,,ii #aahth ,,congress #b;d ,session ,s4 #dgbi ,,in ,,the ,,senate ,,of ,,the ,,united ,,states ,july #bc1 #bjbd,mr4 ,markey introduced the following bill2 which was read twice and referred to the ,committee on ,health1 ,education1 ,labor1 and ,pensions ,a ,,bill ,to amend the ,older ,americans ,act of #aife to establish a pilot program for family caregivers for individuals with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction4 #a4 ,short title ,this ,act may be cited as the ,convenient ,care for ,caregivers ,act4 #b4 ,pilot program for family caregivers for individuals with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction ,title ,,iv of the ,older ,americans ,act of #aife is amended by inserting after section #dad 7#db ,u4,s4,c4 #cjcb;c7 the following3 #dae4 ,pilot program for family caregivers for individuals with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction 7a7 ,definitions ,in this section3 7#a7 ,family caregiver for an individual with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction ,the term family caregiver for an individual with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction-- 7,a7 means an adult family member1 or another individual1 who is an informal provider of in-home and community care to an individual of any age who is an individual with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction2 and 7,b7 does not include an individual1 providing care to an individual with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction1 whose primary relationship with the indivdual is based on a financial or professional agreement4 7#b7 ,qualified entity ,the term qualified entity means-- 7,a7 an area agency on aging2 7,b7 a multipurpose senior center2 7,c7 an institution of higher education2 or 7,d7 a tribal organization4 7b7 ,pilot program 7#a7 ,in general ,the ,assistant ,secretary1 in consultation with the ,secretary of ,housing and ,urban ,development and the ,assistant ,secretary of ,commerce for ,economic ,development1 shall establish and carry out a pilot program to assist family caregivers for individuals with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction to access health care services and other supports in order to improve the health outcomes of the family caregivers and the individuals4 7#b7 ,projects 7,a7 ,in general ,in carrying out the program1 the ,assistant ,secretary shall make grants to qualified entities meeting the requirements under subsection 7c7 to carry out projects that assist family caregivers for individuals with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction in addressing the health care needs of such caregivers and individuals by offering evidence-informed1 or evidence-based1 health care services and other supports to such caregivers and individuals at the same time and the same location4 7,b7 ,accessibility ,each qualified entity receiving a grant under this section shall carry out a project described in subparagraph 7,a7 in an easily accessible space and in accordance with applicable requirements under the ,americans with ,disabilities ,act of #aiij 7#db ,u4,s4,c4 #abaja et seq474 7c7 ,application ,to be eligible to receive a grant under this section1 a qualified entity shall submit an application at such time and in such manner as the ,assistant ,secretary may require1 including-- 7#a7 information on how the entity located an appropriate space described in subsection 7b77#b77;,b7 to carry out a project1 including any consideration of a converted retail mall or other accessible space with proximity to public transportation and ample parking1 and any collaboration with a ,state or local economic development organization to identify that appropriate space2 7#b7 an assurance that the entity-- 7,a7 will cooperate with efforts in which the ,administrator of the ,centers for ,medicare ,medicaid ,services will submit data to the ,assistant ,secretary on the payment indicators described in subsection 7e77#a72 and 7,b7 will submit data to the ,assistant ,secretary on the health indicators described in subsection 7e77#b72 and 7#c7 a description of how the entity will share information on family caregivers of individuals with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction1 and such individuals1 among providers in the project4 7d7 ,use of funds ,a qualified entity that receives a grant under this section may use the grant funds to provide-- 7#a7 cognitive health screenings2 7#b7 family consultations and other care consultations2 7#c7 education2 7#d7 family caregiver support groups2 7#e7 conversation groups for individuals with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction2 7#f7 specialized bereavement services2 7#g7 ongoing support by phone or person-to-person conferencing2 7#h7 insurance support2 and 7#i7 social and cultural activities4 7e7 ,outcome data ,a qualified entity that receives a grant under this section for a project shall-- 7#a7 on the date of the enrollment of the family caregiver of an individual with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction1 and such individual1 in the project1 notify the ,administrator of the ,centers for ,medicare ,medicaid ,services of the enrollment and request that the ,administrator send to the ,assistant ,secretary-- 7,a7 an estimated amount on an indicator consisting of the payments made by the ,centers1 through programs under the jurisdiction of the ,centers1 on behalf of the caregiver and individual during the last full fiscal year preceding the enrollment2 and 7,b7 not later than #fj days after each fiscal year for which the caregiver and individual are enrolled in the project1 a calculated amount on that payment indicator for that fiscal year2 7#b7 7,a7 submit to the ,assistant ,secretary1 after the first appointments of the family caregiver of an individual with ,alzheimer's disease or a related disorder with neurological and organic brain dysfunction1 and the individual1 with the project1 initial data on health indicators of the caregiver and individual consisting of-- 7i7 cholesterol levels2 7ii7 body mass index2 7iii7 weight2 7iv7 glucose levels2 7v7 self-reported data1 including data on emotional stress1 physical strain1 loneliness1 and feelings of isolation2 and 7vi7 such other health indicators as the ,assistant ,secretary may establish2 and 7,b7 submit to the ,assistant ,secretary1 not later than #fj days after each fiscal year for which the caregiver and individual are so enrolled1 subsequent data on the health indicators4 7f7 ,report ,not later than #abj days after each such fiscal year1 the ,assistant ,secretary shall prepare and submit to the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate1 the ,special ,committee on ,aging of the ,senate1 the ,committee on ,education and the ,workforce of the ,house of ,representatives1 the ,committee on ,energy and ,commerce of the ,house of ,representatives1 and the ,administrator of the ,centers for ,medicare ,medicaid ,services1 a report containing information on the outcome data collected under subsection 7e71 including the differences between the estimated and calculated amounts on the payment indicators reported under subsection 7e77#a7 and the differences between the initial and subsequent data on the health indicators reported under subsection 7e77#b74 7g7 ,administration ,the ,assistant ,secretary shall work with the ,administrator of the ,centers for ,medicare ,medicaid ,services to develop the indicator described in subsection 7e77#a71 and means of collecting data on that indicator4 4