,,ii #aahth ,,congress #b;d ,session ,s4 #chfd ,,in ,,the ,,senate ,,of ,,the ,,united ,,states ,march #e1 #bjbd,mr4 ,blumenthal 7for himself1 ,mr4 ,marshall1 and ,mr4 ,murphy7 introduced the following bill2 which was read twice and referred to the ,committee on ,health1 ,education1 ,labor1 and ,pensions ,a ,,bill ,to amend the ,public ,health ,service ,act to provide for congenital ,cytomegalovirus screening of newborns4 #a4 ,short title ,this ,act may be cited as ,stop ,,cmv ,act of #bjbd4 #b4 ,screening of congenital ,cytomegalovirus ,part ,a of title ,,xi of the ,public ,health ,service ,act is amended by inserting after section #aaaf 7#db ,u4,s4,c4 #cjj;b-#ae7 the following3 #aaaf;,a4 ,screening of congenital ,cytomegalovirus 7a7 ,in general ,each hospital or other health care entity caring for infants who are #ba days or less of age 7as designated by the ,secretary7 may administer1 or cause to have administered1 to every such infant in its care a test for congenital ,cytomegalovirus in accordance with this section4 7b7 ,process 7#a7 ,in general ,in carrying out this section1 the chief executive officer for health in each ,state may prescribe standards and procedures for the administration of testing under subsection 7a71 including recording the results of such tests1 tracking activities1 conducting follow-up reviews1 and carrying out educational activities4 7#b7 ,dissemination of information ,in carrying out this section1 the chief executive officer for health in each ,state may prescribe standards and procedures setting forth the manner in which testing information is disseminated to a parent or guardian of the infant to be tested4 7#c7 ,failure to prescribe ,if a ,state has not prescribed standards and procedures that are approved as provided for in paragraph 7#d7 by the date that is #b years after the date of enactment of the ,stop ,,cmv ,act of #bjbd1 the ,discretionary ,advisory ,committee on ,heritable ,disorders in ,newborns and ,children established under section #aaaa 7referred to in this section as the ,advisory ,committee7 shall prescribe appropriate standards and procedures which may be implemented by such ,state4 7#d7 ,review and approval ,the standards and procedures prescribed under this subsection shall be subject to review and approval by the ,advisory ,committee4 ,in reviewing or prescribing standards and procedures as required under this subsection1 the ,advisory ,committee shall consider standards and procedures adopted in other ,states with respect to the screening of congenital ,cytomegalovirus1 the standards and procedures adopted in such ,state with respect to the screening of infants for other heritable diseases1 and any scientific evidence the ,advisory ,committee considers relevant to provide for the screening of infants for congenital ,cytomegalovirus4 7c7 ,grants 7#a7 ,health ,resources and ,services ,administration 7,a7 ,in general ,the ,secretary1 acting through the ,administrator of the ,health ,resources and ,services ,administration1 shall award grants to ,states that prescribe standards and procedures in accordance with paragraphs 7#a7 and 7#b71 to be distributed by the ,states to entities described in subsection 7a7 to administer tests in accordance with that subsection4 7,b7 ,authorization of appropriations ,there is authorized to be appropriated to carry out subparagraph 7,a7 such sums as may be necessary for each of fiscal years #bjbd and #bjbe4 7#b7 ,centers for disease control and prevention 7,a7 ,in general ,the ,secretary1 acting through the ,director of the ,centers for ,disease ,control and ,prevention1 shall award grants to1 or enter into cooperative agreements with1 ,states to provide technical assistance to ,state agencies or designated entities of ,states-- 7i7 to develop1 maintain1 and improve data collection systems relating to congenital ,cytomegalovirus2 and 7ii7 to assist in the education and training of health care providers1 patients1 and the general public regarding the risk reduction or prevention1 symptoms1 diagnosis1 and treatment of congenital ,cytomegalovirus1 including1 as necessary1 through the publication of scientific1 evidence-based educational materials on ,internet webpages maintained by ,state agencies or designated entities of ,states4 7,b7 ,authorization of appropriations ,there is authorized to be appropriated to carry out subparagraph 7,a7 such sums as may be necessary for each of fiscal years #bjbd and #bjbe4 7#c7 ,national ,institutes of ,health 7,a7 ,in general ,the ,director of the ,national ,institutes of ,health shall-- 7i7 for the purposes of this section1 establish a program1 or expand existing programs1 of research and development on the efficacy of new screening techniques and technology relating to congenital ,cytomegalovirus1 including clinical studies of screening methods1 studies on efficacy of intervention1 and related research2 and 7ii7 establish a program1 or expand existing programs1 of research and development into congenital ,cytomegalovirus diagnostics1 prevention1 treatments including public health awareness campaigns1 risk reduction1 and vaccine development1 and cures or treatments 7during pregnancy and after birth74 7,b7 ,funding ,the ,director of the ,national ,institutes of ,health shall carry out subparagraph 7,a7 using amounts available to the ,director and not otherwise obligated4 4 #c4 ,advisory committee on heritable disorders in newborns and children ,section #aaaa7;b7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #cjj;b-#aj7;b77 is amended-- 7#a7 in paragraph 7#g7 by striking and after the semicolon2 7#b7 by redesignating paragraph 7#h7 as paragraph 7#i72 and 7#c7 by inserting after paragraph 7#g7 the following3 7#h7 carry out activities under section #aaaf;,a2 and 4