,,ii  #aah? ,,congress  #a/ ,session    
,s4 #befj  ,,9 ,,! ,,s5ate ,,( ,,!      
,,unit$ ,,/ates  ,july #bg1 #bjbc,mr4   
,ka9e 7= himself & ,mr4 ,"y7 introduc$ !
 foll[+ bill2 :i* 0 read twice & ref]r$ 
to ! ,committee on ,heal?1 ,education1  
,labor1 & ,p5sions  ,a ,,bill  ,to      
address & support rese>* on ,long       
,,covid4  #a4 ,%ort title ,?is ,act may 
be cit$ z ! ,long ,,covid ,support ,act4
  #b4 ,volunt>y pati5t regi/ry = rese>* 
on ,long ,,covid & relat$ conditions    
7a7 ,9 g5]al ,! ,secret>y ( ,heal? &    
,human ,s]vices 7ref]r$ to 9 ?is ,act z 
! ,secret>y7 %all c>ry out activities   
describ$ 9 subsection 7b7 = treatm5t    
relat$ to ,long ,,covid & relat$        
conditions4  7b7 ,activities describ$ ,=
 purposes ( subsection 7a71 activities  
describ$ 9 ?is subsection %all include--
 7#a7 creat+ or ma9ta9+ a regul>ly      
updat$ volunt>y pati5t regi/ry (        
individuals ) suspect$ or confirm$ ,long
 ,,covid & relat$ conditions1 includ+   
in=mation on-- 7,a7 symptoms t arise    

:ile an individual is initially infect$ 
) ,,covid-#ai & t may resolve ov] "t or 
ext5d beyond ! resolution ( ! initial   
symptoms2  7,b7 p]si/5t symptoms t arise
 aft] an individual is initially infect$
 ) ,,covid-#ai & t ! cl9ician ( su*     
individual has reason to suspect 7      
relat$ to ! ,,covid-#ai diagnosis2  7,c7
 symptoms t arise 9 an individual t may 
be relat$ to ,,covid-#ai1 b a diagnosis 
( ,,covid-#ai 0 n obta9$ & _c be        
id5tifi$ due to a lack ( antibodies1    
false negative te/ results1 or lack (   
access to timely te/+2  7,d7 treatm5ts (
 individuals aft] prim>y diagnosis (    
,,covid-#ai & ! effectiv5ess ( su*      
treatm5ts2  7,e7 any o!r relevant       
que/ions or issues relat$ to individuals
 :o exp]i5ce a diagnosis (1 treatm5t =1 
& managem5t ( c>e ) ,,covid-#ai1 ,long  
,,covid1 & relat$ conditions2 &  7,f7   
comorbidities1 vacc9ation /atus1 &      
demographics1 includ+ age1 g5d]1 race & 
e?nicity1 geographic location1 &        
occupation ( regi/ry p>ticipants2  7#b7 

in=mation relat+ to individuals exp]i5c+
 ,long ,,covid & relat$ conditions & o!r
 in=mation available ?r\gh ! volunt>y   
pati5t regi/ry2  7#c7 dissem9ation (    
in=mation to relevant ,f$]al dep>tm5ts &
 ag5cies & pati5ts p>ticipat+ 9 !       
volunt>y pati5t regi/ry relat$ to       
,,covid-#ai1 ,long ,,covid1 & relat$    
conditions2  7#d7 an assurance t !      
volunt>y pati5t regi/ry utilizes common 
data elem5ts & def9itions = use 9 ord]  
to promote appropriate data %>+ = ongo+ 
& future rese>*2 &  7#e7 outrea* to1 &  
inclusion 9 ! volunt>y pati5t regi/ry1 z
 appropriate1 ( individuals f           
communities impact$ by high ,,covid-#ai 
& ,long ,,covid rates & heal? c>e       
provid]s f div]se discipl9es t may treat
 individuals ) ,,covid-#ai1 ,long       
,,covid1 & relat$ conditions4  7c7      
,volunt>y p>ticipation2 privacy         
protections  7#a7 ,volunt>y p>ticipation
 ,p>ticipation 9 ! pati5t regi/ry       
describ$ 9 subsection 7b77#a7 %all be   
volunt>y1 & a p]son creat+1 assi/+ 9 !  

creation (1 or ma9ta9+ ! regi/ry %all n 
include 9 ! regi/ry in=mation ab\t an   
individual unless ! individual cons5ts  
to ! inclusion ( su* in=mation4  7#b7   
,privacy protections ,in=mation ab\t an 
individual t is includ$ 9 ! regi/ry %all
 be subject to all applicable privacy   
protections "u ,f$]al & ,/ate law4  7d7 
,report ,n lat] ?an #a ye> aft] !       
e/abli%m5t ( ! pati5t regi/ry "u        
subsection 7b77#b71 & annually !reaft]1 
! ,secret>y %all submit a report t      
includes data1 f9d+s1 & in=mation )     
respect to ! /atus ( ! pati5t regi/ry   
7includ+ progress1 b>ri]s1 & issues7 to 
,congress & ! ,presid5t4  #c4 ,rese>* & 
coord9ation ( activities conc]n+ !      
long-t]m heal? effects ( ,long ,,covid &
 relat$ conditions  7a7 ,9 g5]al ,!     
,secret>y ( ,heal? & ,human ,s]vices    
7ref]r$ to 9 ?is section z ! ,secret>y7 
%all1 z appropriate-- 7#a7 coord9ate    
activities among relevant ,f$]al        
dep>tm5ts & ag5cies ) respect to        
address+ ! long-t]m heal? effects (     

,long ,,covid & relat$ conditions1 :i*  
may include conditions t arise z a      
result ( su* infection2  7#b7 cont9ue to
 conduct or support basic1 cl9ical1     
epidemiological1 behavioral1 &          
translational rese>* & public heal?     
surveillance relat$ to ! pa?og5esis1    
prev5tion1 diagnosis1 & treatm5t ( !    
long-t]m heal? effects ( ,long ,,covid &
 relat$ conditions1 :i* may include     
conditions & any effects on developm5t1 
cognition1 & neural /ructure & function 
t arise z a result ( su* infection2 &   
7#c7 consi/5t ) ! f9d+s ( /udies &      
rese>* "u p>agraph 7#a71 9 consultation 
) heal? & public heal? pr(essional      
associations1 sci5tific & m$ical        
rese>*]s1 & o!r relevant exp]ts1 develop
 & in=m recomm5dations1 guidance1 &     
educational mat]ials on ! long-t]m      
effects ( ,long ,,covid & relat$        
conditions1 :i* may include conditions t
 arise z a result ( su* infection1 &    
provide su* recomm5dations1 guidance1 & 
educational mat]ials to heal? c>e       

provid]s & ! g5]al public4  7b7         
,consid]ations ,9 conduct+ or support+  
rese>* "u ?is section1 ! ,secret>y %all 
consid] ! div]sity ( rese>* p>ticipants 
or cohorts to ensure inclusion ( a broad
 range ( p>ticipants1 z applicable &    
appropriate4  7c7 ,additional activities
 ,! ,secret>y may-- 7#a7 act+ ?r\gh !   
,director ( ! ,ag5cy = ,heal?c>e ,rese>*
 & ,quality1 conduct or support rese>*  
relat$ to-- 7,a7 ! improvem5t ( heal?   
c>e deliv]y = individuals exp]i5c+      
long-t]m heal? effects ( ,long ,,covid &
 relat$ conditions1 :i* may include     
conditions t arise z a result ( su*     
infection2  7,b7 ! id5tification ( any  
tr5ds associat$ ) diff]5ces 9 diagnosis 
& treatm5t ( ! long-t]m heal? effects ( 
,long ,,covid & relat$ conditions2 &    
7,c7 ! developm5t or id5tification (    
tools & /rategies to help heal? c>e     
entities & provid]s c>e = su*           
populations1 :i* may include address+   
any diff]5ces id5tifi$ pursuant to      
subp>agraph 7,b72  7#b7 publicly        

dissem9ate ! results ( su* rese>*2 &    
7#c7 e/abli% a prim>y c>e te*nical      
assi/ance initiative to conv5e prim>y   
c>e provid]s & organizations1 :i* may   
include support = cont9u+ tra9+ &       
education = su* provid]s1 z applicable &
 appropriate1 9 ord] to collect &       
dissem9ate be/ practices relat$ to ! c>e
 ( individuals ) long-t]m heal? effects 
( ,long ,,covid & relat$ conditions4    
7d7 ,annual reports ,n lat] ?an #a ye>  
aft] ! date ( enactm5t ( ?is ,act1 &    
annually !reaft] = ! next #d ye>s1 !    
,secret>y %all prep>e & submit a report 
to ! ,committee on ,heal?1 ,education1  
,labor1 & ,p5sions ( ! ,s5ate & !       
,committee on ,en]gy & ,comm]ce ( !     
,h\se ( ,repres5tatives reg>d+ an       
ov]view ( ! rese>* conduct$ or support$ 
"u ?is section & any relevant f9d+s4    
,su* reports may include in=mation ab\t 
h[ ! rese>* & relevant f9d+s "u ?is     
section relate to o!r rese>* ef=ts      
support$ by o!r public or private       
entities4  7e7 ,public availability (   

in=mation ,9 mak+ in=mation or reports  
publicly available "u ?is section1 !    
,secret>y %all take into consid]ation ! 
deliv]y ( su* in=mation 9 a mann] t     
takes into acc\nt ! range (             
communication ne$s ( ! int5d$ recipi5ts1
 includ+ at-risk individuals4  7f7      
,au?orization ( appropriations ,to c>ry 
out subsection 7c71 !re are au?oriz$ to 
be appropriat$ #aj1jjj1jjj = ea* (      
fiscal ye>s #bjbd ?r\gh #bjbh4  #d4     
,education & dissem9ation ( in=mation on
 ,long ,,covid  7a7 ,long ,,covid public
 education program ,! ,secret>y %all    
develop & dissem9ate to ! public        
regul>ly updat$ in=mation reg>d+ ,long  
,,covid1 9 pla9 language1 includ+       
in=mation on-- 7#a7 ! aw>5ess1 incid5ce1
 & %ort- & long-t]m heal? effects       
associat$ ) ,,covid-#ai infection2  7#b7
 conditions relat$ & (t5 comorbid )     
,long ,,covid2  7#c7 ! availability1 z  
m$ically appropriate1 ( treatm5t options
 = ,long ,,covid & relat$ conditions    
ov]lapp+ ) ,long ,,covid describ$ 9     

p>agraph 7#b72 &  7#d7 /rategies = r$uc+
 ! likelihood ( develop+ ,long ,,covid4 
7b7 ,long ,,covid provid] education     
program ,! ,secret>y1 9 consultation )  
repres5tatives f impact$ communities &  
heal? c>e provid]s :o treat su*         
communities or individuals1 %all develop
 & dissem9ate to heal? c>e provid]s1    
includ+ by develop+ or improv+ cont9u+  
m$ical education programs t advance !   
education ( su* provid]s1 in=mation on  
,long ,,covid1 recomm5d$ assessm5t      
tools1 & managem5t ( ,long ,,covid &    
relat$ conditions = ! purpose ( ensur+ t
 heal? c>e provid]s rema9 in=m$ ab\t    
curr5t in=mation on ,long ,,covid &     
relat$ conditions4  7c7 ,consid]ations  
,9 develop+ & dissem9at+ in=mation 9    
subsections 7a7 & 7b71 ! ,secret>y %all 
ensure t-- 7#a7 guidance on ,long       
,,covid diagno/ics1 treatm5ts1 & c>e    
include demographic factors to address  
heal? disp>ities2 &  7#b7 individuals ) 
,long ,,covid & relat$ conditions1 &    
entities repres5t+ su* individuals1 are 

emp[]$ to p>ticipate 9 protocol         
developm5t & outrea* & education        
/rategies4  7d7 ,dissem9ation (         
in=mation ,! ,secret>y %all dissem9ate1 
9 pla9 language1 in=mation "u           
subsections 7a7 & 7b71 directly or ?r\gh
 arrangem5ts ) intra-ag5cy initiatives1 
nonpr(it organizations1 consum] gr\ps1  
,f$]ally qualifi$ heal? c5t]s1          
in/itutions ( high] le>n+ 7z def9$ 9    
section #aja ( ! ,high] ,education ,act 
( #aife 7#bj ,u4,s4,c4 #ajja771 local   
educational ag5cies or ,/ate educational
 ag5cies 7z def9$ 9 section #haja ( !   
,elem5t>y & ,second>y ,education ,act ( 
#aife 7#bj ,u4,s4,c4 #ghja771 or ,f$]al1
 ,/ate1 ,tribal1 or local public private
 p>tn]%ips4  #e4 ,def9ition ,9 ?is ,act1
 ! t]m ,long ,,covid means heal?        
conditions t may result1 directly or    
indirectly1 f ,,covid-#ai4