,,ii #aahth ,,congress #ast ,session ,s4 #bbac ,,in ,,the ,,senate ,,of ,,the ,,united ,,states ,june #bb1 #bjbc ,ms4 ,klobuchar 7for herself and ,mr4 ,cardin7 introduced the following bill2 which was read twice and referred to the ,committee on ,finance ,a ,,bill ,to address the health of cancer survivors and unmet needs that survivors face through the entire continuum of care from diagnosis through active treatment and posttreatment1 in order to improve survivorship1 treatment1 transition to recovery and beyond1 quality of life and palliative care1 and long-term health outcomes1 including by developing a minimum standard of care for cancer survivorship1 irrespective of the type of cancer1 a survivor's background1 or forthcoming survivorship needs1 and for other purposes4 #a4 ,short title2 table of contents 7a7 ,short title ,this ,act may be cited as the ,comprehensive ,cancer ,survivorship ,act4 7b7 ,table of contents ,the table of contents of this ,act is as follows3 ,sec4 #a4 ,short title2 table of contents4 ,sec4 #b4 ,findings4 ,sec4 #c4 ,definitions4 ,sec4 #d4 ,coverage of cancer care planning and coordination services4 ,sec4 #e4 ,survivorship transition tools4 ,sec4 #f4 ,alternative payment model4 ,sec4 #g4 ,survivorship navigation4 ,sec4 #h4 ,survivorship care demonstration program4 ,sec4 #i4 ,cancer survivor employment assistance program4 ,sec4 #aj4 ,comprehensive cancer survivorship program4 ,sec4 #aa4 ,adult cancer survivorship study4 ,sec4 #ab4 ,survivorship progress report4 ,sec4 #ac4 ,promoting ,state innovations to ease transitions to the primary care setting for children with cancer4 ,sec4 #ad4 ,childhood cancer demonstration model and standard of care4 ,sec4 #ae4 ,medicaid coverage of cancer fertility services for cancer survivors4 #b4 ,findings ,congress finds the following3 7#a7 ,a cancer survivor is any individual with a history of cancer1 from the time of diagnosis through the rest of their life1 across the continuum of care4 7#b7 ,today1 there are approximately #ah1jjj1jjj ,americans who are cancer survivors1 and the number of survivors is projected to reach #bf1jjj1jjj by #bjdj4 ,therefore1 there is a great need to be able to provide ways to sustain the care needed and to offer those living with1 through1 and beyond cancer a safe1 supportive1 and accommodating environment where such individuals can engage in physical and social support activities to sustain optimal quality of life4 7#c7 ,cancer survivors face difficult emotional1 psychological1 neurological1 financial1 legal1 and other physical challenges that persist beyond diagnosis and treatment1 often arising months and years after active cancer treatment ends4 7#d7 ,cancer survivors have unique needs and must manage short- and long-term effects of their treatment1 as well as regular screenings for cancer recurrence or new cancers4 7#e7 ,cancer survivors of racial and ethnic diversity1 as well as lower socioeconomic status1 have disproportionately lower health-related1 quality-of-life scores compared to non-,hispanic ,white cancer survivors4 7#f7 ,cancer survivors living in rural areas have less access to services and have poorer outcomes than survivors in metropolitan areas4 7#g7 ,children1 adolescent1 and young adult cancer survivors are particularly susceptible to long-term consequences from treatment1 and up to #hj percent have a severe1 disabling1 life-threatening1 or fatal health condition by the age of #ej4 ,best practices in this area would improve treatment1 quality of life1 and long-term health outcomes4 7#h7 ,clinical trials have shown that cancer survivorship programs help cancer survivors meet or exceed the recommended amount of physical activity1 significantly increasing their cardiovascular health and overall quality of life and decreasing their cancer-related fatigue4 7#i7 ,despite the ,national ,cancer ,institute and other professional organizations' definition of a cancer survivor beginning on the day of a cancer diagnosis1 there is little agreement among clinicians1 researchers1 and insurance companies on what services are included in survivorship care and the point at which survivorship care begins4 7#aj7 ,cancer survivors1 their families1 their caregivers1 and their providers face many difficulties understanding and coordinating the transition from specialty to primary care1 and for this reason communication and treatment are often fragmented and inconsistent4 7#aa7 ,to avoid additional health-related or financial hardships to cancer survivors and their families1 comprehensive and forward-thinking cancer survivorship studies and programs across ,federal agencies1 in collaboration with ,states1 localities1 and medical and professional organizations1 are required to engage in a coordinated effort to improve health outcomes and quality of life of survivors4 #c4 ,definitions ,in this ,act3 7#a7 ,cancer survivor ,the term cancer survivor means an individual from the time of cancer diagnosis through the balance of his or her life4 7#b7 ,caregiver ,the term caregiver means a family member1 friend1 or other person who cares for an individual with a chronic or disabling condition1 including cancer4 7#c7 ,patient experience data ,the term patient experience data means patient experiences1 perspectives1 needs1 and priorities related to-- 7,a7 the symptoms of the patient's conditions and the natural history of such conditions2 7,b7 the impact of the conditions on the patient's functioning and quality of life2 7,c7 the patient's experience with treatments2 7,d7 input on which outcomes are important to the patient2 7,e7 patient preferences for outcomes and treatments2 and 7,f7 the relative importance of any issues as defined by patients4 7#d7 ,psychosocial effects ,the term psychosocial effects-- 7,a7 means the psychological1 behavioral1 emotional1 and social effects of a disease1 such as cancer1 and its treatment2 and 7,b7 in the case of such effects of cancer1 includes changes in how a patient thinks1 their feelings1 moods1 beliefs1 ways of coping1 and relationships with family1 friends1 and coworkers4 7#e7 ,psychosocial care ,the term psychosocial care means psychological and social services and interventions that enable survivors1 patients1 their families1 and health care providers to optimize health care and to manage the psychological1 behavioral1 physical1 emotional1 and social aspects of illness and its consequences so as to promote better health and well-being4 7#f7 ,secretary ,except as otherwise specified1 the term ,secretary means the ,secretary of ,health and ,human ,services4 7#g7 ,survivorship ,the term survivorship means the period from the time of cancer diagnosis until the end of life1 including any portions of such period during which interventions are necessary to address-- 7,a7 the physical1 mental1 emotional1 social1 and financial effects of cancer that begin at diagnosis and continue through treatment and beyond2 and 7,b7 issues related to follow-up care 7including regular health and wellness checkups71 late and long-term effects of treatment1 screening for cancer recurrence and new cancers1 and quality of life4 7#h7 ,survivorship care plan ,the term survivorship care plan-- 7,a7 means an individualized care plan for patients who have been diagnosed with cancer2 and 7,b7 includes a treatment summary and any follow-up care guidelines in such plan that-- 7i7 are for monitoring and maintaining the patient's medical and psychosocial health and well-being2 and 7ii7 are meant to be a transition and communication tool for the survivor1 their family1 their caregiver1 and all their health care providers4 7#i7 ,survivorship navigation ,the term survivorship navigation means a service that-- 7,a7 helps patients overcome health care system and other barriers2 and 7,b7 provides patients with timely access to high-quality medical1 physical1 and psychosocial care from their cancer diagnosis through all phases of their cancer experience4 7#aj7 ,treatment summary ,the term treatment summary means a detailed summary of a patient's disease1 the types of treatment the patient received1 members of the patient's care team1 and any side effects or other problems1 including psychosocial effects1 caused by treatment4 #d4 ,coverage of cancer care planning and coordination services 7a7 ,in general ,section #ahfa of the ,social ,security ,act 7#db ,u4,s4,c4 #aciex7 is amended-- 7#a7 in subsection 7s77#b7-- 7,a7 by striking and at the end of subparagraph 7,,ii72 7,b7 by adding and at the end of subparagraph 7,,jj72 and 7,c7 by adding at the end the following new subparagraph3 7,,kk7 cancer care planning and coordination services 7as defined in subsection 7nnn772 2 and 7#b7 by adding at the end the following new subsection3 7nnn7 ,cancer ,care ,planning and ,coordination ,services 7#a7 ,the term cancer care planning and coordination services means1 with respect to an individual who is diagnosed with cancer1 the development of a treatment plan by a physician1 physician assistant1 or nurse practitioner that-- 7,a7 includes each component of the ,institute of ,medicine ,care ,management ,plan 7as described in the article entitled ,delivering ,high-,quality ,cancer ,care3 ,charting a ,new ,course for a ,system in ,crisis published by the ,institute of ,medicine72 7,b7 is furnished in written form or electronically1 at the visit of such individual with such physician1 physician assistant1 or nurse practitioner1 or as soon after the date of the visit as practicable2 and 7,c7 is furnished1 to the greatest extent practicable1 in a form that appropriately takes into account cultural and linguistic needs of the individual in order to make the plan accessible to such individual4 7#b7 ,the ,secretary shall establish frequencies at which services described in paragraph 7#a7 may be furnished1 provided that such services may be furnished with respect to an individual-- 7,a7 at the time such individual is diagnosed with cancer for purposes of planning treatment2 7,b7 if there is a change in the condition of such individual or such individual's treatment preferences2 7,c7 at the end of active treatment and beginning of survivorship care2 and 7,d7 if there is a recurrence of such cancer4 4 7b7 ,payment under physician fee schedule 7#a7 ,in general ,section #ahdh7;j77#c7 of the ,social ,security ,act 7#db ,u4,s4,c4 #aciew-#d7;j77#c77 is amended by inserting 7#b77,,kk71 after health risk assessment714 7#b7 ,initial rates ,unless the ,secretary otherwise provides1 the payment rate specified under the physician fee schedule under the amendment made by paragraph 7#a7 for cancer care planning and coordination services shall be the same payment rate as provided for transitional care management services 7as defined in ,,cpt code #iidif74 7c7 ,effective date ,the amendments made by this section shall apply to services furnished on or after the first day of the first calendar year that begins after the date of the enactment of this ,act4 #e4 ,survivorship transition tools 7a7 ,in general ,the head of the ,office of the ,national ,coordinator for ,health ,information ,technology1 in collaboration with ,director of the ,agency for ,healthcare ,research and ,quality1 shall-- 7#a7 evaluate existing models for survivorship care plans1 as they relate to both adults and children1 through engagement with professional societies1 payors1 patient advocacy organizations1 community-based organizations1 electronic health record vendors1 and other stakeholders2 7#b7 evaluate other existing tools for developing survivorship care plans1 such as-- 7,a7 survivorship guidelines of the ,national ,comprehensive ,cancer ,network and the ,american ,society of ,clinical ,oncology2 or 7,b7 tools such as ,passport for ,care2 7#c7 collaborate with the ,office for ,civil ,rights of the ,department of ,health and ,human ,services to evaluate the privacy and security implications of-- 7,a7 consolidating treatment history and survivorship guidelines into a personalized survivorship care plan1 as described in paragraph 7#d72 and 7,b7 patient use of computer or mobile phone-based application programs described in paragraph 7#d77;,b72 and 7#d7 taking into consideration the results of evaluation under paragraphs 7#a7 and 7#b7-- 7,a7 not later than #cf months after the date of enactment of this ,act1 publish information resources for cancer patients and providers on strategies for consolidating treatment history and survivorship guidelines into a personalized survivorship care plan to guide survivorship monitoring and follow-up care2 and 7,b7 include in such information resources recommendations about possible patient use of application programs 7apps7 to develop personalized survivorship care plans4 7b7 ,definition ,in this section1 the term electronic health record means an electronic record of health-related information on an individual that is created1 gathered1 managed1 and consulted by authorized health care clinicians and staff4 #f4 ,alternative payment model ,not later than #ah months after the date of enactment of this ,act1 the ,secretary of ,health and ,human ,services shall develop an alternative payment model for payment under title ,,xviii and ,,xix of the ,social ,security ,act 7#db ,u4,s4,c4 #acie et seq41 #acif et seq47 for items and services relating to cancer survivorship care 7as defined by the ,secretary74 ,following such testing1 the ,secretary shall submit to ,congress a report containing a description of such model that includes the following information3 7#a7 ,a description of what event would trigger an individual's entry into such a model 7such as the end of the individual's active cancer treatment1 the beginning of the individual's need for supportive care during active treatment1 or another event74 7#b7 ,the length of the individual's participation under such model1 including a description of any ability to extend such participation4 7#c7 ,in the case that such model is based on an episode of care1 the appropriate length of the survivorship episode of care and whether additional episodes may be triggered1 if necessary4 7#d7 ,strategies to ensure that any episode of care under such a model begins with the development and dissemination of a survivorship care plan for the transition from active cancer treatment to follow-up care to the individual and all relevant health care providers4 7#e7 ,a description of any bundled payment packages that will be used under such model4 7#f7 ,a specification of any follow-up or new screening under such model for unmet needs of individuals participating in such model4 7#g7 ,how consistent1 shared decision making will be promoted under such model so that individuals are given the knowledge needed for self-management between episodes of care4 7#h7 ,a specification of which types of health care providers may furnish items and services under such model1 including genetic counselors and mental health professionals4 7#i7 ,strategies for applying evidence-based risk stratification principles to direct survivors to personalized care pathways that match the level of care needed to the relative risks and needs of the survivor4 7#aj7 ,strategies for coordination of care between such providers1 such as between specialists and primary care providers1 and how principal responsibility will be assigned for an episode of care4 7#aa7 ,strategies for addressing social determinants of health through such model4 7#ab7 ,a description of how such model will promote-- 7,a7 prevention1 early detection surveillance1 and treatment for individuals continuing to receive systemic therapy after the end of active cancer treatment2 7,b7 such individuals' understanding of1 and access to1 treatment2 7,c7 survivorship research2 and 7,d7 the continuing health of cancer survivors4 7#ac7 ,an analysis of how different forms and stages of cancer may require the development of different survivorship plans and alternative payment models based on varying episodes of care4 7#ad7 ,a plan for testing any alternative payment model described in the report1 including the timing of such testing1 an analysis of the impact of such testing1 any barriers to implementing such testing1 and any other recommendations determined appropriate by the ,secretary4 #g4 ,survivorship navigation 7a7 ,review of programs and navigation study 7#a7 ,in general ,not later than #ah months after the date of enactment of this ,act1 the ,secretary shall-- 7,a7 complete a review of previous and current cancer survivorship navigation programs1 including any applicable standards of care such as those of the ,professional ,oncology ,navigation ,task ,force1 and the ,academy of ,oncology ,nurse ,patient ,navigators1 the ,oncology ,nursing ,society2 and 7,b7 submit a report to the ,congress on the results of such review4 7#b7 ,considerations ,in carrying out subsection 7a71 the ,secretary shall take into consideration each of the following3 7,a7 ,how cancer survivorship navigation program services might be provided from diagnosis across the continuum of care through survivorship1 taking into consideration-- 7i7 the type of navigation services that are most effective for survivors at the time of diagnosis2 and 7ii7 the type of navigation services that are most useful for survivors who are managing the late and long-term effects of cancer and cancer treatment4 7,b7 ,how navigation services might evolve over the continuum of care and how to encourage a dynamic navigation system4 7,c7 ,training needs for navigators4 7,d7 ,comparison and delineation of navigation services provided by lay and professional navigators4 7,e7 ,evaluation of optimal strategies for offering survivors navigation services and encouraging their utilization of such services4 7,f7 ,defining-- 7i7 the continuum of care during which services are provided2 and 7ii7 the nature of services for a long-term survivor4 7,g7 ,the location of navigation services 7such as whether such services should be provided as part of oncology practices or outside of oncology practices74 7,h7 ,federal financing for navigation services 7such as whether to finance such services through a grant program funded through annual discretionary appropriations74 7,i7 ,alternative delivery and payment models for cancer survivorship navigation services1 including consideration of-- 7i7 an episode-of-care model for providing cancer survivorship navigation services1 or a patient-focused navigation benefit that survivors could utilize in different settings1 with the navigation services meeting standards set by the ,secretary2 and 7ii7 services funded through the ,medicare and ,medicaid programs4 7,j7 ,resources and the role of patient advocacy organizations and peer support networks in cancer survivorship navigation services4 7b7 ,demonstration program for navigation services for cancer survivors 7#a7 ,in general ,the ,secretary shall carry out a demonstration program consisting of awarding grants to eligible entities to provide navigation services to cancer survivors4 7#b7 ,timing ,the ,secretary shall initiate the demonstration program under this subsection not later than #ab months after completing the review as required under subsection 7a77#a77;,a74 7#c7 ,eligible entities ,to be eligible to receive a grant under this subsection1 an entity shall-- 7,a7 have staff and expertise to provide navigation services2 and 7,b7 be-- 7i7 a community-based organization2 7ii7 a patient-centered education and service organization2 7iii7 a nonprofit patient or cancer advocacy organization2 7iv7 a community cancer provider2 7v7 a cancer center2 7vi7 a hospital2 7vii7 a community health center2 7viii7 a rural health clinic2 or 7ix7 another type of entity as the ,secretary determines appropriate4 7#d7 ,use of funds ,a recipient of a grant under this section shall use the grant to provide navigation services to cancer survivors1 including by-- 7,a7 offering navigation services from diagnosis through the continuum of care1 including long-term survivorship1 or offering navigation services from the end of active treatment with an emphasis on facilitating the transition from active treatment to long-term survivorship care and throughout survivorship2 7,b7 in a timely manner1 assisting cancer survivors to navigate cancer treatment and follow-up services1 such as screenings1 risk assessment1 mitigation1 health promotion activities1 providing health information and education1 coaching1 and support2 7,c7 addressing cancer care disparities in the design and delivery of services2 7,d7 ensuring coordination with the survivor's health care providers2 7,e7 following evidence-based survivorship care guidelines in the design and delivery of survivorship services2 7,f7 ensuring the delivery of culturally appropriate services and materials2 and 7,g7 assisting cancer survivors to meet and overcome barriers to treatment and follow-up services1 such as any such barriers relating to food insecurity1 housing1 transportation1 labor1 access to broadband connectivity1 the availability of telehealth1 or child care1 with emphasis placed on high-risk populations4 #h4 ,survivorship care demonstration program 7a7 ,in general ,the ,secretary shall carry out a demonstration program for a period of #e years consisting of awarding grants to improve the quality of cancer survivorship care4 7b7 ,timing ,the ,secretary shall initiate the demonstration program under this section not later than #a year after the date of enactment of this ,act4 7c7 ,demonstration sites ,the ,secretary shall ensure that grants are awarded under this section to improve the quality of cancer survivorship care at a wide diversity of sites1 including-- 7#a7 in urban1 suburban1 rural1 and ,tribal areas2 7#b7 in one or more territories of the ,united ,states2 and 7#c7 at cancer care sites including cancer centers1 academic health centers1 ,federally qualified health centers1 rural health clinics1 physician offices1 ,tribal organizations1 community-based health care providers1 and health care providers serving medically underserved communities4 7d7 ,areas of focus under the demonstration program ,the demonstration program under this section shall be designed to ensure the development of a variety of models for survivorship care that will permit evaluation of a variety of care strategies1 including-- 7#a7 utilization of navigators to assist survivors in obtaining survivorship care2 7#b7 employment of risk-stratification to better determine the nature and intensity of services that survivors require2 7#c7 transitions of care from cancer care providers to primary care providers1 through transition-of-care models that involve collaboration between cancer care specialists and primary care providers2 7#d7 the training needs of primary care providers to be better equipped to work with survivors in primary care settings2 7#e7 utilization of survivorship care plans to facilitate coordination of survivorship care2 7#f7 experimentation with providing cancer survivorship care at home2 7#g7 use of information technology to plan and coordinate care to improve the consistent identification1 collection1 and measurement of all forms of patient experience data1 including patient-reported outcomes of patient-reported symptoms and quality-of-life measures2 and 7#h7 expansion of existing successful models of survivorship care4 7e7 ,evaluation of demonstration program ,the ,secretary shall-- 7#a7 develop a plan for evaluating the projects that are conducted as part of the demonstration program under this section2 and 7#b7 not later than #ah months after the end of the #e-year demonstration program1 complete such evaluation and submit a report to the ,congress on the results of such evaluation4 7f7 ,authorization of appropriations ,to carry out this section1 there is authorized to be appropriated #bj1jjj1jjj for each of fiscal years #bjbd through #bjbh4 #i4 ,cancer survivor employment assistance program 7a7 ,in general ,the ,secretary of ,labor1 in consultation with the ,secretary of ,health and ,human ,services1 shall carry out a program to award grants to nonprofit organizations and other entities to provide education and targeted assistance-- 7#a7 to eligible cancer survivors facing barriers to employment1 including those who remain in the workforce during treatment1 those who reduce working hours while in treatment1 and those who reenter the workforce after a treatment-related departure2 and 7#b7 to the families and caregivers of such eligible cancer survivors4 7b7 ,program components ,the program under this section shall include the following3 7#a7 ,assistance1 career and training services1 and supportive services for eligible cancer survivors who stay in the workforce during treatment1 and for their families and caregivers1 including-- 7,a7 transportation assistance2 7,b7 childcare assistance2 7,c7 nutritional assistance2 7,d7 physical activity assistance2 7,e7 psychosocial assistance2 7,f7 financial assistance during a period of medical leave2 and 7,g7 other similar assistance4 7#b7 ,assistance and education for eligible cancer survivors who leave the workforce during treatment1 and for their families and caregivers1 including-- 7,a7 financial assistance during a period of medical leave2 7,b7 assistance with premiums for continuation coverage provided pursuant to part #f of subtitle ,b of title ,i of the ,employee ,retirement ,income ,security ,act of #aigd 7#bi ,u4,s4,c4 #aafa et seq471 title ,,xxii of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #cjj;bb-#a et seq471 or section #dihj;,b of the ,internal ,revenue ,code of #aihf 7#bf ,u4,s4,c4 #dihj;,b72 and 7,c7 career and training services1 including upskilling and reskilling1 for eligible cancer survivors who are not able to return to work after treatment4 7#c7 ,assistance1 career and training services1 and supportive services for eligible cancer survivors who are unable to work after a cancer diagnosis1 and their families and caregivers1 including-- 7,a7 assistance in applying for-- 7i7 supplemental security income benefits under title ,,xvi of the ,social ,security ,act 7#db ,u4,s4,c4 #acha et seq472 7ii7 disability insurance benefits under section #bbc of the ,social ,security ,act 7#db ,u4,s4,c4 #dbc72 7iii7 benefits under a ,state plan1 or waiver of such plan1 under title ,,xix of the ,social ,security ,act 7#db ,u4,s4,c4 #acif et seq472 7iv7 with respect to minimizing delays in eligibility before a cancer survivor becomes eligible for ,medicare coverage1 benefits under the ,medicare program under title ,,xviii of the ,social ,security ,act 7#db ,u4,s4,c4 #ahja et seq471 including with respect to enrolling in plans under part ,c or ,d of such title and supplemental plans under section #ahhb of such title2 7v7 ,state and private sector assistance programs for such cancer survivors2 and 7vi7 career and training services available under title ,i1 ,,ii1 or ,,iv of the ,workforce ,innovation and ,opportunity ,act 7#bi ,u4,s4,c4 #caja et seq472 and 7,b7 information on the eligibility of a cancer survivor1 and their families and caregivers1 for benefits or services described in any of clauses 7i7 through 7vi7 of subparagraph 7,a74 7c7 ,evidence-,based resources ,in carrying out this section1 the ,secretary of ,labor1 in consultation with the ,secretary of ,health and ,human ,services1 shall use evidence-based resources1 including-- 7#a7 nationally recognized evidence-based guidelines2 and 7#b7 other resources as determined by the ,secretary4 7d7 ,definitions ,in this section3 7#a7 ,the term eligible cancer survivor means a cancer survivor 7as defined in section #c7 who-- 7,a7 remains in the workforce during cancer treatment2 7,b7 reduces working hours during cancer treatment2 7,c7 reenters the workforce after a cancer treatment-related departure2 or 7,d7 leaves the workforce as the result of a cancer diagnosis or related complications4 7#b7 ,the term supportive services has the meaning given such term in section #c of the ,workforce ,innovation and ,opportunity ,act 7#bi ,u4,s4,c4 #cajb74 #aj4 ,comprehensive cancer survivorship program 7a7 ,in general ,the ,secretary shall carry out a comprehensive cancer survivorship program that includes-- 7#a7 a cancer survivorship resource center in accordance with subsection 7b7 to provide evidence-based resources to cancer survivors1 their families1 and their caregivers2 7#b7 a health care professional resource center in accordance with subsection 7c7 to assist and educate health care professionals in the delivery of high-quality survivorship care2 7#c7 an educational campaign in accordance with subsection 7d7 to provide health care professionals with resources to improve cancer survivorship care2 and 7#d7 a program of supportive care services in accordance with subsection 7e7 to improve the quality of life and long-term survivorship of cancer survivors4 7b7 ,cancer survivorship resource center 7#a7 ,establishment ,the ,secretary shall establish and operate a survivorship resource center 7in this subsection referred to as the ,center7 that serves as a comprehensive source of information and resources related to survivorship4 7#b7 ,timing ,not later than #b years after the date of enactment of this ,act1 the ,secretary shall establish and begin operation of the ,center4 7#c7 ,consultation ,in establishing and operating the ,center1 the ,secretary shall consult with cancer survivors1 patient organizations1 health professionals1 researchers1 health education organizations1 oncology professional societies and other medical societies1 community-based organizations1 and science education organizations regarding-- 7,a7 the information and resources that would assist cancer survivors in managing the survivorship experience and obtaining high-quality care across the continuum of care2 7,b7 gaps in such information and resources that need to be addressed to respond to the needs of cancer survivors2 and 7,c7 optimal strategies for ensuring that cancer survivors have access to the ,center1 including strategies that provide virtual options1 online resources1 and marketing4 7#d7 ,use of available evidence-based resources ,in establishing and operating the ,center1 the ,secretary shall1 with permission and attribution1 rely on and utilize the evidence-based materials and resources developed1 collected1 and distributed by cancer organizations4 7c7 ,health care professional resource center 7#a7 ,in general ,the ,secretary shall establish and operate a health care professional resource center 7in this subsection referred to as the ,center7 that serves as a comprehensive source of information and resources to assist health care professionals in the delivery of high-quality survivorship care4 7#b7 ,reference cancer survivorship guidelines ,in establishing and operating the ,center1 the ,secretary shall reference cancer survivorship guidelines developed by cancer care professional societies1 patient organizations1 research foundations1 and other health care professional societies in the development of materials related to survivorship care4 7#c7 ,support partnerships between cancer specialty societies and primary care provider organizations ,in establishing and operating the ,center1 the ,secretary shall facilitate collaboration between cancer care specialty societies and primary care provider organizations in the development of standards for survivorship care1 including standards for coordination of care and transitions of care from active treatment to long-term survivorship care4 7d7 ,campaign ,to educate survivors and health care professionals in survivorship care 7#a7 ,in general ,the ,secretary acting through the ,director of the ,centers for ,disease ,control and ,prevention 7in this subsection referred to as the ,secretary7 shall-- 7,a7 expand educational programs and services to-- 7i7 health care professionals2 and 7ii7 cancer survivors1 their families1 and caregivers2 and 7,b7 enhance the continuing medical education resources on cancer survivorship that are available to health care professionals4 7#b7 ,expand collaboration with ,comprehensive ,cancer ,control ,national ,partnership and other organizations for survivorship education and support 7,a7 ,in general ,the ,secretary shall expand collaborations with organizations that are part of the ,comprehensive ,cancer ,control ,national ,partnership and other organizations to focus on increasing education and awareness related to cancer survivorship through materials1 resources1 and other methods as necessary4 7,b7 ,collaborate with the organizations in the ,national ,partnership and other organizations ,the ,secretary shall collaborate with the organizations that are part of the ,comprehensive ,cancer ,control ,national ,partnership and other organizations to inform cancer survivors of survivorship monitoring and follow-up standards1 availability of survivorship care services1 and how to access these services4 7,c7 ,reference the survivorship standards of care developed and published by cancer organizations ,in collaboration with organizations that support the ,national ,comprehensive ,cancer ,control ,program1 the ,secretary shall-- 7i7 develop and implement a plan to distribute survivorship educational materials to ensure that such materials are accessible to all cancer survivors1 their families and caregivers1 and health care professionals2 and 7ii7 reference in such plan the survivorship standards of care developed and published by such organizations4 7#c7 ,continuing medical education 7,a7 ,development of programs 7i7 ,grants and contracts ,the ,secretary shall carry out a program of awarding grants and contracts to eligible entities to support the development of continuing medical education programs for survivorship care that utilize and rely on the guidelines for survivorship care developed and published by national organizations4 7ii7 ,timing ,not later than #ab months after the date of enactment of this ,act1 the ,secretary shall initiate the program required by clause 7i74 7,b7 ,grants for development of curriculum for survivorship continuing medical education 7i7 ,in general ,the ,secretary shall award grants to eligible entities for development of diverse1 equitable1 and culturally appropriate curricula for survivorship care curriculum for medical care4 7ii7 ,scope of curriculum ,to receive a grant under this section1 an applicant shall demonstrate its ability to develop survivorship care curriculum for medical care1 taking into consideration services from the legal1 social work1 public health1 behavioral sciences1 genetic1 epidemiology1 and nursing fields4 7,c7 ,eligible entities ,in this paragraph1 the term eligible entity includes a medical professional society1 a patient organization1 an academic institution1 a cancer center1 and any other entity with experience in continuing medical education for cancer professionals4 7#d7 ,public awareness campaign ,the ,secretary1 at an appropriate time after the availability of patient survivorship materials1 professional survivorship materials1 and continuing medical education programs under this subsection1 shall initiate a linguistically and culturally appropriate public awareness campaign that targets the organization's catchment area to ensure that cancer survivors1 their families and caregivers1 health care professionals1 and the public are aware of the scope of survivorship educational and informational resources available from the ,centers for ,disease ,control and ,prevention4 7e7 ,cancer survivorship quality-of-,life program 7#a7 ,in general ,the ,secretary acting through the ,director of the ,centers for ,disease ,control and ,prevention 7in this subsection referred to as the ,secretary7 shall carry out a program of awarding grants to eligible entities to provide services to cancer survivors to enhance their quality of life and improve their long-term survival rates4 ,not later than #ah months after the date of enactment of this ,act1 the ,secretary shall commence operating such program4 7#b7 ,eligible entity defined ,in this subsection1 the term eligible entity includes an entity that is-- 7,a7 a ,state comprehensive cancer program2 7,b7 a ,national ,cancer ,institute-designated cancer center or centers2 or 7,c7 a community-based organization1 including a patient advocacy organization1 that-- 7i7 has the capacity to reach cancer survivors through local1 ,state1 or national organizations2 and 7ii7 is focused on cancer survivors and strategies for meeting their needs related to their health and well-being4 7#c7 ,use of funds ,a grant received under this subsection shall be used to provide services to cancer survivors to enhance their quality of life and improve their long-term survival rates1 such as by assisting survivors to-- 7,a7 engage in moderate physical activity and other health-promoting activities1 including ceasing tobacco use and increasing consumption of healthy foods2 7,b7 increase access to services to mitigate anxiety1 depression1 and uncertainty2 7,c7 utilize community support services to fully implement survivorship care plans2 7,d7 access nutrition education and counseling2 and 7,e7 adhere to a schedule for1 and access1 screening for recurrence of cancer or the occurrence of other primary cancers4 7#d7 ,standards for application from eligible entities ,to seek a grant under this subsection1 an eligible entity shall submit an application1 at such time as may be required by the ,secretary1 that includes-- 7,a7 an explanation of how the entity will-- 7i7 provide cancer survivors access to cancer patient navigator services2 7ii7 overcome barriers to care for communities of color and multilingual communities2 7iii7 provide culturally competent care2 and 7iv7 work with and support caregivers of cancer survivors2 7,b7 a description of how the entity receives referrals of cancer survivors from health care professionals1 including health care professionals serving historically disadvantaged and underserved communities2 7,c7 documentation of the curriculum that will be used for providers in the program1 including mechanisms to update the staff on curriculum changes2 and 7,d7 an agreement to provide the ,secretary semiannual reports on-- 7i7 the number of participants served2 7ii7 quality-of-life measures for participants2 and 7iii7 plans for fostering communication between oncology and non-oncology providers serving participants4 7#e7 ,responsibilities of the ,secretary ,the ,secretary shall-- 7,a7 conduct outreach to inform health care professionals of the availability of programs and activities funded under this subsection2 7,b7 analyze the data submitted by grantees under this subsection to determine the number of cancer survivors served and the impact of the program under this subsection on their quality of life2 and 7,c7 share best practices among all grantees under this subsection4 #aa4 ,adult cancer survivorship study 7a7 ,in general ,not later than #ah months after the date of enactment of this ,act1 the ,secretary shall complete a landscape analysis that-- 7#a7 assesses the potential benefits of an adult version of the ,childhood ,cancer ,survivor ,study2 7#b7 assesses the financial costs and other burdens associated with an adult cancer survivor study2 7#c7 identifies sources of data on adult cancer survivors2 7#d7 identifies gaps in data on adult cancer survivors1 compared to data collected in the ,childhood ,cancer ,survivor ,study2 and 7#e7 identifies strategies to publish data on adult cancer survivors derived from research that is conducted or supported by the ,national ,cancer ,institute1 in a manner that is accessible to cancer survivors1 health care professionals1 researchers1 and the public4 7b7 ,report ,not later than #f months after the date of completion of the landscape analysis under subsection 7a71 the ,secretary shall submit to the ,congress a report on the results of such landscape analysis4 #ab4 ,survivorship progress report 7a7 ,in general ,not later than #f months after the date of enactment of this ,act1 the ,secretary shall enter into an agreement with the ,government ,accountability ,office to conduct a study of the progress made in cancer survivorship over the period beginning on the date of enactment of the ,national ,cancer ,act of #aiga 7,public ,law #ib-baf74 7b7 ,scope of the study ,the study under subsection 7a7 shall investigate developments over the period described in subsection 7a7 in-- 7#a7 the nature and quality of survivorship care2 7#b7 transitions from active treatment to survivorship care2 7#c7 the quality of life of cancer survivors2 7#d7 outcomes for cancer survivors2 7#e7 disparities in access to care and survivorship outcomes2 7#f7 the health care systems for providing survivorship care2 7#g7 the contribution of community-based services to the survivorship care system2 and 7#h7 payment for survivorship care by public and private third-party payors4 7c7 ,role of ,office of ,cancer ,survivorship ,the study under subsection 7a7 shall-- 7#a7 consider the contribution of the ,office of ,cancer ,survivorship to the evolution of cancer survivorship care over the last #be years2 and 7#b7 assess the impact of the mission of the ,office and the resources provided to the ,office on its leadership in cancer survivorship care4 7d7 ,public meeting ,in conducting the study under subsection 7a71 the ,comptroller ,general of the ,united ,states shall hold a public meeting with a broad cross section of stakeholders to inform the study's findings and conclusions4 ,such stakeholders shall include-- 7#a7 cancer survivors and their caregivers and families2 7#b7 patient organizations representing cancer survivors2 7#c7 oncologists involved in survivorship care and the professional societies representing them2 7#d7 primary care providers involved in survivorship care and the professional societies representing them2 7#e7 other health professionals providing survivorship care and the professional societies representing them2 7#f7 community-based organizations involved in survivorship care2 7#g7 representatives of the ,national ,cancer ,institute2 7#h7 third-party payors2 7#i7 researchers engaged in survivorship research2 7#aj7 epidemiologists with knowledge of trends in cancer survivorship2 and 7#aa7 such other stakeholders as the ,comptroller ,general deems important to participate in the public meeting4 7e7 ,report ,the ,comptroller ,general of the ,united ,states shall-- 7#a7 release a report on the results of the study under subsection 7a72 and 7#b7 in addition to the public meeting convened under subsection 7d7-- 7,a7 convene another public meeting to be held on the day of the release of the report2 and 7,b7 include in such meeting all categories of stakeholders listed in subsection 7d74 #ac4 ,promoting ,state innovations to ease transitions to the primary care setting for children with cancer 7a7 ,stakeholder group development of best practices2 ,state ,medicaid and ,,chip program innovation 7#a7 ,stakeholder group best practices ,not later than #ab months after the date of the enactment of this ,act1 the ,secretary of ,health and ,human ,services 7in this section referred to as the ,secretary7 shall convene a stakeholder group of representatives of childhood cancer advocacy organizations1 ,medicaid and ,,chip beneficiaries1 providers with childhood cancer pediatric expertise1 the ,national ,association of ,medicaid ,directors1 and other relevant representatives to develop best practices 7and submit to the ,secretary and ,congress a report on such best practices7 for ,states to ease the transition from active oncological care to primary care of children or adolescents with cancer1 including best practices for ensuring development of and delivery of summary of care and survivorship care plans to patients1 families1 and primary care providers1 and best practices for such transitions occurring under the ,state ,medicaid plan under title ,,xix of the ,social ,security ,act 7#db ,u4,s4,c4 #acif et seq47 or ,state child health plan under title ,,xxi of such ,act 7#db ,u4,s4,c4 #acig;aa et seq471 as applicable4 ,such best practices shall include-- 7,a7 design of models of follow-up care1 monitoring1 and other survivorship programs 7including peer support and mentoring programs72 7,b7 development of models for providing multidisciplinary care2 7,c7 dissemination of information to health care providers about culturally and linguistically appropriate follow-up care for cancer survivors and their families1 as appropriate and practicable2 and 7,d7 dissemination of the information and programs described in clauses 7i7 through 7iii7 to other health care providers 7including primary care physicians and internists7 and to cancer survivors and their families1 where appropriate and in accordance with ,federal and ,state law4 7#b7 ,state ,medicaid and ,,chip program innovation ,the ,secretary shall work with ,states on innovative strategies1 based on the best practices identified under the process described in subsection 7a77#a71 to ease the transition from active oncological care to primary care of child or adolescent with cancer ensuring development of and delivery of survivorship care plans to patients1 families1 and primary care providers and transition coverage under the ,state ,medicaid plan under title ,,xix of the ,social ,security ,act 7#db ,u4,s4,c4 #acif et seq47 or ,state child health plan under title ,,xxi of such ,act 7#db ,u4,s4,c4 #acig;aa et seq471 as applicable4 7#c7 ,nonapplication of ,federal ,advisory ,committee ,act ,the ,federal ,advisory ,committee ,act 7#e ,u4,s4,c4 ,app47 shall not apply to the stakeholder group convened under paragraph 7#a74 7b7 ,guidance on innovative service delivery systems demonstration project opportunities ,not later than #a year after the date the stakeholder group is convened under subsection 7a71 the ,secretary of ,health and ,human ,services shall issue guidance to ,state health officials1 based on best practices developed under subsection 7a77#a71 regarding opportunities to improve care transitions for children and adolescents with cancer who transition from oncological care to primary care and who are otherwise eligible to receive medical assistance under title ,,xix of such ,act 7#db ,u4,s4,c4 #acif et seq47 or title ,,xxi of such ,act 7#db ,u4,s4,c4 #acig;aa et seq474 #ad4 ,childhood cancer demonstration model and standard of care ,section #aaae;,a7b77#b7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acae;a7b77#b77 is amended-- 7#a7 in subparagraph 7,a71 by striking the period at the end and inserting 1 and shall include the model described in clause 7xxviii7 of such subparagraph42 and 7#b7 in subparagraph 7,b71 by adding at the end the following new clause3 7xxviii7 ,a local service delivery and ,state payment model for individuals up to age #ba enrolled under a ,state plan 7or waiver of such plan7 under title ,,xix or a ,state child health plan 7or waiver of such plan7 under title ,,xxi of such ,act 7#db ,u4,s4,c4 #acig;aa et seq47 who have been diagnosed with cancer and who are in the survivorship phase of their treatment4 ,such model shall-- 7,i7 provide for the creation of a survivorship plan1 that can be integrated into an electronic health record1 for such individuals and disseminate the plan to such individuals1 families of such individuals1 and the health providers of such individuals2 7,,ii7 offer ,states and local providers technical assistance to develop and implement different survivorship care planning services2 7,,iii7 develop a standard of care based on the ,children's ,oncology ,group 7,,cog7 ,long-,term ,follow-,up ,guidelines for ,survivors of ,childhood1 ,adolescent1 and ,young ,adult ,cancers to manage the transition of such individuals from active treatment to general care with the informed knowledge of such individuals2 and 7,,iv7 provide incentives to health care providers for treating such individuals through such model that includes at least two survivorship care planning visits4 4 #ae4 ,medicaid coverage of cancer fertility services for cancer survivors 7a7 ,medicaid 7#a7 ,mandatory coverage ,section #aijb7;a77#aj7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acif;a7 is amended-- 7,a7 in subparagraph 7,f71 by striking 2 and and inserting a semicolon2 7,b7 in subparagrah 7,g71 by adding at the end and2 and 7,c7 by inserting after subparagraph 7,g7 the following new subparagraph3 7,h7 notwithstanding section #aijb7;a77#aj77;,b7 7relating to comparability71 for making medical assistance available for cancer fertility services 7as defined in subsection 7jj772 2 and 7#b7 ,definition ,section #aije of the ,social ,security ,act 7#db ,u4,s4,c4 #acif;d7 is amended by adding at the end the following new subsection3 7jj7 ,cancer fertility services 7#a7 ,definition ,for purposes of section #aijb7;a77#aj77;,h7 and this subsection1 the term cancer fertility services-- 7,a7 means fertility treatment and fertility preservation services for individuals diagnosed with cancer who-- 7i7 are undergoing treatment for such cancer where such treatment may lead to iatrogenic infertility2 7ii7 previously underwent such treatment and may be at risk of such infertility due to such treatment2 or 7iii7 are preparing to undergo such treatment where such treatment may lead to such infertility2 and 7,b7 includes-- 7i7 other services1 including experimental and non-experimental services to preserve fertility or treat infertility 7as determined by the ,secretary1 consistent with established medical practices and professional guidelines published by the ,american ,society for ,reproductive ,medicine1 the ,american ,society of ,clinical ,oncology1 or other professional medical organizations specified by the ,secretary72 and 7ii7 long-term storage costs-- 7,i7 with respect to individuals under the age of #ah1 for a period of not less than #ae years2 and 7,,ii7 with respect to individuals age #ah or older1 for a period of not less than #aj years4 7#b7 ,exception for territories ,notwithstanding any other provision of this title1 in the case of a ,state 7other than the #ej ,states and the ,district of ,columbia71 the requirement stated in section #aijb7;a77#aj77;,h7 shall be optional4 4 7#c7 ,prohibition on cost-sharing 7,a7 ,in general ,section #aiaf of the ,social ,security ,act 7#db ,u4,s4,c4 #acifo7 is amended-- 7i7 in subsection 7a77#b7-- 7,i7 in subparagraph 7,i71 by striking at the end 1 or and inserting a semicolon2 7,,ii7 in subparagraph 7,j71 by striking at the end 2 and and inserting 2 or2 and 7,,iii7 by adding at the end the following new subparagraph3 7,k7 cancer fertility services 7as defined in section #aije7;jj772 and 2 and 7ii7 in subsection 7b77#b7-- 7,i7 in subparagraph 7,i71 by striking at the end 1 or and inserting a semicolon2 7,,ii7 in subparagraph 7,j71 by striking at the end 2 and and inserting 2 or2 and 7,,iii7 by adding at the end the following new subparagraph3 7,k7 cancer fertility services 7as defined in section #aije7;jj772 and 4 7,b7 ,application to alternative cost-sharing ,section #aiaf;,a7b77#c77;,b7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acifo-#a7;b77#c77;,b77 is amended by adding at the end the following new clause3 7xv7 ,cancer fertility services 7as defined in section #aije7;jj774 4 7b7 ,,chip 7#a7 ,in general ,section #bajc7;c7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acig;cc7c77 is amended-- 7,a7 by redesignating the paragraph 7#ab7 added by section #aadje7;b77#a7 of ,public ,law #aag-afi as paragraph 7#ac72 and 7,b7 by inserting after paragraph 7#aa7 the following new paragraph3 7#ab7 ,required coverage of cancer fertility services for cancer survivors ,regardless of the type of coverage elected by a ,state under subsection 7a71 the child health assistance provided for a targeted low-income child1 and1 in the case of a ,state that elects to provide pregnancy-related assistance pursuant to section #baab1 the pregnancy-related assistance provided for a targeted low-income pregnant woman 7as such terms are defined for purposes of such section71 shall include coverage of cancer fertility services 7as described in section #aije7;jj774 4 7#b7 ,prohibition on cost-sharing ,section #bajc7;e77#b7 of the ,social ,security ,act 7#db ,u4,s4,c4 #acig;cc7e77#b77 is amended-- 7,a7 in the heading1 by inserting cancer fertility services1 after covid-#ai treatment12 and 7,b7 by inserting cancer fertility services 7as described in section #aije7;jj771 after testing or treatments described in section #aiaf7;a77#b77;,i7 furnished during the period described in such section14 7#c7 ,effective date ,the amendment made by paragraph 7#a77;,a7 shall take effect on ,october #a1 #bjbc4 7c7 ,effective date ,the amendments made by this section 7other than the amendment made by subsection 7b77#a77;,a77 shall apply with respect to medical assistance1 child health assistance1 and pregnancy-related assistance furnished on or after the date that is #ah months after the date of the enactment of this ,act4