,,ii #aah? ,,congress #a/ ,session ,s4 #bibb ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,septemb] #bf 7legislative day1 ,septemb] #bb71 #bjbc,mr4 ,casey 7= himself1 ,mrs4 ,blackburn1 ,mr4 ,ka9e1 & ,mr4 ,cram]7 introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ,a ,,bill ,to advance population rese>* = *ronic pa94 #a4 ,%ort title ,?is ,act may be cit$ z ! ,advanc+ ,rese>* = ,*ronic ,pa9 ,act ( #bjbc4 #b4 ,national ,*ronic ,pa9 ,in=mation ,sy/em ,"p ,p ( title ,,iii ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;g et seq47 is am5d$ by add+ at ! end ! foll[+3 #cii,v-#h4 ,*ronic pa9 rese>* 7a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion 9 consultation ) ! ,director ( ! ,national ,c5t] = ,injury ,prev5tion & ,control & ! ,director ( ! ,national ,c5t] = ,*ronic ,disease ,prev5tion & ,heal? ,promotion1 & 9 coord9ation ) ! ,,nih ,help+ to ,end ,addiction ,long-t]m ,initiative & ) o!r ag5cies z ! ,secret>y det]m9es appropriate1 %all-- 7#a7 utilize available ,f$]al rese>* data to cl>ify ! incid5ce & preval5ce ( *ronic pa9 f any s\rce1 includ+ injuries1 op]ations1 & diseases & conditions2 7#b7 id5tify gaps 9 ! available rese>* data & collect deid5tifi$ population rese>* data us+ m$ical claims & survey data to fill gaps 9 available rese>* data1 su* z in=mation conc]n+-- 7,a7 incid5ce & preval5ce ( specific pa9 conditions2 7,b7 demographics & o!r in=mation1 su* z age1 race1 e?nicity1 g5d]1 & geographic location2 7,c7 ! incid5ce & preval5ce ( kn[n *ronic pa9 conditions1 z well z ( diseases & conditions t include or lead to pa92 7,d7 risk factors t may be associat$ ) *ronic pa9 conditions1 su* z g5etic & environm5tal risk factors & o!r in=mation1 z appropriate2 7,e7 diagnosis & progression m>k]s2 7,f7 bo? direct & indirect co/s ( illness2 7,g7 ! epidemiology ( ! conditions2 7,h7 ! detection1 managem5t1 & treatm5t ( ! conditions2 7,i7 ! epidemiology1 detection1 managem5t1 & treatm5t ( frequ5t second>y or co-occurr+ conditions1 su* z depressive1 anxiety1 & sub/ance use disord]s2 7,j7 ! utilization ( m$ical & social s]vices by pati5ts ) *ronic pa9 conditions1 includ+ ! direct heal? c>e co/s ( pa9 treatm5t1 bo? traditional & alt]native1 & ! indirect co/s 7su* z miss$ "w1 public & private disability1 & r$uction 9 productivity72 & 7,k7 ! effectiv5ess ( evid5ce-bas$ treatm5t approa*es on *ronic pa9 conditions2 7#c7 develop1 9 collaboration ) individuals & organizations ) appropriate *ronic pa9 exp]tise1 includ+ pati5ts or pati5t advocates1 epidemiologi/s1 repres5tatives ( national volunt>y heal? associations1 heal? in=mation te*nology exp]ts1 cl9icians1 & rese>* sci5ti/s1 /&>d def9itions & approa*es = population rese>* on *ronic pa9 to effici5tly promote great] comp>ability ( data2 & 7#d7 dissem9ate1 pursuant to ! public webpage "u subsection 7b71 &1 z appropriate1 to ! public & to o!r ,f$]al dep>tm5ts & ag5cies1 any f9d+s1 develop$ population rese>* /&>ds1 & available ,f$]al data s\rces relat$ to *ronic pa94 7b7 ,dissem9ation ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 %all e/abli% a public webpage1 to be kn[n z ! ,*ronic ,pa9 ,in=mation ,hub1 t-- 7#a7 aggregates & summ>izes available ,f$]al data s\rces1 indicators1 & pe]-review$ rese>* relat$ to *ronic pa92 7#b7 includes an up-to-date summ>y ( complete1 und]way1 & plann$ data collection & analysis relat$ to *ronic pa9 t is conduct$ & support$ by ! ,c5t]s = ,disease ,control & ,prev5tion2 & 7#c7 translates rese>* f9d+s into cl9ical tools & res\rces1 recomm5dations = clos+ rese>* gaps1 & recomm5dations = population rese>* /&>ds = rese>*]s1 ) recomm5dations updat$ annually to incorporate rese>* f9d+s f ! prior ye>4 7c7 ,conflicts ( int]e/ ,if an individual or organization t collaborates ) ! ,secret>y 9 c>ry+ out subsection 7a7 receives a paym5t or o!r transf] ( value ( a type describ$ 9 section #aabh;,g7a77#a77;,a77vi7 ( ! ,social ,security ,act f a manufactur] ( a drug 7includ+ a biological product7 or device t w\ld be requir$ to be disclos$ pursuant to section #aabh;,g7a77#a7 ( ! ,social ,security ,act1 if ! individual or organization 7 a cov]$ recipi5t or if su* disclosure 7 requir$ ^u reque/ ( or by designation on behalf ( a cov]$ recipi5t pursuant to su* section1 ! individual or organization %all disclose to ! ,secret>y in=mation reg>d+ su* paym5t or o!r transf] ( value4 ,! ,secret>y %all make su* disclosures publicly available4 7d7 ,report ,n lat] ?an #b ye>s aft] ! date ( ! enactm5t ( ! ,advanc+ ,rese>* = ,*ronic ,pa9 ,act ( #bjbc1 ! ,secret>y %all submit a report to ,congress conc]n+ ! implem5tation ( ?is section4 ,su* report %all include in=mation on-- 7#a7 ! developm5t & ma9t5ance ( ! ,*ronic ,pa9 ,in=mation ,hub2 7#b7 ! in=mation made available ?r\gh ! ,*ronic ,pa9 ,in=mation ,hub2 7#c7 ! data gaps id5tifi$1 & plann$ ef=ts to address su* gaps2 7#d7 ! process e/abli%$ = solicit+ fe$back f collaborators2 & 7#e7 fe$back receiv$ f collaborators4 7e7 ,def9ition ,9 ?is section1 ! t]m *ronic pa9 means p]si/5t or recurr5t pa9 la/+ long] ?an #c mon?s4 7f7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ su* sums z may be necess>y = ea* ( fiscal ye>s #bjbd ?r\gh #bjbh4 4