,,ii  #aahth ,,congress  #ast ,session  
,s4 #bfdg  ,,in ,,the ,,senate ,,of     
,,the ,,united ,,states  ,july #bg1     
#bjbc,mr4 ,booker 7for himself1 ,mr4    
,rubio1 ,mrs4 ,gillibrand1 and ,mr4     
,daines7 introduced the following bill2 
which was read twice and referred to the
 ,committee on ,health1 ,education1     
,labor1 and ,pensions  ,a ,,bill  ,to   
improve research and data collection on 
stillbirths1 and for other purposes4    
#a4 ,short title ,this ,act may be cited
 as the ,stillbirth ,health ,improvement
 and ,education for ,autumn ,act of     
#bjbc or the ,,shine for ,autumn ,act of
 #bjbc4  #b4 ,stillbirth research and   
data collection improvements ,title     
,,iii of the ,public ,health ,service   
,act is amended by inserting after      
section #cag,l-#a of such ,act 7#db     
,u4,s4,c4 #bdg;b-#ac;a7 the following3  
#cag,l-#b4 ,stillbirth research and data
 collection improvements  7a7           
,stillbirth surveillance and risk factor
 studies  7#a7 ,in general ,the         

,secretary may award grants to ,states  
for purposes of-- 7,a7 conducting       
surveillance and collecting data1       
including from existing datasets like   
,state or sub-,state maternal mortality 
data and ,fetal and ,infant ,mortality  
,review data1 with respect to           
stillbirths for public health and       
research purposes2  7,b7 building ,state
 and local public health capacity to    
assess stillbirth data2 and  7,c7       
collecting and reporting data on        
stillbirth risk factors1 including any  
quantifiable outcomes with respect to   
such risk factors4  7#b7 ,condition ,as 
a condition of receipt of funds under   
this section1 all data collected shall  
be in a manner that protects personal   
privacy and in a manner that is         
consistent with applicable ,federal and 
,state privacy law1 at a minimum4  7#c7 
,authorization of appropriations ,to    
carry out this subsection1 there is     
authorized to be appropriated #e1jjj1jjj
 for each of fiscal years #bjbd through 

#bjbh4  7b7 ,guidelines and educational 
awareness materials  7#a7 ,in general   
,the ,secretary shall-- 7,a7 issue      
guidelines to ,state departments of     
health and ,state and local vital       
statistics units on-- 7i7 collecting    
data on stillbirth from health care     
providers1 and with the consent of the  
woman who experienced the stillbirth1   
including any such data with respect to 
the clinical history1 postmortem        
examination1 and placental pathology2   
and  7ii7 improving processes and       
training related to stillbirth data     
collection and reporting to ensure      
standardization and completeness of     
data2 and  7,b7 develop1 and make       
publicly available1 educational         
awareness materials on stillbirths4     
7#b7 ,consultation ,in carrying out     
paragraph 7#a71 the ,secretary may      
consult with-- 7,a7 national health care
 professional associations2  7,b7       
national associations representing      
,state and local public health          

officials2  7,c7 organizations that     
assist families with burial support and 
bereavement services2  7,d7 nurses and  
nurse practitioners2  7,e7 obstetricians
 and gynecologists2  7,f7 pediatricians2
  7,g7 maternal-fetal medicine          
specialists2  7,h7 nurse midwives and   
midwives2  7,i7 mental health           
professionals2  7,j7 statisticians2     
7,k7 individuals who have experienced a 
stillbirth2 and  7,l7 advocacy          
organizations representing such         
individuals4  7#c7 ,authorization of    
appropriations ,to carry out this       
subsection1 there is authorized to be   
appropriated #a1jjj1jjj for each of     
fiscal years #bjbd through #bjbh4  7c7  
,vital statistics unit defined ,in this 
section1 the term vital statistics unit 
means the entity that is responsible for
 maintaining vital records for a ,state1
 or a political subdivision of such     
,state1 including official records of   
live births1 deaths1 fetal deaths1      
marriages1 divorces1 and annulments4  4 

#c4 ,perinatal pathology fellowships    
,the ,public ,health ,service ,act is   
amended by inserting after section #aabb
 of such ,act 7#db ,u4,s4,c4 #cjj;c-#ab7
 the following3  #aabc4 ,improving      
perinatal pathology  7a7 ,in general    
,the ,secretary shall incorporate into  
an existing training program a          
,perinatal ,pathology ,fellowship       
,program1 a ,postdoctoral ,research     
,fellowship on ,factors ,associated with
 ,stillbirth ,program1 or both4  7b7    
,activities ,each program incorporated  
under subsection 7a7 shall-- 7#a7       
provide training in perinatal autopsy   
pathology2  7#b7 provide practice-based 
learning opportunities to foster        
exchange and connection with ,state     
efforts concerning fetal death review   
that are supported under title ,v of the
 ,social ,security ,act2  7#c7 conduct  
research on1 and improve data collection
 with respect to1 stillbirths1 including
 through fetal autopsies2 and  7#d7     
address challenges in stillbirth        

education1 research1 and data           
collection4  7c7 ,authorization of      
appropriations ,there is authorized to  
be appropriated to carry out this       
section #c1jjj1jjj for each of fiscal   
years #bjbd through #bjbh4  4  #d4      
,reports  7a7 ,educational guidelines   
report  7#a7 ,in general ,not later than
 five years after the date of enactment 
of this ,act1 the ,secretary of ,health 
and ,human ,services shall publish on a 
public website of the ,department of    
,health and ,human ,services a report   
with educational guidelines on          
stillbirth and stillbirth risk factors4 
7#b7 ,contents ,such report shall       
include1 to the extent practicable and  
appropriate1 the guidelines issued and  
educational awareness materials         
developed under section #cag,l-#b of the
 ,public ,health ,service ,act1 as added
 by section #b of this ,act4  7b7       
,progress report ,not later than five   
years after the date of enactment of    
this ,act1 the ,secretary of ,health and

 ,human ,services shall submit to the   
,congress a comprehensive report on the 
progress and effectiveness of each      
program under section #aabc of the      
,public ,health ,service ,act1 as added 
by section #c of this ,act4