,,ii #aah? ,,congress #a/ ,session ,s4 #aiid ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,june #ad1 #bjbc,mr4 ,kelly 7= himself & ,mr4 ,tillis7 introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,vet]ans' ,affairs ,a ,,bill ,to am5d title #ch1 ,unit$ ,/ates ,code1 to require m$ical facilities ( ! ,dep>tm5t ( ,vet]ans ,affairs to %>e c]ta9 data ) ,/ate canc] regi/ries1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,c\nt+ ,vet]ans' ,canc] ,act ( #bjbc4 #b4 ,f9d+s & purpose 7a7 ,f9d+s ,congress f9ds ! foll[+3 7#a7 ,accord+ to #bjag data f ,national ,program ( ,canc] ,regi/ries ( ! ,c5t]s = ,disease ,control & ,prev5tion1 approximately #bf1ejj canc] cases among vet]ans 7 n report$ to ,/ate canc] regi/ries fund$ ?r\gh su* ,program4 7#b7 ,e/abli%$ by ,congress 9 #aiib ?r\gh ! ,canc] ,regi/ries ,am5dm5t ,act 7,public ,law #ajb-eae71 ! ,national ,program ( ,canc] ,regi/ries "u section #cii;,b ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;e7 collects data on canc] occurr5ce 7includ+ ! type1 ext5t1 & location ( ! canc]71 ! type ( initial treatm5t1 & outcomes4 7#c7 ,! ,c5t]s = ,disease ,control & ,prev5tion support c5tral canc] regi/ries 9 #df ,/ates1 ! ,di/rict ( ,columbia1 ,pu]to ,rico1 c]ta9 t]ritories ( ! ,unit$ ,/ates 9 ! ,pacific ,isl&s1 & ! ,unit$ ,/ates ,virg9 ,isl&s4 7#d7 ,! data obta9$ by regi/ries describ$ 9 p>agraph 7#c7 comb9$ ) data f ! ,surveillance1 ,epidemiology1 & ,end ,results ,program ( ! ,national ,canc] ,in/itute & mortality data f ,national ,c5t] = ,heal? ,/ati/ics ( ! ,c5t]s = ,disease ,control & ,prev5tion comprise ! (ficial ,unit$ ,/ates ,canc] ,/ati/ics4 7#e7 ,! ,unit$ ,/ates ,canc] ,/ati/ics reflect all newly diagnos$ canc] cases & canc] dea?s = ! entire population ( ! ,unit$ ,/ates1 except = unreport$ vet]ans4 7#f7 ,f$]al law requires ! ,c5t]s = ,disease ,control & ,prev5tion & ! ,national ,canc] ,in/itute to collect canc] data = all newly diagnos$ canc] cases1 b t curr5tly _c be a*iev$ due to frequ5t lack ( report+ by m$ical facilities ( ! ,dep>tm5t ( ,vet]ans ,affairs4 7#g7 ,releas+ all data f m$ical facilities ( ! ,dep>tm5t to ,/ate canc] regi/ries w provide m complete data = heal? c>e provid]s1 public heal? (ficials1 & rese>*]s to-- 7,a7 measure canc] occurr5ce & tr5ds at ! local & national level2 7,b7 in=m & prioritize canc] educational & scre5+ programs2 7,c7 evaluate efficacy ( prev5tion ef=ts & treatm5t2 7,d7 det]m9e survival rates2 7,e7 conduct rese>* on ! etiology1 diagnosis1 & treatm5t ( canc]2 7,f7 ensure quality & equity 9 canc] c>e2 & 7,g7 plan = heal? s]vices4 7#h7 ,captur+ canc] data f m$ical facilities ( ! ,dep>tm5t 9 ,/ate canc] regi/ries & ! ,unit$ ,/ates ,canc] ,/ati/ics c b5efit vet]ans by-- 7,a7 improv+ ! ability to id5tify canc]-relat$ disp>ities 9 ! vet]an community2 7,b7 improv+ und]/&+ ( ! canc]-relat$ ne$s ( vet]ans1 :i* c be incorporat$ into ,/ate ,compreh5sive ,canc] ,control plann+ = scre5+ & treatm5t programs fund$ by ! ,c5t]s = ,disease ,control & ,prev5tion2 & 7,c7 increas+ opportunities = vet]ans ) canc] to be includ$ 9 m cl9ical trials & canc]-relat$ rese>* & analysis be+ done outside ( ! heal? c>e sy/em ( ! ,dep>tm5t4 7b7 ,purpose ,x is ! purpose ( ?is ,act to improve c>e = vet]ans by ensur+ all data on vet]ans diagnos$ ) canc] are captur$ by ! national canc] regi/ry programs support$ by ! ,national ,program ( ,canc] ,regi/ries ( ! ,c5t]s = ,disease ,control & ,prev5tion & ! ,surveillance1 ,epidemiology1 & ,end ,results ,program ( ! ,national ,canc] ,in/itute4 #c4 ,requirem5t t ,dep>tm5t ( ,vet]ans ,affairs %>e data ) ,/ate canc] regi/ries 7a7 ,%>+ ( data ) ,/ate canc] regi/ries 7#a7 ,9 g5]al ,sub*apt] ,,ii ( *apt] #gc ( title #ch1 ,unit$ ,/ates ,code1 is am5d$ by add+ at ! end ! foll[+ new section3 #gccj;,e4 ,%>+ ( data ) ,/ate canc] regi/ries 7a7 ,%>+ by ! ,dep>tm5t 7#a7 ,9 g5]al ,! ,secret>y %all %>e ) ! ,/ate canc] regi/ry ( ea* ,/ate1 if su* a regi/ry exi/s1 qualify+ data = all individuals :o are resid5ts ( ! ,/ate & h receiv$ heal? c>e "u ! laws adm9i/]$ by ! ,secret>y4 7#b7 ,requirem5ts relat+ to data %>$ ,9 %>+ data "u p>agraph 7#a7 ) a ,/ate canc] regi/ry1 ! ,secret>y %all comply ) ! requirem5ts = non-,dep>tm5t facilities to report data1 9 a mann] t is z complete & timely z possible1 )\t requir+ a data use agreem5t 9 place betwe5 ! ,dep>tm5t & ea* ,/ate canc] regi/ry-- 7,a7 to ,/ate canc] regi/ries t are support$ by ! ,national ,program ( ,canc] ,regi/ries ( ! ,c5t]s = ,disease ,control & ,prev5tion "u section #cii;,b ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;e72 7,b7 to ,/ate canc] regi/ries t are support$ by ! ,surveillance ,epidemiology & ,end ,results ,program ( ! ,national ,canc] ,in/itute au?oriz$ "u ! ,national ,canc] ,act ( #aiga 7,public ,law #ib-bah72 & 7,c7 to ,/ate canc] regi/ries z set =? 9 relevant ,/ate laws & regulations t au?orize a canc] regi/ry4 7b7 ,qualify+ data def9$ ,9 ?is section1 ! t]m qualify+ data1 ) respect to a ,/ate canc] regi/ry1 means all data requir$ to be provid$ to ! regi/ry pursuant to ! au?orities specifi$ 9 subp>agraphs 7,a7 ?r\gh 7,c7 ( subsection 7a77#b74 4 7#b7 ,cl]ical am5dm5t ,! table ( sections at ! beg9n+ ( sub*apt] ,,ii ( su* *apt] is am5d$ by ins]t+ aft] ! item relat+ to section #gccj;,d ! foll[+ new item3 #gccj;,e4 ,%>+ ( data ) ,/ate canc] regi/ries4 4 7b7 ,%>+ by ,/ate canc] regi/ries ,! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion %all assi/ ,/ate canc] regi/ries describ$ 9 subp>agraphs 7,a7 & 7,b7 ( section #gccj;,e7a77#b7 ( title #ch1 ,unit$ ,/ates ,code1 z add$ by subsection 7a77#a71 9 facilitat+1 to ! ext5t all[$ "u ,/ate laws regulat+ ! canc] regi/ry program1 ! %>+ ) ! ,secret>y ( ,vet]ans ,affairs ( data 9 ! possession ( ea* su* regi/ry reg>d+ diagnosis ( canc] = ea* vet]an-- 7#a7 enroll$ 9 ! sy/em ( annual pati5t enrollm5t e/abli%$ & op]at$ "u section #agje7;a7 ( su* title2 or 7#b7 regi/]$ to receive c>e f ! ,dep>tm5t ( ,vet]ans ,affairs "u section #ag4cg ( title #ch1 ,code ( ,f$]al ,regulations1 or successor regulations4