,i  #aai? ,,congress  #b;d ,session  ,h4
 ,r4 #ajcgj  ,,9 ,,! ,,h\se ,,(         
,,repres5tatives  ,septemb] #ad1        
#bjbf,mr4 ,mc,caul 7= himself1 ,mr4     
,b]a1 & ,mr4 ,kelly ( ,p5nsylvania7     
introduc$ ! foll[+ bill2 :i* 0 ref]r$ to
 ! ,committee on ,en]gy & ,comm]ce  ,a  
,,bill  ,to bett] coord9ate ,f$]al ef=ts
 to utilize advance te*nologies1 su* z  
artificial intellig5ce1 to improve      
diagnoses1 treatm5ts1 cures1 & prev5tion
 /rategies = p$iatric canc]1 & = o!r    
purposes4  #a4 ,%ort title2 table (     
cont5ts  7a7 ,%ort title ,?is ,act may  
be cit$ z ! ,ailani ,my]s ,accel]at+    
,innovation 9 ,m$ic9e to ,cure ,kids )  
,canc] ,act or ! ,ailani ,my]s ,,aim to 
,cure ,kids ) ,canc] ,act4  7b7 ,table (
 cont5ts ,! table ( cont5ts = ?is ,act  
is z foll[s3  ,sec4 #a4 ,%ort title2    
table ( cont5ts4 ,title ,i--,f$]al      
,gov]nm5t ,ef=ts ,sec4 #aja4            
,coord9ation ( ,f$]al ef=ts4 ,title     
,,ii--,dep>tm5t ( ,heal? & ,human       
,s]vices ,ef=ts ,sec4 #bja4 ,*ildhood   

canc] data initiative4 ,sec4 #bjb4      
,h>ness+ innovation 9 artificial        
intellig5ce4 ,sec4 #bjc4 ,improv+ ! data
 ecosy/em1 data %>+1 & emp[]+ pati5ts4  
,sec4 #bjd4 ,reports4 ,title            
,,iii--,g5]al ,provisions ,sec4 #cja4   
,def9itions4 ,sec4 #cjb4 ,privacy4 ,sec4
 #cjc4 ,au?orization ( appropriations4  
,sec4 #cjd4 ,rule ( con/ruction4  ,i    
,f$]al ,gov]nm5t ,ef=ts  #aja4          
,coord9ation ( ,f$]al ef=ts  7a7 ,9     
g5]al ,! ,presid5t %all designate an    
(fic] or employee ( ! ,f$]al ,gov]nm5t1 
or an (fice1 c\ncil1 or commission ( !  
executive bran*1 to coord9ate ,f$]al    
ef=ts to use advanc$ te*nologies1       
includ+ artificial intellig5ce1 to      
improve ! diagnosis1 treatm5t1 &        
prev5tion (1 & ! developm5t ( cures =1  
p$iatric canc]4 ,! (fic]1 employee1     
(fice1 c\ncil1 or commission s designat$
 %all be kn[n z ! ,coord9ator ( ,,ai    
,innovation 79 ?is ,act ref]r$ to z !   
,coord9ator74  7b7 ,notification ,n lat]
 ?an #cj days aft] mak+ a designation "u

 subsection 7a71 ! ,presid5t %all notify
 ! appropriate committees ( ,congress ( 
! designation4  7c7 ,duties ,!          
,coord9ator %all-- 7#a7 coord9ate &     
align ! activities ( relevant ,f$]al    
dep>tm5ts & ag5cies1 9 support ( !      
purposes specifi$ 9 subsection 7a71     
includ+--  7,a7 ! ,dep>tm5t ( ,heal? &  
,human ,s]vices1 & ! ag5cies & (fices   
!re(1 includ+-- 7i7 ! ,national         
,in/itutes ( ,heal?2  7ii7 ! ,food &    
,drug ,adm9i/ration2  7iii7 ! ,c5t]s =  
,m$ic>e  ,m$icaid ,s]vices2  7iv7 !     
,advanc$ ,rese>* ,projects ,ag5cy =     
,heal?2 &  7v7 ! ,(fice ( ! ,national   
,coord9ator = ,heal? ,in=mation         
,te*nology2  7,b7 ! ,dep>tm5t ( ,def5se1
 includ+ ! ,def5se ,heal? ,ag5cy & !    
,congressionally ,direct$ ,m$ical       
,rese>* ,programs2  7,c7 ! ,dep>tm5t (  
,en]gy2  7,d7 ! ,dep>tm5t ( ,vet]ans    
,affairs2  7,e7 ! ,national ,sci5ce     
,f\ndation2  7,f7 ! ,national ,in/itute 
( ,/&>ds & ,te*nology2  7,g7 ! ,(fice ( 
,sci5ce & ,te*nology ,policy2 &  7,h7   

su* o!r ,f$]al dep>tm5ts & ag5cies z !  
,coord9ator det]m9es appropriate2  7#b7 
facilitate1 ) respect to ! ,f$]al ef=ts 
relat+ to p$iatric canc] specifi$ 9     
subsection 7a71 int]ag5cy coord9ation & 
collaboration among ,f$]al & non-,f$]al 
entities1 su* z pati5ts1 survivors1     
families1 c>egiv]s1 rese>*]s1 & entities
 fund+ rese>* on p$iatric canc]2  7#c7  
align ,f$]al data & artificial          
intellig5ce policies affect+ p$iatric   
canc] rese>* & c>e2  7#d7 consult ) !   
,director ( ! ,national ,canc] ,in/itute
 on matt]s affect+ ! ,,ccdi2 &  7#e7    
support ! ,f$]al activities t advance ! 
purposes ( ?is ,act1 includ+ !          
activities ( ! ,,ccdi4  ,,ii ,dep>tm5t (
 ,heal? & ,human ,s]vices ,ef=ts  #bja4 
,*ildhood canc] data initiative  7a7 ,9 
g5]al ,! ,,nci ,director %all c>ry out !
 ,,ccdi to collect1 g5]ate1 /&>dize1    
l9k1 & %>e data ) respect to individuals
 :o are diagnos$ ) canc] z a *ild1      
adolesc5t1 or "y adult1 reg>dless ( !   
age ( ! individual on ! date su* data is

 collect$1 reg>dless ( :]e su*          
individual receives c>e1 9 ord] to      
improve outcomes = individuals ) su*    
canc]s1 includ+ ) respect to prev5tion1 
diagnosis1 treatm5t1 quality ( life1 &  
survivor%ip4  7b7 ,compon5ts ,9 c>ry+   
out subsection 7a71 ! ,,nci ,director-- 
7#a7 %all support1 at a m9imum--  7,a7  
molecul> *>act]ization ( p$iatric       
canc]s1 includ+ ?r\gh ! initiative kn[n 
z ! ,molecul> ,*>act]ization ,initiative
 ( ! ,,ccdi1 & ! %>+ ( ! results ( su*  
*>act]ization to in=m diagnosis &       
treatm5t2  7,b7 ! g5]ation1 analysis1 & 
%>+ ( data produc$ by non-invasive      
cl9ically validat$ te*nologies1 s(tw>e1 
& artificial intellig5ce tools1 includ+ 
molecul> te/+ & functional precision    
m$ic9e approa*es1 to in=m diagnosis &   
treatm5t2  7,c7 data plat=ms1 catalogs1 
& tools t enable rese>*]s & cl9icians to
 f9d1 access1 integrate1 analyze1 & %>e 
p$iatric canc] data1 includ+ ! network (
 su* plat=ms & tools kn[n z ! ,,ccdi    
,data ,ecosy/em2  7,d7 ! collection &   

/udy ( data on p$iatric canc]s1 includ+ 
r>e p$iatric canc]s2  7,e7 ! aggregation
 & l9kage ( cl9ical1 rese>*1 &          
population-bas$ data = second>y use1    
includ+ ?r\gh ! regi/ry kn[n z !        
,national ,*ildhood ,canc] ,regi/ry2 &  
7,f7 ! developm5t ( data /&>ds &        
infra/ructure necess>y to c>ry out      
subp>agraphs 7,a7 ?r\gh 7,d72 &  7#b7   
may support su* o!r activities z ! ,,nci
 ,director det]m9es appropriate to c>ry 
out subsection 7a74  7c7 ,director ( !  
,,ccdi ,! ,secret>y1 on ! recomm5dation 
( ! ,,nci ,director1 %all designate a   
,director ( ! ,*ildhood ,canc] ,data    
,initiative 79 ?is ,act ref]r$ to z !   
,,ccdi ,director71 :o %all--  7#a7 be an
 individual ) demon/rat$ sci5tific      
exp]tise 9 p$iatric oncology1 biom$ical 
data sci5ce1 or a relat$ field2  7#b7   
provide sci5tific & programmatic        
lead]%ip = ! ,,ccdi1 includ+ ! compon5ts
 describ$ 9 subsection 7b7 & !          
artificial intellig5ce activities       
describ$ 9 section #bjb2  7#c7 coord9ate

 ! activities ( ! ,,ccdi ) o!r ,f$]al   
dep>tm5ts & ag5cies & ) non-,f$]al      
p>tn]s2 &  7#d7 report to ! ,,nci       
,director4  #bjb4 ,h>ness+ innovation 9 
artificial intellig5ce  7a7 ,9 g5]al ,! 
,,nci ,director %all support1 9         
coord9ation ) ! ,coord9ator1 !          
developm5t & application ( artificial   
intellig5ce to accel]ate progress 9     
p$iatric canc] rese>* & c>e1 includ+    
?r\gh ! ,,ccdi4  7b7 ,data read9ess ,9  
c>ry+ out subsection 7a71 ! ,,nci       
,director %all--  7#a7 exp& & improve ! 
artificial intellig5ce read9ess ( ! data
 plat=ms & tools ( ! ,,ccdi ,data       
,ecosy/em2  7#b7 consolidate & h>monize 
data f multiple s\rces to enable su*    
data to be analyz$ us+ artificial       
intellig5ce2 &  7#c7 develop data /&>ds 
& te*nical approa*es necess>y = ! use ( 
artificial intellig5ce ) ! data describ$
 9 p>agraphs 7#a7 & 7#b74  7c7 ,rese>* &
 analysis ,9 c>ry+ out subsection 7a71 !
 ,,nci ,director %all support rese>* on 
p$iatric canc] us+ artificial           

intellig5ce--  7#a7 to improve pr$ictive
 model+ ( pati5t response1 disease      
progression1 & treatm5t toxicity2  7#b7 
to d]ive novel diagno/ic1 progno/ic1 &  
!rapeutic biom>k]s f molecul> & imag+   
data2 &  7#c7 to c>ry out rese>*        
projects1 includ+ projects c>ri$ out at 
canc] c5t]s designat$ by ! ,national    
,canc] ,in/itute4  7d7 ,cl9ical trials  
,9 c>ry+ out subsection 7a71 ! ,secret>y
 %all support ! use ( multimodal data & 
artificial intellig5ce to improve !     
design1 p>ticipant recruitm5t &         
selection1 adm9i/ration1 conduct1 &     
int]pretation ( cl9ical trials = m$ical 
products int5d$ to diagnose1 treat1     
prev5t1 or cure p$iatric canc]4  7e7    
,relation%ip to ,,ccdi compon5ts        
,activities "u ?is section %all         
supplem5t1 & n supplant1 ! compon5ts    
describ$ 9 section #bja7;b74  7f7       
,dissem9ation ,! ,secret>y %all make    
me?ods1 tools1 data /&>ds1 & te*nical   
approa*es develop$ "u ?is section       
available to o!r programs ( ! ,national 

,canc] ,in/itute1 to o!r ,f$]al         
dep>tm5ts & ag5cies1 &1 z appropriate1  
to ! public4  #bjc4  ,improv+ ! data    
ecosy/em1 data %>+1 & emp[]+ pati5ts    
7a7  ,integration ( artificial          
intellig5ce into int]op]ability  ,!     
,secret>y ( ,heal? & ,human ,s]vices1   
act+ ?r\gh ! ,national ,coord9ator =    
,heal? ,in=mation ,te*nology1 %all      
ensure t artificial intellig5ce is      
appropriately integrat$ into            
int]op]ability activities c>ri$ out "u  
title ,,xxx ( ! ,public ,heal? ,s]vice  
,act 7#db ,u4,s4,c4 #cjj;jj et seq471 9 
ord] to improve ! pot5tial = electronic 
heal? record & claims data to in=m      
private sector & academic rese>* &      
cl9ical trial design1 :ile ensur+ !     
privacy ( individually id5tifiable heal?
 in=mation 9 accordance ) regulations   
promulgat$ "u section #bfd7;c7 ( !      
,heal? ,insurance ,portability &        
,acc\ntability ,act ( #aiif 7#db        
,u4,s4,c4 #acbj;d-#b note74  7b7        
,int]op]ability /&>ds  ,n lat] ?an #b   

ye>s aft] ! date ( ! enactm5t ( ?is     
,act1 ! ,secret>y1 act+ ?r\gh !         
,national ,coord9ator = ,heal?          
,in=mation ,te*nology1 %all f9alize     
int]op]ability /&>ds = pati5t data to be
 us$ ) artificial intellig5ce t--  7#a7 
appropriately acc\nt = /ructur$ &       
un/ructur$ data2  7#b7 enable safe &    
privacy-compliant ex*anges ( data2 &    
7#c7 acc\nt = ! ne$s ( p$iatric pati5ts1
 includ+ p$iatric canc] pati5ts1 z a    
priority use case4  7c7  ,applicability 
,! /&>ds f9aliz$ "u subsection 7b7 %all 
be develop$ = application ?r\gh\t !     
,dep>tm5t ( ,heal? & ,human ,s]vices &  
%all n be limit$ 9 application to !     
,,ccdi or to ! ,national ,canc]         
,in/itute4  7d7  ,consultation & pati5t 
engagem5t  ,9 c>ry+ out ?is section1 !  
,secret>y1 act+ ?r\gh ! ,national       
,coord9ator = ,heal? ,in=mation         
,te*nology1 %all--  7#a7 consult ) !    
,director1 ! ,,ccdi ,director1 pati5ts &
 _! families1 heal? c>e provid]s1       
rese>*]s1 & develop]s ( heal? in=mation 

te*nology2  7#b7 coord9ate ) ! pati5t   
community to ensure transp>5cy & to     
e/abli% me*anisms = ! %>+ ( data2 &     
7#c7 id5tify exi/+ b>ri]s to p$iatric   
data %>+ & int]op]ability1 9 coord9ation
 ) ! /akehold] community1 & make        
recomm5dations to address su* b>ri]s4   
#bjd4 ,reports  7a7 ,int]im report ,n   
lat] ?an #ahj days aft] ! date ( !      
enactm5t ( ?is ,act1 ! ,secret>y (      
,heal? & ,human ,s]vices %all submit to 
! appropriate committees ( ,congress a  
report t-- 7#a7 describes ! progress    
made 9 implem5t+ ?is title2  7#b7       
includes any int]im f9d+s ( ! ,secret>y 
) respect to t implem5tation2 &  7#c7   
id5tifies any b>ri]s to t implem5tation4
  7b7 ,annual reports ,n lat] ?an #a ye>
 aft] ! date ( ! enactm5t ( ?is ,act1 & 
annually !reaft] ?r\gh fiscal ye> #bjca1
 ! ,secret>y ( ,heal? & ,human ,s]vices 
%all submit to ! appropriate committees 
( ,congress a report t includes-- 7#a7 a
 description ( ! activities c>ri$ out "u
 ?is title1 includ+ ea* compon5t        

describ$ 9 section #bja7;b7 & !         
artificial intellig5ce activities       
describ$ 9 section #bjb2  7#b7 ! am\nts 
exp5d$ on su* activities2  7#c7 progress
 on data %>+1 int]op]ability1 & privacy 
protections1 includ+ ! /atus ( !        
int]op]ability /&>ds requir$ "u section 
#bjc7;b72  7#d7 ! b>ri]s id5tifi$ 9     
section #bjc7;d77#c7 & ! recomm5dations 
made to address su* b>ri]s2 &  7#e7     
outcomes & measures ( progress ) respect
 to ! diagnosis1 treatm5t1 prev5tion1 or
 cure ( p$iatric canc]4  ,,iii ,g5]al   
,provisions  #cja4 ,def9itions ,9 ?is   
,act3 7#a7 ,appropriate committees (    
,congress ,! t]m appropriate committees 
( ,congress means--  7,a7 ! ,committee  
on ,en]gy & ,comm]ce ( ! ,h\se (        
,repres5tatives2  7,b7 ! ,committee on  
,sci5ce1 ,space1 & ,te*nology ( ! ,h\se 
( ,repres5tatives2  7,c7 ! ,committee on
 ,heal?1 ,education1 ,labor1 & ,p5sions 
( ! ,s5ate2 &  7,d7 ! ,committee on     
,comm]ce1 ,sci5ce1 & ,transportation ( !
 ,s5ate4  7#b7 ,artificial intellig5ce  

,! t]m artificial intellig5ce has !     
mean+ giv5 su* t]m 9 section #bch7;g7 ( 
! ,john ,s4 ,mc,cain ,national ,def5se  
,au?orization ,act = ,fiscal ,ye> #bjai 
7,public ,law #aae-bcb74  7#c7 ,,ccdi ,!
 t]m ,,ccdi means ! initiative kn[n z ! 
,*ildhood ,canc] ,data ,initiative4     
7#d7 ,,nci ,director ,! t]m ,,nci       
,director means ! ,director ( !         
,national ,canc] ,in/itute4  #cjb4      
,privacy ,activities "u ?is ,act %all be
 c>ri$ out 9 a mann] consi/5t )         
applicable ,f$]al & ,/ate laws relat+ to
 ! privacy ( pati5t in=mation1 includ+ !
 regulations promulgat$ "u section      
#bfd7;c7 ( ! ,heal? ,insurance          
,portability & ,acc\ntability ,act (    
#aiif 7#db ,u4,s4,c4 #acbj;d-#b note74  
#cjc4 ,au?orization ( appropriations    
7a7 ,9 g5]al ,!re are au?oriz$ to be    
appropriat$ to c>ry out ?is ,act1 o!r   
?an section #bja1 su* sums z may be     
necess>y = ea* ( fiscal ye>s #bjbg ?r\gh
 #bjca4  7b7 ,,ccdi ,9 addition to      
am\nts au?oriz$ to be appropriat$ "u    

subsection 7a71 !re are au?oriz$ to be  
appropriat$ to c>ry out section #bja    
#ajj1jjj1jjj = ea* ( fiscal ye>s #bjbg  
?r\gh #bjca4  #cjd4 ,rule ( con/ruction 
,no?+ 9 ?is ,act %all be con/ru$ to     
affect ! au?ority ( ! ,secret>y ( ,heal?
 & ,human ,s]vices or ! ,director ( !   
,national ,canc] ,in/itute "u any o!r   
provision ( ,f$]al law4