,,ii #aahth ,,congress #ast ,session ,s4 #bahc ,,in ,,the ,,senate ,,of ,,the ,,united ,,states ,june #bb1 #bjbc ,mr4 ,schatz 7for himself1 ,mr4 ,moran1 and ,ms4 ,hirono7 introduced the following bill2 which was read twice and referred to the ,committee on ,armed ,services ,a ,,bill ,to require the ,secretary of ,health and ,human ,services to establish an exposure registry and conduct epidemiological studies to assess health outcomes associated with the ,red ,hill ,incident4 #a4 ,short title ,this ,act may be cited as the ,red ,hill ,health ,impact ,act4 #b4 ,registry for impacted individuals of the ,red ,hill ,incident 7a7 ,establishment of registry ,the ,secretary of ,health and ,human ,services 7referred to in this section as the ,secretary7 shall establish within the ,agency for ,toxic ,substances and ,disease ,registry or the ,centers for ,disease ,control and ,prevention or through an award of a grant or contract1 as the ,secretary determines appropriate1 a ,red ,hill ,incident exposure registry to collect data on health implications of petroleum-contaminated water for impacted individuals on a voluntary basis4 ,such registry shall be complementary to1 and not duplicative of1 the ,red ,hill ,incident ,report of the ,defense ,occupational and ,environmental ,health ,readiness ,system4 7b7 ,other responsibilities 7#a7 ,in general ,the ,secretary1 in coordination with the ,director of the ,centers for ,disease ,control and ,prevention1 and in consultation with the ,secretary of ,defense1 the ,secretary of ,veterans ,affairs1 and such ,state and local authorities or other partners as the ,secretary of ,health and ,human ,services considers appropriate1 shall-- 7,a7 review the ,federal programs and services available to individuals exposed to petroleum2 7,b7 review current research on petroleum exposure in order to identify additional research needs2 7,c7 identify effective services1 individuals and communities affected by petroleum-contaminated water2 and 7,d7 undertake any other review or activities that the ,secretary determines to be appropriate4 7#b7 ,report ,not later than #a year after the date of enactment of this ,act1 and annually thereafter for #f additional years1 the ,secretary shall submit to the appropriate congressional committees a report on the review and activities undertaken under paragraph 7#a7 that includes-- 7,a7 strategies for communicating and engaging with stakeholders on the ,red ,hill ,incident2 7,b7 the number of impacted and potentially impacted individuals enrolled in the registry established under subsection 7a72 7,c7 processes for referring such registry enrollees to comprehensive1 coordinated services to mitigate the effects of petroleum exposure2 7,d7 measures and frequency of follow-up to collect data and specimens related to exposure1 health1 and developmental milestones as appropriate2 and 7,e7 a summary of data and analyses on exposure1 health1 and developmental milestones for impacted individuals4 7#c7 ,consultation ,in carrying out paragraphs 7#a7 and 7#b71 the ,secretary shall consult with non-,federal experts1 including individuals with certification in epidemiology1 toxicology1 mental health1 pediatrics1 and environmental health1 and members of the impacted community4 7c7 ,funding ,without regard to section #bbae of title #aj1 ,united ,states ,code1 the ,secretary of ,defense is authorized to provide1 from amounts made available to such ,secretary1 such sums as may be necessary for each of fiscal years #bjbd through #bjcj for the ,secretary of ,health and ,human ,services to carry out this section4 #c4 ,red ,hill epidemiological health outcomes study 7a7 ,in general ,the ,secretary of ,health and ,human ,services1 in consultation with the ,secretary of ,defense1 the ,secretary of ,veterans ,affairs1 and such ,state and local health authorities or other partners as the ,secretary of ,health and ,human ,services considers appropriate1 shall conduct an epidemiological study or studies for a period of not less than #bj years to assess health outcomes for impacted individuals of the ,red ,hill ,incident4 7b7 ,additional contracts ,the ,secretary of ,health and ,human ,services may contract with independent research institutes or consultants1 nonprofit or public entities1 laboratories1 or medical schools1 as the ,secretary considers appropriate1 that are not part of the ,federal ,government to assist with the feasibility assessment required by subsection 7d7 and the study or studies under subsection 7a74 7c7 ,funding ,without regard to section #bbae of title #aj1 ,united ,states ,code1 the ,secretary of ,defense is authorized to provide1 from amounts made available to such ,secretary1 no less than #d1jjj1jjj for fiscal year #bjbd for the ,secretary of ,health and ,human ,services to carry out the assessment under subsection 7d71 and such sums as may be necessary to complete the study or studies under subsection 7a74 7d7 ,feasibility assessment ,not later than one year after the date of the enactment of this ,act1 the ,secretary of ,health and ,human ,services shall submit to the appropriate congressional committees the results of a feasibility assessment to inform the design of the epidemiological study or studies to assess health outcomes for impacted individuals and a plan for such study or studies under subsection 7a71 which may include-- 7#a7 a strategy to recruit impacted individuals to participate in the study or studies1 including incentives for participation2 7#b7 a description of protocols and methodologies to assess health outcomes from the ,red ,hill ,incident1 including data management protocols to secure the privacy and security of the personal information of impacted individuals2 and 7#c7 the periodicity for data collection that takes into account the differences between health care practices among impacted individuals who are-- 7,a7 members of the ,armed ,forces on active duty or spouses or dependents of such members2 7,b7 members of the ,armed ,forces separating from active duty or spouses or dependents of such members2 7,c7 veterans and other individuals with access to health care from the ,department of ,veterans ,affairs2 and 7,d7 individuals without access to health care from the ,department of ,defense or the ,department of ,veterans ,affairs2 7#d7 a description of methodologies to analyze data received from the study or studies to determine possible connections between exposure to water contaminated during the ,red ,hill ,incident and adverse impacts to the health of impacted individuals2 7#e7 an identification of exposures resulting from the ,red ,hill ,incident that may qualify individuals to be eligible for participation in the study or studies as a result of those exposures2 and 7#f7 steps that will be taken to provide individuals impacted by the ,red ,hill ,incident with information on available resources and services4 7e7 ,potentially impacted individuals 7#a7 ,in general ,the ,secretary of ,health and ,human ,services may enlarge the scope of the study or studies under subsection 7a7 to include potentially impacted individuals based on-- 7,a7 the request of a potentially impacted individual1 as applicable2 7,b7 the recommendation of the ,secretary of ,defense1 the ,secretary of ,veterans ,affairs1 or any contracted party under subsection 7b72 7,c7 the exposures identified in subsection 7d77#e72 or 7,d7 other exigent circumstances4 7#b7 ,treatment of potentially impacted individuals ,if1 under paragraph 7#a71 the ,secretary enlarges the scope of the study or studies under subsection 7a71 potentially impacted individuals shall be treated as impacted individuals for purposes of this section4 7f7 ,notifications2 briefings 7#a7 ,in general ,not later than one year after the completion of the feasibility assessment under subsection 7d71 and annually thereafter1 the ,secretary of ,health and ,human ,services shall-- 7,a7 notify impacted individuals on the interim findings of the study or studies2 and 7,b7 brief the appropriate congressional committees on the interim findings of the study or studies4 7#b7 ,final notification ,upon completion of the study or studies under subsection 7a71 the ,secretary of ,health and ,human ,services shall notify the appropriate congressional committees and all impacted individuals of the completion of the study or studies and the publication of the final report under subsection 7g77#b74 7g7 ,reports 7#a7 ,annual reports ,not later than one year after the date of the commencement of the study or studies under subsection 7a71 and annually thereafter1 the ,secretary of ,health and ,human ,services shall publish on the website of the ,department of ,health and ,human ,services a report on the interim findings of the study or studies4 7#b7 ,final report ,upon completion of the study or studies under subsection 7a71 the ,secretary of ,health and ,human ,services-- 7,a7 shall publish on a publicly available internet website of the ,department of ,health and ,human ,services a report on the findings of the study or studies2 and 7,b7 may publish such report in a scientific publication4 #d4 ,definitions ,in this ,act3 7#a7 ,appropriate congressional committees ,the term appropriate congressional committees means-- 7,a7 the ,committee on ,health1 ,education1 ,labor1 and ,pensions of the ,senate2 7,b7 the ,committee on ,armed ,services and the ,subcommittee on ,defense of the ,committee on ,appropriations of the ,senate2 7,c7 the ,committee on ,veterans' ,affairs of the ,senate2 7,d7 the ,committee on ,energy and ,commerce of the ,house of ,representatives2 7,e7 the ,committee on ,armed ,services and the ,subcommittee on ,defense of the ,committee on ,appropriations of the ,house of ,representatives2 and 7,f7 the ,committee on ,veterans' ,affairs of the ,house of ,representatives4 7#b7 ,impacted individual ,the term impacted individual means an individual who1 at the time of the ,red ,hill ,incident1 lived or worked in a building or residence served by the community water system at ,joint ,base ,pearl ,harbor-,hickam1 ,oahu1 ,hawaii4 7#c7 ,red ,hill ,incident ,the term ,red ,hill ,incident means the release of fuel from the ,red ,hill ,bulk ,fuel ,storage ,facility1 ,oahu1 ,hawaii1 into the sole-source basal aquifer located #ajj feet below the facility1 contaminating the community water system at ,joint ,base ,pearl ,harbor-,hickam on ,november #bj1 #bjba4