,,ii #aah? ,,congress #b;d ,session ,s4 #ecgh ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,novemb] #ba1 #bjbd,mr4 ,book] introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ,a ,,bill ,to e/abli% a grant program to facilitate nationwide accessibility & coord9ation ( #baa s]vices relat+ to developm5tal disabilities1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,enhanc+ ,access to ,support & ,em]g5cy ,s]vices = ,individuals ) ,developm5tal ,disabilities ?r\gh #baa or ! ,,ease ) #baa ,act4 #b4 ,grant program facilitat+ nationwide accessibility & coord9ation ( #baa s]vices relat+ to developm5tal disabilities 7a7 #baa grant program ,! ,secret>y ( ,heal? & ,human ,s]vices 7ref]r$ to 9 ?is ,act z ! ,secret>y71 %all c>ry out a program "u :i* ! ,secret>y aw>ds grants to improve ! capacity ( #baa s]vices to support individuals ) developm5tal disabilities4 7b7 ,applications 7#a7 ,9 g5]al ,an eligible entity desir+ a grant "u ?is section %all submit an application to ! ,secret>y at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require1 includ+ a description ( an advisory c\ncil t ! eligible entity w e/abli% = purposes ( advis+ on ! implem5tation & ov]sight ( ! eligible entity t w be support$ by ! grant4 7#b7 ,advisory c\ncil 7,a7 ,memb]s ,an advisory c\ncil describ$ 9 p>agraph 7#a7 %all be compris$ ( individuals select$ by ! eligible entity1 includ+-- 7i7 individuals ) developm5tal disabilities2 7ii7 family memb]s & c>egiv]s ( individuals ) developm5tal disabilities2 7iii7 repres5tatives ( /akehold] gr\ps ) exp]i5ce adm9i/]+ #baa s]vices1 su* z ,unit$ ,way ,worldwide2 & 7iv7 repres5tatives ( o!r relevant /akehold] gr\ps1 includ+ relevant nonpr(it & advocacy gr\ps su* z ,/ate developm5tal disabilities c\ncils1 c5t]s ( excell5ce on developm5tal disabilities ( in/itutions ( high] education1 protection & advocacy sy/ems1 c5t]s = indep5d5t liv+1 p>5t tra9+ & in=mation c5t]s1 & family-to-family heal? in=mation c5t]s4 7,b7 ,duties ,an advisory c\ncil describ$ 9 p>agraph 7#a7 %all advise ! eligible entity receiv+ ! grant ) respect to-- 7i7 develop+ tra9+ /&>ds = #baa speciali/s2 7ii7 compil+ reports requir$ "u subsection 7f71 & policy improvem5t recomm5dations2 7iii7 increas+ ! aw>5ess & effectiv5ess ( #baa s]vices 9 all communities ( ! area s]v$2 7iv7 develop+ accessible res\rce mat]ials & mak+ accessibility improvem5ts to phone1 text1 & o!r communication int]faces & sy/ems2 & 7v7 o!r appropriate topics4 7,c7 ,priority ,9 select+ memb]s = an advisory c\ncil describ$ 9 p>agraph 7#a71 an eligible entity %all prioritize select+ memb]s describ$ 9 subp>agraph 7,a77i74 7c7 ,use ( funds ,an eligible entity %all use am\nts aw>d$ "u ?is section to c>ry out any ( ! foll[+3 7#a7 ,e/abli%+1 improv+1 or ma9ta9+ ! #baa database ( ! eligible entity ) respect to developm5tal disability res\rces4 7#b7 ,hir+ & tra9+ #baa speciali/s to assi/ individuals ) developm5tal disabilities 9 navigat+ s]vices4 7#c7 ,develop+ & implem5t+ data collection protocols ensur+ t data is disaggregat$ by race & type ( disability4 7#d7 ,upgrad+ te*nology & data managem5t sy/ems to track & analyze s]vice ref]rals4 7#e7 ,conduct+ res\rce mapp+ to id5tify gaps 9 res\rces relat+ to developm5tal disabilities 9 ! area s]v$4 7#f7 ,conduct+ accessible outrea* & public aw>5ess campaigns t>get+ individuals ) developm5tal disabilities & _! families & c>egiv]s reg>d+ ! availability & use ( #baa s]vices = su* individuals1 families1 & c>egiv]s4 7d7 ,data collection ,! ,secret>y %all e/abli% data collection protocols = use by eligible entities 9 monitor+ ! use ( #baa s]vices by individuals ) developm5tal disabilities1 includ+ ) respect to ! collection (-- 7#a7 in=mation on ref]ral outcomes & b>ri]s enc\nt]$2 & 7#b7 disaggregat$ & deid5tifi$ data on race & type ( disability to id5tify disp>ities 9 s]vice access & quality4 7e7 ,te*nical assi/ance ,! ,secret>y1 9 consultation ) o!r applicable ,f$]al ag5cies1 %all-- 7#a7 aw>d #a or m grants to entities1 det]m9$ by ! ,secret>y to be qualifi$ = su* grants1 to e/abli% te*nical assi/ance c5t]s2 & 7#b7 "w 9 coord9ation ) ea* entity c>ry+ out su* a c5t] to provide te*nical assi/ance to recipi5ts ( aw>ds "u subsection 7a7 to facilitate ! plann+1 developm5t1 & implem5tation ( activities describ$ 9 subsection 7c74 7f7 ,recipi5t reports ,ea* recipi5t ( an aw>d "u ?is section %all submit an annual report to ! ,secret>y on activities c>ri$ out "u ?is section1 = ! duration ( ! aw>d4 7g7 ,report to ,congress ,n lat] ?an #a ye> aft] ! end ( ! grant program "u ?is section1 ! ,secret>y %all issue a report conta9+ in=mation reg>d+-- 7#a7 be/ practices = ,/ates desir+ to exp& _! #baa s]vices1 includ+ h[ to make ! s]vices m accessible2 7#b7 ! mo/ common ne$s relat+ to developm5tal disabilities = :i* individuals use #baa s]vices2 7#c7 h[ _m individuals & families are assi/$ by ! #baa s]vice helpl9es2 7#d7 ! demographics1 includ+ age1 race1 language1 & support ne$s1 ( individuals ) developm5tal disabilities utiliz+ ! #baa s]vice helpl9e1 or on ^: behalf su* helpl9e is utiliz$2 & 7#e7 be/ practices = e/abli%+ a res\rce database ) res\rces relat+ to developm5tal disabilities4 7h7 ,def9itions ,9 ?is section3 7#a7 #baa s]vice ,! t]m #baa s]vice means a s]vice provid+ resid5ts ) in=mation & ref]rals ) respect to heal? & human s]vices & o!r provid] ag5cies-- 7,a7 via voice telephone1 text telephone1 %ort message s]vice1 text1 int]net phone1 or o!r telecommunication me?ods2 or 7,b7 by utiliz+ ! #baa public-fac+1 onl9e social s]vice directory4 7#b7 ,developm5tal disability ,! t]m developm5tal disability has ! mean+ giv5 su* t]m 9 section #ajb ( ! ,developm5tal ,disabilities ,assi/ance & ,bill ( ,rights ,act ( #bjjj 7#db ,u4,s4,c4 #aejjb74 7#c7 ,eligible entity ,! t]m eligible entity means-- 7,a7 a ,/ate2 or 7,b7 a local or regional entity1 or o!r entity1 provid+ a #baa s]vice = a ,/ate4 7#d7 ,/ate ,! t]m ,/ate means ea* ( ! sev]al ,/ates ( ! ,unit$ ,/ates & ! ,di/rict ( ,columbia4 7i7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #ge1jjj1jjj = ea* ( fiscal ye>s #bjbe ?r\gh #bjbi4 #c4 ,developm5tal disability pe] & family navigator grant program 7a7 ,program au?oriz$ ,! ,secret>y %all c>ry out a program "u :i* ! ,secret>y aw>ds grants to eligible entities describ$ 9 subsection 7b71 to enable ! eligible entities to provide pe] or family navigators to help individuals ) developm5tal disabilities & families & c>egiv]s provid+ support = su* individuals to access s]vices & res\rces relat+ to developm5tal disabilities4 ,! navigators %all take a p]son-c5t]$ approa* 9 provid+ s]vices "u ?is section4 7b7 ,eligible entities ,an eligible entity describ$ 9 ?is subsection %all be a ,/ate1 ,tribal1 or local heal? or human s]vices dep>tm5t1 or a nonpr(it entity t is family-l$1 disabl$ pe]-l$1 or disabl$ family-/aff$4 7c7 ,application ,to be eligible to receive a grant "u ?is section1 an eligible entity %all submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require4 7d7 ,prioritization ,9 mak+ grants "u ?is section1 ! ,secret>y %all give priority to eligible entities t indicate 9 _! applications an int5tion to provide s]vices to und]s]v$ or und]repres5t$ communities or to second>y s*ools und]p]=m+ 9 provid+ transition plann+ describ$ 9 subsection 7e77#b74 7e7 ,use ( funds ,an eligible entity receiv+ a grant "u ?is section-- 7#a7 %all provide pe] or family navigators to help individuals ) developm5tal disabilities & families & c>etak]s provid+ s]vices or support = su* individuals to connect to1 & access1 appropriate res\rces & s]vices2 & 7#b7 may be us$ to coord9ate ) local educational ag5cies 7z def9$ 9 section #haja ( ! ,elem5t>y & ,second>y ,education ,act ( #aife 7#bj ,u4,s4,c4 #ghja77 = purposes ( transition plann+ ) respect to individuals ) developm5tal disabilities1 su* z plann+ =-- 7,a7 po/second>y education & employm5t2 7,b7 h\s+2 7,c7 legal & f9ancial matt]s 7su* z support$ decisions-mak+ & alt]natives to gu>dian%ip72 7,d7 use ( ,f$]al b5efit programs & eligibility2 7,e7 self-direction & self-advocacy2 7,f7 heal? & behavioral heal?1 includ+ home & community-bas$ s]vices2 7,g7 build+ & ma9ta9+ community ties & fri5d%ips2 7,h7 plann+ & vision+ a life c\rse2 & 7,i7 disa/] & em]g5cy prep>$ness & safety4 7f7 ,report ,an eligible entity t receives a grant "u ?is section %all1 n lat] ?an #a ye> aft] ! activities c>ri$ out "u ! grant are complet$1 submit to ! ,secret>y a report t conta9s data on h[ ! grant funds 7 us$4 7g7 ,developm5tal disability ,9 ?is section1 ! t]m developm5tal disability has ! mean+ giv5 su* t]m 9 section #b4 7h7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #ej1jjj1jjj = ea* ( fiscal ye>s #bjbe ?r\gh #bjbi4