report data on r>e diseases & conditions 9 m9ority populations1 includ+ on epidemiological data ) respect to incid5ce ( su* diseases & conditions 9 su* populations2 7,b7 conduct outrea* & engagem5t activities ) ! m9ority populations impact$ by su* r>e diseases & conditions by-- 7i7 improv+ heal? lit]acy ) respect to r>e diseases & conditions2 7ii7 dissem9at+ in=mation on heal? & community s]vices relat$ to r>e diseases & conditions2 & 7iii7 provid+ in=mation reg>d+ ! ma9t5ance ( r>e diseases & conditions4 7#ab7 ,submit to ,congress1 on a biannual basis 7beg9n+ n lat] ?an #b ye>s aft] ! date ( ! enactm5t ( ! ,,he>d ,act ( #bjbe71 a report describ+ ! activities c>ri$ out pursuant to p>agraph 7#aa74 4 #e4 ,physician tra9+ programs ) respect to r>e diseases ,subp>t ,,ii ( "p ,c ( title ,,vii ( ! ,public ,heal? ,s]vice ,act is am5d$ by add+ at ! end ! foll[+3 #gdi;,c4 ,physician tra9+ programs ) respect to r>e diseases 7a7 ,9 g5]al ,! ,secret>y %all e/abli% a program to aw>d grants to accr$it$ s*ools ( allopa?ic m$ic9e1 o/eopa?ic m$ic9e1 & nurs+1 & o!r heal? pr(essional tra9+ programs = ! tra9+ ( heal? c>e pr(essionals-- 7#a7 to improve ! provision ( c>e to individuals :o h r>e diseases or conditions 7z def9$ 9 section #ebf ( ! ,f$]al ,food1 ,drug1 & ,cosmetic ,act 7#ba ,u4,s4,c4 #cfj;bb772 7#b7 to improve ! provision ( c>e to su* individuals via teleheal?2 & 7#c7 to conduct rese>* relevant to r>e diseases & conditions4 7b7 ,eligibility ,to be eligible = a grant "u subsection 7a71 an entity describ$ 9 su* subsection %all submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require4 7c7 ,report+ requirem5ts 7#a7 ,p]iodic reports ,ea* entity aw>d$ a grant "u ?is section %all p]iodically submit to ! ,secret>y a report on ! /atus ( activities conduct$ us+ ! grant1 includ+ a description ( ! impact ( su* tra9+ on pati5t outcomes1 z applicable4 7#b7 ,report to ,congress ,n lat] ?an #b ye>s aft] ! date ( enactm5t ( ?is section1 ! ,secret>y %all submit a report to ,congress on ! activities conduct$ us+ grants "u subsection 7a7 & any be/ practices id5tifi$ & dissem9at$ "u subsection 7d74 7d7 ,be/ practices ,! ,secret>y may id5tify & dissem9ate be/ practices = ! tra9+ describ$ 9 subsection 7a74 #gdi;,d4 ,heal? pr(essionals education on r>e diseases & conditions 9 m9ority populations 7a7 ,9 g5]al ,! ,secret>y may aw>d grants1 coop]ative agreem5ts1 & contracts to accr$it$ s*ools ( m$ic9e & nurs+1 & o!r heal? pr(essional tra9+ programs1 = ! developm5t & implem5tation ( programs to provide education & tra9+ to heal? c>e pr(essionals on ! causes & effects ( r>e diseases & conditions 9 m9ority populations4 7b7 ,def9itions ,9 ?is section3 7#a7 ,! t]m m9ority has ! mean+ giv5 su* t]m 9 section #dfdz-#c4 7#b7 ,! t]m r>e disease or condition has ! mean+ giv5 su* t]m 9 section #ebf ( ! ,f$]al ,food1 ,drug1 & ,cosmetic ,act 7#ba ,u4,s4,c4 #cfj;bb74 #gdi;,e4 ,m5tor+ program = heal? c>e pr(essionals seek+ to "w 9 r>e diseases & conditions ,! ,secret>y1 act+ ?r\gh ! ,adm9i/rator ( ! ,heal? ,res\rces & ,s]vices ,adm9i/ration1 may aw>d grants1 contracts1 or coop]ative agreem5ts to public & nonpr(it private entities 7includ+ ,tribal entities7 = ! e/abli%m5t ( a m5tor+ program = heal? c>e pr(essionals seek+ to treat pati5ts ) r>e diseases & conditions4 #gdi;,f4 ,s*ol>%ip & loan repaym5t program = physicians & g5etic c\nselors s]v+ populations ) r>e diseases & conditions 7a7 ,loan repaym5t program 7#a7 ,9 g5]al ,! ,secret>y %all e/abli% a program ( ent]+ into contracts ) eligible individuals "u :i* ! individuals agree to s]ve z heal? c>e pr(essionals s]v+ populations ) r>e diseases or conditions 9 consid]ation ( ! ,f$]al ,gov]nm5t agree+ to pay1 = ea* ye> ( su* s]vice1 up to #ej1jjj 7plus an am\nt det]m9$ by ! ,secret>y on an annual basis to reflect inflation7 ( ! pr9cipal & int]e/ ( ! educational loans ( su* individuals4 7#b7 ,det]m9ation ( am\nt ,9 mak+ a det]m9ation ( ! am\nt to pay = a ye> ( su* s]vice by an individual1 ! ,secret>y %all consid] ! ext5t to :i* ea* su* det]m9ation-- 7,a7 affects ! ability ( ! ,secret>y to maximize ! numb] ( contracts t c be provid$ "u ! program f ! am\nts appropriat$ = su* contracts2 7,b7 provides an inc5tive to s]ve z heal? c>e pr(essionals s]v+ populations ) r>e diseases or conditions2 & 7,c7 provides an inc5tive ) respect to ! heal? pr(essional involv$ to rema9 s]v+ populations ) r>e diseases or conditions1 includ+ aft] ! completion ( ! p]iod ( obligat$ s]vice "u ! program4 7#c7 ,eligible individuals ,9 ?is subsection1 ! t]m eligible individual means an individual :o is enroll$ or accept$ = enrollm5t z a full-"t or "p-"t /ud5t 9 a s*ool ( m$ic9e4 7#d7 ,applicability ( c]ta9 provisions ,) respect to ! ,national ,heal? ,s]vice ,corps ,loan ,repaym5t ,program e/abli%$ 9 subp>t ,,iii ( "p ,d ( title ,,iii ( ?is ,act1 ! provisions ( su* subp>t %all1 except z inconsi/5t ) p>agraph 7#a71 apply to ! program e/abli%$ 9 ?is section 9 ! same mann] & to ! same ext5t z su* provisions apply to ! ,national ,heal? ,s]vice ,corps ,loan ,repaym5t ,program4 7b7 ,s*ol>%ip program 7#a7 ,9 g5]al ,! ,secret>y %all c>ry out a program ( ent]+ into contracts ) eligible individuals "u :i* ea* su* individual agrees to s]ve1 = a p]iod ( n less ?an #e ye>s1 z a heal? c>e pr(essional prim>ily s]v+ populations ) r>e diseases or conditions1 9 consid]ation ( ! ,f$]al ,gov]nm5t agree+ to provide to ! individual a s*ol>%ip = att5dance at a s*ool ( m$ic9e4 7#b7 ,eligible individuals ,9 ?is subsection1 ! t]m eligible individual means an individual :o is enroll$ or accept$ = enrollm5t z a full-"t or "p-"t /ud5t 9 a s*ool ( m$ic9e4 7#c7 ,applicability ( c]ta9 provisions ,! provisions ( subp>t ,,iii ( "p ,d ( title ,,iii %all1 except z inconsi/5t ) ?is section1 apply to ! program e/abli%$ 9 p>agraph 7#a7 9 ! same mann] & to ! same ext5t z su* provisions apply to ! ,national ,heal? ,s]vice ,corps ,s*ol>%ip ,program e/abli%$ 9 su* subp>t4 4 #f4 ,increas+ m9ority repres5tation 9 rese>* on r>e diseases & conditions ,"p ,g ( title ,,iv ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhh et seq47 is am5d$ by add+ at ! end ! foll[+3 #dhg;,e4 ,increas+ m9ority repres5tation 9 rese>* on r>e diseases & conditions 7a7 ,grant program ,9 c>ry+ out section #dhg1 ! ,secret>y may aw>d grants to eligible entities involv$ 9 rese>* on r>e diseases & m9ority heal? to e/abli% programs to increase ! recruitm5t & ret5tion ( memb]s ( m9ority gr\ps to conduct rese>* 9 matt]s relat+ to ! cause1 diagnosis1 prev5tion1 & treatm5t ( r>e diseases or conditions1 includ+ by exp&+ ! numb] ( int]n%ips & m5tor+ opportunities4 7b7 ,eligible entities ,9 subsection 7a71 ! t]m eligible entities means accr$it$ s*ools ( allopa?ic m$ic9e1 o/eopa?ic m$ic9e1 & nurs+1 & o!r heal? pr(essional tra9+ programs4 4 #g4 ,report to ,congress on ,f$]al ef=ts on r>e diseases & conditions 9 m9ority populations ,n lat] ?an #b ye>s aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices1 act+ ?r\gh ! ,director ( ! ,national ,in/itutes ( ,heal? & 9 consultation ) ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 %all submit to ,congress-- 7#a7 a report on rese>* & public heal? activities c>ri$ out by ! ,f$]al ,gov]nm5t ) respect to r>e diseases or conditions 9 m9ority populations 7z ^? t]ms are def9$ 9 section #dji,k ( ! ,public ,heal? ,s]vice ,act1 z add$ by section #b ( ?is ,act72 7#b7 a compreh5sive li/ ( kn[n r>e diseases & conditions t impact m9ority populations heavily or disproportionately2 & 7#c7 an analysis ( data gaps ) respect to r>e diseases & conditions & ! effect ( su* diseases & conditions on m9ority populations4 #h4 ,rese>* & aw>5ess campaigns ) respect to r>e diseases & conditions 9 m9ority populations ,"p ,b ( title ,,iii ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bdc et seq47 is am5d$ by ins]t+ aft] section #cag,v 7#db ,u4,s4,c4 #bdg;b-#bd7 ! foll[+3 #cag,w4 ,rese>* & aw>5ess campaigns ) respect to r>e diseases & conditions 9 m9ority populations 7a7 ,rese>* ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 %all conduct or support rese>* & c>ry out public heal? aw>5ess campaigns ) respect to r>e diseases & conditions 9 m9ority populations 7z def9$ 9 section #dji,k74 7b7 ,aw>5ess campaign ,! ,secret>y %all1 directly or ?r\gh grants or contracts1 e/abli% a public education program 9 coop]ation ) exi/+ national public aw>5ess campaigns to increase aw>5ess ab\t r>e diseases & conditions 9 m9ority populations ?r\gh culturally & l+ui/ically appropriate in=mation campaigns ab\t prev5tion & managem5t ( r>e diseases & conditions4 4 #i4 ,,fda survey & report on cl9ical trial div]sity ,n lat] ?an #b ye>s aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices1 act+ ?r\gh ! ,commission] ( ,food & ,drugs1 %all-- 7#a7 conduct a survey ( policies & programs ( ! ,food & ,drug ,adm9i/ration to support an increase ! availability ( cl9ical trial data on m9ority populations1 ) an emphasis on m9ority populations ) r>e diseases & conditions2 & 7#b7 submit to ,congress a report conta9+-- 7,a7 ! f9d+s ( su* survey2 7,b7 ! ,secret>y's recomm5dations = /atutory or regulatory *anges to increase ! availability ( su* data2 7,c7 ! ,secret>y's recomm5dations = /rategies to enc\rage drug manufactur]s to address racial equity & inclusion 9 rese>* & developm5t ( treatm5ts ( r>e diseases or conditions t disproportionately impact m9ority populations2 & 7,d7 ! ,secret>y's recomm5dations = /rategies to address rese>* & developm5t ( treatm5ts ( r>e diseases or conditions t disproportionately impact m9ority populations4 #aj4 ,tribal epidemiology c5t] grant program ,title ,,ii ( ! ,indian ,heal? ,c>e ,improvem5t ,act 7#be ,u4,s4,c4 #afba et seq47 is am5d$ by add+ at ! end ! foll[+3 #bbg4 ,tribal epidemiology c5t] grant program 7a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,s]vice1 %all aw>d grants to ,tribal ,epidemiology ,c5t]s & ,tribal & ,urban ,indian ,heal? ,c5t]s to support cl9ically & culturally appropriate rese>* & o!r activities ) respect to r>e diseases & conditions 9 ,native ,am]ican or ,tribal communities4 7b7 ,p]missible activities ,! activities fund$ ?r\gh a grant "u subsection 7a7 may include coord9ation ( data collection on ! prev5tion1 diagnosis1 treatm5t1 & c>e ( r>e diseases & conditions by heal? c>e pr(essionals s]v+ ,am]ican ,indian & ,alaska ,native populations4 4 #aa4 ,m$ic>e review & report ,n lat] ?an #ahj days aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vice %all conduct a review ( & submit to ,congress a report on ! foll[+3 7#a7 ,regulatory b>ri]s "u ! ,m$ic>e program "u title ,,xviii ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acie et seq47 t inhibit access to ! treatm5t ( r>e diseases = ,m$ic>e b5efici>ies ( color1 includ+ b>ri]s t inhibit heal? c>e provid]s f improv+ c>e relat$ to su* diseases = su* b5efici>ies4 7#b7 ,requirem5ts relat+ to ! furni%+ ( teleheal? s]vices "u su* title ins(> z su* s]vices relate to ! treatm5t ( r>e diseases4 ,su* report %all include any recomm5dations det]m9$ appropriate by ! ,secret>y bas$ on su* review4