,,ii  #aah? ,,congress  #b;d ,session   
,s4 #difd  ,,9 ,,! ,,s5ate ,,( ,,!      
,,unit$ ,,/ates  ,augu/ #a1 #bjbd,mr4   
,s&]s 7= himself1 ,ms4 ,duckwor?1 ,mr4  
,ka9e1 ,mr4 ,m>key1 ,ms4 ,smi?1 & ,mr4  
,wel*7 introduc$ ! foll[+ bill2 :i* 0   
read twice & ref]r$ to ! ,committee on  
,heal?1 ,education1 ,labor1 & ,p5sions  
,a ,,bill  ,to provide = a compreh5sive 
,f$]al response to ,long ,,covid1       
includ+ rese>*1 education1 & support =  
affect$ individuals1 to direct !        
,national ,in/itutes ( ,heal? to e/abli%
 a ,long ,,covid rese>* program1 & = o!r
 purposes4  #a4 ,%ort title ,?is ,act   
may be cit$ z ! ,long ,,covid ,rese>*   
,moon%ot ,act4  ,i ,long ,,covid        
,biom$ical ,rese>*  #aja4 ,e/abli%m5t ( 
,long ,,covid rese>* program ,title ,,iv
 ( ! ,public ,heal? ,s]vice ,act 7#db   
,u4,s4,c4 #bha et seq47 is am5d$ by add+
 at ! end ! foll[+3  ,k ,long ,,covid   
programs  #dii;,b4 ,e/abli%m5t ( ,long  
,,covid rese>* program  7a7 ,9 g5]al    
,!re is e/abli%$ )9 ! ,(fice ( !        

,director ( ! ,national ,in/itutes (    
,heal? a rese>* program1 to be kn[n z ! 
,long ,,covid ,rese>* ,program 7ref]r$  
to 9 ?is "p z ! ,program71 = purposes ( 
exp$it+ rese>* to id5tify new ways to   
prev5t1 detect1 manage1 & treat symptoms
 associat$ ) ,long ,,covid4  7b7        
,director  7#a7 ,appo9tm5t  7,a7 ,9     
g5]al ,! ,program %all be head$ by a    
,director1 appo9t$ by ! ,secret>y1 9    
consultation ) ! ,director ( ,,nih1 :o  
has-- 7i7 exp]i5ce manag+ cl9ical or    
rese>* programs focus$ on pa?og5ic      
me*anisms & biological pa?ways relat$ to
 ,long ,,covid2 &  7ii7 demon/rat$      
commitm5t to address+ ,long ,,covid &   
o!r infection-associat$ *ronic          
conditions1 su* z myalgic               
encephalomyelitis_/*ronic fatigue       
syndrome1 po/ural or?o/atic ta*yc>dia   
syndrome1 & po/-treatm5t ,lyme disease  
syndrome_/p]si/5t ,lyme disease4  7,b7  
,consultation ,9 appo9t+ ! ,director "u 
subp>agraph 7,a71 ! ,secret>y %all      
consult ) indep5d5t1 pati5t-l$          

organizations or advocacy gr\ps         
repres5t+ ,long ,,covid pati5ts & _!    
families4  7#b7 ,responsibilities ,!    
,director ( ! ,program %all-- 7,a7 act z
 ! prim>y ,f$]al (ficial )              
responsibility = coord9at+ all ,long    
,,covid rese>* conduct$ or support$ by !
 ,national ,in/itutes ( ,heal?2  7,b7   
repres5t ! ,national ,in/itutes ( ,heal?
 ,long ,,covid ,rese>* ,program at all  
relevant ,executive bran* task =ce      
meet+s & committees2 &  7,c7 ma9ta9     
communication ) all relevant ,f$]al     
dep>tm5ts & ag5cies to ensure ! timely  
transmission ( in=mation conc]n+        
advances 9 ,long ,,covid rese>* & !     
cl9ical treatm5t ( ,long ,,covid & o!r  
infection-associat$ *ronic conditions   
betwe5 su* dep>tm5ts & ag5cies1 & =     
dissem9ation to affect$ communities &   
heal? c>e provid]s4  7c7 ,activities ,! 
,program %all-- 7#a7 inve/igate !       
etiology1 pa?ophysiology1 risk factors1 
& pa?ology ( ,long ,,covid 9 adults &   
*ildr52  7#b7 explore ! be/ ways to     

prev5t1 detect1 monitor1 manage1 & treat
 ,long ,,covid 9 adults & *ildr52  7#c7 
contribute k to ! und]/&+1 prev5tion1   
mitigation1 managem5t1 & treatm5t (     
,long ,,covid2  7#d7 develop &          
facilitate programs on ,long ,,covid1 )9
 ! ,national ,in/itutes ( ,heal? & 9 o!r
 sett+s2  7#e7 conduct comp>ative rese>*
 to und]/& ! simil>ities & diff]5ces    
betwe5 ,long ,,covid & o!r              
infection-associat$ *ronic conditions ) 
simil> ph5otypes1 su* z myalgic         
encephalomyelitis_/*ronic fatigue       
syndrome1 po/ural or?o/atic ta*yc>dia   
syndrome1 & po/-treatm5t ,lyme disease  
syndrome_/p]si/5t ,lyme disease1 & h[   
activities fund$ by ! ,program c\ld     
improve und]/&+ ( su* o!r conditions2 & 
7#f7 conduct comp>ative rese>* to und]/&
 ! simil>ities & diff]5ces betwe5 ,long 
,,covid & sev]e1 long-t]m effects f     
,,covid-#ai vacc9ations4  7d7 ,duties   
7#a7 ,int]ag5cy coord9ation ( long covid
 activities ,! ,director ( ! ,program   
%all coord9ate ) ! national rese>*      

in/itutes & national c5t]s1 z           
appropriate1 on ,long ,,covid rese>*4 ,9
 c>ry+ out ?is p>agraph1 ! ,director ( !
 ,program %all evaluate ! ,long ,,covid 
activities ( ea* su* in/itute or c5t] & 
%all provide = ! p]iodic reevaluation ( 
su* activities4  7#b7 ,consultation ,!  
,director ( ! ,program %all c>ry out all
 duties1 includ+ ! developm5t ( ! rese>*
 plan "u section #dii;,b-#a 9           
consultation ) ! heads ( ! national     
rese>* in/itutes & national c5t]s1 ) !  
advisory c\ncils ( su* in/itutes &      
c5t]s1 & ) ! ,long ,,covid ,rese>*      
,program ,advisory ,bo>d e/abli%$ "u    
section #dii;,b-#d4  7e7                
,non-,duplication ( ef=t ,! ,director   
%all ensure t activities c>ri$ out "u   
?is section d n unnecess>ily duplicate !
 ef=ts ( o!r ,f$]al dep>tm5ts or        
ag5cies4  #dii;,b-#a4 ,long ,,covid     
,rese>* ,plan  7a7 ,9 g5]al ,n lat] ?an 
#a ye> aft] ! date ( enactm5t ( ! ,long 
,,covid ,rese>* ,moon%ot ,act1 !        
,director ( ! ,program e/abli%$ "u      

section #dii;,b %all develop & make     
public a compreh5sive rese>* plan = !   
conduct & support ( all ,long ,,covid   
rese>* activities ( ! national rese>*   
in/itutes & national c5t]s4 ,! ,director
 ( ! ,program %all update su* plan      
annually4  7b7 ,cont5ts ,! rese>* plan  
develop$ "u subsection 7a7 %all-- 7#a7  
id5tify curr5t ,long ,,covid rese>*     
conduct$ or support$ by ! national      
rese>* in/itutes & national c5t]s1      
opportunities & ne$s = additional       
rese>*1 includ+ among pati5ts :o face ! 
highe/ disease burd5 & p$iatric pati5ts1
 & priorities = su* rese>*2  7#b7       
evaluate ! progress ( ,long ,,covid     
rese>* aga9/ /rategic priorities1 goals1
 & objectives1 id5tifi$ 9 previ\s       
v]sions ( ! rese>* plan2  7#c7 make     
recomm5dations = ! coord9ation ( su*    
rese>* conduct$ or support$ by !        
,national ,in/itutes ( ,heal? & o!r     
ag5cies ( ! ,f$]al ,gov]nm5t2 &  7#d7   
include goals & objectives ( ! ,program 
= conduct+1 support+1 & coord9at+ ,long 

,,covid rese>*4  7c7 ,requirem5ts ,9    
develop+ ! rese>* plan "u subsection    
7a71 ! ,director ( ! ,program %all--    
7#a7 ensure t ! plan e/abli%es          
priorities among ,long ,,covid rese>* t 
! ,program is au?oriz$ to c>ry out2     
7#b7 ensure t ! plan e/abli%es          
objectives reg>d+ su* rese>* & describes
 ! means = a*iev+ ! objectives2  7#c7   
ensure t all am\nts appropriat$ = su*   
rese>* "u section #dii;,b-#f are exp5d$ 
9 accordance ) ! plan2  7#d7 review !   
plan n less frequ5tly ?an annually1 &   
revise ! plan z appropriate to          
prioritize fund+ & rese>* relative to   
sci5tific urg5cy2  7#e7 ensure t ! plan 
s]ves z a broad1 b9d+ /atem5t ( policies
 reg>d+ ,long ,,covid rese>* ( !        
,national ,in/itutes ( ,heal?1 b does n 
affect ! responsibility ( any ( !       
national rese>* in/itutes or c5t]s )    
respect to ! programs or projects ( su* 
in/itutes & c5t]s2 &  7#f7 annually     
prep>e & submit to ! ,director ( ,,nih =
 review & transmittal by ! ,director (  

,,nih to ! ,presid5t & to ,congress a   
budget e/imate = c>ry+ out ! plan = !   
upcom+ fiscal ye>4  7d7 ,consultation ,9
 develop+1 implem5t+1 review+1 &        
prioritiz+ elem5ts ( ! rese>* plan "u   
?is section1 ! ,director ( ! ,program   
%all consult1 z appropriate )-- 7#a7    
repres5tatives ( o!r ,f$]al ag5cies     
involv$ 9 ,long ,,covid rese>*1 includ+ 
! ,c5t]s = ,disease ,control &          
,prev5tion1 ! ,ag5cy = ,heal?c>e ,rese>*
 & ,quality1 & ! ,adm9i/ration =        
,community ,liv+2  7#b7 ! ,long ,,covid 
,rese>* ,advisory ,bo>d e/abli%$ "u     
section #dii;,b-#d2  7#c7 ! ,(fice (    
,long ,,covid ,rese>* & ,practice ( !   
,dep>tm5t ( ,heal? & ,human ,s]vices2   
7#d7 lead+ sci5tific exp]ts on ,long    
,,covid2 &  7#e7 indep5d5t1 pati5t-l$   
organizations or advocacy gr\ps         
repres5t+ pati5ts ) ,long ,,covid & o!r 
infection-associat$ *ronic conditions ) 
simil> ph5otypes1 & ! families ( su*    
pati5ts4  7e7 ,report ,! ,director ( !  
,program %all submit ! rese>* plan      

develop$ "u subsection 7a71 & updates to
 su* plan1 to-- 7#a7 ! ,committee on    
,heal?1 ,education1 ,labor1 & ,p5sions (
 ! ,s5ate2  7#b7 ! ,committee on ,en]gy 
& ,comm]ce ( ! ,h\se ( ,repres5tatives2 
7#c7 ! ,secret>y2  7#d7 ! ,(fice ( ,long
 ,,covid ,rese>* & ,practice ( !        
,dep>tm5t ( ,heal? & ,human ,s]vices2 & 
7#e7 ! ,director ( ,,nih1 :o %all po/ ! 
plan1 & updates to ! plan1 on ! website 
( ! ,national ,in/itutes ( ,heal?4      
#dii;,b-#b4 ,exp$it$ ,long ,,covid      
rese>*  7a7 ,9 g5]al ,! ,director (     
,,nih %all e/abli% a process to exp$ite 
! aw>d ( grants1 contracts1 & coop]ative
 agreem5ts = rese>* projects conduct$ or
 support$ by ! ,national ,in/itutes (   
,heal? & relat+ to ,long ,,covid4  7b7  
,requirem5ts = mak+ ext]nal fund+       
available ,) respect to programs (      
grants1 contracts1 & coop]ative         
agreem5ts describ$ 9 subsection 7a71 !  
,director ( ,,nih %all-- 7#a7 make      
publicly available ! deadl9es = submitt+
 applications = su* programs1 & ensure t

 su* deadl9es provide applicants )      
suffici5t "t f ! date ( ! ann\ncem5t =  
su* grant1 contract1 & coop]ative       
agreem5t to submit an application2  7#b7
 ensure t applicants receive a f9al     
decision on _! applications )9 #abj days
 ( submission2 &  7#c7 ) respect to     
applications t are d5i$1 provide a      
writt5 explanation to ! applicant on !  
reasons = ! d5ial4  7c7 ,evaluation (   
,grant ,applications ,9 mak+ a          
det]m9ation to aw>d a grant1 contract1 &
 coop]ative agreem5t = rese>* projects  
describ$ 9 subsection 7a71 ! ,director (
 ,,nih %all-- 7#a7 give priority to     
rese>* t-- 7,a7 te/s ! outcomes ( exi/+ 
drug & device int]v5tions 9 pati5ts )   
,long ,,covid2  7,b7 focuses on id5tify+
 int]v5tions = p$iatric pati5ts ) ,long 
,,covid2  7,c7 aids 9 ! developm5t ( new
 int]v5tions t h evid5ce to sugge/      
effectiv5ess 9 treat+ or cur+ ,long     
,,covid2 or  7,d7 includes in/itutions t
 repres5t1 or h a successful track      
record ( provid+ equitable c>e or       

s]vices to1 hi/orically und]s]v$        
communities2  7#b7 consid] rese>* t has 
! ability to beg9 int]v5tions 9 a timely
 mann]2  7#c7 consid] rese>* t uses     
dec5traliz$ trials or remote monitor+   
te*niques = data collection2 &  7#d7    
consid] rese>* t includes pati5ts ) o!r 
infection-associat$ *ronic conditions ) 
simil> ph5otypes1 su* z myalgic         
encephalomyelitis_/*ronic fatigue       
syndrome1 po/ural or?o/atic ta*yc>dia   
syndrome1 & po/-treatm5t ,lyme disease  
syndrome_/p]si/5t ,lyme disease4  7d7   
,reasonable pric+ ,9 aw>d+ contracts1   
grants1 & coop]ative agreem5ts = rese>* 
projects describ$ 9 subsection 7a7 t    
relates to ! developm5t ( a drug or     
device = ! pot5tial treatm5t or         
managem5t ( ,long ,,covid1 or id5tify+ a
 new indication or use specific to !    
treatm5t or managem5t ( ,long ,,covid 9 
a drug or device t is already approv$ or
 cle>$ by ! ,food & ,drug ,adm9i/ration1
 ! ,director ( ,,nih %all include t]ms &
 conditions requir+ t ! price ( su* a   

drug or device = purposes ( procurem5t  
by ! ,f$]al ,gov]nm5t or if sold on !   
comm]cial m>ket1 :e!r procur$ f1 or sold
 by1 ! recipi5t ( su* ,f$]al aw>d or    
ano!r p]son-- 7#a7 is fair & reasonable1
 tak+ into acc\nt-- 7,a7 ! value ( !    
drug & device to ! public heal?1 includ+
 ! impact ( ! price on access to ! drug 
or device2  7,b7 ! co/s incurr$ by !    
,f$]al ,gov]nm5t 9 rese>* & developm5t (
 ! drug or device2  7,c7 ! co/s incurr$ 
by ! recipi5t ( ! aw>d 9 rese>* &       
developm5t ( ! drug or device1 & ! co/s 
( manufactur+ su* drug or device2  7,d7 
:e!r ! drug or device provid$ a         
significant improvem5t 9 heal? outcomes1
 comp>$ to o!r !rapies available at ! "t
 ( its approval or au?orization2  7,e7 !
 cumulative expect$ global rev5ues      
g5]at$ by ! drug or device2 &  7,f7 o!r 
factors1 z ! ,secret>y det]m9es         
appropriate2 &  7#b7 does n exce$ ! l[e/
 price *>g$ = su* drug or device1 among 
,canada1 ,france1 ,g]many1 ,italy1      
,japan1 & ! ,unit$ ,k+dom4  7e7         

,consultation ,9 mak+ a det]m9ation to  
aw>d a grant1 contract1 or coop]ative   
agreem5t = rese>* projects relat+ to    
,long ,,covid1 ! ,director ( ,,nih %all 
consult ) ! ,long ,,covid ,rese>*       
,advisory ,bo>d4 ,memb]s ( ! ,long      
,,covid ,rese>* ,advisory ,bo>d %all    
provide a recomm5dation on any f9al     
fund+ decisions4 ,if ! ,director ( ,,nih
 makes a decision t is diff]5t ?an !    
recomm5dation1 ! ,director ( ,,nih %all 
provide a writt5 ju/ification = !       
decision )9 #e days4  #dii;,b-#c4       
,sci5tific ,review ,gr\p  7a7 ,9 g5]al  
,9 ord] to ensure high quality1 rigor\s 
sci5tific review ( applications =       
grants1 contracts1 & coop]ative         
agreem5ts describ$ 9 section            
#dii;,b-#b7;a71 consi/5t ) section #dib1
 ! ,director ( ,,nih %all e/abli% a     
sci5tific review gr\p on ,long ,,covid &
 o!r infection-associat$ *ronic         
conditions1 & %all conv5e a gr\p ( lead+
 sci5tific exp]ts to s]ve on su* gr\p1 =
 t]ms ( up to #e ye>s4  7b7 ,duties ,!  

sci5tific rese>* gr\p %all conduct an   
initial review ( applications = grants1 
contracts1 & o!r coop]ative agreem5ts   
describ$ 9 section #dii;,b-#b7;a71 &    
submit a fund+ recomm5dation to !       
,director ( ,,nih = f9al det]m9ation4   
#dii;,b-#d4 ,long ,,covid ,rese>*       
,program ,advisory ,bo>d  7a7 ,9 g5]al  
,! ,director ( ,,nih %all e/abli% !     
,long ,,covid ,rese>* ,program ,advisory
 ,bo>d 7ref]r$ to 9 ?is section z !     
,advisory ,bo>d74  7b7 ,memb]%ip  7#a7  
,9 g5]al ,! ,advisory ,bo>d %all be     
compris$ ( #ah memb]s1 includ+ appo9t$  
memb]s & nonvot+ ex (ficio memb]s1 z    
foll[s3 7,a7 ,! ,secret>y %all conduct a
 nom9ation process t all[s = public     
input on nom9ees4 ,! ,secret>y %all     
appo9t nom9at$ individuals1 giv+        
p>ticul> consid]ation to individuals f  
backgr\nds t repres5t ! div]sity ( !    
,long ,,covid population1 ) an emphasis 
on pati5ts :o face ! highe/ disease     
burd54 ,individuals s appo9t$ %all      
include ! foll[+3 7i7 #aj memb]s :o are 

sci5ti/s1 physicians1 & o!r heal? c>e   
pr(essionals1 :o are n (fic]s or        
employees ( ! ,f$]al ,gov]nm5t1 & :o h  
prim>y exp]tise 9 ,long ,,covid & o!r   
infection-associat$ *ronic conditions1 )
 consid]ation giv5 to su* individuals ) 
exp]tise 9 p$iatric populations4  7ii7  
#e memb]s :o live ) ,long ,,covid4      
7iii7 #a memb] :o is a c>egiv] to an    
individual ) ,long ,,covid4  7iv7 #b    
memb]s :o are employ$ by ! ,national    
,in/itutes ( ,heal? & h exp]tise 9 ,long
 ,,covid rese>*4  7,b7 ,! foll[+ %all be
 ex (ficio memb]s ( ! ,advisory ,bo>d3  
7i7 ,a repres5tative ( ! ,long ,,covid  
,rese>* ,program e/abli%$ "u section    
#dii4  7ii7 ,a repres5tative ( !        
,national ,in/itutes ( ,heal?4  7iii7 ,a
 repres5tative ( ! ,national ,in/itutes 
( ,neurological ,disord]s & ,/roke4     
7iv7 ,a repres5tative ( ! ,national     
,he>t1 ,lung1 & ,blood ,in/itute4  7v7  
,a repres5tative ( ! ,national ,in/itute
 ( ,all]gy & ,infecti\s ,diseases4  7vi7
 ,a repres5tative ( ! ,(fice ( !        

,assi/ant ,secret>y = ,heal?4  7vii7 ,a 
repres5tative ( ! ,c5t]s = ,disease     
,control & ,prev5tion4  7viii7 ,a       
repres5tative ( ! ,adm9i/ration =       
,community ,liv+4  7ix7 ,a repres5tative
 ( ! ,ag5cy = ,heal?c>e ,rese>* &       
,quality4  7x7 ,repres5tatives ( any o!r
 ag5cy or (fice ( ! ,dep>tm5t ( ,heal? &
 ,human ,s]vices t ! ,secret>y det]m9es 
appropriate = ! ,advisory ,bo>d to c>ry 
out its function4  7#b7 ,engagem5t )    
organizations ,9 appo9t+ individuals to 
! ,advisory ,bo>d1 ! ,secret>y %all     
engage ) lead+ sci5tific exp]ts on ,long
 ,,covid & indep5d5t1 pati5t-l$         
organizations ( advocacy gr\ps repres5t+
 ,long ,,covid pati5ts4  7c7            
,comp5sation ,ex (ficio memb]s ( !      
,advisory ,bo>d :o are (fic]s or        
employees ( ! ,f$]al ,gov]nm5t %all n   
receive any comp5sation = s]vice on !   
,advisory ,bo>d4 ,non-,f$]al memb]s ( ! 
,advisory ,bo>d may receive1 = ea* day  
7includ+ travel "t7 !y are engag$ 9 !   
p]=mance ( ! functions ( ! advisory     

committee1 comp5sation at rates n to    
exce$ ! daily equival5t to ! annual rate
 ( basic pay = level ,,iii ( !          
,executive ,s*$ule "u section #ecad (   
title #e1 ,unit$ ,/ates ,code4  7d7     
,t]ms ,! t]m ( (fice ( an appo9t$ memb] 
( ! ,advisory ,bo>d is #e ye>s4 ,any    
memb] appo9t$ to fill a vacancy = an    
unexpir$ t]m %all be appo9t$ = ! rema9d]
 ( su* t]m4 ,a memb] may s]ve aft] !    
expiration ( ! memb]'s t]m until a      
successor has tak5 (fice4 ,if a vacancy 
occurs 9 ! ,advisory ,bo>d1 ! ,secret>y 
%all make an appo9tm5t to fill ! vacancy
 n lat] ?an #fj days f ! date ! vacancy 
occurr$4  7e7 ,*air ,! memb]s ( !       
,advisory ,bo>d %all select a *air f    
among ! appo9t$ memb]s4 ,! t]m ( !      
,(fice ( ,*air %all be #b ye>s4  7f7    
,meet+s  7#a7 ,9 g5]al ,! ,advisory     
,bo>d %all meet at ! call ( ! *airman or
 ^u reque/ ( ! ,director ( ! ,program   
e/abli%$ "u section #dii;,b1 b n less   
(t5 ?an mon?ly 9 ! fir/ ye> aft]        
e/abli%m5t1 !n n less (t5 ?an #f times a

 ye> = ea* subsequ5t ye>4 ,! meet+s ( ! 
,advisory ,bo>d may be held virtually4  
7#b7 ,purpose ,( ! meet+s held1 "o or m 
%all be held to address rese>*          
priorities ( ! ,national ,in/itutes (   
,heal? relat+ to ,long ,,covid4  7#c7   
,publication ( summ>y ,= ea* meet+ held1
 ! ,director ( ,,nih %all po/ on !      
website ( ! ,national ,in/itutes (      
,heal? a summ>y ( ! proce$+s4  7g7      
,duties ,! ,advisory ,bo>d %all1 subject
 to ! direction & sup]vision ( !        
,director ( ,,nih-- 7#a7 review1        
approve1 & evaluate ! implem5tation ( ! 
rese>* plan issu$ "u section #dii;,b-#a1
 & advise 9 updat+ ! plan2  7#b7 provide
 guidance to ! ,director ( ! ,program   
e/abli%$ "u section #dii;,b ) respect to
 appropriate rese>* activities to be    
und]tak5 reg>d+ ! cl9ical treatm5t (    
,long ,,covid1 :i* may include-- 7,a7   
rese>* on int]v5tions = prev5t+1 treat+1
 & und]/&+ ! me*anisms ( ,long ,,covid2 
7,b7 rese>* on ! effectiv5ess ( treat+  
,long ,,covid ) drugs t are n yet       

approv$ by ! ,food & ,drug ,adm9i/ration
 = ! treatm5t ( ,long ,,covid2  7,c7    
review+ ongo+ publicly- &               
privately-support$ rese>* on treatm5ts =
 ,long ,,covid2  7,d7 issue & make      
available to heal? c>e pr(essionals & ! 
public reports describ+ & evaluat+      
rese>* describ$ 9 subp>agraphs 7,a71    
7,b71 & 7,c72 &  7,e7 conv5e accessible 
meet+s = ! purpose ( det]m9+ !          
recomm5dations :i* may in=m developm5t (
 cl9ical guidel9es by heal? c>e provid] 
organizations2 &  7#c7 engage 9 o!r     
necess>y activities to contribute to !  
,national ,in/itutes ( ,heal?'s ov]all  
rese>* priorities relat$ to ,long       
,,covid1 & ensure acc\ntability1        
transp>5cy1 & communication ( results ( 
! ,program e/abli%$ "u section #dii;,b4 
4  #dii;,b-#e4 ,data sy/em & cle>+h\se  
on rese>* in=mation  7a7 ,data sy/em    
7#a7 ,9 g5]al ,! ,director ( ! ,national
 ,in/itutes ( ,heal?1 9 consultation ) !
 ,director ( ! ,program e/abli%$ "u     
section #dii;,b & ! ,director ( !       

,national ,libr>y ( ,m$ic9e %all        
e/abli%1 ma9ta91 & op]ate a data sy/em =
 ! collection1 /orage1 analysis1        
retrieval1 & timely dissem9ation (      
prim>y data reg>d+ rese>* on ,long      
,,covid t is conduct$ or support$ by !  
,program4 ,in=mation f ! data sy/em %all
 be available ?r\gh in=mation sy/ems    
available to heal? c>e pr(essionals &   
provid]s1 rese>*]s1 & memb]s ( ! public4
  7#b7 ,regi/ry  7,a7 ,9 g5]al ,! data  
sy/em e/abli%$ "u p>agraph 7#a7 %all    
include a regi/ry ( cl9ical trials (    
exp]im5tal treatm5ts t h be5 develop$ = 
rese>* on ,long ,,covid4 ,su* regi/ry   
%all include in=mation on pati5t        
eligibility crit]ia1 includ+ ! def9ition
 ( ,long ,,covid1 &1 z applicable1      
demographic in=mation1 includ+ sex1 age1
 disability /atus1 e?nicity1 & race1 & !
 location ( ! trial site or sites4  7,b7
 ,submission ( in=mation ,pr9cipal      
inve/igators ( trials describ$ 9        
subp>agraph 7,a7 %all provide su*       
in=mation to ! regi/ry n lat] ?an #cj   

days aft] public ann\ncem5t ( ! cl9ical 
trial4 ,once a trial has be5 complet$1 !
 pr9cipal inve/igator %all provide !    
regi/ry ) in=mation p]ta9+ to ! results1
 includ+ pot5tial toxicities or adv]se  
effects associat$ ) ! exp]im5tal        
treatm5t or treatm5ts evaluat$4  7,c7   
,public availability ,! regi/ry describ$
 9 ?is p>agraph %all be made available  
to rese>*]s & ! g5]al public1 9 a       
ma*9e-readable =mat4  7b7 ,cle>+h\se ,! 
,director ( ,,nih1 9 consultation ) !   
,director ( ! ,program & ) ! ,national  
,libr>y ( ,m$ic9e1 %all e/abli%1 ma9ta91
 & op]ate a program to provide in=mation
 on rese>* & prev5tion activities ( !   
national rese>* in/itutes t relate to   
rese>* on ,long ,,covid4  #dii;,b-#f4   
,appropriations ,= purposes ( c>ry+ out 
?is "p1 !re are appropriat$1 out (      
am\nts 9 ! ,treasury n o!rwise          
appropriat$1 #a1jjj1jjj1jjj = ea* (     
fiscal ye>s #bjbe ?r\gh #bjcd1 to rema9 
available until exp5d$4  4  ,,ii ,public
 ,heal? ,rese>*1 ,surveillance & ,relat$

 ,activities  #bja4 ,long ,,covid       
programs ,title ,,iii ( ! ,public ,heal?
 ,s]vice ,act 7#db ,u4,s4,c4 #bda et    
seq47 is am5d$ by add+ at ! end !       
foll[+3  ,x ,long ,,covid activities    
#cii,,pp4 ,public ,heal? ,surveillance (
 ,long ,,covid & infection-associat$    
*ronic conditions  7a7 ,9 g5]al ,!      
,secret>y1 act+ ?r\gh ! ,director ( !   
,c5t]s = ,disease ,control & ,prev5tion1
 %all e/abli% or cont9ue1 z applicable1 
surveillance activities to bett] und]/& 
! burd5 & sev]ity ( ,long ,,covid &     
relat$ infection-associat$ *ronic       
conditions1 ) specific consid]ation giv5
 to vuln]able populations1 su* z *ildr54
 ,9 c>ry+ out ?is section1 ! ,secret>y  
%all-- 7#a7 collect data on ! incid5ce1 
preval5ce1 & sev]ity ( ,long ,,covid &  
relat$ infection-associat$ *ronic       
conditions2  7#b7 monitor = ,long       
,,covid & ,long ,,covid-l conditions1 z 
appropriate1 to enable e>ly int]v5tion &
 id5tification ( factors associat$ )    
sev]ity ( symptoms2  7#c7 compile1 &    

make publicly available1 9 accessible   
=mats1 ,long ,,covid data collect$ "u   
p>agraph 7#a72  7#d7 develop &          
dissem9ate be/ practices = conduct+     
surveillance = ,/ate1 local1 & ,tribal  
public heal? (ficials1 & o!r relevant   
public heal? /akehold]s2  7#e7 provide  
te*nical assi/ance to int]national      
organizations1 z applicable1 reg>d+ !   
monitor+ ( ,long ,,covid2 &  7#f7       
conduct additional surveillance         
activities1 z ! ,secret>y det]m9es      
appropriate1 to bett] und]/& ! burd5 &  
sev]ity ( ,long ,,covid4  7b7           
,au?orization ( appropriations ,=       
purposes ( c>ry+ out ?is section1 !re   
are au?oriz$ to be appropriat$          
#cb1jjj1jjj = ea* ( fiscal ye>s #bjbe   
?r\gh #bjcd4  #cii,,pp-#a4 ,public heal?
 programm+  7a7 ,9 g5]al ,! ,secret>y1  
act+ ?r\gh ! ,director ( ! ,c5t]s =     
,disease ,control & ,prev5tion1 %all    
make grants to ,/ate1 local1 & ,tribal  
heal? dep>tm5ts = ! purpose ( c>ry+ out 
activities relat$ to ,long ,,covid4  7b7

 ,use ( funds ,a ,/ate1 local1 or       
,tribal heal? dep>tm5t t receives a     
grant "u subsection 7a7 may use funds   
receiv$ ?r\gh su* grant to-- 7#a7       
provide tra9+ on ! id5tification ( ,long
 ,,covid to cl9icians1 public heal?     
exp]ts1 & o!r relevant heal? c>e        
pr(essionals2  7#b7 l9k individuals )   
,long ,,covid to c>e1 z appropriate &   
applicable2  7#c7 support ! developm5t &
 dissem9ation ( public in=mation &      
educational mat]ials on ,long ,,covid1  
includ+ mat]ials to address mis9=mation 
& dis9=mation2  7#d7 support laboratory 
capacity = scre5+ & diagnosis ( ,long   
,,covid & associat$ symptoms2 &  7#e7   
build1 ma9ta91 & su/a9                  
jurisdiction-level infra/ructure relat$ 
to prep>$ness = po/-infecti\s syndromes4
  7c7 ,au?orization ( appropriations ,= 
purposes ( c>ry+ out ?is section1 !re   
are au?oriz$ to be appropriat$          
#de1jjj1jjj = ea* ( fiscal ye>s #bjbe   
?r\gh #bjcd4  #cii,,pp-#b4 ,national    
public education campaign on ,long      

,,covid  7a7 ,9 g5]al ,! ,secret>y1 act+
 ?r\gh ! ,director ( ! ,c5t]s = ,disease
 ,control & ,prev5tion1 & 9             
collaboration ) national1 ,/ate1 local1 
& ,tribal public heal? p>tn]s1 %all     
develop a public education campaign =   
pati5ts1 families1 & c>egiv]s to educate
 & increase aw>5ess ab\t ,long ,,covid 9
 *ildr5 & adults4 ,su* campaign %all    
include in=mation on-- 7#a7 ! signs &   
symptoms ( ,long ,,covid2  7#b7 h[ to   
prev5t & seek treatm5t = ,long ,,covid2 
7#c7 self-managem5t tools & support     
s]vices2 &  7#d7 o!r topics1 z !        
,secret>y det]m9es appropriate4  7b7    
,consultation ,9 develop+ mat]ials = !  
campaign1 ! ,secret>y %all consult )    
indep5d5t1 pati5t-l$ organizations or   
advocacy gr\ps repres5t+ ,long ,,covid  
pati5ts & _! families & o!r relevant    
/akehold]s4  7c7 ,accessibility ,!      
public education campaign "u ?is section
 %all be made available 9 multiple      
languages1 includ+ ,am]ican ,sign       
,language4  7d7 ,au?orization (         

appropriations ,= purposes ( c>ry+ out  
?is section1 !re are au?oriz$ to be     
appropriat$ #ba1ejj1jjj = ea* ( fiscal  
ye>s #bjbe ?r\gh #bjbi4  #cii,,pp-#c4   
,provid] education  7a7 ,9 g5]al ,!     
,secret>y %all-- 7#a7 develop & make    
publicly available be/ practices =      
coord9at$1 multidiscipl9>y c>e =        
individuals ) ,long ,,covid2  7#b7      
develop1 update1 z appropriate1 & make  
publicly available cl9ical guidance &   
provid] education mat]ials1 includ+ =   
provid]s work+ ) p$iatric populations2 &
  7#c7 facilitate provid] education on  
,long ,,covid signs1 symptoms1          
ma9t5ance1 & treatm5t1 includ+ ?r\gh    
te*nology-enabl$ collaborative le>n+4   
7b7 ,au?orization ( appropriations ,= ! 
purpose ( c>ry+ out ?is section1 !re are
 au?oriz$ to be appropriat$ #c1jjj1jjj =
 ea* ( fiscal ye>s #bjbe ?r\gh #bjcd4  4
  #bjb4 ,rehabilitation ,rese>* & ,tra9+
 ,c5t] on ,long ,,covid among p )       
disabilities  7a7 ,9 g5]al ,section     
#bdj7;b77#b77;,c7 ( ! ,rehabilitation   

,act ( #aigc 7#bi ,u4,s4,c4             
#gfd7;b77#b77;,c77 is am5d$-- 7#a7 9    
clause 7v71 by /rik+ 2 & & ins]t+ a     
semicolon2  7#b7 9 clause 7vi71 by /rik+
 ! p]iod & ins]t+ 2 &2 &  7#c7 by add+  
at ! end ! foll[+3  7vii7 appli$ rese>* 
reg>d+ evid5ce-bas$ treatm5ts1 s]vices1 
& supports = individuals ) disabilities 
) ,long ,,covid or o!r                  
infection-associat$ *ronic conditions4  
4  7b7 ,au?orization ( appropriations   
,to c>ry out ! am5dm5t made by          
subsection 7b71 !re are au?oriz$ to be  
appropriat$ to ! ,director ( ! ,national
 ,in/itute on ,disability1 ,indep5d5t   
,liv+1 & ,rehabilitation ,rese>*1       
#aj1jjj1jjj = ! p]iod ( fiscal ye>s     
#bjbe ?r\gh #bjbi4  #bjc4 ,cl9ical      
outcomes assessm5ts  7a7 ,9 g5]al ,!    
,secret>y ( ,heal? & ,human ,s]vices1   
act+ ?r\gh ! ,commission] ( ,food &     
,drugs1 %all e/abli% or cont9ue !       
developm5t & validation ( cl9ical       
outcomes assessm5ts to support          
regulatory decision mak+ = drugs1       

includ+ biological products1 & devices  
us$ to treat ,long ,,covid4  7b7        
,au?orization ( appropriations ,=       
purposes ( c>ry+ out ?is section1 !re   
are au?oriz$ to be appropriat$          
#i1jjj1jjj = ea* ( fiscal ye>s #bjbe    
?r\gh #bjcd4  #bjd4 ,electronic report+ 
=m  7a7 ,9 g5]al ,! ,secret>y ( ,heal? &
 ,human ,s]vices1 act+ ?r\gh !          
,commission] ( ,food & ,drugs1 %all     
e/abli% or cont9ue ! developm5t1        
ref9em5t1 & ma9t5ance ( a ,long ,,covid 
electronic report+ =m = pati5ts to      
id5tify curr5t treatm5ts & treatm5ts "u 
developm5t = ,long ,,covid4  7b7        
,au?orization ( appropriations ,=       
purposes ( c>ry+ out ?is section1 !re   
are au?oriz$ to be appropriat$          
#af1fjj1jjj = ea* ( fiscal ye>s #bjbe   
?r\gh #bjcd4  #bje4 ,long ,,covid c>e   
network  7a7 ,9 g5]al ,! ,secret>y (    
,heal? & ,human ,s]vices1 act+ ?r\gh !  
,director ( ! ,ag5cy = ,heal?c>e ,rese>*
 & ,quality1 %all develop1 or cont9ue to
 support1 multidiscipl9>y ,long ,,covid 

cl9ics to provide access to             
compreh5sive1 coord9at$ c>e =           
individuals ) ,long ,,covid1 p>ticul>ly 
und]s]v$ populations t are              
disproportionately impact$ by ! effects 
( ,long ,,covid4  7b7 ,au?orizations (  
appropriations ,= purposes ( c>ry+ out  
?is section1 !re are au?oriz$ to be     
appropriat$ #aj1jjj1jjj = ea* ( fiscal  
ye>s #bjbe ?r\gh #bjcd4  #bjf4 ,rese>*  
on long covid be/ practices  7a7 ,9     
g5]al ,! ,secret>y ( ,heal? & ,human    
,s]vices1 9 coord9ation ) ! ,director ( 
! ,ag5cy = ,heal?c>e ,rese>* & ,quality1
 %all develop1 te/1 syn!size1 &         
dissem9ate be/ practices & decision     
support tools relat$ to ! cl9ical c>e   
organization1 deliv]y1 & integration (  
cl9ical & social s]vices = ,long ,,covid
 & o!r infection-associat$ *ronic       
conditions4  7b7 ,au?orization (        
appropriations ,= ! purposes ( c>ry+ out
 ?is section1 !re are au?oriz$ to be    
appropriat$ #aj1jjj1jjj = ea* ( fiscal  
ye>s #bjbe ?r\gh #bjcd4